-
Planning to move my father to my home
Hello all. Im planning to move my father here with me in my home which is in a different state then he lives. He lives alone in his own home and his dementia is progressing. He thinks he is coming for a visit. But in actuality won’t be going back home this time. I will need to go thru his things at home and sell the house…
-
Searching for Millennial Elder Care Support Group in the DMV
Hi, looking for a point in the right direction for a support group either in-person or virtual in the DMV that is based on the experiences of other millennial care givers and their parents with Dementia/Alzheimers.
-
How to make time for calls etc. that involve talking about his dementia when he's always listening.
Hi there. My DH has dementia and I"m finding it difficult to make arrangments / schedule appointments and give those people background information on what is going on when my DH is always within earshot. He is usualy glued to my side. I feel guilty making up an excuse to get out of the house to make calls or even to start…
-
Today is my birthday
My Dh wish me happy birthday this morning :) The rest of the day has been all about him. Dh is pretty cognitive. Suggested we go out to eat,no. Was more worried about what he wanted Sounds very petty to complain but is this what it's going to be like? Very how can I say it, self absorbed or like a kid wanting to do what he…
-
How do we know the best next steps
I’ve reached a point where I’m withering under the strain of my DH’s disease. He’s in stage 6 Alzheimer’s and has PPA. He can do nothing for himself. I bathe him, shave him, pick out clothes and help him put them on correctly, cut up his food and feed him, make sure he has water and takes his medicine which he doesn’t even…
-
waste of time and energy
Hardly know whether to post this, I think I am just venting and looking for validation from people who understand. Right after my partner fell in early June, there was another attempt by her old "frenemy" to visit her without notifying me first. Fortunately the password system at the front desk worked and they didn't let…
-
Rivastigmine impact on bundle branch blockage
Yesterday my DH's doctor evaluated three successive EKG's (done in under 18 months) that indicate my husband has developed blockage in the conductivity of the heart in all but one branch. Dr. says it is likely due to rivastigmine. Dr. still believes the usefulness of the drug outweighs the risks. Does anyone have any…
-
feeling helpless
My wife was recently diagnosed with early onset dementia probably due to AD. After seeing a Neurologist for 2.5 years, including an inconclusive spinal fluid analysis they now think they can diagnose it as early onset dementia. As I type this, there has been no course of treatment for her prescribed by our Neurologist. He…
-
This morning’s bathroom disaster
I just need to complain for a minute.DH, now dipping a toe into stage 6, announced this morning that he had to pee. When he came out, he had clearly done more than that. The toilet plunger had been used, and it didn’t smell good in there. Everything looked ok, though. His towel had been hung up and looked reasonably clean.…
-
DH in the hospital for 3rd time in 10 months
For the third time in less than a year DH has been admitted to the hospital for a skin infection. This time is the worst so far, I'll spare you the details but he's looking at at least 6 weeks with a wound vac. Since he has no clear cognitive impairment diagnosis in his records no one is listening to me about anything. I…
-
General Question About Medicaid
Hi everyone. I have a general question/curiousity about Medicaid (I'm completely ignorant to this). I've tried applying for Medicaid for my mom twice now, and both times, her app has been declined almost immediately. She makes less than $1700 in SS and has virtually no savings, no retirement, pension, life insurance, nada.…
-
Staying up all night and wanting to go home
My wife has recently been getting up at night and asking to go home. I ask her where she means and it's usually her childhood home that she's been out of for 50 years now. I started her on Melatonin which my doctor said was ok to give her. It worked a few nights but then she had her worst episode last night when she stayed…
-
Should I tell Dad he has Alzheimers?
Is it more helpful or hurtful to remind my Dad that he has Alzheimers? My Dad refuses to move to AL. He says they are doing fine. We try to give him examples of why he's not but it feels like this is more hurtful than helpful, especially since he won't remember the conversation. What do we do/say instead? I find myself…
-
New to ALZConnected - parent suspected to have ALZ
Hello All! My 74 yr old dad is concerned that he has ES ALZ because he "feels foggy" all the time and couldn't remember how to get to a specific place on a lake he visits 1x per year. While I have concerns that his memory is slipping, I am not sure it's ALZ or typical age related memory loss. He is extremely sharp and…
-
Help!!! I need RESPITE for a week anywhere San Diego!!!
Well I had thought PACE was going to set up care for my mom so I can attend a work conference. I am on the verge of losing my job since my mother moved in last October. I have missed several conferences and this one is mandatory. Anyone know of any respite care that will take a dementia woman for a week. Anywhere in San…
-
EO Stopping Work
for those whose LO had to make the decision to leave work. How did you help them through the depression? My DH is struggling with making that decision even though he knows he should. He has been a workaholic his whole life. I think he is worried about not providing that income and feeling like he has nothing left if he…
-
Support Group in Las Vegas
We are a gay couple, and recently moved to Las Vegas. We've been together 27 years and my husband has been diagnosed with Alzhemiers last year and he has started Leqembi infusions (9 times) for far. We are hopeful that his condition would improve. He is not as sharp as before. I've done everything that the doctor suggested…
-
New Article Sent by my CELA: 5 Medicare benefits consumers should know about. TRUE??
Hello fellow caregivers, My CELA just sent me an article titled, "Alzheimer’s disease and dementia care: 5 Medicare benefits consumers should know" because she wanted me to know that it looks like Medicare Part A will pay for up to 35 hours of in-home care per week for dementia patients who are homebound and require…
-
Finally Visited
I finally visited my LO in MC. It's pretty awful. The food is cold, hard, or non existent if they "think" she refuses to eat it. The staff, especially at night are rude or incompetent. (Daytime isn't much better) She's mad as hell! She's a tweener. She needs mental and social stimulation found in AL with extra support…
-
Mother making up stories
Hi, I'm new here. My 74 yo mother is staying with my son and I for the summer, until my son goes back to school. My son is 9 yo. My mother has been making up toxic stories about me, telling her friends and even my adult daughter. This has been going on for about a month and I just found out. My mother also believes I am…
-
As caregivers what do we do with all those feelings.....
As I look forward to going to work this morning after a long weekend with DH, I feel guilty leaving him home. But at the same time relieved I am leaving to go to work. DH is still able to be by himself for periods of time and between a combination of home health and my ability to telework he is taken care of. I have to go…
-
NYT Magazine: Racing to Retake a Beloved Trip, Before Dementia Takes Everything
A touching story about a daughter and father's trip to Europe. I gifted article so it's unlocked for 30 days. I learned about a 1950's themed adult day care and artificial village called Town Square. But the key part of the story is about reminiscence.…
-
Freaking out
I read that 1/3 of caretakers pass before the PWD goes. I depend on my mom to take care of dad until he dies. But my mom also have beginning signs of Alzheimer's and don't know how it will progress. I don't know what to do if either one passes away and how I can step in to take care of them when their conditions worsen.
-
Smoking
My mom stopped smoking in January, not because she wanted to but because it just wasn't safe so no one would buy her cigarettes' any longer. In early February she went into a SNF, there for 9 weeks. She came home and was doing find without cigarettes. It has been 6 months and she hasn't had a cigarettes. She had tried 3…
-
Resistant to redirection or distraction
Does anyone have experience with redirection or distracting not working? Specifically, PWD wants to wash takeout containers before eating. It's not just rinsing, but washing with soap, even paper containers. These attempts don't work: It's not necessary to wash them I'll do it myself, later You can do it later Please go…
-
I want out!
Most of this is just a vent, but I really don't want to do this any longer. My HWD (I can't even call him my DH now) has become so mean. We recently visited with my sister and her husband along with other family members. My HWD has been telling me that he married the wrong sister! He says my sister is smarter, thinner,…
-
Rough Week
Another rough week. I thought I had all the documentation to apply for Medicaid for my DH. The lawyer told me I still needed more. Now I have everything except two documents an I am waiting for them to be mailed to me. If they don't come soon, I will be paying Another $6,530 to the MC facility. Since I've already done the…
-
How to know I’m making the best desicion
I’m new to the discussion. I need help. I am struggling with the deduction to bring my father to my home in California. He currently lives by himself in another state has had a dementia diagnoses since 2017. Currently he his doctors have recommended for him not to drive. VA has only approved 6 hours a week of home health.…
-
Any Gay men out there?
I am a Gay guy living in the Southwest, taking care of my husband who has moderate memory issues. It would be helpful to communicate with another person in my situation. Thanks.
-
Should I Tell His Family?
My DH (61) was recently diagnosed with MCI most likely due to ALZ. There’s family history and his IQ has plummeted. He had the full neuropsych work up and that was the conclusion. He’s somewhat in denial, but is coming to terms. He doesn’t want me to tell anyone. I’m seeing declines monthly. I have no clue how fast this…