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Do people living with Alzheimer’s/dementia get sad?
Today was a very tough day for my LO. She went to the doctor and was more disoriented than usual - the “cognitive reserve” was down. Even after a meal out, which usually cheers her, she looked like she might cry. Then incontinence didn’t help, and she won’t wear anything like depends. She looked so humiliated and dejected.…
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Another use for shaving cream
I was cleaning up after DH, getting him ready for bed, and could not get the urine smell off of his hands. His skin just seemed to absorb it. After a lot of soaping, the odor was still there. so i grabbed the shaving cream and applied it to his skin. WOW, instant odor removal. Just wanted to pass it along.
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Bank shut down due to POA?
Our experience with moms bank account was difficult. My brother, her son, had POA (I was secondary). When the funeral home alerted social security that she was deceased, that alerted her bank also. My brother and I were waiting for a few things to clear so we could shut it down. The bank suddenly locked the account down…
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Back from respite care
My s.o. put the plan together so quickly I could barely believe it. But he did. I called everyone in my small, but very excellent team (Peggy's friends M and D, and my two outside caregivers), and Peggy's memory care facility, so everyone knew I'd be away for essentially three days. It was Monday afternoon through this…
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Retaliation in Nursing Homes: Report Sent by Michael Ellenbogen
Yesterday (June 15th) was World Elder Abuse Awareness Day. Here is a link to the report and the press release for it. https://nursinghome411.org/alert-retaliation/
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Any advice for preserving relationship with grandchild?
My mom (83) and dad (85) have always been very involved in my son's life. I am their only child, he is their only grandchild. Mom has ML and dad has other health issues. They moved to AL about 6 months ago. Mom cannot retain any new information and asks the same questions over and over again. We have always been a small,…
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Bible Verse to Lift You Up 6/15/23
GOD’S LOVE AND CARE BIBLE REFLECTION Romans 8:31-32 (GNT) “…If God is for us, who can be against us? Certainly not God, who did not even keep back his own Son, but offered him for us all! He gave us his Son—will he not also freely give us all things?” What comfort do you find in the above verse? MEDITATION God was always…
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Dealing with paranoid delusions?
It's been several years since I've been on this forum (my dad who had Alz passed away in 2018), but now I'm back again since my brother-in-laws mother has dementia and it's been extremely difficult to handle. My sister and her husband have been working on getting her meds on track, but until then we need some advice on her…
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My 84 yr old mother
Hi. I'm new here and this is my first post. My 84 yr old mother was always abusive and is a narcissist, and as I'm sure you can imagine, Alz has magnified that tremendously. Her memory loss has really created a challenge because she does know that she has Alz, and has also been aware for many years now, about 20, that her…
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Habladores en Espanol/Spanish Speakers
Hay casi nadie que esta escribiendo en Espanol en Alzconnected recentemente. No habian muchas personas antes pero ahora hay menos. Hay todavia un represente de la Associacion de Alzheimer's quien puede responder preguntas en espanol? Se puede hacer algo reanimar este grupo en Alzconnected? There is almost no one writing in…
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My brother is miss mismanaging my mothers finances
I'm afraid my brother is mismanaging my mother's finances, which could lead to bankruptcy. He got a home equity line of credit in her name against her house. I thought this would be used for unexpected expenses, but my brother started using it to buy solar equipment. He believes that society will collapse and that we need…
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Alzheimer's Disease: The Steps to a Solution
The key to the treatment of Alzheimer's disease is likely the following: "The inflammatory mediator peroxynitrite, when generated in excess, may damage cells by oxidizing and nitrating cellular components. Defense against this reactive species may be at the level of prevention of the formation of peroxynitrite, at the…
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Expert Information on Dementia/Alz
Hi Everyone, I want to share a resource with you that I just learned about. The expert is Teepa Snow. I spent considerable time view her videos and learned so much. It really shifted my mind to look the disease and behaviors differently. Instead of getting frustrated etc. I now have a glimpse into the struggles on my DH.…
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Still Haven't Given Up
For those who have been following my story...I truly apologize for running away. My last post was about me giving up. I couldn't help my mother anymore. This was the 3rd time and the governor gave his reprieve at the last second. I wanted to come back and tell you all but I felt like the boy who cried wolf. She's gone,…
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I am SO tired of AuDHD; vent
I have been struggling so hard with my disabilities as being ASD and ADHD and trying to care for my mom this past year. I keep trying to figure out how I can manage myself while also taking care of her dementia and it's just so frustrating! Any stupid search I do online for any help is for NT PARENTS OF CHILDREN and none…
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Medicare Change: Will Now Pay For Drugs Having FDA Approval
Medicare will now pay for drugs that have FDA approval including newly approved drugs for dementia. MDs will have to report patient response: https://www.aol.com/news/medicare-plans-pay-alzheimers-drugs-203839696.html J.
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Can my Dad pay me as his full time caregiver?
I will also post this on the spouse or partner forum, since we have children caregivers there too. https://www.elderlawanswers.com/can-my-dad-pay-me-to-give-him-full-time-care-19770
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hospital bed options
Hi, I'm sure some folks here have experience with this and might have some suggestions. We are preparing to move my mom from SNF to assisted living. My brother and I were hoping to get a hospital bed for her in the new facility, because mom's knees are very bad and being able to raise and lower the bed, plus having the…
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Basic question - how to respond?
Hi all. My 87yo LO has mid- to late-Alz/VD. I had a thread recently about unrealistic travel plans and on that thread I learned about anosognosia, which I think he exhibits. He of course was there when the doctor diagnosed him, and we've mentioned dementia to him in the past. But he's also very very forgetful nowadays. The…
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Personal Story By Wife - Lyme Disease Mimicking Alzheimers and Misdiagnosis
https://www.today.com/health/essay/tick-bite-husband-undiagnosed-lyme-disease-rcna31268 This also happened with famed singer, Kris Kristofferson
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Caring for family member with LOMEDS
Is anyone caring for LOMEDS patients? My family member was born with Down Syndrome . Now has Alzheimer’s. Please reach out
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Bible Verse to Lift You Up 6/6/23
CALLED TO A GODLY LIFE BIBLE REFLECTION 2 Peter 1:2-3 (NIV) “Grace and peace be yours in abundance through the knowledge of God and of Jesus our Lord. “His divine power has given us everything we need for a godly life through our knowledge of him who called us by his own glory and goodness.” What are a few ways Christians…
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Mom wandered for the first time. Ready to give up on doing it myself (NYC)
I've been doing this for about 3 years now, It's exhausting, frustrating, but it was all I knew. She's EO (66 now) I love my mother but at the risk of sounding selfish I want to start the process ASAP of getting her proper care that doesn't involve me staying by her side 24/7. Because now I don't know when she'll just up…
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Trouble getting an appointment for diagnosis
Hello community - I am not sure if anyone has advice, but I am struggling to get an appointment for my mother to get diagnosed. Her primary care doctor believes Alzheimers is the likely diagnosis but we cannot get the right care plan in place without an official diagnosis. I am also scared for her safety - she seems to be…
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Feeling guilty and anxiety
Hi all, my mom is at a nursing home a little over an hour from me and has been for a few months now. Before this she was in the hospital for 4 months awaiting placement. In the last year or so my husband and I had not really taking time off due to moms increasing paranoia, hallucinations, and all the symptoms that come…
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When is it time to think of assisted living
My husband has had alzheimers for a few years now but it seems to be taking a negative turn, both physically and mentally. Nights, for me, are the worst as he is unsure of himself going to the bathroom (which he does alot), getting back to bed, etc. We have a helper most days but I work and this lack of sleep is making me…
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Drugs to Treat Alzheimer's Disease: Comparisons
There are two basic types of treatments for Alzheimer's disease: drugs that limit the formation of oxidants, and drugs/natural products that limit the formation of oxidants, remove them, and reverse part of the damage that they do to the brain. The second types of treatments are more effective. To limit the formation of…
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Recommendation needed for medicine containers
Hey Everyone, Thank you to everyone for their amazing support and knowledge. It sucks we are all on this road together. I need a recommendation. My mom is going to start taking her Galantamine, but I'm nervous she either won't take it or take too much. It's twice a day with food. She also needs her allergy pill. She…
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Resilience in Dementia Caregiving Webinar (sent by Michael Ellenbogen)
This seminiar looks like it could be interesting and valuable: The interagency Focus on Aging: Federal Partners’ Webinar Series addresses topics of interest for older adults, including those living with Alzheimer’s disease and other types of dementia. The next webinar in the Focus on Aging: Federal Partners’ Webinar…
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SSD denied
Hello, My 52 year old husband was diagnosed w EO Dementia/Alzheimer’s in February this year. He worked at a medical center at our State Univ from 2010-2022 then started a new job and had been there 6 months. He was denied SSD because he didn’t work where he contributed to SS over the past 10 years. He DID work at other…