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If and how to tell others about the dementia
Need some advice about telling others about my DH's dementia. We play pickleball and while he can play pretty well, he forgets (and will never remember) some of the basic rules. The other players at the facility are just acquaintances or sometimes strangers if we have not played with them before. With pickleball you're…
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Alzheimer/Dementia and the Emergency Room
This was posted in the support after loss forum but was suggested to also be posted here> I just wanted to offer up a watchout regarding taking a loved one with AD to the emergency room. I have now experienced this personally and heard similar reports from others. The medical community does wonderful things to treat health…
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Friend wants to learn about ALZ
We have a friend who we haven’t seen in years who reconnected with us a few months back. He is flying up for 4 days to help with DH (in early stage 5) during our move to a new house. I am so grateful by his generosity. He stated that he knows very little about ALZ and wants to read up about it. What websites, etc, would…
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Frustrated and conflicted
My husband is 77, had several strokes, VD and other serious health issues and does not acknowledge he has serious problems, including dementia. He does not want to go to any more drs appts but his sleep has been seriously disrupted for over 6 yrs. He's on trazadone 150 mg which has decreased up/downs to about 5-7 x per…
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Mom with dementia
My mom has dementia and she forget and can't remember things she does things that I don't know how to stop example she uses toilet water to clean herself with tp and she goes through alot if tp
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I want to offer help to my partner but I don't know what to do.
Hello, my partner's uncle has started to show the signs of early stage Alzheimer's and while I have had family members experience this in the past never someone as close as they are with their uncle. He lives in a different city and while they are trying to spend as much time there as they can I want to help however I can…
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Fundraiser Flyer Agitates Husband
Hello AlzConnected Community, I am new to the discussion group. My 74 year old husband went from Mild Cognitive Impairment to Alzheimers diagnosis in the Spring of 2025. I look forward to learning from others in the same situation. This morning my husband opened a fundraising letter from Alzheimer's Disease Research. It…
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83 year old man found dead in walk in freezer.
This is heartbreaking!! I wondered whether to share this but decided that another discussion about AL vs MC is helpful to those making the decision. “A Tampa Bay area family is demanding answers after an 83-year-old man was found dead in an assisted living facility.William Eugene Ray's family said he was found in a walk-in…
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The never ending search
I know many of you have also gone through The Search for an item your spouse has misplaced. Has anyone figured out a way to control or prevent this? My DH has Alz disease & for many years, even before the diagnosis, he would pick up or put away items then not remember where he put them. Now his memory is so poor he can’t…
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Now in stage 8
My DH passed away at age 65 last Saturday, Sept. 27th. I was glad we all got to say our goodbyes before he passed. I now understand stage 8. My days feel like a roller coaster of emotions, but the nights are the hardest. We have been married almost 38 years.
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Alzheimer/Dementia and Emergency Care
I just wanted to offer up a watchout regarding taking a loved one with AD to the emergency room. I have now experienced this personally and heard similar reports from others. The medical community does wonderful things to treat health issues. However, there is a huge gap in what they can do for persons with AD and the…
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The Quiet Voice of Caregiving by Michael Whelan
I follow him on X. His wife has Parkinson’s Dementia. He writes so beautifully. TO ALL CAREGIVERS The Quiet Violence of Caregiving. by Michael Whelan There is a peculiar kind of heartbreak in being the one who stays. No one prepares you for how illness can rearrange the person you love. Parkinson’s is not just tremors and…
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Mood swings and anger issues
I placed my wife in memory care for Alzheimer’s two years ago and she is now bedridden. She has always been a very loving person, treating a stranger like a longtime friend or family member. Several months ago she started having mood swings and anger issues. Lately, she has been very happy when I first get there; smiling…
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Never ending search Thank You
I feel surrounded by caregivers that really care about others! Thank you, all of you, that took the time to share your great ideas & your stories, so similar to mine. I will put these into place & rearrange to have some safe storage places! Best wishes to all❤️
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Mom in Indep. Living but not sure that's the right place...
WOW so much going on I'll try to keep this concise. First of all, I'm grateful to have a community like this and I'm really hoping I can get some ideas. My mom (82) was diagnosed with minor neuro decline two years ago and her annual followups went minor to medium to major this summer. It's now "suspected Alzheimer disease"…
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Maybe I’m overreacting?
My husband is my concern. I’ve tried to talk to him about my concerns. Memory, irrational behavior, inappropriate decisions, he will not discuss or answer questions. His mom past of ALZ in 2022. He refused to help in any way with her care. His sister and I were there. HOw can I get him to see a doctor. I bring it up he…
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destructive treatment from my wife's daughter
My wife is afflicted with ALZ. she still loves me but we have had difficulties over the last month or so. We always had arguments over our 46 year marriage. So she asked for help from her daughters and they have offered it. Fine. Now she is 400 miles away. But now the oldest one has taken another step. She has blocked all…
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LEGEMBI
https://breakthroughsforphysicians.nm.org/neurosciences-clinical-article-leqembi.html#:~:text=is%20doing%20something.%E2%80%9D-,Dr.,headache%2C%20confusion%20and%20visual%20disturbance.
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constiption
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At last a diagnosis!
I have been watching my DH decline for the past six years. At first I thought it was just his age, he is now 84, but soon realized it was more than that. So I started researching and became certain that he had dementia. The frustrating thing was the doctors kept saying he was fine. They would ask him to remember three…
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Questions about a new medication
My mom in in the moderate stage with Alzheimer’s. For several years she has been prescribed/taking Donepezil and at this weeks visite to her memory care specialist she was taken off the donepezil and prescribed Rivastigmine. Has anyone had any experience with this drug?
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How to Get a Diasgnois
Hello, I'm new here. Currently, I'm caring for my Dad (71) and he lives with me. Over the course of 2025 he has fallen several times as a result of heart pausing, heavy drinking, and most recently what we think are seizures. He has broken his back, his arm (requiring surgery and when they put in the pace-maker as well),…
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Assisted living
took hubby to tour assisted living facility. Of course he asks am I trying to get rid of him. He has neurologist appointment next week so hoping the doctor can encourage this. Does anyone have any suggestions how I can get him to agree to this. I’m trying to avoid just leaving him there. Thx!
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Safety concerns
I have been caring for my Mom who was last assessed at moderate stage Alzheimer’s. I moved in with her about two months ago due to the frequency of late night calls and confusion I was seeing. Last night a friend of mine raised his voice at my 19 year old son for something unrelated to my Mom. She began to spiral into…
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help!! constipation
DW has been battling constipation for sometime now. We've (me and hospice) been though the gauntlet of meds. Frist we've done the old faithful prunes and prune juice. Now we're at the point of meds and stool softeners from senna-s, to polyeth glyc powder and the list goes on. Over a period of 3days I finally will resort to…
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Evening g depression
My DH gets depressed in the evenings. We visited with friends today and went for a nice walk and stopped and chatted with a couple of people we know. Now he is saying there is nothing for him here at home anymore. He was talking about leaving and going someplace else to live. I am at a loss as to what to say to him. This…
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help! getting out of bed and falling
My husband gets out of bed constantly at night and sometimes has a fall, recently was hospitilized but nothing broken. Have him back home and manageable during the day. But would like anyone who has or had the same problem and a good recommendation for which bed alarm or mat works the best. Many of them online, would…
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Eye exam
It's time for our yearly eye exam. I'm not sure if the eye doctor will be able to do the exam on DH because he sits, stands and walks hunched over. Honestly he looks like a turtle, the way he hangs his head down. I don't know if he'll be able to put his chin in the machine and look straight ahead, let alone read the eye…
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so overwhelmed
my mom is 73 and newly diagnosed with early moderate alz. the plan in our family as our parents aged was for me and my husband to move in with my mom after my dad passed (as bad as it sounds, we assumed this because he has had heart issues and tons of other health problems for years and he's 78 while she's healthy as a…
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Nighttime toilet issues
Looking for some creative ideas cause I am at my wits end. My mil has been living with us for a year. Diagnosed with FTD about 5 years ago. Still does well during the day, no longer remembers/understands she has dementia. About 6 months ago I started finding wads of wet tissue stuffed under furniture. When asked she…