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Defiant Sister with Damentia Symptoms
I am a two year younger sister living 45min from my older sister who shows severe short term memory loss, reasoning abilities, comprehension difficulties and some inability to think of words. She defiantly refuses to go to a doctor because she thinks nothing is wrong with her. I am soooo stressed over not being able to…
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where did my husband go?
DW is now frequently living in a world where her husband, whom she loved a lot, suddenly left her without explanation, which she finds extremely upsetting. She says she had been living alone for a long time when I appeared, and she treats me like a guest in our own house. We will have conversations where she tells me all…
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How to have DH let family and friends know of his diagnosis
Hi, I"m new here (although did use this site often when helping with my Mom who passed from Alz). THis time my DH has been diagnosed with demientia - though we haven't narrowed it down to a specific type yet. SO still early on. MY DH is still in denial or hoping something will "fix" the mild(his perception) issues he's…
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Please chime in if you know
My DH, 79 , was diagnosed with moderate cognitive decline, possibly Parkinsons in October 2023. His abilities took a nose dive and all activities of daily living are left to me. I believe it was Jamie (?) who mentioned trying for VA benefits. I don't remember why (sorry, long night, little sleep). I just received a call…
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Just need to scream
Tonight DH went up to bed and came down again almost immediately to complain that "someone" kept messing with the shades in the bedroom and he wished they would stop. I reminded him that the only people who go into that room are him and me. It's true that sometimes, if he hasn't raised the shades in the morning I will do…
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His last night at home
This is the last night my DH will spend at home. I understand now that he can’t live here, I can’t take care of him, I can’t keep him from slipping away. I’ve tried to hold him so tightly that he can’t forget me or home, but it is not reality. He will drift away, take his own road from here. He will forget me, our history,…
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Help with how to handle parent who lives with us
5 years ago we moved and Grandma insisted she didn’t want to live alone. We purchased a home together with her. 7 months ago she received an Alzheimer’s dementia diagnosis with anognosia and she has declined rapidly. She walks with a walker or holding onto walls, in incontinent, had her license taken away, can no longer…
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Support and Help
Good Morning! First time poster here, who is looking for some support. DH was diagnosed with Mild Cogitive Impairment at the age of 39. He is now 43. He has a neurologist, regular therapist, and neuropsychologist who provide support for him. At this time, he is still able to work and the condition doesn't seem to have a…
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End of life planning and final wishes.
I am very embarrassed to say that DH and I were master procrastinators when it came to end of life planning. Of course I am now worried about this. I wonder if it would be a mistake to try to discuss his wishes during one of his lucid spells. I don’t want to frighten or distress him.
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Panicking in bed at night
I woke up in the middle of the night and I couldn't read the clock and my heart was racing and I just sat on the edge of the bed looking at the bedroom door and almost got up to go out side(if I had opened the door the alarm would've gone off) my wife said where are you going and I said I don't know and all this time I was…
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Driving
My husband is blaming me for taking away his drivers license even though I remind him it was his Neurologist that did it. He thinks I am being cruel and can't understand why I would do this to him.
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What do I tell Mom when she asks to go home?
Hello, I'm new here, and new to caring for my Mother who is middle stage with dementia. Long story short, my Dad was her primary care give until he passed away suddenly about 2 months ago. He hid from the family his illness (cancer) and the extent of Mom's dementia. I live out of state, so that was pretty easy for him to…
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Iris' story + MCI
I want to provide the long version of my story. Perhaps some members can get some knowledge from what I have been through. I was well until I became extremely fatigued in early 1986, at the age of 36. I thought I must have been exposed to a virus, although I did not develop a fever until mid-1986. In late 1987 I noticed…
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Mom had dementia, now dad has it.
Hi, my mom passed on about 6 years ago after dealing with early onset Alzheimer's. Now my dad has been diagnosed with it, and I just came here for some support because, although he's not in the advanced stages yet, I'm starting to see changes in his memory. It reminds me of what my mom went through and how I felt when she…
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Concern for parents mom is showing memory loss
My parents still live in thier home. They are able to do thier adls and drive. My dad is 89 and mom is 84. My mom is showing memory loss angry and not able to navigate reading mail and paying bills. I am not sure what to do next week. I have been avoiding getting too involved with Dr appts etc. We work hard on keeping them…
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Dementia vs stage 4 lung cancer - advice needed
For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to two immunotherapy treatments 7 years…
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Feeling down
Might have to move my mom. Lots of problems at her place. Three more people moved out. She’s deteriorating. Looking at other places, and meeting with the director next week. She went to the ER last Wednesday again (long story, she’s fine) and there was no follow up, except by staff who really do care about her. Their…
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Terrible Family
My DW has been diagnosed with FTD. We have been married for 31 years. Over those years I enjoyed her family very much. I grew close to her parents and her younger brother. I helped her parents with minor maintenance, yard work etc. over the decades. I was best man at her younger brother's wedding. I helped him get his…
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Update - DH56 with FTD
I am so incredibly grateful for all the love and compassion and guidance you have all given to me. I'm sure you can all relate when I say that I am losing track of the days. Time is just floating by and I feel like time is like a ticking bomb right now. I know things will not get easier - different in a horrific kind of…
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Medicaid
We live in an apartment in a retirement community. They have MC, SNC, AL, and Adult Daycare on the premises also. I recently asked our Manager what I would need to do if my DH needs SNC in the future. She said we would get a bed for him with a Medicaid Waiver and then apply for Medicaid (he would definitely qualify). Since…
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clueless cashier
We went to the grocery store today. DH pushes the cart as we wind our way around the store. We get to the checkout and he puts the items on the conveyor. There’s no bagger so he starts to grab a paper bag to fill. The store now charges for bags so we bring our own. I stop him and remind him we brought cloth bags. He starts…
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neurologist visit
Yesterday DH had his six month neurologist visit. He’s declined since the last visit, but is still able to dress appropriately, feed, shower, etc. The last thing the neurologist asked was if he had episodes of agitation or anger. I truthfully said no. He’s always been the most even keel person I know. Neurologist said if…
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Just wondering
My DH will not let me manage his medicine. I filled up the 7 day pill box and he threw a fit. So that’s done for now. About 1 month ago, after our Neuro visit the Dr. increased the Aricept to 10mg and put him on Zoloft. He was supposed to increase aricept 1st then wait 1 week and take 1/2 of the 25 mg Zoloft. I halfed the…
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What do I do?
Hello everybody. I'm from São Paulo Brazil. My mon had herpes zoster in her eye last year and had some mental problems afterwards. Her geriatric told me she was in the early stages of Alzheimer, to which I wasn't prepared. She lived by herself and did all on her own. After the herpes, I brought her to live with me. In the…
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I'm moving to the new house in two weeks. Feeling lonely but grateful
It's been awhile since I posted an update. I continue to spend down our life savings so DH can qualify for Medicaid. My new house is almost ready to move into. The interior has been completely re-painted and the new carpet is being installed. Friends from church and my sister have been over here at the old house almost…
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Young caregiver
Hi, I am a 25 year old young caregiver. For almost 4 years now, I have been the sole caregiver of my 58-year-old mother suffering from early Alzheimer's, since my father passed away in 2020 due to the pandemic. I am Italian, but given my mother's condition we moved to China, her homeland, to take better care of her. I…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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My mother keeps asking if her parents are alive
my mom, 75, is in the early stages of Alzheimers. She recently has been asking if her parents are alive (they both died over 25 years ago) and my dad told her that yes, they died a while ago. He didn't want to lie and didn't know what to do. My mother started crying that she didn't get a chance to say goodbye to her father…
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Employment
Does anyone have any suggestions for employment for my husband who has early onset of dementia/mild cognitive impairment? He recently retired from teaching and still would like to do some type of work. Technology is not a strength of his. Does anyone have a loved one that is working with early onset? Any information would…
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Doughnuts
DH has diabetes. Every Saturday morning is a coffee and doughnuts get together at our condo complex. It became an unpleasant situation when DH would eat 4 or more doughnuts so I have been taking him out to breakfast instead to avoid his uncontrollable behavior. Today while I was getting our car to go to breakfast, DH…