-
Dementia at 45
I was diagnosed with HIV associated dementia after having imaging done due to behavioral and cognitive issues, and long term HIV infection. The last five years have been difficult alone, self isolating, now seeing problems completing everyday tasks or just takes a lot longer. I can't even get into the bathroom to brush my…
-
This confuses me
Hello everyone, Has anyone else experienced this with their LO. Today my father with moderate to severe dementia wakes up and calls his sister and has a conversation like normal almost without dementia. He was able to give details of things he’s done and elaborate on certain things. This confuses me because I don’t…
-
Softening the Bedrails to Prevent Injury
Hello Everyone, this is my first post here, although I have been following many discussions over time as I care for my sweet husband who was diagnosed with mid- stage mixed vascular dementia two years ago. Sadly, he fell and broke his hip two months ago, which of course has affected both his dementia and his progress in…
-
New here. Mom with relatively early dementia
I live a long way from my mom, a 4 day drive. She is relatively early in things. Her PCP never actually told her when she wrote dementia on her problem list a few years ago. Recently I went to ophthalmologist’s appointment with her and asked “she has Alzheimer’s, so you should add that to her problem list”. My mom said “I…
-
Stuck between a rock and a hard place
I have recently come into caring for my estranged veteran father, 74, who I rescued from homelessness has undiagnosed dementia. He can't remember things he said 5 minutes ago but remembers things from long ago. His ex partner left him broke. He refuses to see a doctor so I am not able to find proper resources for him. I do…
-
Is Sundowning Real?
-
Questioning what I’m doing
Hello all, I’m exhausted. I feel guilty because I feel like at this time I don’t have it as bad as some of the posts I’ve read about things the LO is doing. My father has been here 5 months now and it’s the same thing everyone day. Thankfully he is still toileting and showering on his own. But has no interest to do things.…
-
LO threatening to get kicked out of MC so he can live on his own.
My dad has been in MC for about 6-8 months. He was previously in two assisted living facilities, but got kicked out because he was wandering outside and getting lost (I got calls from police to pick him up). Since the last time this happened, he was moved into a brand new MC wing in the same facility. It's a nice place —…
-
Socializing for Caregivers May Be Overrated
I read an interesting article that indicated that not everyone needs a social network of friends. In fact, some of us do quite well alone without the inevitable dramas that friends bring into our lives. As I am currently without a single local friend due to moving, I found this comforting. I realized that seeking to find…
-
It’s been a week
7 days since Mom passed away. The graveside service for her and my step-dad isn’t for another six days. I wish it was later today ( it’s 12:47AM). I feel I need it to happen for ‘closure’. My siblings aren’t coming. I don’t think any of my step-siblings will either. Honestly, I don’t care if anyone comes. I just want it…
-
Those eyes!! 👀
I totally get it! I get why DH NEEDS to have me within eye sight at all times. I’m his safety I’m his security. I’m coming to terms with the fact that he was never home, always a meeting to go to and I got use to fending for myself and now he follows me everywhere! What is driving me crazy is DH constantly following me…
-
Losing my patience as another holiday is ruined!
On thanksgiving I miss my mother (dead for along time, now) and other family members who I never get to see anymore & friends who I also don't get to spend time with. DH has already ruined the day with an outburst and my patience is totally gone. I feel completely alone and like crying, but can't because I'm the only…
-
Untold truth
How do you deal with a parent who has dementia and who unloads and dumps all of their genuine thoughts, concerns, feelings, and everything else on only you but when asked by doctor's and other family members they either intentionally lie and omits information telling others they're fine and didn't experience those things,…
-
Have I totally lost it?
My DH has been in MC for 2 months. I have an absolute obsession to redecorate (paint and flooring) our living area and bedroom. I have felt like I have been in a prison so my surrounding are a constant reminder of the depressing life I have lived for 6 years. I feel like I am trying to rebuild my life by changing my…
-
Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
-
Just a rambling vent...
Mom started a fire in a microwave this morning. That was after Dad missed her walking out the door last night and she showed up in the garage where my husband and I were talking….scared the crap out of me as she can barely walk! Back to this a.m., I thought I smelled something funny this morning when she came out of their…
-
Spouse Wants to start arguing
1st time to post. My spouse has mild mix dementia. I am basically her only support. She can go couple of days fine but the sundown gets really hold of her. Spouse wants to argue about almost everything. I try to remove myself to another room, she still confronts me. Now she is locking herself in our bedroom. I can easily…
-
How to support my stepdad as primary caregiver
Hello. I am new to this platform. My mom is in Stage 6 of Alzheimer's. My stepdad is her primary caregiver. I can see that he is in over his head and is stressing out. But he is shutting out ideas for support, saying that he can't handle any more information. He is trying to do everything himself, and I can see the…
-
Have no where to go with my feelings so
Very long post. I have been wanting to write this message for a long time but always get stuck with wondering how best to describe my situation. Saying up front, there is no answer for my issues with my DH, I just think it would be helpful to know if anyone else has had experience with this, or even wondering if I am…
-
New to the group
Hi there my name is Nicole I am new to this group. I have been living/taking care of my 71 year old father for four years now. I am in the process of trying to sell his home to afford a memory care. I need to get my life back I have kids i still work 36 hours a week. This has been incredibly challenging. I do it all in my…
-
I moved my DW to memory care today
The move in went ok. I told her I needed surgery on my leg and rehab after. She understood but I could tell she was suspicious that it was a permanent move. We have been together since I was 20 years old. It absolutely killed me to leave her there. I know she feels abandoned and afraid. This is the worst day of my life. I…
-
When to transition to full time caregiver?
Hi! I just joined this online support group and have spent almost an hour with the discussions before deciding to post my own discussion. My DH was diagnosed with CAA in 2022 and had mini strokes after a heart surgery late last year. He recovered well from that surgery and all diagnostic tests this year have been ok…
-
We need some suggestions to prevent boredom
Hello, I am new to the group. My mom came to live with my husband and I about three months ago. She has never really had any hobbies, so she currently has nothing to help her pass the time. When she gets bored, she gets nervous and starts pacing. We have tried word find puzzels, puzzels, coloring etc but nothing really…
-
Giving gifts to external caregivers
Just wondering if anyone gives Christmas gifts to your caregivers? We have one that comes in a couple of times a week. My DH is not at the stage yet where he needs a lot of on hands care except making sure he eats a good lunch but she is still there to support him. She does take care of things around the house while she is…
-
Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
-
Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene. His PET scans showed elevated levels of tau. He was part of the phase 3 trial for Aducanumab, he developed ARIA and was in…
-
Shrinking world
Caring for DW. Currently in stage 4 and some 5 conditions. This is more of a release and venting for me than a question. The longer this goes on the smaller the world becomes. Over the years friends family become more distant. Partly because you're no longer able do the things that we used to. It's even to the point that…
-
I need advice or someone to talk to. How did/do you manage what helps?
Earlier this year my father who is a 64 year old veteran was diagnosed with early onset dementia. It’s been very difficult for me. I feel so alone and kinda almost ready to give up but I know I can’t do that. We have been in the hospital for over a month. waiting for a memory care unit at the va to let us know when he can…
-
Very sorry
Hi y’all. I have not been reading or writing lately. I wish everyone love, mercy, understanding, acceptance and peace on their journey. My wife and I are not doing well on ours. She is in stage seven, stuck in a bed or Jerry chair mumbling and not eating. She looks very unhappy and suffering. I don’t want to be a widower…
-
reframe my thinking?
Hello community, I think I need a reframe for my thinking. Taking some time away from visiting my dad due to his anxiety and agitation. He has been in MC here closer to me for about a month. I've stayed away for a week and half previously and am currently in the midst of another week away. I keep thinking that he is…