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Memory care concerns
My mom has been in memory since 2022. She’s had a moderate decline since going in. Few issues but seems content. Went to visit her Tuesday. I got told the other night they saw blood in moms pull up. Maybe a uti. Head nurse calls me just now and says Dr sees red pimples on mom’s private and red lines and thinks squamous…
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Happy Thanksgiving
Thinking of the community here, both past and present, and wanted you all to know that I'm so very thankful for the opportunity to interact with you, and for the kindness that everyone meets when they share their journey here. This truly is one of the most reasoned, courteous, and helpful forums around.💖 Your person may…
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Driving
Hi all My OH is currently being assessed at a memory clinic. We have not had a formal diagnosis, we visited the memory clinic, late October, and this is the first time we have met the consultant, or in fact any fully qualified doctor, previously it was a junior doctor and an OT. I think based on my OH ACE III test score he…
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Newly diagnosed with Fahr’s Dementia
Hello all, I (59 female) am very happy to have found this group and hope to gain and give support. I was diagnosed with Fahr’s Dementia following a mental health crisis. My once stable anxiety and depression symptoms increased terribly which were accompanied by continued difficulty with my work (Speech Pathologist) and…
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Thanksgiving
Just wanted to say, all of you are on my list of what I am thankful for this year! I learn so much from your experiences and I love how supportive everyone is with others on similar journeys, even when we make different choices in our care for our loved ones. I wish peace for all on this holiday.
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Terminal agitation or restlessness
Mom started this stage of the dying process yesterday . Made worse when she refused her Valium. She hasn’t yet started morphine because she doesn’t appear to be in pain. Neither does she have labored breathing even though we can’t keep her cannula in her nose. It was really bad yesterday and only a little better today with…
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Feeling Very Thankful
I just want to express my sincere appreciation to all of you who show up on this site. The shared experiences, rants and raves, insights, advice and love and shared vulnerabilities have made a real difference to me in how I’m able to navigate my day to day with my DW. Wishing You All the very best Thanksgiving possible.…
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Holidays without him.
Last year 11/23/23 was the last holiday I spent with my DH Lonny. I have no pictures of that day. Shortly thereafter I was diagnosed with aggressive cancer & had no choice but to place him immediately in Memory Care. He spent Christmas alone there. It broke my heart in two. He passed August 12th and I am dreading the…
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Out of psych hospital
After a suicidal attempt and a month journey in a psych hospital, she will be released tomorrow ! The AL is taking her back in a more secure wing Don’t know what to expect .. she has been wanting to die for the last few months , begging , crying and when she finally met a doctor to discuss she just said it was no longer…
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How to help Grands understand??
My DH this afternoon just snapped and yelled at our grand-daughter for not speaking to him when she came in. Cussing and saying he was not taking that damn sh*t no more from her🤦♀️🤦♀️…. She is 12 and it really hurt her feelings and she didn't know what to do. I was a good buffer got him turned around and back in house. I…
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Feeling Very Alone
Hi everybody! I hope everyone is having a good day/night. I am 24 and the main care taker for my mom who is 59, she was diagnosed with Alzheimer's back in 2022. The first year since her diagnoses had been pretty uneventful, no huge changes besides getting her disability approved. She had already stopped driving and working…
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Intentional bladder retention
Hello. Foster mom has some form(s) of dementia that is currently remains undiagnosed even though doctors are certain of it. .. Foster mom has been quite frequently in and out of emergency diagnosed mostly each time with an Uti. They give her antibiotics and send on her way. I live with her and everyday a large amount of…
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Blame Game
Is everything your fault? Always.
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Needing to find a home
First off, why is there no comprehensive place to help caregivers / family when it comes time to find a home for someone with ALZ? Every resource I've found tells me different and conflicting information. It's insane. Anyway, my mother is now MS, nearing LS faster than we thought. As much as I would prefer to not put her…
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This really set me back !!
my wife and trouble signing her name I think she had trouble with our last name. This really hit me. I guess more to come.
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Being able to sleep with him again
I've read so many comments here that reflect my own feeling of loss at no longer being able to sleep with my DH. It is such a simple yet intimate and comforting thing to do. He's been in a memory care facility for almost 6 months. It's close to home and I visit him at least every other day, often trying to nap together in…
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Nuedexta
My DH physician has prescribed Nuedexta to help manage some of the symptoms associated with FTD such as angry ,combative and obsessive behaviours. This medication is a combination of Dextromethorphan and Quinidine and primarily used for folks who have TBI who have issues with uncontrollable crying and laughing etc.. So far…
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Prime example of clueless family
This was in the newsfeed I have: Prime example of clueless siblings! makes ya mad!
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Home
A fitting description of what LOs seeking "home" must feel… “Someday, I would like to go home. The exact location of this place, I don't know, but someday I would like to go. There would be a pleasing feeling of familiarity and a sense of welcome in everything I saw. People would greet me warmly. They would remind me of…
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Improving emergency care for people with dementia
Michael Ellenbogen has been working on this important project for some time. He is one of the co-authors in the linked article. https://outlook.live.com/mail/0/inbox/id/AQMkADAwATE0YTEwLTZkZWMtZWY4Ni0wMAItMDAKAEYAAAMe8X2mg8UKQKMXq%2BSo2HGuBwC6%2FjKngSETRo24yIoaaSzbAAACAQw
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Not Sure if it’s the End
Hi all. Been caring for my aunt for almost 2 years. She’s almost in her mid-nineties and came to live with hubby and me close to 2 years ago. It’s been a rough ride, as I’m sure it has for many, here. My Aunt is almost fully incontinent now, and has frequent delusions. I have a little bit of a medical background, but…
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Visit from family
Today, my daughter, SIL and grandson are coming to visit. DH is totally confused and agitated, thinking that his sister is coming to visit instead and seems to be under stress because of the visit. Relations with this daughter are a bit strained - she lives out of state and rarely visits, so today is a big deal, although…
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Hallucinations
I’m new here. My spouse has been diagnosed with mild to moderate dementia. He is fairly independent; needs some supervision. Started Zyprexa and Aricept. Problem is with hallucinations. I really don’t know what to do or how to support. I’m talking to his doctor about this; but want to reach you for suggestions.
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Coping with disease progression
My mom is in a good MC receiving high quality care. Before that she was also in a good AL/MC, albeit one not equipped to deal with more advanced dementia. Now, I find myself watching my mom progress and filled with sadness. She is comfortable, clean (a miracle, given that she has a lot of incontinence issues), and still…
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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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A very little holiday
Maybe I have done something stupid but after hearing ‘friends’ talking about their cruising on boats and various holidays I decided that for our birthdays which fall on the 8th and 9th and the reason why 55 years ago we went out together, that we should have a little holiday, thinking that may be this will be the last. So…
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Mom prefers to lay in bed all day.
My mother has moderate stage Alzheimer's and Vascular dementia. I have been caring with her since March. Before she came to live with us, she tended to spend a lot of time in her bedroom. Now that she is living here, she prefers to spend all of her time lying in bed and just says this is what I like to do and this is where…
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Has anyone had a PWD who experiences seeing shapes, etc. that appear transparent and "see through"?
Hi, My Mom is 102 and, while having extremely short term memory, has never until now described or shown evidence of other dementia-related symptoms. The past few days, however, she's convinced that she's not at her house and needs someone to pick her up and take her back home (she's been in AL for the past 9 years), etc.…
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I cry every day. I don't know if I can go on like this. Too tired to seek help.
My DH is probably Stage 6. He gets agitated, angry, cursing at least a few times a day. Otherwise, he lies there watching TV. He wants to get out and then he doesn't. I'm taking care of him on my own. No kids or friends available nearby. I tried bringing in help but DH is very resistant and throws them out of the house. I…