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Hallucinations
we have seen a change in lo hallucinations. Used to be occasional and mostly gibberish. In the last few weeks they have become more organized and coherent. And not always in the evening and during the night. Yesterday morning at 3am I had swim lessons lo was a WSI. Last night about 9:00pm lo gave a group of students to…
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Caregiving Supprt
I have read many discussions about how care giving has changed things for caregivers. We are moving in that direction. W had one person that came Tue Thur 4-8, but we never made it past 6:00 6:30, due to LO desire to go home or ………. Even with this experienced caregiver distracton redirect would only last 10-15 min. So…
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Shivering and shaking
DH is lounging next to me and sort of trembling, shivering or shaking so hard. I asked if he was cold, earlier and he said yes (it’s hot in here) but I put a blanket on him & he went to sleep. But now the shaking is back. Hospice on-call nurse said he’s not likely in pain which we are watching… especially his crumbling…
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My poor husband. Am I messing up?
DH is hospitalized for second time in less than a month. He was doing so well during day. Could carry a conversation with some difficulty, mostly continent, saw to his on ADL with some direction. We kept busy. He suddenly started having episodes of severe agitation in the evenings. I assume sundowning. He shoved me a few…
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Lequembi for Patients with two Copies of APOE4 Gene
I understand that the risks associated with Leqembi increase significantly when the patient has two copies of the APOE4 gene. Is there anyone in this category taking Leqembi, or is the associated risk too high?
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I need that word...
What is it called when the person with dementia doesn't think anything is wrong?
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Crowd visit
MIL is an only child but has lots of cousins - she grew up with them but hasn’t seen most of them in at least 30 years. Now a long lost cousin is planning to visit. This is probably a good thing - MIL loves visitors and may remember this cousin from her childhood. But the cousin is bringing 4 children and Grandchildren…
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One phone call, so many emotions
Mom called me about an hour ago. Her first words: when was I coming out because she hadn’t seen me in so long. I was there at the AL yesterday. I reminded her of what we talked about when I was there. She remembers that she woke up yesterday morning without her oxygen running… but she can’t remember I was there yesterday.…
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New to this support group full time caregiver for my grandfather
Hi I'm Ebony I'm 37 and am currently a full time caregiver to my 81 year old grandfather. My grandfather originally lived 10 hours away in SC. Last year I moved my grandfather from South Carolina. Social service got involved and were going to remove him from his home because he is unable to care for himself ex... not…
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A rapid decline?
My husband was diagnosed with MCI 2017 and diagnosed with mild/mod Alz on 4/24. The disease was progressing slowly. But since Jan, his symptoms are significantly worse. His MMSE scores dropped 4 points from Jan to April. And, in last few weeks, his symptoms suddenly worsened again. It’s like falling off a small cliff.Even…
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Trying to do what is best for everyone
My dad has alzheimers my mom and him have been married for 67 years. My mom was caring for him in their apartment. 2 weeks ago she said she just couldn't do it anymore. We set up an appointment to meet with a facility ( we did not want this but knew our mother needed more help) Also we had been staying my sister and I at…
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Update: assessment went well, advice on move
The assessment went really well. Mom is at a higher level of care than I realized (no shock there), but they are confident they can work with her and meet her needs. We discussed incontinence and they asked some tough questions (e.g. am I opposed to the briefs with tape, more like diapers, which are harder to take off. I…
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Exercise Suggestions?
The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…
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Hurt Feelings
My wife was admitted to a memory care facility 3 days ago. I'm worried about my oldest daughter visiting every day. She took a half day off today to be with her, and while I understand her desire to help, I'm concerned that her frequent visits might agitate my wife and make the transition more difficult. I've read here…
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Talking about sex
Ive talked about this before, he's tried Seroquel and Respirdone with terrible side effects at the lowest dose. He takes Buspirone and Prozac, he's happy, I drink more wine.
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Can people with Dementia go through cataract surgery?
My mom needs cataract surgery and I can't tell if it's worth it to schedulew it because she really doesn't want to and is soooo tired all of the time. I can't tell if she would be able to do it or not. Have any of your loved ones gone through with it successfully? It's described as being a fairly quick and easy procedure…
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Onset of bowel and bladder incontinence
My DH has mild to moderate dementia. Recently he has had a few instances of bladder and bowel incontinence. Not too often so far, fortunately, but I know this will progress. He seems unaware of what is happening, coming out of the bathroom to say "my underwear got wet" and ask for another pair, or sometimes saying it's not…
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When is the right time for a facility
Hello all, As some of you know I recently moved my father in with me from living on his own in his own home in Colorado to California. It has just been over a month and I don’t know how long I can do this. He still toilets, showers on his own and can get around without help. He needs some hygiene guidance, medication and…
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Anger issues
Anger has not been an issue with my wife, but I have a friend whose wife does. She gets angry, shouting and making accusations. Then she isolates herself in her room and refuses to talk to anyone. She resists doctors and medication, so he may not be able to get her any treatment. My wife had a three-year obsession with…
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Feeling lost and overwhelmed
Hello, first time posting! My mom with dementia was hospitalized about a month ago due to severe dehydration. Since then she has moved in with my sister using the "therapeutic fib" of "your house is getting some work done." She has accepted that and perhaps we will be able to keep this fib going or maybe she will…
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Looking for Support Group
I am a 51 year old single male co-caring for my mother with Alz along with her husband (my step father). Would love to find a in person or virtual support group for men like me who are facing issues surrounding the care of their parent(s) with Alz. and other age related issues. I am in WNY and volunteer for the local walk…
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Recommendations for senior communities
Hi, my parents are thinking about moving to a senior community in the Boston, MA surrounding area. They want a community with indep/assisted living/memory care options. They are also interested in not for profit facilities, since costs are so high in the Boston area. Does anyone have any first hand experience with any area…
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Power of attorney?
* My grandma has late stage Alzheimer’s . Her husband is primary caregiver . How do we go about obtaining a power of attorney ?
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Anger issues
Anger has not been an issue with my wife, but I have a friend whose wife does. She gets angry, shouting and making accusations. Then she isolates herself in her room and refuses to talk to anyone. She resists doctors and medication, so he may not be able to get her any treatment. My wife had a three-year obsession with…
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Participated in a study
We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We both participated in this one. Pretty cool and easy and we earned some money for it too. Qualitative Analysis of the Content…
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Slipping away
Joy is slipping, just slipping away.... https://simplebender.com/2024/08/23/joy-in-alzheimers-episode-50-slipping/
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If you are not convienced, let me share this...
Most caregivers know that you should plan as early as you can. And plan for contingencies. Murphy follows Alzheimer's around like a puppy dog. (Murphy's law that says if anything can go wrong, it will.) My 81-year-old DW was officially diagnosed two years ago. She is now in stage 4 or 5, depending… She needed hip…
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What do you say? Suggestions?
As more family and friends learn of DH's disease, I have experienced an increase in the question: "How is he doing?" I am really at a lost as to how to answer this question. I want to say how do you think he's doing with this terrible disease- with a sarcastic tone but of course I do not. I usually say he is doing ok and…