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Palliative Care vs Hospice Care
Although I’ve research via the Internet and searched this site extensively, I’m still not clear on the difference between palliative and hospice. If “who pays” and “chemo/radiation/targeted therapy/surgery” is removed from the equation - what are the primary differences between palliative and hospice? In hospice, would at-…
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A YouTube Interview with Our Own Lickety About Her Film & Blog!
Hey, folks, it's a GREAT interview with our own LicketyGlitz about the journey of caregiving, her blog, her new film, and the wonderful fellow caregivers she met through this forum. https://www.youtube.com/watch?v=kGMEvsjBhdE
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For Jo C
I’m thrilled to see you are back online, and that you are in full volunteer mode. The new folks here have not had the benefit of your wisdom yet. 😊
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Social Security Office experience - Need to vent...
Oh my goodness. My experience with going to social security for my DH56's disability was the thing that broke my LAST nerve. I completely LOST it on the way home. I was crying so hard I could barely breathe. I had all I could do to compose myself as we left that useless office and walked to our vehicle. And, of course, as…
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SLUMS test
I just took the SLUMS test and got a 26 - Mild Cognitive Decline. Does that automatically lead to dementia or is it just normal aging?
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Being trans and caring for someone with Alzheimer's
Hey all, I am new here and looking for some type of support, but am unsure if this is the right place? I am a transgender person early-ish in my transition and my grandmother/best friend has been diagnosed with alzheimer's for around 2 years now. As my transition has progressed, so have her symptoms. Some of my family has…
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How do I take away hobby supplies?
My close friend has Dementia and wants to keep sewing but keeps taking her machine apart, or breaking needles, etc. I go to her assisted living apt and fix the machine but it is down again the next day. She was an avid quilter but can no longer keep it going. She will take the needle out and then claim someone else did it,…
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Just need to talk to my friends (192)
Hi, Hope this works. Maybe we can just go to page 20 and start a new section so we can get to 200. It's sort of rainy here today - had a shower about noon and there's still a little drizzle. Hope we can get more rain later today. Ron, I hope things are going all right for you. Post and let us know what's happening - at…
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The move to Memory Care....'Hotel California'
The move had to be made. That doesn't make it any easier.
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Disability and CELA Lawyer
Hello Everyone! I have been reading as much as possible on this site and have searched for answers to my questions to save any redundancy, but I'm still confused. I hope you don't mind me posting about this. After our appointment with the neuropsychologist, she insisted that disability is a must and should be my first…
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Seeing the end but not
I’m such a mixed bag of emotions. My father is the most resilient man I know, and I mean very resilient. Every time the docs have said he won’t overcome, he does, whether it’s walking post stroke, body self healing brain bleeds, malignant stomach tumor that was supposed to be the end within a matter of months but never…
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Middle of the night vent
4:30 and I've showered him, stripped the bed, mopped the floor, and started a load of laundry. I was so angry. And so so sad. I can handle almost anything. But stepping in pee because he decided to walk all over every part of the bathroom is hard to take. And when I sat down to cry, he came and held me. He breaks my heart…
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Coping with a father with dementia in my 20s
At the behest of my therapist, I am looking for the support of others going through similar circumstances as I am. I feel incredibly alone in my slow grieving process for my father, who is 68, and has been dealing with EO dementia for the last two years. I feel completely out of my depth as a 28 year old person without the…
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Help help help
I have a pwd that fell in February which caused an L1 compression fracture. She had surgery then went to a skilled nursing facility. When insurance stopped paying and the facility said it was not safe for her to be home alone, I moved her to assisted living. All she wants to do is to go home. The professionals at the…
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When is it time…
Hi all! my mom was diagnosed with late stage Alzheimer’s 2/23. Was a shock and so I moved my two kids in to her home and didn’t realize the extent of it until then. Well here we are a little over a year later and her progression has become severe. I quit working 8 months ago to take care of her 100%. Up until recently she…
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Whether to quit my job.
I am right now on fmla to be taking care of my dad. My question is the I’m 60 and the cost of paying someone will cost more that my salary per week. Don’t know whether to quit after fmla is over and just take care of dad myself. I have moved in with him last July.
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Suprapubic catheter
I'm thinking to have my dad try a suprapubic catheter as opposed to a Foley catheter. I will talk to his urologist next month about it. My dad is unhappy changing his catheter every month. However, I read that he still needs to change the suprapubic catheter every 4 to 6 weeks. But is it also painful? What if he gets an…
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All I can say is ....
THIS REALLY SUCKS!!!! I WANNA SCREAM SO LOUD HOW MUCH I HATE SEEING MY KIND, LOVING, BIGGEST HEART OF GOLD WOULD DO ANYTHING FOR ANYONE BF GO THROUGH THIS HORRIBLE DISEASE. HE IS ONLY 44!!!! WHY???? WHY HIM???? WHY ANYONE??? WHY CANT THERE BE A CURE??? SOMEONE SCREAM WITH ME ... PLEASE!!! We are all in this together 💜
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stage and progression
My first time here. My DH (87) was recently diagnosed with ALZ…no surprise. His memory has been off for a few years now, surprised I didn't realized something was wrong earlier….well, that's in the past. Doctor seem very vague, I guess everyone progressed differently with this. To me its seems his mind/memory is somewhat…
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Resources for Early Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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cross-post: looking to trade visits with someone in Nashville who's parent is in San Fran Bay
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Trade with someone living in Nashville?
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Mother is undiagnosed and won’t go to doctor or allow anyone in to help
my 84 yr old mother has been deteriorating years and she lives with my 92 yo father who cant remember anything but does still drive and do groceries My mother is sleeping almost all day and in a nightgown with more holes than cloth until 7pm every day and is a hoarder. Lately there has been food out all over the counters…
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Long Term Care Policy Eligibility
How "bad" does someone's dementia/cognitive impairment need to be before they qualify for long term care insurance? My mother's physician seems to believe that a patient needs to be almost completely incapacitated and living in a home before he would certify that she is chronically ill. Meanwhile she cannot drive anymore,…
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I want to hide
I just don’t want to get out of bed and face the day! To face DH. Sounds awful and I feel terrible saying it out loud, but it’s the truth! So many things that brought me pleasure no longer do. The sweet sound of the birds in the morning, going for a walk looking for sea glass on the beach, sitting on the deck on a…
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Where does a middle-stage person live?
My sister is 65, looks youthful, could almost "pass" for a non-dementia person if you don't try to have a conversation with her. Up till now we have had her living in a small house with a 24 hour aide. The landlord wants it back for his son, so we have to move her in July. It is not financially sustainable for her to…
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Dad Going Into Hospice
Condensed Verion Weve gone through so much concerning my Dad since last summer, but I'm going to try and keep this brief. My Dad is 70 and was diagnosed with Alzheimer's last summer. He's in memory care now. He refuses his medication (even for high blood pressure and cholesterol) and won't eat. It's not due to lack of…
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He hates adult day care - now what?
Just reaching out to this amazing community and hoping for some insight. My DH is 76 and diagnosed with Dementia about 13 yrs ago. Progression has been slow but recently has escalated with severe confusion, agitation and paranoia (is sure people, lawn care workers, people walking their dogs, etc) are stealing from us.…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…