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Recent cognitive losses
Mom couldn’t remember her social security number today. She also didn’t recognize it when I found a card in her purse that had it written on it. This is new. She has never not been able to recite it when asked. She’s been calling me and asking for permission to do things, such as to go out to eat with my dad. I feel like a…
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Fecal incontinence - easy to change diapers?
My LO is my father who is 67, and the biggest issue we have is with fecal incontinence. He lives with my mom, 71, who is the primary caregiver. He is completely incontinent, has been for over a year. My mom has to change him at least three times a day, and it's always a struggle to get him into a new diaper. He needs to…
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Dealing with someone that does not want to help themselves.
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Hearing and sense of smell loss-is it related to dementia??
Is hearing loss and a loss of sense of smell related to dementia?? My mother seems to have lost acuity in hearing and smell.
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New to full time caregiving(1)
Hi all, My name is Chip. I'm caregiver for my mother, Ferol, who is 93 and one of the kindest people I know. She has been there for me my whole life, 65 now, and I intend to be there for her and if at all possible to keep her in her home. Mom was recently diagnosed with moderate brain atrophy with fluid pressure on the…
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OT--question for Dussing
What is that on your dog's head? Iris L.
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Question on the need for a continuous care facility
We are looking at senior communities for our mother who has early stage Alzheimer's. It seems most senior living communities have AL and MC but do not have LT Care. Do Alzheimer's patients typically need to go to a continuous care community that has LT care or can they be cared for properly in MC all the way to the end? I…
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Expetations from Memory Care prior to meeting with them
I've posted several times about issues my mom has related to panic attacks when her delusion is telling her that she's not where she lives but is somewhere else like the train station and needs me to "Come get me right away" when she is actually in her own room. She needs me and me alone to help her to recognize her…
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After ER last night....more delusions, nurse calls me
After my topic on the ER trip yesterday, https://www.alzconnected.org/discussion.aspx?g=posts&t=2147556926 and mom' unexplainable injury and delusions, today I called mom in the morning and she was OK. But at 5:30pm i got a call from the nurse. She put mom on the phone. Mom was insisting I come get her and bring her home.…
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Sundowning?(3)
I think that I just witnessed my LO's first sundowning experience. I video called her at 7:30 pm and she was eating dinner. She said it wasn't a bother, she was "just eating breakfast" and "my aren't you and your kids up and ready to go so early! What are your plans for the day?" Obviously she mistook 7:30 pm for 7:30 am…
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Need Fiblet Suggestion for Mom
My mother who is between mid to advance stage alzheimer has been waking up most mornings feeling sad that her parents passed away 40+ years ago. I tried to listen to her but she will usually end up crying because she miss them, and feeling sorry for herself. Sometimes this will continue randomly throughout the day. I don't…
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Any financial aide for respite care in MN or tips on private pay?
Are there any aide, grants, or scholarships out there that can help pay with at-home respite care or companion care? I've tried the Senior Link Age link for MN and the County. They have low income requirements to qualify. I also tried Hilarity for Charity. There is nothing for the local Alzheimer chapter either. When she…
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Question about smartphones
I have a two year old LG smartphone that is paid for. The company is now sending me ads to turn in my phone and get a new one. I have no desire for another phone. I have not learned all the features of this phone yet. Is there any need to retire a working phone after two years? How long can a phone be functional? Do we…
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My mother was recently diagnosed. Need some advice
Hi There, My 75 yr old mother was recently diagnosed with Alzheimers. Her dr prescribed Aricept. I noticed improvement with my mother immediately. She seemed more engaged in conversations and more confident about daily activities. She then experienced side effects and decided to stop the medication. She is currently living…
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OCD about schedules and tasks - bvFTD
Hi all, My dad was diagnosed with bvFTD in January 2021. He is 77 and lives with my mom quite a long distance from me. I went to visit them for a week in early May. My dad had insomnia for 25+ years and since then, started going to bed very soon after dinner, so usually around 7:00 to 7:30 p.m. Since his neurologist…
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Geri chair pillow
Any recommendations on a pillow for my mom’s Geri chair? We have been instructed by hospice to put her in her chair if after being medicated at night she continues to be restless and doesn’t want to go to sleep. Eventually she does fall asleep in her chair but then I’m the morning I see her slumped over to the side. That…
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New Here! Any advise is appreciated
Hello All! I'm new here. My mom was diagnosed with dementia in February. I knew this was happening. I took her in 2 years ago for testing but she did great on the tests.. Fast forward to February and was diagnosed. I am married with 2 middle schoolers on top of taking care of my mom. She still lives on her own but I help…
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Bible Verse to Lift You Up 6/1/21
Sometimes LOVE is easy. Sometimes LOVE requires sacrifice. 1 Corinthians 13:4a * Amplified Bible: "4 Love endures with patience and serenity..." * Easy-to-Read Version: "4 Love is patient and kind..." * The Message: "Love never gives up. Love cares more for others than for self." * New King James Version: "4 Love suffers…
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Bed available much fast than expected
Hi all, I have posted in the past about placing my Mom on a waiting list for a facility. I did so a month ago after finding a local one I liked, with great staff and beautiful rooms. It was newly built around 4 years ago. They have a lot of activities and amenities that I really was impressed with too. At the time I placed…
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Excited! Miserable. Impressed!
Heroism is endurance for one moment more. ~ George F. Kennan Happy Memorial Day, you everyday heroes! I'm excited! https://www.stumpedtowndementia.com/post/lights-camera-action I'm miserable. https://www.stumpedtowndementia.com/post/i-see-dead-people-s I'm IMPRESSED!…
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Aggressive behavior w/ Aides
Hi everyone - I posted a message a few months ago re: my 96 year old Mom threatening one of her aides. At that point she had not put her hands on anyone. At the suggestions of some in this group, we put her on Risperidone and 50 mg Trazodone. She seemed to be doing better, but lately she seems to be entering a new phase as…
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How do you grieve?
My mom is 68 and in late stage 6. My parents are separated so it's up to my sister and I to care for her, although my dad is contributing financially. Mom is in a memory care facility that's doing a fantastic job but... watching your own mom decline in slow motion right in front of you is still so hard. I hadn't realized…
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How to change a pull up w/o removing pants
Another member posted this video a while ago on the "Spouse or Caregiver Forum"...I am thinking maybe Ed1937. Many here are already aware of the technique but I wanted to re-post for those who haven't seen it. With a little practice, it is fast and easy to do. Now that my DH is urinary incontinent, I am getting a lot of…
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A Lakota Prayer - after the loss of a loved one
I hope this lovely prayer shows up. Not sure why links and images are so tough to post here so I came back and typed it out to be more visible. This prayer struck me tonight as a beautiful way to redirect my own thoughts when facing and anticipating the loss of a love. My DH is still here, but not here, as AD steals him…
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Honoring advance care directive? UTIs and what constitutes burdensome measures
Hi again, I posted just a couple days ago asking for some emotional support (you all are wonderful and I cried multiple times reading responses) and I'm back again with a more logistical question. Mom is in late stage 6- incontinent, can't shower unassisted, needs help dressing, still has vocabulary but the words she says…
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Full time companions are not the only ones th@t get burn out
Not the full time companion of my LO, but do a lot! Full time companion claims to be there because of a promise to our father, before he passed. I believe she’s there because she had no place to go. Companion is miserable, complains constantly - has started blaming me because she moved her in the first place, says I…
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Suggestions for dealing with false accusations
My aunt has been accusing my nephew’s wife of stealing from her all the time when she only met her once about a year ago. She also accused my nephew of taking three remote controls from her house but I was there and he didn’t. She also lost her wallet and her keys to her house and car. I tried to help her look for them…
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A new study on prediction of Alzheimer?
This link will take you to the web site regarding some information on a new study to predict Alzheimer. This is not an Ad but information from research done in Sweden - Article dated May 27, 2021 https://www.studyfinds.org/tool-predict-alzheimers-4-years/
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Need help- mom is struggling with time
My mom Is in a memory care facility. She also has macular degeneration and is basically blind. In addition, she uses hearing aids and is profoundly deaf without them. Lately she is struggling with time. What time is it now? What time do I go to dinner? She also has (I think) anxiety, so when I tell her the staff will come…
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Assisted living doesn’t actually free family members
I’ve had multiple people tell me ‘ your parents are in assisted living so you are free to travel and live your life’. I don’t know about the rest of you, but it’s not working out that way here. Yes, sometimes. I can get away for a couple of nights, but I have had to cancel afternoon plans multiple times without notice. I…