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DH Diagnosed with Young Alzheimer’s
Hello! I am new here. My husband was just recently diagnosed with Young Onset Alzheimer’s. He is only 55 (as am I). He was misdiagnosed for the last 4 years with Pseudo Denentia (meaning he was having memory issues to do this severe depression that came on suddenly). I had to have DH hospitalized for the depression 4 times…
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Early onset dementia webinar
From Michael Ellenbogen: On September 16, 2024, from 2:00-3:00 p.m. ET, the National Alzheimer’s and Dementia Resource Center will host the webinar, The Experience of Younger Onset Alzheimer’s Disease and the Importance of Community Support. A description of the webinar and registration information follows. Living with…
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Mom with lewy body dementia
My mother is in the nursing home which she hates. She has terrible hallucinations of men with long white beards and no teeth who torture her every waking moment. She says they pull her hair out and spray powder in the air where she can't breathe. She says they make her hands and knees hurt. She has rheumatoid arthritis.…
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NPH and dementia unspecified
Happy Sunday all caregivers. Just wondering if anyone else has NPH diagnosis for their loved one. My mom has this ( I’ve posted a lot about it on the Caring for a Parent forum.). I finally scheduled shunt surgery and she refused. It’s the ONLY treatment available for what she has. The Neurosurgery physician assistant…
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Post surgery symptoms and medications
My DH was diagnosed with AD in Jan '24. I started noticing problems a year before that, when he couldn't seem to comprehend things that were being said to him, couldn't remember who he'd talked to on the phone or what had been said, got very upset and cried about things very easily, said he felt like he was losing his…
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Just finished tests
I guess Iam in denial but the MRI and other tests don’t show anything abnormal. My dh has a score of 22 on cognitive test so our gp wants him to take aircept. I know you have all been down this path but it’s just so vague. Is this all there is to this. I guess we just start down the path. Very strange a devastating disease…
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MC Facilities questions
my kids driving me crazy to get plan if something happens to me, my wife is not in bad shape with Dementia other then short term and confused otherwise you wouldn’t know. Question kids ask can you be put on waiting list when it’s really not needed ????
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Scared
Hi everybody. My loved one with Alzheimer's Disease is my dear mama and I am her main caretaker. I've posted a few times already in here and the support that I receive means more than any of you could possibly know. Todays discussion is just me talking about how scared I am about off this. I mean, when I was a kid and I…
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My husband was in the hospital. Again.
I can only write this post because my husband was just released from his second hospitalization in a month. Last Friday,after he had been at memory care for only seven days,I I got a call from the nurse. She said my husband was running into walls and doors deliberately, and if he didn’t stop, she’d have to send him out. An…
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Early Onset Webinar
I just watched the Early Onset webinar that Lane Simonian had posted from Michael Ellenbogen. Most of the information is what is discussed here all the time, about signs and symptoms, having to leave work, and isolation. There were suggestions about setting up a support group. Here are some websites. The webinar itself may…
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I need help finding
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DH is diabetic, has a sweet tooth
added problem with DH with Dementia is diabetic, lately he sneaks in the kitchen & will eat anything sweet, icecream, candy etc, shoots his diabetes up! i hid the cookies, wont order any more ice-cream,, its hard to keep an eye all day & night. Would rather not put a lock on the cupboard & fridge ! anyone else facing this…
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What kind of safety gate should I use?
My husband is in stage 5-6, still very fit physically. I need to keep him from going upstairs, to prevent falls on the steps. Has anyone found a good 'baby gate' for this? I have solid wood to attach to at the base of the stairs. The latch has to be complex enough that he can't easily open, and it has to be sturdy enough…
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AL nurse told mom she has dementia
I went to visit Mom today. It seems she asked the AL nurse what was wrong with her, why couldn't she remember things. The AL nurse told her all that was wrong was she had dementia. Really- why would she tell her that? And why would Mom all of a sudden latch onto it and remember it long enough to tell me? The doctors told…
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Wanting to go home, when we are home
Everyday my 80 year old husband with moderate dementia, wants to know how he is going to get home. We live in a home in the same community that we have had several houses. We have lived here for 4 years. I try to explain that we are home, he says no. I tell him not today, he says he can’t stay here. I have tried to divert…
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Accelerated Progression from Stage 5 into 6
My DH's Alz has advanced significantly in the last 6 months. Then he contracted COVID and in the hospital for 2 weeks. The illness and hospitalization have made him much worse. He is going to be moved from the hospital into a Rehab Facility. Are there any suggestions on how to lessen the fear and anxiety for him? I then…
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Head feels "weird" or "funny"
Has anyone heard of this? My mom will often say her "head feels funny". It doesn;t hurt and she says she can't describe it but that it feels "weird". I can't find anything on google, but just a couple of people reporting it too. Any insight would be welcome. She is physically totally healthy. Thank you!
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Behavior shift-FTD
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New stage
DH has entered a new stage. He's sleeps almost all the time. We're having difficulty waking him enough to eat. For almost 3 weeks now he's eaten very little, decreasing more by the day. Almost nothing in the last week. His drinking has also slowed over the past 2 weeks, to just a little bit. I've told them that I'm ok with…
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MC facility not communicating about anger issues
I have learned from my DH's staff at memory care that he has been in several altercations in the last month, always in the evening after dinner. He struck other residents and caregivers on several occasions. The only reason I know about it is from the CNAs who are on the floor. Neither the head of the nursing department or…
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Parallel living
Not sure how else to describe this but DH constantly refers to our "Other house"? Which he says is identical to this one, but he wants to take his belongings there. I'm continually putting things in our car for the "morning" to be taken there. After he goes to bed I take them out of the car and put them away. Sometimes…
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New to all of this
My mom has just received what I assume is a diagnosis. The doctor put her on Aricept. I saw her MRI results, although they didn’t make much sense to me, the end result suggested AD. My grandma and great grandma had it too, so it wasn’t terribly surprising. She still manages to do most things, but a week or two ago she was…
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DH wants a divorce
My DH is in the advanced stages of Parkinson’s disease and dementia. He has been in assisted-living for two years, and the disease has been progressing rapidly these last months. He has had moments of clarity, but has been confused most of the time. His ability to speak has become very limited. So I was quite surprised…
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Zunveyl new med on the horizon
I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been taking rivastigmine and has been having a horrible time with the nausea side effect. I also read this study that was posted…
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What do these abbreviations mean?
Hello All. I'm new here. What are the common abbreviations used here? What do they mean? Thank you 😊
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How I feel one year after DH's death
DH died 1 year ago yesterday. It feels odd. One year is a fairly standard metric for measuring time, but it does not feel real. I remember his death as if it were yesterday. I feel the loss and despair of multiple life times. My heart ache is acute. The brain fog remains. I move forward with sadness that he is gone and…
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Legs are weak....
DH is moving slowly into another phase, he is sleeping some most days and has mentioned several times his legs "are sore." I asked if that meant weak, and he said yes. Some days he works a little weeding and would do more if he could see well enough or could handle tools much….but often he doesn't have very much exercise.…
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Is incontinence around the corner?
I searched through old posts but did not find an answer. My DH does not make it to the bathroom in time for peeing. It seems that every time he is having to change his clothes. I will make the necessary changes to prepare for this but is this how it starts or is this just older men issues? He is aware he has to go but just…