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Another sleepless night for me
How many of you have sleepless nights because you are worried about your LO? Or because you feel overwhelmed by this diseas? My spouse and I took a two night trip. I told the office manager at the ASL about it but I asked her not to tell my parents. Telling them just guarantees they will sabotage it by having some issue or…
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And this is why I don’t gamble!
Trying to do good, I called my mother and sister’s cable company! (Mom is diagnosed, and is between moderate to severe; suspect sis has dementia too - not sure what stage, have appointment coming up.) I negotiated a new receiver with many more options than their old receiver (knowing that they would probably not use the…
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Alzheimer stages & catheter
I know each case is different, there is no set rules but I just don't know what to think about my mothers stage. She was diagnosed with Alzheimer's in Feb 2021. In January 2020 she lived alone, drove herself a few miles to the store once or twice a week. Today, 18 months later, she is living with me, unable to care for…
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Non Traditional Caregivers Support Groups
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Conflict with family
Hi all I’m new here, and a relatively new caregiver. Mom has been living with my husband and myself for about 2 and a half months now. Prior to that she lived with my sister. We moved her in with us because I’ve the previous 6 months she had become suspicious of my sisters husband and then that extended to my sister. The…
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Regular trips to nearby family members for LO in MC facility
My DW and I are full time caregivers for her father, who lives with us. He had recently had some incidents that had brought us to begin exploring MC facilities. My DW has HC POA, but her sister has financial POA. In visiting a couple of facilities with DW and her 2 sisters, the sisters were adamant about being able to pick…
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I NEED TO TALK TO SOMEONE
Despite the relatively short time period dealing with my wife's problems and illness I am now realizing I have to give myself some care, a rest or just get some form of human contact that does not required an effort. I have gone from being responsible for maintaining everything like the house, cars and landscaping to where…
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Activities for MIL with Alzheimer's
Hello. My 71 YO MIL has Alzheimer's and moved in with my husband and I in October 2020. I don't know what stage she is, but she is able to care for herself in many ways. She does not need daycare and is conversational and mobile. My husband and I work FT and I work from home. We aren't able to give her the companionship…
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Assisted Living to Memory Care?
How do you know when it’s time to move your loved one from assisted-living to memory care? My mom’s doctor is suggesting it and I am petrified. How on earth will I convince her to go after being in the same place for five years? I am so afraid the trauma will cause severe progression
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Can mom recover from complications after lumber fracture
My mom bound to bed after lumber fracture In middle February this year, she was able to eat, walking in park, went to bathroom before, since then, she gradually lost ability to feed herself, developed pressure sore seriously, now she relies on catheter feeding tube, urinary catheter, provided by a housemaid, as my family…
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Supporting caregivers here and locally
Hello, My mother was diagnosed with Alzheimer's 18 years ago and she passed away last June during the covid lockdown at her assisted living facility. I miss her terribly and feel an emptiness. I would like to fill this empty feeling by helping others. I would like to come here to offer encouragement for others walking this…
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My Mom did not recognize me
Hi, I am really upset. Yes I know this would happen and just need help. I don't want to see her anymore and it's breaking my heart. Any suggestions, please respond. God bless
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Finding Memory Care from another state
This is my first post on the boards. I'm overwhelmed with (and thankful for) the amount of information here, through the ALZ Association and others that work with dementia and memory care. I would like to know if there is a resource for finding facility care for those who have loved ones in a particular region that is peer…
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DH mistakes me for his sister for months, now he knows who I am
Has anyone experienced this with their loved ones? Not only does he know who I am, he hasn't been losing track of where he is. This is so weird.
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How to tell patient mom has passed on
My oldest sister who has Alzheimer’s is coming home to Utah to see surviving siblings. Her daughter who cares for her is bringing her. My sister has wanted to come to Utah for over a year. It seems like she thinks she is young and that her mom is worried about her. Our mom dies in1996. When comes to visit what should we…
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Largescale brain epigenetics study provides new insights into dementia
https://www.eurekalert.org/pub_releases/2021-06/uoe-lbe060921.php
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Caregiving when the caregiver travels
Hi! I am new to this group and not great at searching through the previous posts. I am the primary caregiver for my parent who lives with my family of 6. We would like to take a vacation and need to arrange for caregiving. Options include one of my siblings coming to stay with Mom in my home, Mom going to stay with one…
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Taking her on family vacation
So my wife and I are new caregivers for my Aunt who has early Alzheimer’s. Every year our family has vacationed in the north woods of Michigan. My aunt has loved these trips in the past. Now her condition is really kicking in. We’d love to take her with us this year...might be her last...thinking it might be good for her,…
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met with CELA today
Dad and stepmother are not speaking to me. But a very productive day, otherwise. I think we (siblings) have more of a direction now after meeting with the CELA. Two goals: one to get Dad to further testing with a neurologist Baylor's Memory Center and two, to try one more time to mediate this before pulling the trigger and…
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Can't Hold Head Up
My 78 year old mother has dementia/Alzheimer's and is living at a memory care facility. She has a hospice nurse that comes to visit her. Mom is showing a new symptom of the progression of this awful disease.....she can't HOLD HER HEAD UP! I spoke to her nurse, who visits her once a week, and she has not noticed mom's head…
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PET Scan
My 89 1/2 year old mother has mild dementia and knows that her brain is not working like it used to, but we and her doctor have not used the words dementia or Alzheimer's in her presence. We just don't think it is worth the pain it will cause her. She tried Aricept but it gave her migraines. My sister asked me today…
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Any guesses as to what stage she's really in?
MIL is really starting to get to me. I am ready for this transition to Sib #1 to take place, but that's still about a month away. I've been discussing MIL's current status with my oldest daughter who is an SICU nurse and, admittedly, has little experience with dementia except what she was exposed to in nursing clinicals.…
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GPS Tracker Info Needed
Hello, this is my first post on this forum. Yesterday my husband who suffers from stroke-induced dementia wandered off into the woods. He was lost for about 3 hours while the police searched with a dog. He was found unharmed and went to emergency room where every medical test was normal. He is subject to delusions, and…
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New here -- had the driving conversation with my dad tonight
Hello all -- this is my first time posting here, but I figured I would jump right in. My dad (age 74) was diagnosed with dementia in 2019. I do not live with him -- my mom does and she has been managing pretty well. He's still fairly independent for now. He's on two types of medications and they seem to help some but his…
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Repetitive behaviors and obsessions
Hi there. My father and I are still trying to convince my mom to get professional help, but she emphatically refuses. She is relatively in tune with day-to-day life, but has become obsessed with sticky notes. She writes notes to herself numerous times a day about the same things. She also repeats “that’s all” at the end of…
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Changes in voice
My mother has mild dementia and sometimes it seems there is something different about her voice, but I can't put my finger on it. I did a search here and see folks saying that the their loved one's voice sounds lower or higher, but that isn't it for me. At times I am reminded of the movie the Invasion of the Body Snatchers…
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Seroquel(8)
My mom is in what we think the mid stage of alzheimers(based on her behavior) and has been showing signs of aggression and agitation. Because of this her Dr. put her on Seroquel. We have just started it 50mm (I think) per day. Because she won't take it by us just handing it to her my dad needs to put it in her OJ in the…
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Late diagnosis / no diagnosis
My mom and I are suffering from the lack of a timely diagnosis. I live at a distance from my mom and coordinate her care. She's almost 98! She has 24/7 care and we speak on the phone frequently. About 10-12 years ago, her pcp suggested testing her for Alzheimer's disease, and my mom went for the testing and found it "very…
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My life feels impossible right now
Just reaching out to see if anyone else has a similar situation. So far I have only seen people discussing caregiving for elderly parents and I have much different circumstances. My husband is 23 years older than I am and he was diagnosed with Alzheimer’s almost 5 years ago. At the time our children were 16 and 17. We…
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LBD & Hypersexuality
I received a call from the MC that my dad is at and was informed that the NP is putting him on Depakote 250 mg twice a day due to hypersexuality. I know this is sometimes an unfortunate symptom of this horrible disease. I personally have not witnessed any behaviors myself - thankfully. But I am curious what is the best…