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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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Cycles of doubt
This seems to happen every few weeks or even every ten days or so. I’m sure it’s a sign of burnout, but I want to run away. I want to be alone. I want to enjoy my home and my time, which are no longer mine. Like every other carer, especially spouses, my life is no longer my own and I cannot predict if or when it will ever…
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Unwanted Advice
Back story, My mom (83) was just diagnosed with dementia along with multiple other health issues. I have been bathing her and taking her to appointments since February (since and hospital and rehab stay). Now I also cook her meals. My dad does the best he can but he is 88. I work a part-time job, a seasonal job and own a…
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desperately seeking advice for unique situation
Hello everyone, I’m new to this board and am hoping some of you can offer me some advice because I have no idea where to turn. This is all really a lot so I appreciate all of you who take the time to read it. My aunt and uncle both started showing signs of memory decline approximately 10 years ago. No matter how hard my…
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Lost laundry and the wedding dress
Mom is in AL and as you would expect some of her clothes have come up missing. Sometimes they return other times they don’t. It’s frustrating, but kind of to be expected. Mom is so frustrated she is now washing laundry in her bathroom sink. We set up something to hang things in the shower to dry. Her comprehension socks…
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mother refuses health aid in home
Mother is refusing the nurse to come in for home health aid and threatens to call the police and yells for nurse to leave. The she complains that I do not come to see her. When I come to care for her, she forgets all that I have done and asks over and over, when am I coming to see her. I asks her to please let the health…
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Im new to this...Looking for guidance
Hello, I am new here and new to this world of dementia. My dad (lives with me) was diagnosed with ALZ last year. He is still independent for the most part and he is still driving (for now). I have started to take over paying his bills and keeping his banking straight. We do have the will and living will taken care of. What…
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Auto Response
I am a caregiver and I need some communication help. How do I respond to my client without making her feel like she doesn't remember. For example when she tells a story and she just told me I don't say anything about it. I usually ask the same questions or some what different to make her feel engaged. But what do I do if…
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recommendations for elder law attorney in Minneapolis/St. Paul?
I've looked at the links that could help me locate an elder law attorney, but I'm curious if anyone has worked with, and can recommend, an elder law attorney in the Minneapolis/St. Paul area? I always like getting referrals from real people who have "been there and done that". 😉 Thanks in advance for any ideas!
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Yet another car discussion
DH has only driven his car once in two years (last time was March 2023) and because of non-use, the battery is dead. Thank goodness. I have no intention of getting it fixed or telling him its the battery. Instead, I just say, "its broken." He occasionally thinks about driving but when he does, he goes out to the car and…
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Special needs trust
We’re meeting with a lawyer to go over our wills. There’s going to be a discussion about “self settled special needs trust” vs “third party trust”. My wife is turning 65 on October 12. She was just diagnosed this year. I’m thinking a third party trust would be fine. Does that make sense?
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Burn out
how do you all deal with burn out! I just visited my sister, her situation is dire. Can’t walk (broke hip 2 years ago - the original reason she’s at assisted living; then broke both legs a year later - her fermur bone literally snapped, the other leg broke when she went down ), legs severely swollen (she refuses to elevate…
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For my auntie
Just joined, walking in Tinley Park Saturday, interested in starting a support group at a wellness comm center.
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Home health and help
So, my father in law has dementia. Me and my wife stay a whole lot with him. We live beside them on their land. They have a will but not a living trust. In Mississippi if you go into a nursing home just your will, will not help save your assets. They have Medicare part b and d I know. My question is will the SS insurance…
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fall vaccines
Curious to know how others have approached the issue of getting vaccines (COVID, flu, RSV) for your LO with dementia. My mom is later stages now where taking her out of the house, even to a doctor's appointment is becoming a big challenge. There are no options I can find to provide vaccines in the home. Considering how…
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Specific delusion help
Hi all, My 88yo Dad has mid- to late- stage mixed Alz/vascular dementia and lives in memory care. I did read some other threads here on delusions and got the basics down. For about a week now he has a delusion: he is in a hotel in Houston (Texas), a medical conference has just finished, and he needs to get back to Wichita…
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Altumview "touchless" sensors for fall detection, wandering, etc.
Anyone have experience with Altumview's service and device? It's not a pendant or a bracelet, but a device that monitors human activity (falls, leaving bed, wandering, etc.) and alerts you if something unusual occurs. It's like a camera, but converts people into stick figures in the video, so that you're not recording…
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Mom has day/night confusion
Hi, my mother w/dementia lives alone. She is mixing up her days and nights. For example, she called 2 am saying she's dressed and ready to go out for doctor appointment. How have you helped your loved one in this situation? She has the large digital clock that has the am/pm day/night displays.
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New antipsychotic just approved
this is an fyi, not sure how relevant, but was reading about a new antipsychotic just approved (I think brand name is Cobify perhaps?) with a novel mechanism of action that is being touted as a “game changer “ for schizophrenia and being evaluated for use in dementia related psychosis also. Apparently doesn’t have side…
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And that went well (not)
I often tout the use of fiblets and redirects here. However I failed miserably at that myself earlier today. Backstory: I saw Mom last Monday( brought groceries). Talked to her on Thursday. My son saw her Friday. She told him she hadn’t seen me in ages. I saw her on Saturday ( brought groceries). She told me ( in front of…
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FTD Meet and Greet
I’m hosting Meet and Greet on behalf of the Association for Frontotemporal Degeneration in Middletown, DE on Saturday, October 26. I’ll post again as we get closer but save the date if you live in the Delaware/Philly/Eastern Shore area. It will be a great chance to meet and make friends with others on this journey.…
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NY Times: Memory Loss Isn’t the Only Sign of Dementia
30-day gifted link to NYT article: Memory Loss Isn’t the Only Sign of Dementia. Readers of this forum may be familiar with these signs, but still may be useful to read. I learned something new.…
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Seeking Easy To Understand Printed News Sources
I am a therapist working with a person with Alzheimers who has a great interest in the upcoming election however they have found news articles from the NY Times difficult and overwhelming to comprehend. I am seeking suggestions of newspapers/magazines with very simple, easy to understand verbiage about the candidates and…
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Hurricane Helene
Those of you in Florida be safe and let us know how you are when you can…
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New controversy with Donanemab (marketed in the US as Kisunla)
Donanemab: Conflicts of interest found in FDA committee that approved new Alzheimer’s drug
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Attention moderators: can you please help us with this darn popup?
could you update us about when this cookies pop up will be fixed? Very very irritating. We flagged it yesterday….
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Information in case of emergency
DH has ALZ. I read somewhere about posting info on 'fridge in case of emergency for emergency personnel to find. How much info is enough and how much is too much? Emergency contacts, doctors, diagnosises, allergies, insurance, doctors… is this too much? Not enough?.
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Falls
Today is the first day of fall. This is a good time to review fall awareness and fall prevention. Falls can be deadly in older adults, even in those without dementia. Iris
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