-
Cost of Memory Care
If you have a LO in memory care or you've done some pricing please post the prices you've found/paid and whether Medicaid or Medicare cover any of the cost. I am in Massachusetts and the average cost of memory care (according to Google) is $8,500. I am sure you can pay much more. Thank you!
-
Catheter in RCFE or MC
I've searched posts on catheter issues…and i'm concerned. (i'm a new member). Dad is 82, slow advancing prostate cancer, ALZ and probably undiagnosed Parkinson's. He is in AL but since mid dec we've hired 24 hour care due to fall risk in AL. We have plans to move him in one week to a board and care. Stage 4 or 5 of ALZ. No…
-
white matter detected on my brain...
Good evening peeps, I saw my neurologist today and they found some white matter on my MRI which he said could account for my falling, balance problems. He wants to see me back in 3 months after I have another PET scan. He also wants me to go to the Cleveland Clinic Lou Ruvo Center for Brain Health here in Las Vegas. He…
-
Why?????
(Insert scream at top of lungs) Why??? Why my bf who is 45??? Why anybody??? Freaking WHY!!!!????? I HATE THIS DISEASE SO MUCH!!!!! Ill never understand why? We are all in this together 💜
-
Torn and heartbroken
Hello all. I am coming to ask advise and what others have done. I have been advised by my hubby's doctor that it may be wise to get a divorce. What?!?!? Heart is not accepting that. They stated it was so that the state doesn't take all our assets for his care. If we do it now, it is early and they won't override it. Have…
-
Sydney to Hobart Yacht Race
Sailing was what we did, always together, we started sailing joined our 1st Yacht Club in 1971. This is what I wrote on Boxing Day with a very sad heart. The Sydney Hobart Yacht Race All morning he’s said to me. What time is it on, I don’t want to miss it, I must put it on The cricket was going, the time ticked around,…
-
Secrets
Mom is in AL. She worries about everything! She is probably towards the end of stage 4. She is a bit difficult than most here since her memory is still good. She lacks good judgment, bad anosognosia, and lack of empathy. My adult daughter has been sick since Christmas and just got home from an intensive care hospital stay.…
-
speech therapy?
Hi, All, We have a speech therapy order from my partner's neurologist. They provided it at my request even though they were not very positive about yet I have read that it can be helpful for people with Alzheimers who are having difficulty speaking. Has anyone had any experience with this and could share? I would…
-
Nonstop for my dad. Need suggestions.
My mother has had dementia for 2 years. My father is taking care of her in our own home. Recently, she has been nonstop needing something after helping her just 5 minutes ago. If no one answers right away, she'll throw her cup on the floor, then she will knock her tray down. She also intentionally tries to roll of the…
-
Difficult for him but a bit of "light" for me - SSDI approved
My husband had two appts for SSDI a couple of weeks ago. He hasn't worked for two years, and financially I am struggling. On a side note, I didn't know initially that I could apply for my 15 yr old son as well. I guess I should do that now. I was worried about those two appts because his neurologist has never said "I think…
-
Hospital bed time. Moving really fast
I added an Update in the comments I got a call tonight from the AL nurse. Mom rolled out of bed tonight. Since this counts as a fall ( in my opinion), it’s three falls in 9 days. The AL nurse had previously told hospice that mom didn’t need a hospital bed as her platform twin bed raises and lowers at the head and feet. I…
-
New to group, in process of getting diagnosis
This is my first post. DH had neuropsych testing done today and now more aware of his memory loss than before. He has been depressed and PCP treating that. Going to first neurologist appointment in 3 weeks. Tonight he gave his drug addicted daughter his credit card number so she could get an uber. This is uncharacteristic…
-
In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
-
What Do I Need to Learn?
Hello all, Thank you for your collective wisdom. I've been reading posts and learning. My DH was diagnosed with ALZ a month ago. We're early in the process with MCI right now. He works, drives, cooks, etc. (but is slowing down cognitively and short term memory is poor). I'm taking some time off of work to get some things…
-
Adult Child Caregiver Support Group
I am new to this forum, but wondering if anyone has thoughts about an adult-child caregiver support group, particularly for caregivers at a distance. My mother is a widow and has MCI and may have mild dementia. We have a somewhat complicated relationship, but I am an only child and thinking of re-locating her to my area…
-
Nighttime Delusions and Refusing to Go to Bed
I am not only becoming exhausted and burnt out, but I am running out of effective ways to respond. Trying to redirect him has not helped in his nighttime delusions, nor his times of anger and aggression. Help any ideas or solutions ? I am ashamed to say my patience and compassion is not what it should be right now.
-
Long distance sister
I am new to this site. I have a sister in a care facility far away. She was diagnosed with Alzheimer about nine years ago and I had to put her in Memory care in 2018. I have traveled back many times to visit and oversee her care. She is a widow with no children and all our siblings have passed away so I am her soul…
-
New Here - I'm Overwhelmed with Guilt That I Am Not Responding to Her Concerns Appropriately
Hi All, I am new here and thought I could seek some guidance from others in the same situation. I am the POA (and medical poa - whatever that is called) for my 82 year old aunt who is in a MCF. She has no spouse, children, or siblings (both brothers passes away in the last year) - so my husband and I are it. I'm not sure…
-
How to handle angry people?
I am 74 and have been married for 52 years. I have been slowly declining since 2020. I was happy that I maintained an abiliity to craft a sentence. I have a husband, 74, and two sons, 50 and 48. THe 50 year old is very kind and generous. My husband keeps complaining because I talk too much. My 48 year old son thinks I am…
-
Inhibition
I am sure this has been talked about many times and maybe even by me. Does Alzheimers lower inhibitions so they speak more openly about what they do remember about the past, not counting delusions and hallucinations. When they say something are they less guarded, so their true feeling come out. I know they can be afraid of…
-
6 month wait for a neurologist?
My DH clearly suffers from dementia. Can't do any of the things asked by his doctor's nurse (Draw a clock, remember 5 things, draw a square inside a circle...), sundowning daily. Yesterday he was frantic because he thought an airplane had flown into our building above us and the bldg was going to collapse. He wanted to use…
-
Tired and Sad Need to Talk
Things seem to be getting worse although it’s hard to tell. Sometimes my DH is relatively responsive but everything seems to be getting harder and slower. He is having an ECG next week an irregular heart beat, he has swollen ankles and sleeps a lot during the day and most of the night until 4.30am anyway. Has trouble…
-
Hospital stay - now what?
My mom (72) has been in MC since August. Minimum assistance w ADLs. Took her to ER on Saturday bc Flu and low BP. They admitted her to monitor her heart rate, oxygen, dehydration and kidney function. Pretty much was severely dehydrated which caused the acute kidney injury and low blood pressure. She’s stable but wheezing.…
-
Care Giving Conundrum
Been away for a while. Doing my best to keep up. Last week things changed from somewhere in Moderate to Advanced. Still waiting for the new instructions. [:o). Things are changing. Still greeted most morning with "how do I get out of here!". Needs to go home are still based on some kind of family emergency and difficult to…
-
It was a long and scary week
Last Thursday, January 9th, MC called and said my DH was very ill and an x-ray showed he had bronchitis and pneumonia and needed immediate medical attention. They sent him by ambulance to the ER. We were digging out from a blizzard that had dumped over a foot of snow on our area and I was still not able to get out. A…
-
Oh no. New low
My DH as certainly been declining lately. Just now he asked me where our kids are. He says they aren’t here. Of course they are not. They are 47, 44, and 43 and all have their own homes. It reminds me of his mother who had Alzheimer’s and who called 911 saying the kids were playing in the yard and were now missing. I think…
-
Mom stopped walking, starting hospice consultation
I’m exhausted. Mom moved in with us 2.5 months ago. We rehabilitated her after a failed rehab stay following a hospitalization. But she’s declining. Hospice support sounds promising because I need more help. She stopped walking today due to intense pain in her bad hip, but she also shuffles/drags her feet so maybe it’s…
-
New Alzheimer’s treatment being studied!
https://scitechdaily.com/a-breath-away-from-a-cure-how-xenon-gas-could-transform-alzheimers-treatment/
-
LO Continues to Lose Weight
I had posted earlier about when it is time to get Hospice involved. I have been busy getting my LO set up with home health three times a week, and Palliative care. My concern is still that my LO will not eat food. This weekend she aspirated twice on soup and coke. I also noticed that she is not snoring at night. This is a…
-
New issue
My DH had a physical spell early this morning. He wanted up to go to bathroom about 5 a.m. this morning. I made sure he made it to the toilet and let him have some privacy. He was in there a little longer than usual, so asked if he needed some help. Found him weak and very pale and clammy. I helped get him back to bed and…