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Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
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The incontinence blues - I'm not handling it well
We've had a couple of rough days. Over the last few weeks my husband has moved into full time incontinence. He's been incontinent for a while, but until a few weeks ago it was almost always urinary and not all the time. Then The last 48 hours... Fecal incontinence and he's fighting me hard on clean-up. He won't let me…
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Behavior: Dangerous, harmless and something in between
When I see a PWD attempt something dangerous, I put a stop to it, even if it results in some agitation or disagreement. For example, despite my best efforts, a PWD can attempt to jam a fork into a live electric toaster to pull bread out. So I can't "live in their world" in this case and sometimes I can't spend every single…
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Visiting friends said parents looked great not sure how to respond
First of all, my parents do not "look great" as a family friend told me after she visited my parents at their ALF. To me, it is so obvious they both are on a decline with several challenges that have taken a toll on me emotionally and sometimes physically and I find such a statement is invalidating. How do you reply to…
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We have not yet been offered any dementia specific drugs
Is this problematic? My mom has been difficult to diagnose. Thankfully she did stay at the doctor's office long enough to get a cognitive assessment which diagnosed her with moderate to severe cognitive decline from unspecified disease. I have another post here about the mess with trying to get medications for her (the…
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@ Lane Simonian
Lane, I have had insomnia for many years and have been on several different classes of sleep aids. Do you have a suggestion for an essential oil to help me get to sleep? Iris
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Incontinence Anecdote
I used to tell my children that, when they have children of their own and we are visiting, to not ask me to change diapers. I changed all of theirs and I would never change diapers again. I never should have said that.
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Dementia -Sexual comments
My Father has made sexual and lewd comments to me. It is very upsetting and frightening. Since I am his only care taker and he is living with me. Is there a way to stop this behavior?
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Crowd visit
MIL is an only child but has lots of cousins - she grew up with them but hasn’t seen most of them in at least 30 years. Now a long lost cousin is planning to visit. This is probably a good thing - MIL loves visitors and may remember this cousin from her childhood. But the cousin is bringing 4 children and Grandchildren…
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One phone call, so many emotions
Mom called me about an hour ago. Her first words: when was I coming out because she hadn’t seen me in so long. I was there at the AL yesterday. I reminded her of what we talked about when I was there. She remembers that she woke up yesterday morning without her oxygen running… but she can’t remember I was there yesterday.…
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New to this support group full time caregiver for my grandfather
Hi I'm Ebony I'm 37 and am currently a full time caregiver to my 81 year old grandfather. My grandfather originally lived 10 hours away in SC. Last year I moved my grandfather from South Carolina. Social service got involved and were going to remove him from his home because he is unable to care for himself ex... not…
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Exercise Suggestions?
The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…
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Power of attorney?
* My grandma has late stage Alzheimer’s . Her husband is primary caregiver . How do we go about obtaining a power of attorney ?
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Anger issues
Anger has not been an issue with my wife, but I have a friend whose wife does. She gets angry, shouting and making accusations. Then she isolates herself in her room and refuses to talk to anyone. She resists doctors and medication, so he may not be able to get her any treatment. My wife had a three-year obsession with…
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Participated in a study
We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We both participated in this one. Pretty cool and easy and we earned some money for it too. Qualitative Analysis of the Content…
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How to discern whether symptoms are due to dementia or other issues?
Hi all. My Dad is 88, lives in MC, diagnosed with mixed Alz/vascular. I tend to be a worrier. Over the past two or three months, he has shown progressive symptoms that worried me: He is sleeping more. He is skipping meals. I think he has lost some weight (about 7% of body weight). He's generally weaker and has gone from a…
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LO who lives alone and refuses help
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Wrong PET Scan
For context, let me post a few paragraphs that I shared back on April 30th (with minor editing): … The dr then turned to me, noted that I had been quiet, and what could I add. I talked about DB's memory in terms of word finding and getting stuck mid sentence. I confirmed that this had been better since the Aricept, but it…
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Good review article M1 receptor targeting
I came across this good review article from 2022 when I was looking for things to help my wife who is experiencing adverse effects from donepezil and rivastigmine. It’s a good review article of the progress being made to develop drugs that have less adverse effects. Doesn’t look like anything is coming on the market…
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Strategies to distract dad with FTD when doing obsessive and repetitive things
Hello all, thank you in advance for reading this message and for any idea you may have. I'm looking for new ideas to distract my dad (with FTD) when he starts with his obsessive routines. Until a couple of weeks ago, he would still listen to me and trust me if I would offer an alternative, now he is solely focus on his…
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Mixing up names.
For sake of discussion, we'll call youngest brother John and me Betty. DB's wife's car wouldn't start this morning, so she took his truck. When texting trying to explain this he first told me John had the truck. Between a followup call to him and younger brother I got the facts sorted out. Just a bit ago he texts with…
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New York resources
Michael sent me a video that contained this website.
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Los Angeles/ Orange County members
There will be a seminar of recent research findings held in Irvine CA this coming Friday. This is sponsored by the Alzheimer's Association.
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Feels like a series of endings and cannot find a good place anymore
I am sure there are several posts on this, but I feel like there is no end to what seems to be a constant unravelling of my parent's condition straight into the abyss. For those who are further up the road than me, did your life ever get back to anything resembling "normal"? I feel like a part of me, my enthusiasm and…
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First-Time Poster Requesting Support
Hello to you all. This is my first time to post in the forum. I have been reading a few posts that may help me with my father. At his most-recent visit with his neurologist, we were told he was at stage 6B of Alzheimer's. We have been living with what we were told was dementia for several years, and the Alzheimer's…
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Repetitive questions - early stages of dementia
Hi all, I’m new here. My MIL moved in with my husband, myself and our 5 children back in January. She was living in her van after selling her home. She has 2 other children that were aware of the living situation and lived close by but refused to help. We came from 3 hours away to get her and bring her back to live with…
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NEED HELP
So........ I am concerned about the way my patient is being treated/punished/redirected (what ever you want to call it). She is 93 years old and has been diagnosed with Alzheimers approx. 4 years ago. I will jump right to the concerns I am having....... She is sometimes a bit bossy, rude, ungrateful....etc. So when she is…
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Reposting for new member yummiep
Hi all, I am new here but I also have similar situation. I actually am looking for adivce. My parents are in their 90s, and both have dementia. Mom has hernia and colon cancer. They too, pretend that everything is okay; and most of the time I found out through the helper whom my dad dislike. He claims she steals all the…
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Medication at assisted living
Mom was prescribed a cream for eczema to be given to her twice a day. Mom only uses it when she thinks she needs it. Staff tells me she is refusing it. When I talked with mom about this and tell her the doctor wants her to use this she tells me no one told me that. AL tells me they can’t force her to use it or take any…