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Significant Decline
In the past month, my DH has shockingly decline - confused most of the time, getting up at night and fully dressing, somedays not able to shower himself, fell once, lots of dozing during the day, language challenged and cannot follow a simple one-step request. I had a urine culture done yesterday and I am waiting for the…
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Caregivers....they are special
Whether you choose in-home or facility care, the caregivers are special people. They are there when you and your loved one need them. They earn every penny, or buck, and our most incredible, deepest thanks…..
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hallucination
Anyone know anything about hallucinations with dementia? Do they get worse?
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Bathroom Help
My husband had begun getting to the bathroom just in there and will urinate on the floor. His walking is bad so I bought a bedside commode, put puppy pads under it since he doesn't always hit the pot, sat it on a computer chair mat so he wouldn't hit the carpet and this morning he stood up, did not even get close to the…
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Medicare and caregiving
I thought someone else might have started a thread on this, but I don't see one. Evidently Medicare is ready to test the waters on finally helping.
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Long distance care
Hello Everyone, I am thankful there is a place for help. I lost my mom 14 years ago to this disease and know the stress first hand. Now, it is my father who lives in Florida and my sisters are both there. One lives on the same street not the other. My father's wife is in the hospital and was removed by her daughter's…
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Hoarding
My DW with Alzheimer's will go into any room and start picking up random stuff and walk around with them. She will then fuss with them and sometimes put them where I have to hunt for them. This can be frustrating if it happens to be a remote control, our check book, or my Iphone. Does anyone else have these issues?
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And so it goes…..
DH just asked me if I know where our daughter is. I told him yes, she lives in Colorado Springs. He then asked if she has a husband. I said yes his name is ….. and then he asked does she have any kids. I said yes but they are grown up now. Going, going, gone. And so it goes with dementia.😢
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Comic relief
Lately, MIL has been having pretty lucid conversations - she seems to be understanding a lot more. Even though she remains unclear about a lot of things (like where she is), she’s making so much sense all of a sudden that I’ve been second-guessing my decision to place her in MC last year. Until this happened - we spent 5…
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Mixed Cortical and SubCortical Vascular Dementia
My DH was diagnosed with MCI May, 2021. He has progressed to what I think is late stage 4 with some early stage 5 symptoms according to the Tami Cummings chart. Since his Mother plus 4 Aunts all died from Alzheimer’s and his sister is currently in hospice with Alzheimer’s, I just assumed his was Alzheimer’s. We started…
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Making stuff up
My DH is constantly making stuff up, from what I understand it is his brain trying to fill in the blanks. He was diagnosed with dementia caused by Alzheimer’s in March of this year. It has been a long journey to get to that diagnosis. Anyways, back to making stuff up, for whatever reason it bothers me that he does that.…
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Am I doing the right thing?
Hi everyone, I am caring for my mom with early-onset Alzheimer's. She is 58 years old and she moved in with me last July, 2023. Before then, she was living in her own apartment in a different state and my grandmother was living with her, so she was able to care for her, while still allowing her to feel as though she had…
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Seroquel
Anyone have experience with how long Seroquel will help with hallucinations and delusions? DH has been on it now for about 2 months and it has worked great with hallucinations but he is beginning to have them again. I’m almost at max dosage for him (can still add half a pill or 25mgs). I really don’t like how it makes him…
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How long on Namenda?
Hello, fellow travelers on this painful road. We as a family have reached the torturous decision to place my DH who is in stage 6 with mixed dementia, in memory care. He has been approved for Hospice although he is not fully incontinent, can feed himself and go to the bathroom, buy needs assistance with most ADLs. His…
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Is it the Disease or Mom?
For the last several weeks our 86 old mom with dementia has been getting increasingly frustrated with her inability to answer the phone, use the TV remote, sometimes turn off the water, lots of things. I am wondering if it is the disease when she takes her frustration out on us and will wash the dishes she's used and leave…
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Thanks for the help as I go through this
It is so nice to see others are going through what I am going through. Here is what is hard today: 1. I feel like I am talking in circles, explaining and re-explaining things. Sometimes we talk about a subject just to find out that he has completely lost what that subject was. 2. I was asked where his glasses were no less…
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When Vascular Dementia & Alzheimer’s came to Our House
Hello All, Glad to make your acquaintance. We are the Jacksons’ Just received my husband diagnosis on October 26, 2023. Vascular Dementia & Alzheimer’s ( moderate). Reading 📖 all your posts to become familiar with what’s down the road ahead.
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Every moment seems to be a challenge
I think I’m just needing to share what I’m feeling. I know there are no answers. My DH is stage 6 Alzheimer’s with PPA as well. He’s 73 and I’m 62. He is still sweet most of the time but of course gets frustrated with me sometimes. I try so hard to follow all the rules regarding just answering questions over and over again…
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May seem like a silly question
GM all, I have a question that I’m pretty sure I know the answer to but my wife mentioned to friend that she’s feeling depressed, now understand my wife head spins when you mention Nurologist, so do I need to speak to Nurologist about this or if this something her primary Doctor can take care of ?????
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Planning to move my father to my home
Hello all. Im planning to move my father here with me in my home which is in a different state then he lives. He lives alone in his own home and his dementia is progressing. He thinks he is coming for a visit. But in actuality won’t be going back home this time. I will need to go thru his things at home and sell the house…
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Searching for Millennial Elder Care Support Group in the DMV
Hi, looking for a point in the right direction for a support group either in-person or virtual in the DMV that is based on the experiences of other millennial care givers and their parents with Dementia/Alzheimers.
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How to make time for calls etc. that involve talking about his dementia when he's always listening.
Hi there. My DH has dementia and I"m finding it difficult to make arrangments / schedule appointments and give those people background information on what is going on when my DH is always within earshot. He is usualy glued to my side. I feel guilty making up an excuse to get out of the house to make calls or even to start…
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Today is my birthday
My Dh wish me happy birthday this morning :) The rest of the day has been all about him. Dh is pretty cognitive. Suggested we go out to eat,no. Was more worried about what he wanted Sounds very petty to complain but is this what it's going to be like? Very how can I say it, self absorbed or like a kid wanting to do what he…
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How do we know the best next steps
I’ve reached a point where I’m withering under the strain of my DH’s disease. He’s in stage 6 Alzheimer’s and has PPA. He can do nothing for himself. I bathe him, shave him, pick out clothes and help him put them on correctly, cut up his food and feed him, make sure he has water and takes his medicine which he doesn’t even…
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waste of time and energy
Hardly know whether to post this, I think I am just venting and looking for validation from people who understand. Right after my partner fell in early June, there was another attempt by her old "frenemy" to visit her without notifying me first. Fortunately the password system at the front desk worked and they didn't let…
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Rivastigmine impact on bundle branch blockage
Yesterday my DH's doctor evaluated three successive EKG's (done in under 18 months) that indicate my husband has developed blockage in the conductivity of the heart in all but one branch. Dr. says it is likely due to rivastigmine. Dr. still believes the usefulness of the drug outweighs the risks. Does anyone have any…
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feeling helpless
My wife was recently diagnosed with early onset dementia probably due to AD. After seeing a Neurologist for 2.5 years, including an inconclusive spinal fluid analysis they now think they can diagnose it as early onset dementia. As I type this, there has been no course of treatment for her prescribed by our Neurologist. He…
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This morning’s bathroom disaster
I just need to complain for a minute.DH, now dipping a toe into stage 6, announced this morning that he had to pee. When he came out, he had clearly done more than that. The toilet plunger had been used, and it didn’t smell good in there. Everything looked ok, though. His towel had been hung up and looked reasonably clean.…
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DH in the hospital for 3rd time in 10 months
For the third time in less than a year DH has been admitted to the hospital for a skin infection. This time is the worst so far, I'll spare you the details but he's looking at at least 6 weeks with a wound vac. Since he has no clear cognitive impairment diagnosis in his records no one is listening to me about anything. I…
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General Question About Medicaid
Hi everyone. I have a general question/curiousity about Medicaid (I'm completely ignorant to this). I've tried applying for Medicaid for my mom twice now, and both times, her app has been declined almost immediately. She makes less than $1700 in SS and has virtually no savings, no retirement, pension, life insurance, nada.…