Welcome to ALZConnected! You are not alone.

I have observed that every mistake my DH with ALZ makes causes me an instant wave of sadness because it is a reminder of this disease and the toll it is taking. It reminds me his remaining capabilities are all likely to slip away one by one. It reminds me of all the losses he has already experienced. It reminds me that I…

my DW, stage 5-6, is pleasant and compliant until she obviously needs a nap 2-3x per day. Ok again after a rest but lately she is less cooperative in lying down for a nap. Attitude gets very obstinate and angry. Any ideas how to persuade her to “stretch out” for a bit?

My friend since 1980, the person who has stood by me through thick and thin, who has always been there for me, even when I was living far away…had a fall resulting in a brain bleed in October 2025. I had been visiting her one afternoon a week before this happened and even then, I thought there was a slight amount of…

Does anyone have experience with their LO having fluctuating hearing loss? My DH with AL does have hearing loss, but has been able to understand me if I speak just a little louder than normal. But, lately, there have been several days when he hasn't heard me or everything is garbled for him. I cannot tell if he is actually…

After being together for 56 years , I am going to be separated from my lovely wife who suffers from this dreaded disease…I did my best to keep her home for the longest of time but unfortunately, being Carer 24/7 has taken a toll on me Next week she goes into an Assisted Living Home. Just looking at her brings tears to my…

I am moving my DW to an assisted living facility this week. It’s been long in the making. I won’t get into how we got here but instead I need to know how to make the transition for her and me as smooth as possible. For starters she does not know it’s happening. We have been to the facility together twice. And she does not…

Has anyone added a second medication like memantine for memory and thought it has promoted a decline in memory and confusion? I have considered stopping it for my husband but don't know if it's the med or just the quick progression of the disease.

I would welcome advise on the best way to leave my mother with her sitters. We built her a small apartment onto our home and when my husband and I try to leave for a few days my mom gets super upset and says she wants to go back home and stay with my brothers who all live 10 hours away and they along with their wives would…

My DH was diagnosed a few months ago. Like everyone else, it really brought me down. He was doing the shuffling walk, forgeting everything he used to know and do, eating and sleeping habits changed drastically and we could barely carry on a conversation. In the past week and a half, there has been a real turn around.…

I've never heard of this drug, much less, someone on it. My mom's neurologist suggested this medication that will not reverse the damage or retrieve lost functions. It is intended to help her retain the abilities she still currently has in stage 5. Anyone?

In Canada where we live, we have access to short term respite at a LTC facility. At day 4 of a 7 day stay there was an incident that I am trying to process. Having played hockey at a very high level as a young man it appears he thought he was at hockey practice, started running and body checked a resident, sending the…

Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!

Hi- just wanted to connect with anyone who is using Lequembi. DH has had three bi monthly infusioNs to date and one MRI, which showed no abnormal brain bleeds. Seems to be tolerating it well. Our understanding is that it can’t replace current memory loss, but it can dissolve existing plaque and help prevent more from…

Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…

On April 2, Elizabeth Edgerly, PhD, Senior Director of Care & Support Programs and Services interviewed Christopher Weber, PhD, Director of Global Sciences Initiatives. They are both with the Alzheimer's Association, and I have personally met both of them through my role as an Early-Stage Advisor. I've found Dr. Edgerly…

I'm going to have to start visiting MC Facilities and was wondering about dropping by unannounced vs making an appointment. The glossy ads all look so wonderful and the reviews give a different picture, so was thinking that it might be better to just stop in, so that it is not staged. Anyone have experience with this?

This is my first posting to the group. My DH was recently diagnost with Alzheimer's. It's not too bad right now, but he is also a Diabetic and a Kidnery receipient. He takes so many medications now wtih anti-rejection drugs I'm not sure how any new drugs will affect everything. Has anyone had any experience with Diabeties…

As I continue my research on possible future options to meet my DH’s needs (and mine), I would like to hear your experiences if you or someone you know has lived in assisted care as a couple —-one healthy and one with ALZ. Some care facilities allow this and some don’t in our area. But, as you know, the real information…

 I often hear that a plan B must be explored when the time comes that I cannot provide the care my DW needs. I have looked into a memory care facility and the cost for this is astronomical….$586.00 a day. My financial situation does not qualify for Medicaid so this would completely bankrupt us in a very short period of…

My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…

My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…

My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀

When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…

My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…

A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…

Hello all- does anyone have advice on ideas for getting urine odor out of bedding and clothing. My dad is incontinent of urine mostly and despite washing everything daily there always seems to be a lingering ammonia odor. Any advice of what can be used besides regular detergent to help!!??

Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…

my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…

Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…

LEAP is a particular method of communication where listening and collaboration are prioritized that has been utilized both in mental health and non-mental health diplomatic discussions. The purpose of LEAP is not to establish facts or to talk someone out of what they believe. Rather, it is to listen at a deep level and to…