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SSD denied
Hello, My 52 year old husband was diagnosed w EO Dementia/Alzheimer’s in February this year. He worked at a medical center at our State Univ from 2010-2022 then started a new job and had been there 6 months. He was denied SSD because he didn’t work where he contributed to SS over the past 10 years. He DID work at other…
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Next Steps, I'm at a Loss
Hi All, My heart goes out to anyone going through this. Thank you for standing with me, supporting me. I've written a couple of these discussion posts and gotten great advice, so I wanted to reach out again. Just as a mini-bit of feedback. I now have two parents with what we think is dementia. My father no longer speaks or…
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What can this be but that?
Hi Everyone, Thank you to everyone who has offered me help and advice, it is beyond appreciated. I have posted something along the lines of this, but now that I have more information, I wanted to reach out with a specific question, instead of a large post with lots of stuff at once. My mother is sick and I know that…
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By QBC- a vent about parents
I visited my parents in the AL today. My mom was out walking with the physical therapist when I got there. Which gave my step-dad the opening to tell me he wasn’t going to his first neurologist appointment next month. Because, of course, there is nothing wrong with him. It’s just so frustrating to try to deal with all his…
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Sitting in car with mom waiting for not real person
Usually she gives up it’s been 1.5 hours I don’t know how to get her to come to my house today
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Both parents in assisted living
Hello! My family and I are new to an Alzheimer's diagnosis. In fact, we have never had a relative with any kind of dementia, other than very mild cognitive decline, and that at a very advanced age. However, my 88-year-old father was diagnosed with Alzheimer's in September of 2022, and at that time he was likely heading…
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The new normal - which makes me bone tired
After the last few months of instability, I think Peggy is settling into a new normal as she hovers at the beginning of Stage 7. She eats only finger food now, none of us let her walk by herself anymore because she's likely to fall. She doesn't eat in the dining room anymore because there are too many people in there for…
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Caregiver with a Mother that has just been diagnosed with Dementia.
Pleasure to meet everyone and I'm very happy to find this group. My mother who is 78, has recently been diagnosed with Alzheimer's with a potential pathway of Dementia. Though this did not come as somewhat shock to myself and my siblings, we primarily found out after she was evicted from her apartment, her spouse left her…
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Help needed with severe situation.
I have posted about my current situation before. That both parents have cognitive problems. My dad went out for over 1 hour and 20 minutes on Sunday on a suspended Drivers license and no wallet with id. Then my mom tried to erase the camera system by powering down the cameras on the power strip. She additionally told the…
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Head's up to you caregivers!
I often read that caregivers put up calendars so their LOs with dementia can be prepared for appointments and events. I don't have Alzheimer's Disease but my memory and cognition are very bad and I want to tell you my experience. This afternoon I received a voice-mail message. Apparently, I had missed my medical…
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Lapse in Judgement
My mom was diagnosed with focal unaware seizures presumably left temporal onset ..and I want know if lapses of judgement can be seizure related or if Alzheimers or dementia might be setting in. My mom had a major lapse of judgement today. Today despite me warning her not to, she decided to open the door for a total…
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Self pay to Medicaid
Hello all, I am looking for any help I can get. I also need direction. I have a LO (82) MIL with VD who is currently in MC. The issue is that she will be running out of her retirement funds sometime during this time next year. I don't want to sound insensitive but can't take care of her any-more. I have my own MP. My…
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Need advice(26)
My husband and I moved his mother from Arizona to Minnesota about 2.5 years ago. She had the beginnings of dementia at the time and not surprisingly it has progressed. She is currently living in an assisted living facility (not in memory care). My husband and I visit her about once a week at her residence and, when she is…
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Bible Verse to Lift You Up 5/30/23
CHRIST GIVES ME STRENGTH * TODAY’S BIBLE VERSE Philippians 4:13 New King James Version “I can do all things through Christ who strengthens me.” * MEDITATION My parents were always there for my husband, our two children and me. Yet, I struggled as their caregiver, feeling sorry for myself. I thought, “Why me? Why do I have…
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WWD Coming to Vero Beach Film Festival!
Celebrate Alzheimer's & Brain Awareness Month in June by celebrating your big, bad caregiver selves at the movies! The dementia family caregiver documentary Wine, Women, & Dementia screening at: Vero Beach Film Festival Saturday, June 10, 12:00 noon IRC Commission Chambers - 1801 27th Street, Bldg A, (South), Vero Beach,…
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I need a friend/mentor
I am looking for someone to talk to. I’m so alone, sad and scared. My mom is 76 and is at the beginning stages and I am her primary caregiver.
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Tinnitus and Alzheimer's
My MIL with Alzheimer's has been complaining for about a month of buzzing/ringing in her ears. My husband tells her it is tinnitus and that she needs to turn on a TV or something to have sound to distract her. She has a doctor appt coming up and I will have it checked out there. But I really feel that this ringing is…
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Podcasts on FTD
I learned about this a week ago and have listened to three so far. She interviews various professionals such as nurse practitioners who work with dementia or especially FTD Posting in case they are helpful for anyone else. https://talkingftd4you.podbean.com/
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Alzheimer's online course
Where can I study to learn how to take care of my grandmother and care for myself when caring for someone with Alzheimer's
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Sleep issues
Hey I’m new so I hope this makes since. My client isn’t sleeping well at night but becomes very agitated after lunch because she’s so tired. How long should I let her nap so it doesn’t interfere with her sleep at night.
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Contacting Central & North Florida Alz Chapter
Are any of the forum admins able to get me a phone number or email for the Central & North Florida Alz Association Chapter? Wine, Women, & Dementia is playing the Vero Beach Film Festival so we are contacting caregiver support services in the area to spread the word. I called the 800 number and left my name and number, but…
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By QBC - lots of new people on the forum
One result of the recent forum revamp is lots of new people ( and the reemergence of lurkers) on the forum. It’s definitely changed the feel that the longer posters are used to. We are a very honest and open group here. We post what we think and feel in the moment. We have to to really get and give the best advice, support…
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Dealing with family members death
My Dad is pretty emotional after learning that his brother in law (my moms sisters husband) passed away during the night in hospice care. We tried to get up to see him at the hospice home this morning and Dad wanted to go. They were fairly close so I figured it would hurt more if he didn’t go. He passed during the night…
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Memantine in Addition to Donepezil - What to Expect and For How Long
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The Homeless Elderly
i saw this report regarding the Homeless Elderly; it certainly presents something that one does not hear about: https://www.yahoo.com/news/seniors-flooding-homeless-shelters-cant-162941381.html It is stunning to me that this has not been a significant publicized part of the dynamics re the homeless population issues. it is…
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Alcohol Related Dementia Wernicke–Korsakoff syndrome thread
I wanted to start a separate thread of support and venting for caregivers/family members of people with alcohol related dementias and/or who have been diagnosed with Wernicke–Korsakoff syndrome (or not diagnosed but you suspect this is their illness). This is such a complicated issue because, in addition to the dementia…
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Kidney Failure stage 5/Dementia
Hi my mom is 95 years old. She had stage 4 kidney disease since 2018 which have been stable up to this point. She now has stage 5 since July 2022. At this point of her life she's declining. She can hardly walk, her right shoulder is painful because it's bone against bone, on the right side all the way down her hand is…
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Re: Arranging transport
I am writing as something to think about and to prepare for in regards to a common caregiving situation. My older relative in her 80's cares for her brother in his 90's who has AD. She had occasion to take him in her car for a medical appointment. Despite having the younger woman caregiver and another older man relative…
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Mom with AD said God had not been good to her, what to say?
I was not sure where to put this post, and not sure there is really a great section for it. Overall, I think my mom is quite miserable. I know, there is a limit to what anyone standing outside a person's mind and heart can really do. I do not think I can make this better. What do you say to someone who is just unhappy?…
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My grandmother is very talkative and sad
My grandmother is very talkative and generally negative and depressive. How can we create an environment that makes her happy and that distracts her from her negative thoughts?