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Hello
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Doctor ordered MRI but she probably can't stay still. Is it worth it to try?
Hello, This is in Pennsylvania. My mother-in-law is 83, living with us, certainly has some kind of dementia, but we don't have a specific diagnosis. Her primary care doctor ordered an MRI to help us get a diagnosis. I told the doctor that MIL has a habit or tic of snorting and sniffling. It is almost constant. I am sure…
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FTD Awareness
Hi all - it's World Frontotemporal Degeneration Awareness Week. I know that everyone here is more than aware of FTD among other dementias. Heck, we live on the front line. But incase you need resources, I want to make sure you have the link to the site for the Association for Frontotemporal Degeneration. They have…
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Meal Ideas
Hi everyone! My mom previously was an adventurous eater. Lately, she has trouble with finding foods she likes to eat. Her tastes have changed and she tends to just eat "junk" (chocolate, pretzels, peanut butter crackers, ice cream). Even things she liked a week ago, she says she does not like them anymore. We're trying to…
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Looking for a volunteer to add as Leader of the new caregivers group
Hi friends - I'm hoping someone will help with the new caregivers group. Anyone can add posts there, but I think I'm the only one who gets alerts when there is a new post. I'm hoping that someone (or several someones) will agree to be "leaders" so members, especially new members, will get responses if they post to the…
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Medicare Advantage Dementia CSNP
Does anyone know of a Medicare CSNP (Chronic Special Needs Plan) that focuses on dementia patients?
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Any Advice on Calming an Anxious, Aggressive Sufferer?
My wife is now more frequently becoming upset and anxious over (usually imaginary) concerns. I no longer attempt to reason or disagree with her, but have trouble calming her down. She is sometimes very verbally and physically abusive. She will calm down if I have her talk to her daughter on the phone. If I can't reach her…
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MC Facilities questions
my kids driving me crazy to get plan if something happens to me, my wife is not in bad shape with Dementia other then short term and confused otherwise you wouldn’t know. Question kids ask can you be put on waiting list when it’s really not needed ????
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I need help finding
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AL nurse told mom she has dementia
I went to visit Mom today. It seems she asked the AL nurse what was wrong with her, why couldn't she remember things. The AL nurse told her all that was wrong was she had dementia. Really- why would she tell her that? And why would Mom all of a sudden latch onto it and remember it long enough to tell me? The doctors told…
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Zunveyl new med on the horizon
I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been taking rivastigmine and has been having a horrible time with the nausea side effect. I also read this study that was posted…
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Peroxynitrite scavengers for the treatment of Alzheimer's disease
This new study "confirms" what I have been saying for years: "The elevated levels of ROS (reactive oxygen species) are among the major pathological alterations in AD. Among them, peroxynitrite (ONOO-) exhibits a greater impact compared to other reactive oxygen species and plays an important role in AD, but the role…
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15 Minutes of Fame
Hello friends! I haven’t been here for awhile. I wish that everyone is peaceful on their journey with their LO, yet for myself and many, that just isn’t possible. I just happened to meet the author of this book, Tryn Rose Seley, on a trip in Ireland/Scotland. I’m spending almost 3 weeks with her and others on this…
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NYT: Reducing inflammation may help forestall dementia & provide other benefits
Gifted link for 30 days below. Article states that GLP-1 receptor agonists like Ozempic may reduce inflammation, which can provide other benefits beyond weight loss, and that "There’s also increasing evidence that inflammation affects dementia and, more broadly, aging itself" It also states that we can't rid ourselves of…
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Help
Good afternoon all. I am new to the group, but not new to the feelings associated with being a caregiver to someone who is aging and losing their mental capacity. My mom, who will be 82 in November, and lives with my husband and I, is exhibiting more signs of dementia, and it is becoming worse. I am at my lowest point to…
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Study re: thickening liquids for dementia patients not helpful
https://www.nytimes.com/2024/09/14/health/medical-practices-treatments-patients.html?unlocked_article_code=1.Kk4.dDUs.VucQhUUuduot&smid=url-share
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Type of humor that works with PWD
Doctor gave me a handout on things that helps with brain health for PWD, and it included humor. I realize it depends on the person and stage, but I suspect that "juvenile" humor works with PWD, compared to clever things that may be hard to grasp. So this may include things like simple puns, knock knock jokes or even potty…
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EOAD Delusions about son, advice?
Hi, My husband has EOAD. In middle stage. He believes our son has brought his friends over and they ate all the food. Current he does not want to see our son when he visits and is upset/restless when he is here. For now our son is staying away while we figure this out. My husband also will say I don’t know where our son is…
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Don’t know who to address as question
for those of you who may not know me my wife is in a good place with this so far. Doesn’t drive, not interested in cooking. Has short memory loss and confused at times. Can be left alone and people surprised when I tell them. Ok question. Last 3 nights at same time she gets up to go to bathroom and pees on way. She’s aware…
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A laugh at the end of a tough day
I won't vent about my day - we all have them. I will share something that made me snort-laugh. So my husband was pointing at the dog on this magazine. I said "oh, it's a cute dog" and he replied "well, it's Kevin Costner."
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Resigning as Power of Attorney and feeling guilty
I don't know if anyone else has ever done this but I decided this weekend that it was time for me to give up power of attorney for my mother. I am feeling horribly guilty and sad about it, but at the same time, also a little relieved. I didn't really want this role to begin with, but I am the organized and responsible one…
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Should my aunt- having recently moved into AL - have a phone?
Hi, Part of her sundowning has been to have episodes where she's very confused and worried about where her sister is, or, most recently, where her (deceased) father is. Generally, someone in the family (but unfortunately most recently the police) gets a frantic call from her at all hours about these types of concerns. Now,…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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Living with Early Onset
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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State Policies on Caregiving and Alzheimer's Disease
Information from Michael Ellenbogen: We invite you to join us for our next webinar, "State Policies on Caregiving: Opportunities for Supporting Dementia Caregivers" on 10/1/24. This webinar will introduce the caregiving policy approaches of New York and Illinois, discuss successful strategies, identify policy gaps and…
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Un-dressing issues
Dear all, has anyone found a good strategy to keep a person with advanced dementia (FTD) dressed? My dad is still ok with keeping his clothes on when we are outside or at the groundfloor (with a lot of talking from us explaining this is absolutely necessary for XYZ reason, trying to make him laugh etc.) but it's becoming…
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LTC Insurance and Travel
My LO has an LTC claim started (not yet approved) and is likely eligible for benefits, but she is still eager to take trips. Does anyone know whether, typically, an LTC company might pay home healthcare benefits while the patient is still taking pleasure trips with a close companion to monitor them? Or do the LTC companies…
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Looking for a friend to get through this with in the Sacramento area
I am following the lead of Bailey who posted this request for her area. Thanks Bailey for the idea. I am 60 years old and caregiving my mother. I am looking for someone caregiving a parent or spouse at home for mutual support in the sacramento area.