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LGBTQ Eldery Father community
Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about…
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I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
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Hallucinating and cussing at everything
Hello my mother was diagnosed with Alzheimer’s dementia about 4 years ago we have noticed lately she is hallucinating a lot and wakes up cussing at anything and everything and constantly yelling and saying I hate you,I hope you die, I’m going to kill you , and throwing out racial slurs . But more recently she took a fall…
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The denial worsens
Hi, new to the group. My Dad was diagnosed 3 years ago. My Mom is showing early signs and we know we are in early stages. She is currently a caregiver. After a Doctor visit, it was determined she has memory loss but stage unknown. Bloodwork and MRI. She refuses to do anything. The MRI is scheduled for this Sunday. There is…
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Podcast on Caregiver Stress
I found the following podcast by Mel Robbins very helpful… https://youtu.be/892M1vCEuUg?si=GAoYuLuvynSx_RqY
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Laundry day
Ugh! DH mostly made it to the toilet but there is a lot of BM in his underwear, I rinsed that out in the toilet later. So I'm wondering ….do you wash the underwear in the washer by itself maybe with rags or something, or with other regular laundry?
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Parent getting meaner, no joy left
I am new to this forum and new to learning about Alzheimer's. My dad has had a steady memory decline but it finally was diagnosed as Alzheimer's. Recently I've noticed things have gotten way worse. Nearly every time we visit, the tension builds and he has an angry outburst directed at my boyfriend. This time he took a…
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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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Drowning
Hi everyone I am a carer for my partners mum. My own mum has had to go into a home and I feel desperately guilty I've now left my work and am looking after someone else and I couldn't mum. I am in a different space now but I'm drowning in guilt.
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Just need to talk to my friends (207)
Judith, I didn't get on the stepstool, stood on the floor and used a mirror. Hopefully, Beth will be able to post on 207 now.
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Is this considered wandering?
DH is in Stage 6 and I’m having an awful time with keeping him busy. One thing we’ve been doing is walking, even in the Florida heat (not ideal, but if he wants to, it occupies some time). However, he walks and walks as if it’s a one way trip - he wants to go a certain way and I have a terrible time getting him to walk…
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Newly Diagnosed and I have questions
Hello this is my first time posting and I have questions. Of course I didn't think of these while we were in the doctors office today and won't be back until Oct. Anyways, my mom was just diagnosed with Alzheimer's today and was told to take 2 different medications. They are memantine and donepezil. My first question is…
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His Birthday is Today
My husband just passed on June 19, and today is his birthday. While there is never a good time to go, this is just too close for me. I am struggling in every way. How does one get through these important dates? I know the first year will be the worst, but this is beyond awful. People are calling & texting, and I'm hiding…
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Not much support from family,
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Plan B
Hi guys! Again, I am so eternally grateful to have found this group. I have learned so much in a short space of time. One of the biggest lessons learned is that a pwd can live 15-20 years with this vile disease. Anyone who has interacted with me before, knows that in December, my DM was diagnosed with MCI/Early Dementia.…
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Ready to place hubby in memory care
after 4 years I’m ready to put hubby in memory care I have been in touch with the place for 3 years so familiar with director. talking to hubby about it but he doesn’t want to go. I’m facing what I never wanted to do and that is leave him there. Has anyone gone through this. My hubby is 82 and memory is terrible. Won’t…
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Anyone able to keep alzheimer spouse home until death
I have been trying to find anyone with experience keeping spouse at home with help of hospice until the end. My husband is finishing up stage 6 right now. And so far I have been sole caregiver with no outside help. He is 71 can still walk. Can eat on his own like a 2 year old. I have to shower and dress him. He just had…
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Travel and confusion
My DW of 48 years seems to get more agitated and confused when we are away from home. She is mid to late stages of Alzheimer's. We are supposed to go to the coast with our adult children and their families, but I am beginning to have second thoughts. Between the new location and chaotic nature of a large family gathering…
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Girlfriend reprise
You may recall last winter my dh had a girlfriend in his MCF. He was moved to the next higher level of care, and because that higher level of care has two separate wings I thought we had solved that problem. Today I find that girlfriend has been moved over as well and is now two doors down from him. I don't know why they…
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Alexa assistance
Good morning! I am new to this community. My father, who lives in Florida, was diagnosed last fall with Mild Cognitive Impairment. Upon further testing, it was determined Alzheimers related. I'm in Wisconsin. He lives independently, but has a partner he spends his days with. He does not live with her. She is 85 and has…
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How to remain positive
Many of you on here seem to deal with things really well I have arthritis which makes life more difficult doing everything & sometimes I feel overwhelmed with everything & miss my old life Any advice please
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Paradoxical Lucidity
Over the past couple of weeks, my mother has declined rapidly. After another evaluation from a different provider, she qualified for hospice this time. She's incontinent, refusing to eat regularly, and sleeping most of the day now. Her ambulation has become more unstable with the shuffling gait so common with dementia. I…
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Memory Care closing
I received notice today that my mother’s memory care facility is permanently closing. She moved in September 2024 and has finally started to learn her way around and trust the staff I am angry and stressed. I know a move will not be good for her. And I am alarmed by this change. Is anyone else going through these sudden…
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Respite to hospital
DH is on hospice due to heart condition including Alzheimer’s. My son got him to go to the nursing home by inviting him to go to his favorite place, McDonald’s. I had been sick for 3 weeks with what I thought was a recurring bout of diverticulitis. So I headed to the hospital where The CT scan showed a mass on my pancreas.…
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Hygiene Issues
Recently my MIL has developed hygiene issues to the point she has a bad odor. She had given up using her walk-in tub and was doing a good job washing up in the sink. But within the last 2 weeks or so she hasn't been washing up and it's noticeable. Her use of antiperspirant doesn't help. She also isn't brushing her teeth or…
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Much Worse in Last Two Weeks
First post. My father died 21 months ago, and my mother was unable to care for herself due to declining health. She wanted to go to an assisted living facility, as she didn’t expect me to be able to take her in and meet her needs. This was and is true. Things started out rocky, as she would call me all times of the…
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Paranoia and delusions in AL
Hi all. My 84 yr old mother has exhibited paranoia for the past several years so I would say her Alzheimer's only exacerbates it. A year ago she moved to AL. She is not happy there (this place is crazy nice). She calls me daily yelling that staff are coming in her apartment at night using her coffee maker. This has been…
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Forensic Psychiatry
Neurologist suggests my wife suffers from Anosognosia as well as Alzheimer's. Doc is suggesting testing by a Forensic Psychiatrist with an eye toward legal Guardianship. Anyone with this experience care to chat with me?
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Things are rough.
Moved my mom in a couple of weeks ago on the advice of her doc, who she used to love, but now refuses to go see. Said he only suggested because he and I were “in cahoots.” He said she needs to stop driving and let me help with meds. We “lost” her car keys during the move, but she has been obsessed looking for them for…
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Paying for MC
we are in the earlier stages but I see so many of you talking about placing your LO in MC. How are you affording it? I am 55 and I can’t see spending all of our investments (which are not huge amounts) on MC because I will need that money to live on for the rest of my life. That sounds cold but I have potentially many…