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When to go from AL to Memory Care?
Wondering how we determine when the right time is to move mom from Enhanced Assisted Living to Memory Care. The plan is to move her to the Memory Care wing at her current Sr Living bldg where she is in the Enhanced Assisted Living setting. She has always been an anxious person, is currently on Zoloft and…
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MC Care Plan meeting tomorrow/Monday afternoon
Hi community, I am seeking feedback on the notes I've made for Dad's Care Plan meeting at his new MC Community tomorrow. If I am out of line I am inviting you to point this out to me please. Thanks in advance. Notes below: Sometimes it is hard for me to know when it's Alzheimer's talking and when it's really what Dad is…
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Hospice denial / appeal
Hi there. My name is Angela and we are caring for my father in law who is in the late stages of Alzheimer’s. He is on a level 7e on the FAST scale. He is 100% bed ridden, doesn’t talk, sleeps 15-19 hours a day, in a diaper 24/7, cannot feed himself and starting to having some troubles swallowing. He has been on hospice…
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Disqualified from hospice
My dad was just put on hospice. I know some of you had LO that were on hospice but was eventually discharged. What would disqualify a person from hospice?
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Approaches and ways of handling Memory Care upsets with Dad
Hi Community, I value your experiences and your input. My learning curve on these issues is pretty steep here. A few updates and then some new questions for you. Dad's transition to a 2nd memory care (b/c it is in the same state where I live) continues to be challenging. I now have the Alexa, so at least that has paused…
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How to say "No" to adopt a new dog
Hi everyone: I'm really struggling with this one. My MIL's beloved dog passed away two weeks ago. He had been getting sick over the past weeks and she never identified that there was something wrong with him. Example: he had a huge tumor on his toe that burst open and bled everywhere. She only cleaned the blood on the…
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Mom’s Dementia
Hello, I am new to this site, but felt it’s time I should join to get help and insight. April 2020, my mom got Covid Pneumonia. Prior to this, she was getting forgetful and accusatory. Mentioned this to her doctors, but they said it was age. After a week stay, brought her home from the hospital. She kept saying her…
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When Will I Learn?
My brother is awful! He agreed with the AL facility to put my LO into MC before giving her ample time to emotionally and cognitively transition from home to institutionalize care. (3.5 WEEKS) JUST TOOO QUICKLY Assistance depends upon the amount of staff a facility has. More staff equates to more assistance. Less staff,…
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Anosognosia - Mom refuses help
I am the only living child and live on the other side of the country. Mom (89) has lived on her own for about 5 years since my dad passed away. During that time i have been paying her bills and doing as much as i can from across the country. I first noticed my mom starting to experience memory lapses about 20 months ago.…
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Genome testing
Moms doctor has suggested genome testing to see what medication she will respond best to for her anger and anxiety. It’s just a mouth swab and she said it would be covered by insurance, so we are going to give it a try. Have any of you had this done for your LO? Was it helpful?
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Newbie feeling alone
Hi everyone, I'm Catherine. I live in California. My Mom is 89, has MCD and currently lives in South Carolina. We are at the tail end of a 6 month process of me taking over everything and moving her to a CCC close to me in CA. I can see the light at the end of the tunnel for this part of the process, and will be so…
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Appointments
I am my mom’s caregiver. I am not looking for medical advice, just looking for different views. My mom is almost 85, later stage Alzheimer’s. My question is, when do you start limiting all of the extra doctor appointments? Example: she has an annual appointment with her vascular doctor. They test the pressure in her legs.…
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Primary Geriatrics PCP prescribed Lexipro
Hi all, My dad’s primary care Dr prescribed Lexipro for his looping thoughts and anxiety. anyone have an experience with this? How were the results did it help at all? Dr said she has had good results with her other dementia patients with it for anxiety.
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Transitioning to MC
Would any of you mind sharing your experiences broaching the subject of moving your LO into memory care? I will be having this discussion soon and want to hear the good, bad, and ugly!
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My father with dementia lost his wallet
Hello everyone, my father with dementia has lost/misplaced his wallet. The cards have not been used since Saturday which was when he made a transaction. I got here today and torn the house apart can’t find the wallet. The bad thing is both his IDs were in there and we are scheduled to fly out Saturday. I’m now having to…
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My mom has undiagnosed cognitive impairment
Hello, I'm new to the discussions. My mom (77) is undiagnosed, but it is obvious she has what we believe is some form of dementia and has for years. She almost never remembers conversations we had, and she is also showing gaps in her long term memory. For instance, she didn't know my husband of 22 years had siblings and…
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Weird (maybe?) idiosynchracy
My 90-year-old mom with MD consistently loses her undies! I don't know how many pairs of panties I've purchased in the last year, but it has to be well over 2 dozen. She obviously has no explanation and forgets how often I buy them. I suspect some incontinence, and maybe she throws them away. Not sure. Has anyone…
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Working with an uncooperative caregiver/parent
My dad is the primary caregiver of my mom. My mom is in the middle stages of Alzheimer's and they are living alone in their own home. Dad refuses to share medical information regarding mom or himself (my siblings and I have seen a decline in his cognition, behaviors and abilities). Dad is unable to speak due to Aphasia,…
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Hearing Aid Guidelines - for reference
A very long time ago, while we were Peer Volunteers, Jo C suggested I write a standing post for reference about hearing loss and hearing aids for the person with dementia. Untreated hearing loss is a known contributor to cognitive, social, and medical declines. It contributes to social withdrawal, increases fall risk, and…
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Losing my mom...
Hello. I'm 100% new around these parts, but I was encouraged by the counselor I spoke with at the Alzheimer's Association to post my story here in search of those with shared experiences. I (53) live in Texas with my wife, and my mom (83) lives in Miami, FL. Since moving to Texas in late 2012, I've traveled back to Miami…
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an awful lot of tears here
Hello dear community, So, um, I am thinking that the amount of tears I am processing through might be considered excessive by others. I am in a support group and in counseling and I have medicines on board as support. Some folks pointed out to me that I clearly need to talk this out a whole lot more than most people have…
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Progression with acknowledging and remembering
Hello everyone, I have noticed a progression with my father’s memory loss. It seems to be getting much worse in the last 3 weeks. He can’t remember to much from one instance to the next. For example he will go to set his keys down and next thing you know he does t know what he did with them and now can’t find them. He…
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What to do with Dad
My parents (Mom is 85, Dad is 82) moved into an independent living apartment (after living in their home for about 53 years) about a year ago after Mom's mixed dementia became too much for Dad to handle. Mom had a stroke 5 years ago and Dad has relied on me to do all appointments, medical decisions, etc). I help as much as…
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Sundowning
Hello ! I am new here just looking for advice. My mom is 53 years old and in the late stages of Alzheimer’s disease. She starts sundowning around the time I get home from work and I’m looking for tips and advice on how to deal with it. Im so tired after work and I just want to relax so I get frustrated. She is on meds for…
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Support
Hello, I am the youngest of my mother’s 3 daughters. I am taking it the hardest but I am able to be there for her on the weekends, as I work full time. I need some opinions. I feel depressed and sad because she doesn’t want to hang out with me sometimes when I have my daughter. She is 7 years old. They say that my mother’s…
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Hospice during hurricane
We just had a hurricane hit. Over 2 million people were without power. I'm impressed that the hospice chaplain, CNA and RN all called to check on my parents. They said to feel free to call the hospice agency if they need assistance. I thanked them for being so thoughtful. My parents have low battery on their phone and my…
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Needing to Vent
I'm having a really rough go of it. Mom with MD has gotten SIGNIFICANTLY worse in the last week. No infections, UTI, nothing on the "surface" level to have caused it. I called 911 last week so they could check her out when she refused to get into my car to go to the ER or UC. She's also sundowning pretty regularly now.…
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False Memories
I am caring for my mother who was diagnosed a little over a year ago. I have seen quite a decline in her memory and understanding. But, what I struggle with most is how to handle false memories. For example, whenever we are out at a restaurant or shopping, she will make comments like "we always sit here" or "that family is…
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Financial Assistance
Hi! Is there any sort of financial assistance available for parents still living in their house with severe dementia (other than Medicare/IHHS?) in California? Either for my Dad or for me? I am full-time caretaker having to move here and go "visit" my own home back out of state once in a while. Been doing this the past few…