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Different wishes between parents for living arrangements needs suggestions
I'm new here and looking for suggestions on how to handle my parents' different wishes for living arrangements. My dad has dementia and was moved to AL last month from apartment he shared with my mom. They have been married 63 years and have never been apart. My dad hates being by himself and wants to move to a 2 bedroom…
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AL with a MC option.... hour away or 5 min away
After reading feedback from another post I feel like I'm starting over again. I'm planning on moving my mom who at best is working in stage 4 and 5 somewhere depending on the day to an AL in my town 5 min. from me. Members have pointed out that moving her to AL that isn't a CCRC isn't wise and that's it's easier for PWD to…
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Bible Verse to Lift You Up 5/2/21
HOLD ONTO TRUTH NOT JUST FEELINGS * Psalm 22 NKJV “My God, My God, why have You forsaken Me? Why are You so far from helping Me, And from the words of My groaning?” * Psalm 22:4-5 NKJV “Our fathers trusted in You; They trusted, and You delivered them. 5 They cried to You, and were delivered; They trusted in You, and were…
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Removing shirt and pants, temperature or drug stoppage?
Six days ago we stopped taking Donepizil , Memantine and resperidone. It is much warmer last evening and today here in central texas, LO has removed shirt and pants once last evening and shirt today. This is not normal for her, just posing question to see if it has happened to others. Thanks for caring, Bass Man
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How to handle Alzheimer's patient who likes to take their clothes off
Hi everyone, My mom was diagnosed with Alzheimer's in early 2017, and the progress has been quite fast. The last time her doctor examined her (last year), he said she's already in late stage of Alzheimer's, she's no longer recognized me and my sister, but she still remembers my dad. She's 66 and bedridden due to her…
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patch/shoe insert wandering GPS
Hi all, Does anyone have experience with any of the GPS type tracking devices offered at the Alzheimer's store? There is a shoe insert and patch type product too. Obviously we do all we can to prevent wandering but on two occasions recently my Mom has attempted to get out of the home while I was in the bathroom. Yesterday…
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I need some space(1)
Sorry in advance for this vent but I’m about to lose my mind. After DH’s diagnosis of AD and needing 24/7 supervision I am having a difficult time getting used to him following me everywhere I go in the house. He follows so closely that if I suddenly stop he plows right into me. If I am making his breakfast he is right at…
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Knowledge is power.
Finally some good things come out from researching on youtube. It is hard to move/transfer/change position of LO. LO is not totally paralyzed, it is more like she is weak and does not know what to do with her body. There are many youtube videos that teach you how to move LO with minimal strength and not breaking your back.…
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Spending Mistakes as an early indicator of dementia
This may be behind a paywall for some. How Spending Mistakes Can Be Early Signs of Alzheimer's - The New York Times (nytimes.com)
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Diagnosed at 41 years old
In TEXAS & New to the Group We started taking my sister to the doctors about 2 years ago because her signs of memory loss were getting worse and she was now starting to have trouble with her speech. Just a few months ago we finally found a geriatric dementia doctor to accept her as a patient. No one would take her because…
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Parkinson's Dementia really accellerating fast - alarmingly fast
Hi. So my mom was first diagnosed with Parkinson's over 20 years ago. She's 85. Around 2018-2019 my dad began talking to me about it more. But he didn't let on how hard he was working. In August 2019 dad died very suddenly and everyone was completely shocked. We quickly moved mom to an assisted living with her sister sort…
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Early Onset Alzheimer’s Neurologist in NYC
Hi everybody: Been getting really frustrated since my MCI diagnosis that even in Manhattan I’m having a tough time finding a neurologist who specializes in Alzheimer’s, is willing to order PET scans, CSF and genetic tests and doesn’t turn away patients below 55. I’m 48 and am having a tough time dealing with the “we can’t…
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Mom is stronger than we thought
This is my first time to chat online about my mom so here goes .... My mom is 78 years old and was diagnosed with Alzheimer's/Dementia in June, 2017 and it's been a complete roller coaster. I have watched her go from a woman who could do everything on her own, to a shell of a person who can't put two words together. The…
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AL 5 min from me or AL with MC 2 hours away with brother? Need advice. Help please.
Hi there and thanks for reading and giving feedback if you can. I have two options I'm weighing and need help deciding. (Mom is in Stage 5.) What do you all think? Option 1: Park Merced (PM) Assisted Living in Merced, CA. https://www.amiesseniorcare.com/parkmerced Pros: * She's 5 minutes away from me and granddaughters *…
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Dementia speed
Small rant. Half of my life is caring for 4 sons at home and a husband...full speed ahead! Busy, exciting, loud, crazy, happy. The other half is dementia speed. Whispers, shuffling steps, coins in shoes, guilt. The adjustment between these two houses has to happen in the time it takes to walk 100 feet. I have to calm down…
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Excessive Sleep
My husband is newly diagnosed early stage dementia, but has been sleeping excessively for sometime. Is this normal? Is this harmful?
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this disease sucks (warning! venting inside!) - tired of her being stolen from me little by little
I knew my LO, my mom, has been progressing. I've suspected she has been regressing as well. I've suspected this for a few weeks and didn't let on to anyone else as the rest of the support crew, well, is either emotional, a basket case or just not there, or some times over reacts before we know for sure what is going on…
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DH thinks there's more than one of me
My DH thinks there is a group of wives taking care of him. According to him, we all look the same and have the same name, and we all live in the same house, but he is never sure which wife he is talking to. He asks me questions like, "Which one of you carries the phone?", and "Which one of you did I talk to this morning?"…
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Suctioning the Geriatric Patient?
Wondering when should I get a mucus suction machine for mom? At night, lying on her back, she tried really hard to cough the mucus out. Is there anything I/she can do? Is suction machine dangerous to operate at home? Thanks
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block 411 call out
Does anyone know how to block outgoing 411 calls from a cell phone? My DW is in MC and has a flip phone with Consumer Cellular. They do not have a way to block it. It is not really a smart phone, since she would not know how to use that, so call block apps can't be installed. She dialed 411 , 92 times last month. Any…
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whiteboard to help with memory loss
Hello wise ones! I say that positively as I've gotten some great feedback in the past. My LO is my mom and we have been struggling through various phases of this disease. At this point, the short term memory is getting very bad and I decided to try a whiteboard that we can put the daily activities and upcoming days (up to…
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Desperately need advice about end stage swallowing problems
My LO is in hospice care at home and is in the end stage of Alzheimer. Our hospice nurse told us to stop feeding him because he has problems swallowing (dysphagia), and there is the risk of aspiration pneumonia. The past couple of weeks before this he could only drink liquids. Now, he coughs when trying to drink. The only…
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Need to go to the bathroom, but can't walk, problem..??
Hello Everyone, Thank you ALL for this for, I read it often. My mother is 92, she has 24/7 care with caring Aides in her home. I take care of all her non-daily needs, and visit her once a week. She has, I'd say, moderate dementia or so. She is very very articulate and verbal in the present, and can have some wonderful…
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How to Navigate to get the right Care for my mom
Hello to all! Just found this site and wanted to see if anyone can share, based on their experiences how to navigate all the information and get help for my mom. My mom was diagnosed with moderate dementia but is very strong and refusing help. She lives alone still and that is part of the struggle. The few caregivers that…
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Grieving the changes
How often do people visit their LO? In my case they moved exactly 3 months ago. Then 2 weeks ago trauma with my dad...and now many wonderful people helping me. The hospice nurse has been changed (and I like this new one) When I take my dad out, he doesn't want to go back...but he does...the last time I called his cousin…
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Daycare ideas
Good afternoon. I am looking for daycare solutions for my mom a few days a week but not sure she will be open to the traditional setting and wondered if anyone knew of or had ideas on something that made her feel like she was helping or volunteering. She used to be a nurse and keeps talking about going back to work and…
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Need Legal Advice - state of FL
Hi, I am new to this forum and am seeking advice that I am sure has been discussed before. My mother is 87 and I have just moved her into my home. She has Dimentia for about 3 years now. It is getting worse lately, but she thinks she is the same person as 10 years ago. I need to get ready for the day when I may have to…
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Grandma has hallucinations...
Hello everyone...let me provide a bit of background. My grandma is 90 years old. She was moved to an assisted living facility Jan 2019. She has not been clinically diagnosed with Alzheimer’s, or dementia, but it runs in the family, and she has all the signs. We just recently moved her from assisted living to memory care,…
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Alz Family Conference
I've signed up for a Family Conference given by a chapter of the Alz Assn. I just noticed that it's by Zoom and goes from 10:30am to 3:30pm. Has anyone done one of these? I can't imagine sitting still (and without food or bathroom) for that many hours. Is the idea that you get a schedule and choose which sessions you want…
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MIL is due back...I want to run away
MIL will return to us by the end of the week. Sib #3 is traveling with her and I'm curious as to what the conversation will be. The last time MIL spent any significant time with Sib#3 was more than 3 years ago when MIL's memory loss was not nearly as significant as now - and that visit back then didn't end well. To…