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Early Onset Diagnosis
Hello, I am new here! I have been diagnosed with early onset Alzheimers last year after many tests. I am honestly still struggling with the diagnosis on most days. I find myself making excuses to stay alone. I have been making these excuses long before my diagnoses and have been having memory problems for awhile too. I…
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Life with Dementia - Tips for Caregivers
I was looking for the best practices foods and exercise list, and found this. Best practices across a range of areas to consider. Helpful tips here. https://www.alzheimers.gov/life-with-dementia/tips-caregivers
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The niggling things that add up
no wonder we are all tired. I play a constant juggling game in my mind that wears me out before I get anything done. I need to get the oil changed in the car, the time to do that is before a MC visit, since it’s on the way (but it’s 45 minutes each way). So scheduled it for this morning, but then the cleaners called and…
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New diagnosis after 4 years
I am brand new to this group. As I am reading your posts I am encouraged by the support you give one another. I sure could use it! My DH started showing signs of dementia 4 years ago. We have been going to the doc all this time. One week ago, after doing some tests, they have diagnosed him with vascular dementia. Even…
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Regarding instrumental adls
I don't know why instrumental adls are not mentioned more frequently. I think new members could get a quick understanding of what their LOs can and cannot do. Instrumental adls are learned at high school level. If your LO is functioning at below a high school level, your LO should not be left alone and needs close…
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So confused and so tired
First post here - My husband was diagnosed with Stage 4 Alzheimers last year from a neuropsychologist. Afterwards, we went to a neurologist who diagnosed MCI. We have had blood tests for B12, sleep studies, an MRI and more recently a PET scan done. The blood test and sleep study turned out fine. The MRI and PET scans were…
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Mood cycles
Hi everyone I am new here. I have been taking care of my mom by myself now for several years. She showed slight memory issues, as we all do, before the Covid outbreak, but when the world shutdown and me being in Healthcare, I wasn't visiting much, and she didn't have much outside the house activities. This is when the…
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Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
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Expectations of hospice
Hi, My mom has been in hospice for 6weeks and they recently increased her anti-agitation/anxiety meds by quite a bit and are not letting me as poa have say in if it is too much or not. I want to be respectful of staff at her facility and make sure they are safe providing cares but also do not want her to be overly…
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Change Meds
hello everyone my mom been on Seroquel 50mg but it has not help her at al as a matter of fact she seems to be getting worse , the dr stop it and now wants her to take olanzapine once a day at nighttime . My question is anyone here giving this meds to a love one and if so what is your thought on it and if you are seeing…
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Getting so disappointed with myself
Every morning I try to tell myself that this will be the day I have the patience and positivity I need to get through the repeated questions, the intense shadowing, the snapping at me for no good reason. And most every day, I disappoint myself. With my DH in probably late Stage 5, I should know better than to argue or snap…
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Do you visit your spouse in MC daily?
I've been tryiing to visit my DW in MC at least every other day but it's becoming difficult in the sense that at first my DW is glad to see me and I her. After an hour or so she becomes agitated with me, sometimes for not being there 24/7 like I used to, or when it's time to leave. She looks hurt and sad and I'm sure she…
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A hybrid Memory Care plan?
My DH has been in MC for about three months. Prior to that, when he was home, the biggest issues were sundowning from about 3 to 6 in the afternoon when he would get manic and confused, and waking up at night to go pee but going in inappropriate places in the house or going outside to pee off the deck. The sundowning was…
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Fibs for MC intake
I am going to move DW to a MC place in June. Among the things I’m worried about, one is what story to tell her, which can be shared with family and friends when they visit her in MC. Any suggestions that have worked well for any of you? I am advised that it should be short, simple, and not anxiety-producing. But any…
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Need Guidance Please!!!
Hi everyone This is my first post here. I'm so happy to have found this forum because we're in desperate need of guidance. My sisters and I are so lost. I apologize for the long post in advance. This is a lot to share so l will just give you highlights. My mom has always been high functioning, independent and very driven.…
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New to Forum - Dad has ALZ
Hey guys! New to the forum and glad to have this as a resource. Feeling compelled to find others that are in a similar boat. The last few days have been unusual with my Dad and I'm recognizing that I need an outlet to discuss this others that have gone through similar experiences and can offer insights and support - so,…
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New
Hi everyone!!!! I am new to this site. My mom, I believe, is having some serious decline in her short term memory, and is demonstrating confusion. She does not realize that she has this problem. I need to get her to the Brain MRI, but she refuses. Any suggestions?
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Can you flunk out of Geri-psych?
My DH has been in Geri-psych 3 days, and last night went on a tear. The nurses had to lock themselves and the other patients in and call security. Because of the Memorial Day weekend, they haven’t done much adjusting of his meds; I think they added an extra 50 mg of Seroquel. Do they ever kick patients out of Geri-psych?
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Planning for hospice
I paid a visit to my parents yesterday and spent the night. My dad has been dealing with double incontinence and last night I observed my dad waking my mom in the middle of the night with a bowel accident and my mom had to change him and clean him up. My mom is exhausted and I recommended to my mom to accept hospice care…
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Off Topic: Michael Ellenbogen's trip to Tennessee
Michael Ellenbogen recently returned from a trip to Tennessee and gave Judith and I permission to share his photographs. He saw the Duck Parade on Judith's recommendation and was an assistant Duck Master. Happy that he continues to travel.
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Passing of family member - do I tell?
Hello Everyone - My uncle passed away last night after a brief illness. He was my Dad's brother. Both my Mom and Dad are in AL both under Hospice care… my Dad is in the later stages, my mom in earlier stages but had a TIA in April that has started the decline. My Dad doesn't know who I am, so I don't think he will remember…
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Keeping Loved Ones Home As Long As Possible
My DH is still doing okay going into our 4th year of Alzheimers diagnosis. We have a 3 bedroom home. My daughter and 12 year old son live with us so there are no extra bedrooms. I would like him to be at home as long as possible and as long as I am able to care for him. He is 86 and I am 81. Physically we are both in good…
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Bedtime problem
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I'm concerned about DH medical care in MC
When DH entered MC in January this year he was using a Spireva inhaler to control his COPD. Since then, the MC doctor first changed him to a different inhaler and then discontinued that and started giving him albuterol breathing treatments three to four times a day. DH came down with bronchitis in March and was extremely…
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When to make the next move
Hi there. I am caring for my bf who is 44 with eosa. We just recieved the diagnosis last October. Things have been fine except as of the last month or so there is a "him / he" (imaginary person) that goes into his room (where he keeps his clothes and shoes) that messes with them. We have him on Zyprexa (onlazapine) and…
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another interesting but incomplete newspaper report
The Washington Post had another interesting article today, talking about a new website from the Alzheimer's Asssociation—called DICE—about strategies for caregivers to de-escalate dementia behaviors. Supposed to be the first of its kind—but it must not be up and running yet, there was no link provided to any such website,…
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Move Mom in With or Without Her Furniture
Hello, my Mom recently moved in with me. She seems to be adjusting but she mentions some of her things such as her leather couch, a desk etc. I could make room for the couch, but it might be crowded. I’ve been back and forth on whether to have it brought here, a 16 hour drive away. Sometimes I think it would really help…
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Hurt my back
Yikes! Today I was stooping over my desk and when I straightened up, my lower back snapped and a jolt of pain shot down my back. I took Tylenol but I don't have anything stronger. I'm scared because when my dad hurt his back, he couldn't get out of bed the next day. He had to call 911 to bring him to the ER and found out…
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Marketing Senior Living-Big Article today
Lead article in the Washington Post this morning is about A Place For Mom--37.5% of their "Best of Senior Living" facilities have been cited for serious substandard care, and the reviews are manipulated. Cautionary tale about doing your own research. I'd post a link but am sure it's behind a paywall.
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In the blink of an eye... (reposting)
Dear Forum Mates, Join me on my little walk down memory lane. This thread is almost 3 years old and reminds me of where we were in my beloved's progression at that time. We all got a little (or big!) chuckle out of some of the antics our LOs were able to get into "in the blink of an eye". This is a stress reliever as we…