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DH thinks there's more than one of me
My DH thinks there is a group of wives taking care of him. According to him, we all look the same and have the same name, and we all live in the same house, but he is never sure which wife he is talking to. He asks me questions like, "Which one of you carries the phone?", and "Which one of you did I talk to this morning?"…
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Suctioning the Geriatric Patient?
Wondering when should I get a mucus suction machine for mom? At night, lying on her back, she tried really hard to cough the mucus out. Is there anything I/she can do? Is suction machine dangerous to operate at home? Thanks
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block 411 call out
Does anyone know how to block outgoing 411 calls from a cell phone? My DW is in MC and has a flip phone with Consumer Cellular. They do not have a way to block it. It is not really a smart phone, since she would not know how to use that, so call block apps can't be installed. She dialed 411 , 92 times last month. Any…
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whiteboard to help with memory loss
Hello wise ones! I say that positively as I've gotten some great feedback in the past. My LO is my mom and we have been struggling through various phases of this disease. At this point, the short term memory is getting very bad and I decided to try a whiteboard that we can put the daily activities and upcoming days (up to…
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Desperately need advice about end stage swallowing problems
My LO is in hospice care at home and is in the end stage of Alzheimer. Our hospice nurse told us to stop feeding him because he has problems swallowing (dysphagia), and there is the risk of aspiration pneumonia. The past couple of weeks before this he could only drink liquids. Now, he coughs when trying to drink. The only…
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Need to go to the bathroom, but can't walk, problem..??
Hello Everyone, Thank you ALL for this for, I read it often. My mother is 92, she has 24/7 care with caring Aides in her home. I take care of all her non-daily needs, and visit her once a week. She has, I'd say, moderate dementia or so. She is very very articulate and verbal in the present, and can have some wonderful…
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How to Navigate to get the right Care for my mom
Hello to all! Just found this site and wanted to see if anyone can share, based on their experiences how to navigate all the information and get help for my mom. My mom was diagnosed with moderate dementia but is very strong and refusing help. She lives alone still and that is part of the struggle. The few caregivers that…
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Grieving the changes
How often do people visit their LO? In my case they moved exactly 3 months ago. Then 2 weeks ago trauma with my dad...and now many wonderful people helping me. The hospice nurse has been changed (and I like this new one) When I take my dad out, he doesn't want to go back...but he does...the last time I called his cousin…
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Daycare ideas
Good afternoon. I am looking for daycare solutions for my mom a few days a week but not sure she will be open to the traditional setting and wondered if anyone knew of or had ideas on something that made her feel like she was helping or volunteering. She used to be a nurse and keeps talking about going back to work and…
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Need Legal Advice - state of FL
Hi, I am new to this forum and am seeking advice that I am sure has been discussed before. My mother is 87 and I have just moved her into my home. She has Dimentia for about 3 years now. It is getting worse lately, but she thinks she is the same person as 10 years ago. I need to get ready for the day when I may have to…
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Grandma has hallucinations...
Hello everyone...let me provide a bit of background. My grandma is 90 years old. She was moved to an assisted living facility Jan 2019. She has not been clinically diagnosed with Alzheimer’s, or dementia, but it runs in the family, and she has all the signs. We just recently moved her from assisted living to memory care,…
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Alz Family Conference
I've signed up for a Family Conference given by a chapter of the Alz Assn. I just noticed that it's by Zoom and goes from 10:30am to 3:30pm. Has anyone done one of these? I can't imagine sitting still (and without food or bathroom) for that many hours. Is the idea that you get a schedule and choose which sessions you want…
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MIL is due back...I want to run away
MIL will return to us by the end of the week. Sib #3 is traveling with her and I'm curious as to what the conversation will be. The last time MIL spent any significant time with Sib#3 was more than 3 years ago when MIL's memory loss was not nearly as significant as now - and that visit back then didn't end well. To…
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Dad in despair-don't know what else to do
Hello all! My mom was diagnosed with AlZ about 5 years ago and I'm still trying to figure out how much more I can do for my dad. Of course, this has been devastating to him and is to everyone. Prior to the diagnosis, he kept from us information or minimized what was going on. After the diagnosis, he struggled with…
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The Transition: How Do You Cope?!?
Well, the time has come: my LO with Alzheimer’s disease will be transitioning to a SNF with MC next week. I have been my 79-year-old mom’s primary caregiver since 2018. She’s widowed and doesn’t remember ever getting married or having a child. Tuesday, an admissions specialist came to the house to observe Mom. At that…
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Changing care takers
my husband and I are his grandmothers (who has demetia) current caretakers. we were recently asked to move out so her children can take care of her. we dont want to cause her any trauma so we were thinking about moving slowly so she can get used to seeing them more rather than us. if anyone has any tips on how to do this…
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Professionals???
Are there any professionals that help with this forum?
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I'd like to go to Disneyland
Yes, my sister just told me she'd like to go to Disneyland - as soon as possible. In my head I said "hahahahahahahaha, no." Out loud, and to her, I said - "oh, I think Disneyland is still closed. They still have to figure out how to do social distancing and clean all the rides." Who knows if that's true, what matters is…
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Is he nearing the end?
My DH is in advanced stage Alz. For the past five days he has wanted to do nothing but sleep and sit in a chair and stare. I managed to get him out for a walk yesterday but we used to take rides to the park and walk. It is extremely difficult making him understand how to get into the car - he just wanders around. Lately he…
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Moving to MC(1)
So, we made the decision a few weeks back to move my FIL into Memory Care. We haven’t set a date but it will likely be the first week of May as the paperwork and logistics are taking a while. Last night, I felt overwhelmed with sadness over it all. Filling out paperwork has made it so much more real and I wonder if I am…
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Living with a dementia patient
After working with a specialist in dementia the past few weeks, we've discovered my mother does have the alzheimers and vascular dementia the hospital diagnosed. But those two are likely as a result of FTD which started perhaps upwards of a couple decades ago when she was in her mid 50s and started making strange…
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HELP. How do I get my mom to leave her house? Tried before and failed.
Hi there, I really need some ideas on how to get my mom out of her house and in AL with the least amount of upset and drama. In Sept.2020 we tried this and she was a nightmare. The place made us pay $7,000 to have someone stay with her to make sure she didn't walk off. She was 2 hours away in my brother's home town and…
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Disability lawyer recommendations New York
Hi - looking for personal recommendations for attorneys who have successfully handled long term disability insurance claims for clients with MCI/early onset who have had to give up work. Attorneys qualified in New York and practicing in New York City preferred. Many thanks
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Feel soo guilty
Hi, My mom was diagnosed with Alz a year ago and she still lives at home alone and I go over a few times a week, call twice daily and have recently taken over all her financials. This is not even the hard stage of Alz- she is actually pleasant and doing all she can to take care of herself. I feel overwhelmed and have…
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Bible Verse to Lift You Up 4/26/21
Just a note to all who come here. I love "hearing from you!" Please feel free to comment anytime. Ronnie (VKB) CREATED FOR JESUS GOD THOUGHT: Colossians 1:16-17 NIV “For in him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities; all things have…
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Does Memantime work for anyone's LO?
My mom's been taking memantime for a couple of years. I don't feel like it's helping at all and I'm considering stopping it. Does anyone have experience with stopping memantime and their LO experiencing worsening symptoms? Anyone start it and see improvements? TY
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Caregiver & Hospitalization
I was curious to find out if Medicare would let my husband be in a nursing home for a short time if I ever had to be hospitalized. My husband is Alzheimer's stage 6 and I have no friends or relatives that would be capable to care for him for several days or two weeks if needed.
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Helping with the grieving process
My FIL just died and my MIL has Alzheimer’s. Most of the time she doesn’t remember he died. Should we tell her every time she ask where he is that he died? Every time we do it is like the first time. This is so very hard!! Please help!!
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Divulging a LO’s diagnosis
When out and about with your LO, when you need to let another person know that your LO has dementia/cognitive issues how do you go about it? I usually find myself sneaking the words “she has Alzheimer’s/dementia” as quite and quickly as possible, because the mention of it causes my mom to get angry/mad if only for a few…
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Delusions about cheating spouse
My mom is 73, my stepdad is 75. Mom has dementia and is absolutely convinced that my stepdad is cheating on her. He has plenty of health issues as week. She causes him weekly of cheating on her. It is causing a huge rift between them. She's also convinced that my bio dad, who has been divorced from her for 45 years is…