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The New Car
This shows that even the most "routine" or necessary change can really throw things into a tailspin. I am my mom's primary and only caregiver. She lives with me. I'm waiting to hear about an appointment for a Medicaid assessment, but they are pretty stretched and backed up, and I've been told it could take several weeks to…
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Adult Day Care
Has anyone tried Adult Day Care? Was it successful? My DH is so agitated and restless unless he has something to do. His behavior is better now that we have added Seroquel to his list of meds, and I think he might enjoy the activity. There are several around here, but I was just wondering if it helped any of you. I am…
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@harshedbuzz
You may have already addressed this, but I noticed that several of your responses were duplicated three to five times in different threads. Presumably a software glitch. Iris
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HOW to finish the diagnosis for a very unwilling patient?
My mom has been suffering with memory lapses for some time, but it was absolutely unacceptable to talk about these memory lapses! However, less than a month ago, she had a major episode in front of us where she didn't recognize my stepfather (her husband of 44 years) and was convinced we were trying to steal her money.…
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Siblings Who Care More About Their Inheritance Than Mom's Care
Greetings, I came across this article and it almost exactly describes my situation https://www.agingcare.com/articles/amp/133713 Does anyone have any experience with this?
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Working with aids in memory care
Hi everyone, Not urgent, but I am curious: what are all of your relationships like with the aids in memory care? I am a people-pleaser with a tendency to over share: working on this, but it’s pretty entrenched in my personality. I have become overly communicative with the aids, who feel they can share their opinions with…
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Filing for SSN
Does anyone know if you file for regular SSN benefits or do you file for disability with early onset alzheimers. And how long does it take to get benefits and insurance? What do you do about insurance in mean time while filing?
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You don't like me much anymore
Hello, all. I have been ill with 4 or 5 recurring this past 4 months (seeing a urologist in early August). This week it was really bad. Not the usual painful symptoms, but so cold I couldn't stop shaking and shivering, and then feeling dizzy. Again to Urgent care..Again with antibiotics. This time I slept for 4 straight…
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What qualifies for SNF?
We can’t afford memory care. We can’t afford FT home care. I’ve been FT cater for two years. The first year I was still very angry and in denial. (I’ve been angry at him for years now not knowing what’s going on, being abandoned, etc). It took about 6 months of working on myself to get to the point now where I think I’m…
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She did it again.
last nite out with friends and she was talking to someone and says “ I have dementia but I’m getting better” that’s second time in couple of weeks to mention dementia…
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Best type of doctor
we are in the earlier stages of this journey and as I read messages from those of you much further along, I wonder what kind of doctor is your go to when things come up? Do most of you use your primary, a neurologist or geriatric psychiatrist?
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Getting answers through traumatic medical event
I began noticing cognitive and behavioral changes in my husband several years ago. After experiencing one frustration after another in my attempts to get help, I came to the conclusion that the changes were most likely due to underlying medical conditions he has been diagnosed with (type 2 diabetes, atherosclerosis, and…
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Rapid Decline - Not a UTI
Has anyone seen a rapid decline of their spouse? My DH is having hallucinations, wakes up at night and gets fully dressed, has fallen once, communication is challenging, voice is weak, intermittently doesn't shower, wears the same clothes and is generally confused. He was checked for a UTI and it was negative. I know this…
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Not My Home
Each evening after dinner, y LO Ned’s to go home for a wide variety and very creative list of reasons. Redirection or distraction does not work, it only delays the request until after…our daughters will come visit about the time we finish diner and as soon as we are done with the visit, she will request to go home. Most…
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Bathing, Shower design
Does anyone have any advice for designing/building a shower? We have a leak and are going to replace out tub/shower with an accessible shower. Should it have sliding doors or curtains? Where should the grab bars be located? Is a built in seat useful or better to have separate seat? He is still active but not so flexible,…
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Looking for feedback with early stage DW
My DW is 14 years my senior, 86, and is early stage dimentia (my diagnosis based on criteria from here) Her short term memory is very bad, can't keep day straight even for minutes. Asks same question multiple times a day (ex. son is visiting from out of town. "When is Cam leaving", 5 to 10 times a day). Also we used to…
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When to stop ?
Doctor says “Keep him active, mentally and socially. Keep him involved etc.” Well I’ve been doing this . Writing to do lists ( 2-3 things), trying to have conversations with him, asking for his advice opinion help. But now he gets annoyed when I ask him to do something or says I will and doesn’t do it. Then he complains he…
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Doctor appointments
Hi all, My mom (69) was recently diagnosed with Alzheimer's and I (28) am her caregiver. It's difficult being so young and trying to figure some things out on my own. I don't have any experience and no one in my family does either. I am learning as I go. Since my mom has started her diagnosis journey, she finds every…
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Fine, I'll cave ...
After 3 messes and running out of plastic bags I will cane and join the Blue Glove Club. I did learn this morning that I CAN clean the mess (corner of toilet, remove lid, wash sink and counter, hands 10,000 times get him showered and dressed and make it to work with one minute to spare.) Sit back and enjoy the read... My…
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New night time and early am behavior.
Not sure what to make of this. DH behavior has been quite manageable for quite awhile now. Lately I’ve noticed his become more irritable in the am with accusations that I’m awful and not helping him. Two nights in a row now, he wakes up after sleeping a couple of hours. Out of the blue he starts screaming at me for lying…
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Long Distance daughter but in town son
Hello, I am writing because I live over a thousand miles away from my mom who was recently diagnosed with dementia. I have been there twice in 6 months to get her settled in a facility, visit, etc. My brother lives about 2 miles away from her but does not go to see her very much. And every time I call her, she’s very upset…
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Moving to memory care
my DH has been diagnosed with declining Moderate Alzheimer’s. He is getting to be too much for me to handle emotionally, and I feel my own health is declining. He is 81 and I am 79. I have only one son to help me through this whole process. He and I have started arrangements to have him moved into 24-hour memory care. This…
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Just need to talk to my friends (195)
Hi. Thought I'd start 195 tonight so we can begin posting on it in the morning. Supposed to.be very windy tomorrow so will have to take down the flag so it won't blow away or break the flag pole. Hope you all get a good night's sleep. See you in the morning.
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Dementia family member & Theft
I would be very interested to know if anyone has found any - even short term - "tricks", methods, remedies to a dementia family member stealing. It was be sunglasses from a family member or just out in the open someone's personal item on a table when they aren't looking. Not ill-meaning or strategic, simply can't help it.…
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How to become a provider for my Dad
This is a long story short. New to this. Dad has Dementia pretty bad and wife kicked him out 2 weeks ago. Us kids have been trying to care but super hard with this new lifestyle for him. The other day he fell at my sister's and we were in the ER for 2 days. He was transferred to a rehabilitation facility. He hates it. I…
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mini moments and self talk / inner dialog
Hi community, I am reminding myself that Alzheimer's is what has changed dad's living situation and opportunity for more freedom. It's Alzheimer's that he's actually upset about. That anger and frustration just gets pointed at me. Alzheimer's is why he didn't realize the help he needed. It's also why he couldn't organize…
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Need immediate support
Hi everyone, I am in need of some immediate support, advice and good vibes! Today was the day that I was to move my dad into the very nice AL community that I had secured for him. However, he has had a few people filling his head with BS, and further convinced him that he is fine and they will "take care of" him, which is…
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So strange how their mind works...
We'll never know what's really going on in their mind…sometimes I write down the occasional really strange behavior but yesterday's was a doozy. DH went out the front door to check out what's going on like he always does. He came back in the house holding a dead rabbit! So I'm kind of freaking out and I tell him to go put…
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thinking of her
Tonight I'm sitting here in my recliner, half lit on bourbon, while my wife of 53 years sleeps on the couch next to me. I started thinking about how caring for her 24/7 has become my routine, and how much I miss some of the seemingly simple things she used to do for me… She would cook these tasty little yellow potatoes…
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Alternatives to Driving
Hi Everyone, this is my first post here. I read a lot of the past conversations on driving, but have what I think is a twist on the question. My best friend's husband was just diagnosed with Early-Onset Alzheimers in his 50's, and like many is having problems accepting that he can no longer drive. My question is about the…