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How do you deal with emotions and confusion
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Dealing with emotional reactions based on incorrect facts
Hi All - I'm reaching out to get some help dealing with what's becoming a more frequent occurrence with my LO. She has not been formally diagnosed with dementia but has been showing signs of short term memory loss for a few years now. Her doctor has been helping her by modifying medications, etc but it feels like we are…
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Emory trial results have been posted
After being sent back twice by the FDA for corrections, the Emory Montelukast Alzheimer's clinical trial results have been posted and they are now much easier to find. Just go to the clinical trial site, click Results Posted, go to Outcome Measures, and check out 8) CSF Amyloid 9) CSF Tau and 11) NIH Toolbox. Emory…
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Neuropsych testing
When your LO has received neuropsych testing, were you given a copy of the results? I was not told anything other than DH has mild cognitive impairment and this was reported to us by his primary care doctor. I somehow feel we are missing indepth information.
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Stringing sentences together
I was googling something that took me to this AARP page. It was kind of a jolt to see the woman in the video talking in complete, consecutive sentences. Is this "normal" EOAD? My brother seems to not go more than a couple of sentences with out getting hung up and starting to stammer and saying "um, um, um…"
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DW made it through Radiation Therapy like a trooper
I guess I’m lucky my DW is in what ever stage she’s in as this radiation teatment every day for 6 1/2,weeks no joke. She had to wear special mask locked down to table so not to move. How would most of you have done if being done now. It’s over and everything worked out great v
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Rapid progression
is there any evidence that rapid progression of Alzheimer's indicates a likely speedy end to the life of the patient? Or can symptoms plateau at any given point along the trajectory. My DH has been declining at a phenomenal rate and I just have no idea what comes next.
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Overwhelmed and not sure what to do
Hello - I am sole caregiver for my husband with dementia / Alzheimer's. Things are changing fast for him lately. He will wander around the house and look at things like he's never seen them before. He will move things around, not remember about it, then get upset about who or why it was moved. He sometimes seems like he's…
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Memory Lane TV
I just read about Memory Lane TV. This is TV geared to people with dementia. On their website, they explain how their content is not plot driven and that it is very engaging for those with dementia. There was also a short video by Teepa Snow endorsing it. It says it can easily be installed on a television and the…
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how do you afford Memory Care facility?
My mom is on the waitlist for a memory care facility. I really wish they weren't so pricey. It's bizarre. Is this a topic that everyone just stresses over? Anyone else here put their loved one in a memory care facility? How were you able to manage it financially?
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How to respond to "why don't I remember that?"
We had a couple of quick family visits this spring including my DH's sister and three others, who stayed with us for two days. He has asked me a couple of times when she is coming and when I say she came a couple of weeks ago he says "why don't I remember that?". I usually just say yes, we had a great time, show a couple…
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Husband with MCI-vascular brain damage and 2 little kids
Hello. My husband has MCI due to vascular brain damage. I work fulltime and am the sole provider. My husband is 74. I am 54. Our kids are 9 and 13. I have 2 questions. (1) How do I find a CELA in my area? (2) Is there a support group for kids? Thanks, Kristi
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What can I do?
Please help. I'm looking for advice & support. I'm an only child & my 84 year old mother is in the throws of vascular Dementia. She was moved to her 3rd facility in September 2023 since first leaving her home to go into a facility November 2019. February 13, 2024 i was informed she'd tripped on her bedding & stumbled. This…
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Advice Needed - Agitated Behavior?
So - Easter and grandkids hunting through the house for eggs seemed so set off my DH. He walked out the door and I followed him, with him saying things like these people in the house are taking everything, I have nothing left, etc. Fortunately, my kids were with their children happily playing and I was outside, trying to…
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i am 44 caring for mom with mixed dementia
Any guidance for someone who is trying to care for a mom with mixed dementia and continue to raise a family and work full time? I can not quit my job nor bring my mom into my house as there is no room, I am trying to keep her at home but I am apprehensive with what that will entail as she progresses.
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MC failed us
I reported a month ago DW had difficulty going from home to MC, explosive agitation, being combative with staff and other residents - went to ER and then psych hospital. MC gave assurances she could return when stabilized. Psych hospital stay ended up being 25 (!) days with multiple adjustments to meds. She was already on…
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husband with fTD 40 yrs old
Hi Im new to all this my husband has been diagnosed with FTD I need help dealing with the behaviors, just with everything. Im the main caretaker , but his parents do help me out when I need to go to work. help !!
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Guilt
My DH passed a little less than 3 weeks ago. I find myself often overwhelmed with guilt. Were the choices I made for him the right ones? Did I contribute to his fast decline? Did I contribute to his suffering? I didn’t know I would miss him so as I often thought his death would be a relief for both of us. But now, I’d give…
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"lost in current time"?
Tam Cummings lists this as a late stage 5 characteristic. But I’m not quite sure what it means? Also, recently I’ve noticed that when MIL refers to “my family”, she always means her nuclear family as a child. Is this just an indication of her older memories being stronger than more recent memories? We had a recent…
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Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
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Walkers
My husband has a terrible time walking, he leans to one side, shuffles and his feet turn out to almost heels touching. How he hasn't fallen from this is beyond me. He has a walker and it has been a battle getting him to use it all the time. I am very tired of being mad, sad and angry all the time. He isn't afraid of…
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I'm so sad
I've been my husband's primary care giver since he was diagnosed with ALZ. Now he is in late stage and because of many problems with aggression and agitation towards me and a parttime home health aide, he is in a hospital in a unit specifically designed for short term stays for dementia patients to help stabilize them…
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lots of questions
My husband has not been officially diagnosed, but I have tons of questions. If you are a caregiver for someone with dementia, I am wondering if they do these types of things. My husband is constantly dressing/undressing/putting on layers of clothing. He picks up couch pillows and puts them in the bathroom. Gets his shoes…
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Are home health care costs tax deductible?
I realize this is a loaded question that only a tax accountant in my home state (or) can answer but I wanted to do some research before engaging him. I have recently brought my wife back from a memory care facility and have engaged a home health care service to provide night coverage to address wandering. This is expensive…
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Changing Assisted Living Communities - VENT
Hi everyone. I'm new here and I am in the process of exploring the different discussions posted. I appreciate all of the information everyone has shared. It helps me to feel like we are in this together. I wanted to get some things off my chest and I didn't know where else to go. I am an only daughter and I care for my…
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Just starting at assisted living
My brother and I finally moved our mom into an assisted living facility in his town where he's able to visit often. It was not an easy move and it wasn't something she wanted to do, but it needed to happen. At first, she called me every day once or twice (or more). Then, suddenly she stopped calling. I know the transition…
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That wavering line...
I feel as though I'm wavering each day as we wait for a possible MC placement. We visited a geriatric doctor this past Friday after a 6 months wait to get the appointment. My DS and I spoke very frankly with a social worker. We described incidents we've seen of unsafe behavior, but most of all I was able to tell her how…
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This is fantastic! 5 day course from Dr. Natalie Edmonds
A few years ago I took a 5 day course from Dr. Natalie Edmonds. I was told I could share it. This was supposed to not be available anymore, but I was cleaning out my emails tonight, and decided to try the links. They are live. I thought the class was excellent!! If you watch the first one, you'll know if it's for you. I…
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Does anyone do supplements?
I know supplements are a far reach. If any of them were truly any good, they’d be using them but when you’re desperate, you want to find hope and anything.
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best memories
Kathy (AnderK) wrote on another thread about spending seven months on a sailboat with her DH, and how precious that memory is, trying to honor it. Got me thinking it might be nice to have a thread about our best memories. That said, not all of us are fortunate enough to have had a great marriage, or a great parent-child or…