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My LO and the hired caregiver issues
I am the significant other/POA and official caregiver for my LO. We have been together for 39 years but he now has mid stage dementia. I hired a caregiver to help me at home, 3 times a week for 4 hours. The caregiver helps with toileting, bathing and household chores. The caregiver will keep him company so I can go out to…
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Caring for parent u have health issues
I've been living with Lupus about 14 years Ma has Altimers and Dementia past maybe 5, I had no help or resources and my health was taking a toll for the worst she has other issues health I was getting her to her appointment and skipping mine, first she stopped eating abs and taking her meds, She needed 24 hour care I can…
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Straw that broke this camel’s back!
I came home today and found my BF (with MCI) had done some laundry. 7 items on a medium load. He does this frequently. A trivial thing in the world of dementia. Many caregivers would envy a situation like that. I’m ashamed to say I lost it. I told him he has to move back to his condo. He is able to do all of his daily…
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Rapid onset Alzheimer’s
I’ve only heard of Rapid Onset Alzheimer’s once. Can anyone tell me if there are guidelines or timelines it follows. My DH was diagnosed two years ago and seems to constantly be on a downward slope. I keep thinking there will be a plateau but he hasn’t found one yet.
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New and dealing with early onset
I have been noticing small struggles over the past few years and definitely increase in anxiety as well. Early Onset is genetic in his family so we both knew he had a 50/50 chance. We talked about it and decided since we weren’t having children (married in our 40’s), we decided not to have him tested because what would we…
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Missing the toilet
Does any know of any devices/aids to help getting my dad to aim his pee at the toilet. My dad is completely missing the toilet. I’ve tried to work with him on sitting down to pee, but he does not remember to do it. I am having to clean the floor in three different bathrooms throughout the day.
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Incontinence issues
My DH has had incontinence issues in the last couple of months. He soiled his pants twice. Today he was outside working in the yard and suddenly said, “I pooped”. I was shocked. Both of the other times we were walking out in the woods and he couldn’t make it home but he told me he had to go. This time he didn’t even…
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Update on my brother
I am visiting with him now. He lives in Colorado Springs and I live in Albuquerque. I had previously called his doctor's office to rat him out on his memory loss. Today, my brother told me that he was referred to a local clinic and the appointment is in July. Yay! There is a wrinkle, naturally. He is a big Colorado Rockies…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…
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Saw Mom Today
Today was not a good day for Mom, she was irritable and just wanted to sleep. After 7 years of seeing this desiese debilitate my Mom. She is having much more bad days than good. All I can do is pray for her to be comfortable and all the people who work at the NH to do the best they can to accommodate my mom. 🙏
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ALFs and health insurance
I finally am moving my mom into an ALF in a couple weeks. I knew I would have to change her physician simply because of location but wasn’t expecting issue with prescriptions. The ALF has an in house pharmacy they work with and if we don’t use them it’ll be additional charge to get her prescriptions filled elsewhere. I…
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Overwhelming, gripping fear
I don't understand why I always feel in the grip of overwhelming, tenacious fear whenever my mom is delusional. I hate it. I wish I could just accept it and not be so triggered, but instead, I feel my heart drop into my stomach when she thinks my dad is on my way home (he died 17 years ago) and tries to get me to leave or…
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My first visit to Mom in Memory care
We made the difficult decision last week to move my mom from AL to Memory care. It was a emotional decision for me and hard on her. At the advice of the care facility, I have not visited her all week. I plan to go visit her tomorrow for the fist time since the move. I am very nervous. I have talked to her on the phone and…
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Geriatric appointment concern
My DH PCP sent a referral for a geriatric appointment after I discussed my concerns about my DH mild cognitive impairment and the care we are not getting from the neurologist. My DH is not having any specific issues now except short term memory. His neurologist previously said he will not be able to help with any psychotic…
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Should he know he has Alzheimers?
My husband was in the doctor's office when we received the diagnosis over a year ago. Now he doesn't seem to remember that he has it. He's gone through several tests and it was confirmed. Last week he mentioned that Alzheimers must have skipped him (his mother, brother, aunt, and cousin had it). Should he be told again…
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Is it Anosognosia, Denial or just being a big Ole B?
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How do you do this?
For those if you that are more successful at this than me, please fill me in on your secret. I feel like I’m suffocating. He follows me everywhere, keeps asking if I still love him, asks a thousand questions that don’t make sense. Argues with me about how to care for dogs, horses. I know it’s the disease but that doesn’t…
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Scared and tired
Hi all. I'm new here. Just a quick background… I was the primary caregiver for my exes mom for 6 years. I loved her dearly and she did not have dementia, but when she passed, I found there was nothing left of her son and my relationship. I moved away and married a wonderful man. Now, his mother has been diagnosed with…
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Just venting
Disregard please ...
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pity party day, week, month...
DH was diagnosed with EOAD (age 61) November 2021 after a lumbar puncture. He was MCI at the time. Currently he his solid stage 5 with stage six leanings. He does not shadow, he is velcro. Can't follow simple commands or remember anything for longer than a couple of minutes. Still continent, but the hygiene is out the…
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Caregiver support
Hi. I’m new to the forum. It’s been 4 months since my 90 yo mom moved in with me and my family. She has not been officially diagnosed with Alzheimer’s or dementia but she has the symptoms. I am in the process of having her see a neurologist next month. I am her full time care giver. All my siblings are scattered around…
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Tasty shake
Hi! I am new to this group. Name is Pam (obviously). So my mom is not eating or drinking enough.... am looking g for calorie-dense protein shake that tastes good. Any ideas? Thank you in advance
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Need help
My husband has Alzheimer’s, he has stopped eating, I’ve offered every thing still doesn’t want to eat, any suggestions would be greatly appreciated
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Everything’s falling apart
Today I went to a party at DH’s daycare with him. The occasion was his last day there. Earlier this week, after the last two outings there ended in multiple attempts to leave and general other disruption, everyone agreed that the usefulness of this had run its course. Even after 18 months, DH still has tremendous…
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GOING TO THE SENIOR CENTER
Shortly after my wife died, I went to the senior center to get a tax break. I then volunteered and worked in the kitchen for several years. I have met an awful lot of nice people, including my current wife she was a widow. I also knew her husband for 2 years before he died. The center has so much to offer they have bingo…
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Excessive sleeping
some days my wife will sleep almost 20 hours. Is this common among those with Alzheimer’s?
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toilet mishaps
My DH has beenjust been diagnosed with early Alz but now occasionally misses the toilet at night, which he has never done before. I am less concerned about the clean up aspect of this than I am of the fear that this is a sign of progression. I welcome any and all thoughts about this.
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Incontinence before Dementia - forgetting pads
My Mom was diagnosed with dementia 5 years ago. She was having kidney/bladder/incontinence issues before that. She recently started forgetting to put in a pad. Yesterday she stood and peed while we were having dinner with some friends. She knew she was doing it. She had forgot to put a pad in, but didn't realize it. She's…
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Feeling Sad. Missed you quietly today...
Visited my husband Lonny this week in Memory Care. He's been there 6 months while I have been going through cancer treatment. He slept through lunch and didn't wake up to eat. I just held his hand and talked to him and told him I love him. They have him medicated due to agitation & because he fell the week before and had…
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Mom is free of the monster which is dementia!
On the morning of July 3rd Mom passed peacefully in her sleep. She was in late stage 5 but was still able to dress herself, feed herself and toilet herself, so she was able to stay in her ALF. She had also developed a lower intestinal bleed which could have only been treated by major surgery which we declined. She lost a…