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i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…

does anyone have any iv infusion experiences?

So this is just a vent but probably one many can relate to. It’s not enough that you have to watch your LO whither away piece by piece and be hyper vigilant 24hrs a day with care and feeding but in my case I also get to watch the house we spent 36 years making into a beautiful home become a wreck. I’ve had to move a lot of…

Good morning. I joined this discussion board over five years ago. Y'all have been with me as I learned the importance of seeing a lawyer, as I hoped to keep Joe home, as I placed him in memory care, as I negotiated the girlfriend in MC, and throughout the journey. I appreciate the people here—those who were here when I…

currently mom and dad still live together. Mom has not been officially diagnosed but we are sure she has dentists or Alzheimer’s. Neurologist appt is this week. Mom is so paranoid and untrusting of dad. Through out the day she will get scared he is going to hurt her or push her down . We try to tell her he isn’t and that…

I think it's hard for others to appreciate the guilt that accompanies caring for someone with dementia. I liked this brief video https://youtube.com/shorts/NXeU5SFW5lM?si=gQ-WLKsFEfOWWf6o

I posted the following earlier in the week in a different discussion; the person who replied suggested this would be a more appropriate discussion topic as he/she was the only reply to the original post. I hope someone maybe has suggestions or has had a similar experience and let me know how they navigated the challenge. A…

Hi everyone, After a 2 1/2week trip to Japan with my stage 5 (I think) DH we're trying to get back into a routine. I've been reading other posts here since my return, but after finding that I've been sort of ignoring my old routine of documenting his behaviors and progression I felt coming here and venting might help reset…

Every so often depression rears its ugly head, throwing me off course. While helping my husband out of bed today he tells me he’s tired of sleeping under an X-ray, it hurts his legs. I calmly tell him I will make sure it doesn’t happen again. He feels better, I feel sad. He won’t remember the conversation. Live in the…

I am new here. Wife recently diagnosed with early dementia. How does a person cope with someone’s anger without throwing up your hands and running for the hills?

Happy Mother's Day to all the mothers dealing with this horrible disease and all the caregivers who are mothers as well.. God bless

My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…

Here is what I did today at the multi-thousand dollar MC where my DH lives: Woke him from a nap at 11:15 AM Brushed his hair Cleaned his smudged glasses Shaved him Took a short walk with him Requested the aide change his soiled briefs (yes, I checked them first) Walked to lunch (he didn't eat the overcooked broccoli -I…

Regarding my mom's constant requests (and demands) for things, I have found my local community Buy Nothing group has been great! Mom mom has set up a miniature "office" in her bedroom in her AL apartment. She had a large home office throughout her life and she always had it stocked (over stocked) with office stuff. So she…

I am really glad a community like this exists. I recently moved back to live with my family since my mom's dementia diagnosis earlier this year. I was working and living a few states away and am a few years out of college. It has been a lot of big changes for my family recently and I am never sure I am making the right…

We currently have a medicare advantage plan in CA, Kaiser Sr Advantage. We are moving to NC and need to select a different plan because Kaiser is not avail there. We like medicare advantage plans because they cover parts A, B and C but I have been following with interest the thread about tge GUIDE program through Medicare.…

Had a Neurologist app't with my DW and all went well until he ask how her social life is going. My DW said "good' I talk with my family and neighbors often. He then said it would be even better if she would visit other social groups outside of that. I really didn't know what to make of that being my DW's conversations are…

As a recent spouse of my DW diagnosed with Alzheimer's I struggle with depression, sadness and loneliness. Once joining this site and reading posts I see that I need to shed the "woe is me" thoughts. So very many folks have situations far worse than she and I at the moment. I sincerely applaud all of you for what you are…

My husband (56 with EOA) recently had a 4-week hospital stay due to Ulcerative Colitis, which led to blood clots and malnutrition. He is currently at home. He can barely walk. He eats maybe 500 calories a day. He argues with me about taking his medications every single morning. He did the same thing in the hospital and had…

Do you feel that your loved one is still present for you in some way? Are you surprised at times by a sound, a smell, a touch that feels as if from your loved one? Can you feel them near you somewhere in some way? Do you talk to them (I do) and feel you get some form of a response? Do you find being at their grave peaceful…

I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.

I am SO losing it. I have been at the end of my rope for years living with a spouse with uncompensated ADHD. His early AD complicated by ADHD is driving me over the edge. I was able to have him seen for neuro-cognitive rehab, but that was futile because he refuses to acknowledge he has a problem either with ADHD or AD. I…

I live far from my sister. I was requested by her friend to check in on her and was surprised at her decline. We immediately put her into assisted living. When we arrived she was open to visiting assisted living facilities but I believe she thought it would be a year away or that her same friend who called would go to the…

Just wanted to offer a couple resources I found afterwards. I wish resources for us were better promoted but if we all share what we find, it might help one person. The two I will mention are: Hilarity For Charity (commonly referred to as HFC) https://wearehfc.org/ CareYaYa https://www.careyaya.org/about I can personally…

Funny (or not) story: When my mom lived alone, 4 hours from me, and no one checking on her, she gave me permission to install a camera that could show her kitchen and livingroom area. It gave me peace of mind that I could check she was okay or at least moving into areas of her home. I was able to see she was eating dinner…

My MIL is moving into an assisted living community that contracts with a service that provides primary care through their own physicians and nurse practitioners. I'm wondering if it's best to switch her records over to them, with the obvious benefit that most of her health care visits won't require her to leave the…

Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…

My SO has severe dementia, communicating with them is extremely difficult as 5 minutes after you think he understands he does the complete opposite. Throughout winter he decided everything in the garden needed pruning as a consequence several plant collections have been destroyed. Now with spring he believes everything…

I’m very new to all of this. So my dad and I just found out this week that my mom has Middle stage of Alzheimer’s. We knew something was going on with her mind but we found out how bad her memory really is. I have read a few things on trying to deal with the anger issues and it is so hard to. How does the caregivers keep…

It was my birthday today. And as my dad sang me happy birthday from his bed in a nursing home, my mom was just glazed over. It didn't register at all. It was a profound moment for me. Only 2 years ago she had it in a loop in her mind to tell people that her kids were born on the same day. The people she told were family…