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Taking away her car - Mother with early onset Alzheimer’s
My mother has been diagnosed with early onset Alzheimer’s and within the last 5 months we have seen it get significantly worse. Her mind struggles and she has gotten lost while driving probably 30 times now. Two weeks ago she popped two tires while out and we knew her time was coming to get her off the road. Then these…
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A good Geri psych is hard to find and even harder to get into
The quest for psychiatric help for my DH continues. My husband came home from 2 weeks in an acute care Geri psych unit not much better than when he went in. I’ve been trying to get him into one of the two non-acute Geri psychs in our state so that all his psychiatric meds can be adjusted. Apparently the acute facilities…
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Agresion y frustracion
:/ Hola, Quisiera recibir informacion a guia de que hacer en casos cuando mi Tio que tiene Alzheimers se pone agresivo o frustrado con ella. Mi Tia no tiene los recursos economicos para poner a mi Tio a un lugar de cuidado para ancianos. Ya que algunos lugares de aqui en Houston le han querido cobrar alrededor de $7,000 al…
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How do you process your thoughts, feelings, and slow burning grief?
Hi everyone. I’m new here. So glad I found this online community. The last three years have been super intense. From my mother getting diagnosed to losing her job to hiring at-home care, and the moving to assisted living in Jan 2023. This is a short summary, of course. But now she needs 24/7 supervision and it’s just SO…
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Thread or group for research discussion?
I heard a report yesterday that there are at least 120 therapies in development and at least 75% of them involve targeting things other than amyloid. After that, I searched the name of the person who said that and came across a podcast where they were discussing some latest developments. Made me wonder if there is a thread…
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Trying to figure out what triggers the reactions
There are a lot which influences the reactions of those afflicted with Alzheimer's. Trying to figure out the 'triggers' can be helpful but also frustrating.
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Memory Care--The Fishbowl
Memory Care is a closed and controlled environment, welcome to The Fishbowl
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Dementia
My wife was diagnosed in Feb of this year and she has asked why she has that problem, I have told her why but she denies she has dementia. It has been hard to but I have gotten better which consists of listening and being patient. Things have changed. Is there any suggestion?
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Using respite for the first time
One of the hospice services my husband is eligible for is respite care. We're scheduled to use it this week for a few days while I go to our nephew's graduation. I'm nervous about it. He's never done well in a hospital setting, even before the FTD (seriously, he tried to leave the ICU hours after having an MI in 2015). I…
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Diagnosis pre or post ALF
Question, I am currently looking for an ALF for mom. I don't have any formal diagnosis yet for Dementia. She definitely has a memory problem and her sister has Alzhiemers. I am told to wait to get diag until after she is housed. Thoughts?
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Overwhelmed
Hello. First timer here. My MIL is the one who needs help. My DH and I live about a 5 minute drive from Mom’s. DH is eldest of 4 sons, with the other sons living hours away. Last month was the neurologist appointment, attended by DH and youngest brother. MIL didn’t do well on the tests. Neurologist stated signs of…
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Heartbroken
I know I'm not the only one but I am just so sad. I make myself get up and go through the motions of life everyday but it takes all the energy I have. Knowing I will be without him someday is breaking my heart. The tears won't stop.
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I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
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Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
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Not Diagnosed yet
I have been left with the responsibility of caring solely for my grandmother who is showing very progressed signs of dementia. My issue is, how do I get her a diagnosis and help, if she refuses to go to the doctor and her son (who is states away) has POA over her and refuses to acknowledge there is a medical need? I am so…
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dad bombarding me with calls
I switched out my a 90 year old dad’s phone from a smart phone to a flip phone because he had gotten to the point where he really couldn’t manage the smartphone anymore (even though he is convinced he could). He doesn’t like the flip phone and he keeps calling or trying to text me to tell me he isn’t going to use it!! My…
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Separating Parents in AL - How to handle the physical move itself?
Suggestions for Thursday's move? We have to: Tell our mother (stage 6a/6b with anosognosia) we have decided that she and Daddy need separate rooms in order to receive the care they each need Respond to her confusion, frustration, fear, and anger (her symptoms manifest with great anger) Support our dad (who already knows…
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Thank you!!!
I just wanted to say a huge thank you for this space with all the wisdom from people. I just joined a few days ago, and today is the first time I have ever felt the “permission” to go on dnd. I have never felt the okayness to just slip out. I have done both and never experienced such relief. I don’t have to listen to the…
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Two days in the life ...
My son and I went to visit my mom in her MC on Saturday. She smiled when she saw me but really lit up when she saw "the boy" (she doesn't remember his name). She reached out and gave him a big hug, something uncharacteristic of her these last few years. We played a simple color matching game (he played on her "team" for…
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Mom with Dementia, Dad can’t take care of her alone anymore
Hi I am Carol and I am new here. My Mom was diagnosed with vascular dementia about 4 years ago. She has has a slow decline since the beginning of this year and I reached out to palliative care for help. Mom is 81 and Dad is 84 and not I. The greatest condition to be caring for her alone. She fell in April, broke her…
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New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation
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Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
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Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
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Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
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Comments on Medicare Proposals on Improved Hospital Care for Dementia Patients
Michael Ellenbogen wants to encourage anyone interested to make comments on this measure. I am going to include Michael's comments: Please get people to make comments on this site ASAP. Very important. You must submit your comments by June 10 on the Regulations.gov site. Pls see the proposed CMS Measure link added here.…
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Parents in AL, likely moving to MC soon and too hard to visit them
I moved both parents to AL five weeks ago. That was difficult enough. Then last week the DoN called saying both parents seem like a better fit in MC. We met at the facility and agreed to try an increased level of care in AL "for now". After only five weeks, I did not want to disrupt my parents and with another move so…
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Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
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When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
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Got a few days off - almost - Credit Fraud attempts
Well with the support of the folks at my LO's MC and my wonderful son, I got to go away for a couple of days. Everyone promised to be extra vigilant and it just about worked. But … I got a call from a bank verifying that we were opening a charge account or taking out a loan. So I was able to shut that down and was on pins…
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This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…