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My husband was diagnosed with dementia about 6 months ago and I feel so lost. We've been married for 23 years, this is a second marriage for both of us. All of my family is halfway across the country, so I feel very much alone in this journey. He has one daughter who is very caring and concerned but she lives a ways from…

We started on Olanzapine over a week ago and it has been helping with the delusions and paranoia. Better mood. The 2nd week started and he dozes off in his chair often. He seems confused at times and memory not good. There are a lot of side effects with this drug. So even though it has helped, I am worried about his…

My DW is getting worse fast. She doesn’t remember what happened five minutes ago. Plus, she’s understandably depressed. I’m at a loss to help her mood so I’m depressed, too, and just want to sit in bed and watch TV to wind us both down. I don’t expect miracles. Just venting here. I appreciate the group.

My Diagnoises was October 2025. My SSD was approved. Now that is completed and my career of 30 years is over, i sit here still in shock. I am not sure what to do now. Help I need others like me to talk to. I am a mother of 4 grown children and 4 bio grandchildren. I am also a wife to a loving husband who has taken on so…

so long story short I'm with my parent at a room in the er in the behavioral area. They are going to admit her. I'm wondering when is the best time for me to leave. I was waiting on the decision of the hospital on what they were going to decide to do with her and speak with the county crisis worker. I did this and now…

This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…

On top of elder abuse/theft/etc. Issues involving my dad ex and friends I gotta handle... Medical & Social Security are highly incompetent... Facility issues...New medical problems, and my dad wants to go back to court to start all this all over again 🤦🏾‍♀️ Im exhausted!

10 years of dementia and the last three were exceedingly difficult and I feel I've been through a meat grinder (I am a different person now). I was the only person in the family (her only daughter) to step up and try to help navigate all of her care needs, as well as the legal and financial situation of my parents (both in…

I am 25 and I quit my job about a year ago to help my parents take care of my grandmother with Alzheimer's. She lives with my parents but I do not live with them. I take care of my grandmother during the day and anytime my parents need help on the weekends, which isn't too much. Lately she's become very combative and…

This is a helpful tip (I hope), and also a question if others can recommend frame brands. My mother has grown increasingly confused about organizing her day. She is solidly in Stage 4, so I think this post is most applicable around that phase. We have found it very helpful to give her a photo frame on her dining table.…

Hello fellow caregivers. I'm curious if anyone else is on a similar journey to my own. Both my mother and husband were initially diagnosed with MCI two weeks apart, four years ago. At the time she was 78 and he was 63. I placed her in AL two years ago because there was no way I could care for two at home by myself. Now…

Six months into my grief for the loss of my dear wife and rolling into the new year the changes seem forever and overwhelming. As soon as you think you have completed all the distasteful changes required, another pops up. In trying to encourage friends and family, who are not impacted as directly by a loss, to build…

My DH has recently started having some significant behaviors. His delusions have increased constantly saying I have a problem and need to go to the doctor. Blocks me from going upstairs etc. Nothing physical. He starting taking 25 mg of serequel in the afternoon. I called the dr. to request an increase so I have started…

My DH was officially diagnosed with MCI and is not accepting it. He says he flunked the test because he wasn’t feeling well. He will not agree to any further testing and, when I try to have a conversation about it, he just dodges and deflects. I finally told our 3 adult children and a few friends but swearing them to…

I'm dealing with something i haven't seen addressed here and just wonder if anyone else has experienced the kind of fears I'm feeling? I have irrational fears for my health, for my safety and for my financial stability. I'm imagining the worst when I feel a new pain or lump… I triple check to be sure appliances are turned…

Hi everyone, I'm caring for my aunt who raised me when I was a child. She has early-stage Alzheimer’s and is currently living alone. Her son has been out of contact with the family for about 10 years, and we haven’t been able to find him. She misses him deeply and talks about him every day. My aunt has memory loss. Because…

Hello there. I'm posting because I don't know what else to do, I guess I'm looking for guidance, someone to let me know that I'm not going crazy. My Great Grandma is 101 years old, lives alone in her house she's lived in her entire life. We've tried to get her into assisted living but she refuses and her doctor says at…

Deleted- wrong discussion.

My dad had to stop the Leqembi infusions because of brain swelling and bleeding about a month ago. I have noticed his personality changed towards me negatively and not at my mom. His next doctor's appointment is in June. I will contact his doctors then. Is this a normal occurrence from leqembi or this the progression of…

Hello everyone, I'm a Industrial Design student currently trying to design a product that could help prevent dangerous wandering in people living with dementia. My grandmother has dementia, and right after moving houses she had a few bad wandering incidents at night that could have ended badly if she hadn't been found by…

Hello. I am new to this forum. My mom has dementia. It started when she was 54 years old. She is now turning 62 in August. We are at the point where she has been hysterically crying for the past 9 days straight. She started Rexulti in December of 2025. We were thinking that maybe that could be part of it. She is now losing…

I haven’t been here in awhile. Mom is in MC. She’s 73. I have a 5 year old. Husband is away for work. Old pic popped on my phone of my daughter and mom just a year ago. She was in MC then (been there almost 2 years now). I just can’t believe how fast this all went down. In the picture she is smiling with my daughter. Now,…

Hello, My DH was diagnosed with mixed dementia and in moderate phase (start of stage 5 in the 7 phase model). I knew he had it and had to push his PCP to test him. 2 yrs later and they tell me something I already know. So frustrating. His neurologist prescribed donepezil, but he doesn't want to take it and the research…

my mom was diagnosed with FT dementia 7 years ago. At that time, she was still living in IL with my dad. since then, her condition has progressed to the point where we decided to move her to MC. One of my to-do items along with the move was to get her an appointment to be seen by a neurologist again and reevaluate. But at…

Briefly my DW is in stage 7, under hospice, on several meds including serequol, depakote, lexapro, and Valium as needed. Also temazepam for sleep. Total aphasia. Days are usually 80% walking, bumping, mumbling (all the time) and 20% laying down or sitting. The issue is she’s usually walking with eyes almost closed. Can’t…

As my DH is approaching the last stage of Alzheimer’s I am struggling to find diapers that actually work without leaking. I have found good pads for underneath but have to wash them almost every morning as they are wet. It seems to leak out the top and I have found that all brands sit low on his waist. Has anyone had good…

The geriatrician my DH sees has ordered palliative care and we've seen first a registered nurse and then a nurse practitioner. I wondered if anyone has experience with pallilative care and if it's helped. What are the benefits of palliative care. I was told they would be able to transition him to hospice if/when the time…

Yesterday was our 47th anniversary. So I got a nice card for my wife who has FTD and put a loving note in it. I had a dentist appointment at 2:00 to finish two crowns so I spent quite a while there. She never got up until I woke her up at 5:00 for dinner. I gave her the card and she had no comment. At dinner she announced…

Not sure what stage of Dementia my mom is in but she needs care 24/7 but she still can eat without choking, She watches TV , smiles and still laughs, eats snacks sometimes will feed herself but I’m having a hard time just thinking she might pass sooner or later

We moved Mom in to AL today. It went a little better than I expected. She loves her room. But she is very angry that they took away her medication and have to administer it to her. She doesn’t understand why. She is also annoyed that people keep stopping by to take her vitals etc. She says “I didn’t think I was coming to a…