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Just need to vent(5)
Hi all...just wondering if anybody else has ever felt like you can't do this caregiver thing one more day. My mom is 92 I am 65. .I brought her home from assisted living in Jan. She had been there for 3 yrs one whole year of no visits because of covid. I felt guilty so I took money out if her account and bought a house so…
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Do I nee to encourage my grandma to dress up by herself or should I do it for her?
My grandma is in the middle and late stage of Alzheimer/dementia. She has very hard time dressing up by herself. E.g. putting sweater or any top on, any socks or pants. It takes her about 10 minutes to put hands into sleeves, but then she tries multiple times to put her sweater over the head and fails. Then she were…
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Gubble Bum, lizzie pooh, Markus
Has anyone heard from Gubble, Lizzie and/or Markus? I miss them and they’ve been in my thoughts and prayers. Thank you!
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Bible Verse to Lift You Up 4/14/21
GOD MADE THIS DAY * GOD THOUGHTS: Psalm 118:24 NIV “The Lord has done it this very day; let us rejoice today and be glad.” * VICTORY THOUGHT: If I choose thoughts that fill my heart with joy and inspire me to thank the Lord, my day will go much better. Even during days when everything seems to be going against me and what…
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How to handle move to memory care
My mother had a stroke ~ 6 months ago, several days before her 90th birthday. Prior to the stroke, she was slowing down but still living on her own and doing very well. The stroke affected her memory and threw her into instant dementia, which has been getting worse. My sister and I tried to take turns caring for her, but…
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FIL with dementia gradually moving into his bedroom
We chose a large house when we moved up to this area to care for my FIL with dementia. He has only wanted to sleep on the futon in the main family area. This is less than convenient for me for many reasons. We furnished a room with an attached bathroom for him, and he was not interested in sleeping there. Four months…
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In need of ideas
My mom 90 came to live with me five months ago, prior to that she lived with dad 87. Dad helped out at least one to two days every other week for the first couple of months. I stopped asking for his help when he would call after a few hours to pick her up, because he couldn’t deal with her outbursts (Alz hadn’t been…
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Respite(1)
It has been a struggle this past week to find respite care of my mom. The one time she went, the nursing staff neglected her severely chapped lips and a bunch of her clothes went missing (this is in Seguin). This week I called so many different places and none of them take medicare. Or they just don't call you back, which…
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Being told to contact hospice, but not sure why
My Dad is 83 and is being seen by the VA. After a phone call between my Mom and his nurse we were referred to Hospice. My Dad bounces from needing round the clock supervision to suddenly getting himself up dressed and moving around. Over the last two weeks we have had to see to all his needs, and we are getting up 5+ times…
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Not sure how long I can do this.
My parents are 2 of the sweetest people but right now I'm just angry and frustrated. Over 2 years of having them in our home. I take care of them primarily. I have a wonderful friend who takes them 3 days a week from 10-3 to her house and spoils them. Dad has dementia and parkinsons and mom has moderate alzheimers. she…
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J&J vaccine
J&J vaccine is being investigated regarding blood clot complications in a small number of recipients. There is a condition called antiphospholipid syndrome aka Hughes Syndrome, that causes mini clots and spontaneous miscarriages. It is very rare. I have this condition. My hypothesis is that some women with this…
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Dementia and Depression
Hi, I'm Mandy (I'm 41 and I'm new here). I'm struggling with my dad who has dementia and depression (he's 79). He started showing dementia symptoms in Sept. of 2020. We're still trying to get a diagnosis because he kept cancelling the appointment with the neurologist. We've switched everything so his phone number isn't the…
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4 Days Postpartum and Struggling with Mom’s Mood Swings
Sorry if this is sort of incoherent. Like I mentioned in the title I’m 4 days postpartum so I’m functioning on very little sleep. I won’t go into a ton of details about the background of my mom’s dementia but it’s not something that’s new for us. She had a couple strokes from an AVM 33 years ago (before I was born) but her…
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Should I file my mothers taxes
My mother is roughly in late stage 6. Shes been in Memory Care now for over a year. Before that she was in Asst Living for 2 yrs. She hasn't lived in her own home now for over 5 yrs. It took awhile to clean out her house because she lived in a different state than my siblings and I. After putting her house up for sale, it…
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Are these hallucinations “normal”?
My husband was recently diagnosed with Alzheimer’s end of Jan. I do not understand why these things are happening. For example, this morning he said there were one or two other women in bed with him late last night that were kissing him and proceeded to wake him up, and he told them to stop. (It was me.) He said I was out…
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Facing the Inevitable
I am a 24/7 caregiver for my wife, 42 yrs married and she is beginning the advanced stage of Alzheimer. I am scared of the inevitable future and I don't know if I can handle that. I feel desperate, alone and scared
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Mom refuses to go to doctor
My mom is in the early-to-middle stages of Alzheimer’s dementia (we think) and won’t allow my father and I to take her to a doctor. We have no idea what is wrong with her because we can’t get her in to see a neurologist (her PCP said that she needs to see a neurologist because she did poorly on some cognitive screening…
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Dealing with LO’s anger
I’m new to this group. My father was diagnosed with dementia 5 years ago. There has been a slow but steady decline in his cognition, while his emotions and anger at the world have increased. A man known to use the casual curse word has become a ranting, cursing, sometimes unrecognizable bear, especially to my mother.…
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Help - dealing with paranoid delusions
Just moved my Dad to a nursing home. While he was starting to have mild delusions, he is now living in them completely. Had to change his phone to have “downtime” at night because he kept calling me over and over - when I blocked him - he started calling everyone else. He’s called 911 4 times, and he’s only been there 4…
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connection
I received a request to make a connection with Michael E. but I do not know how to reply to his request. thanks for any help
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I think I’m seeing progression?
Had to take LO to the drivers license facility to get an ID card( not a DL). Her out of state DL was expiring soon. It was an adventure, made as easy as it could be by very helpful staff members. Then to lunch and back to the ASL. I saw and heard a couple of things today that made me think she is progressing into the next…
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Is there a time when you KNEW quality of life was really gone?
I'm having this sense that we're there, but it's so hard to judge when you're in it everyday. My partner can still handle dressing and bathing and toileting, and she loves our dog and cats. But she's in pain frequently, confused or upset more and more, sleeps more and more, not interested in food, is forgetting even close…
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Feel like a terrible daughter
My mom moved in with us about 3 months ago. She battles with AL for the past 2+yrs. I just don't think I can do this and I feel so bad. I have teenage daughters and grown children at home yet. We even have grandbabies so we have a large family. We can't just get up and leave when we have to. My husband and I are trying,…
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Symptoms in LS Alz
My 77 yold mother is in the early stages of late stage Alzheimers. I have a question about the progression of the disease and symptoms. Tell me what you know/what you've experienced and what more we can expect from this point on. We have mom on palliative hospice care. The nurse comes once a week and she doesn't really…
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It’s time
I am so happy to have found this board! My husband and I take care of his 82 year old father who was diagnosed with vascular dementia in 2015. He moved in with us in July of last year as he wasn’t eating well or taking his meds. We considered memory care but decided to bring him here due to covid. He also has severe…
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Grandchild acting as CG and needs any/all advice
I'm 24 and very suddenly became my grandma's caregiver. My grandpa passed suddenly in February and my parents and I found out that he was hiding how much my grandma had declined in the past year. Due to Covid and them living 3 hours away we hadn't seen them since Christmas of 2019. So while we new of the diagnosis and…
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How to approach guilt of a loved one
I’m hoping someone here can give me some advice. My girlfriend is 26, and her father was recently diagnosed with early onset in the past couple years. She doesn’t like to talk about it much, and for the most part tries to hide her feelings down deep - until recently. She expressed to me that she believes his disease is all…
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how do I reply to this?
When I tell my wife she isn't able to do certain complicated things (like cooking, sorting her pills, keeping track of appointments) -- she's almost unable to use a microwave or simple phone -- she often challenges me by saying "How do you know I can't?" I don't want to dare her to try, because the attempts could be…
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Iphone for Mom with early onset Alz
So my mom has asked and asked for a new phone. She previously bricked her iphone so badly even Apple was impressed. It's toast. I have gotten her a new one, and am in the process of setting it up, but I want to put some safeguards in place. I know about the parental controls, and have an appt with Apple to get all of that…
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Help - constant babbling
Quick history: My mom was diagnosed in 2018. Symptomatic in 2015. Note of interest: my parents went on a 3 week cruise at the end of 2014, and when they returned, my mom said she never felt “right” again. TIAs suspected while on cruise. Diagnosis was never completely clear with 2 neurologists. Pet Scan/CT/MRI findings:…