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Alzheimer's homebound status
Am I correct here? Medicaid pays for 35 hours of home care for people who are homebound and people with Alzheimer's who are a wandering risk are considered homebound. Please correct me if you think I've misinterpreted this. Here are my references: From Google AI: Yes, wandering can qualify for Medicaid homebound if it…
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Help - Decisions and Options: Any advice/suggestions are appreciated
My DH was admitted on Sept. 2 with COVID. He is off of isolation and want to transfer him out of the hospital. They have been unable to come up with the right meds to calm his anxiety (he constantly wants to get out of bed because he thinks he has to urinate, but he doesn't). He has been checked for a UTI. They have had…
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UTI or Just a Progression of the Disease.
My DH has been sleeping almost around the clock for the last 3 days and eats only small amounts of food when hand feed. He will walk with assistance but very slowly. He does not appear to be pain. This new behavior came on suddenly. He was walking unassisted, feeding himself and sleeping maybe 8-10 hrs a day prior to the…
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Your thoughts on Aircept
My DH was diagnosed “probably vascular dementia”, scored 22 on cognitive test and is 70 years old. The doctor made no other recommendation other than to start taking Aircept. he has no other health problems What are your thoughts on this drug is it worth trying? He is very thin and has dizziness in morning. Doctor said to…
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New here
My husband was diagnosed around six years ago. I would guess stage 5 and some stage 6, He has had difficulty speaking his thoughts for quite awhile but understands what I am saying as long as I am clear and concise. It is so hard to explain your alzheimer spouse to others they would have to live and deal with them 24/7 to…
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Well Spouse Association
Has anyone heard of or joined Well Spouse Association? If so, what are your thoughts?
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new to dementia
To start out with my husband and I are married in name only, the marriage died long ago, I do care for him, and we live in the same house, but different floors. My husband was diagnosed with dementia 2 years ago, but within the past 3 months I've seen some decline. I was in denial until he couldn't check the fluids in the…
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Pronounced Lean
My DW has been taking Galantamine for a couple of years. Progression has been fast and she almost can't speak anymore. So, the neurologist said, "Let's try Memantime". I'm not sure why I said yes at this stage, but for the speech issue. Hoping against hope it might give DW a little more time speaking, I guess. I've noticed…
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New Medications for DH
My DH has been in the hospital in the geri-psych unit for a week now due to extreme agitation and aggression. Previously he was on Seroquel, Trazadone, and Lexapro. Due to the affects on his heart, Long QT, the doctor has changed his meds to Abilify and Zoloft. Do you think these will tamp down the aggression and agitation…
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interesting delusion
Today I dropped my DW (stage 5/6 vascular dementia) off at the salon to get a haircut. Fortunately, her stylist is very understanding and patient. I returned 45 minutes later to pick her up. I paid my wife's bill and scheduled her next appointment. The whole interaction was pleasant and uneventful. Several hours later…
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How and when should I tell my DH I am placing him in MC
Thanks to encouragement from people on this forum, I have decided to put my DH in a Adult Family Home dedicated to memory care. A bed will open up in about one month. I can't decide when to tell him he will be living somewhere away from me. If I tell him the day before placement, I am afraid he will refuse to get in the…
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New Symptoms and Much Denial in Spouse
At first I thought it was distraction. Not following through on plans, forgetting words. Then I thought it was depression. Denied. There was a change in smell and taste. Tests were negative. Now this could be early dementia. My spouse is 58 years old. I told her I was concerned and I was dismissed but she finally agreed to…
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What to expect in first month at MC
Taking the big step. My husband is going to MC today. A few things are bugging me. I’m not convinced either that he is ready and stabilized enough, or if this step would even be necessary if he had more appropriate hospital care in a geriatric GPU. Will be saying lots of prayers that this will all work out. Setting all…
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Boy do I need help
this is my first post. My 78 yr old DH is full into dementia. He had a stroke a few years ago then ended up in the hospital with Covid and pneumonia for a week. He was very delusional there and carried on when home. He is able to dress, do all personal hygiene, he can do pretty much all he’s even driving with the 6 month…
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update information scam
Just received our third call in three days to update our medical information. First call alluded that they were from CVS. Spoiler alert -they were not. Next two said 'medical supply company'. All three asked if I had back pain or leg pain. No idea what they were trying to sell me as my answer was the same each time --…
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Door Monitors/Alarms
Need suggestions for the best type of door monitor/alarms. I have just recently noticed my DH stops and stares - likes he's lost. This has happened the last two mornings. I want to be proactive in case he starts to wander. Could you please share with me your experience with door monitors/alarms? Thanks.
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One Year Evaluation Showed in Improvement in AD Symptoms
My DH was diagnosed on January 25, 2024 as having AD after cognitive testing, testing for ApoE4 and a PET Scan revealing amyloid plaque. He began taking Donepezil 5 mg 1 x/day in September 2023, which was upped to 10mg 1 x/day in October with Memantine 5mg 2x/day added. On February 28, 2024 he began Leqembi infusions and…
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DH Diagnosed with Young Alzheimer’s
Hello! I am new here. My husband was just recently diagnosed with Young Onset Alzheimer’s. He is only 55 (as am I). He was misdiagnosed for the last 4 years with Pseudo Denentia (meaning he was having memory issues to do this severe depression that came on suddenly). I had to have DH hospitalized for the depression 4 times…
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Mom with lewy body dementia
My mother is in the nursing home which she hates. She has terrible hallucinations of men with long white beards and no teeth who torture her every waking moment. She says they pull her hair out and spray powder in the air where she can't breathe. She says they make her hands and knees hurt. She has rheumatoid arthritis.…
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Post surgery symptoms and medications
My DH was diagnosed with AD in Jan '24. I started noticing problems a year before that, when he couldn't seem to comprehend things that were being said to him, couldn't remember who he'd talked to on the phone or what had been said, got very upset and cried about things very easily, said he felt like he was losing his…
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Just finished tests
I guess Iam in denial but the MRI and other tests don’t show anything abnormal. My dh has a score of 22 on cognitive test so our gp wants him to take aircept. I know you have all been down this path but it’s just so vague. Is this all there is to this. I guess we just start down the path. Very strange a devastating disease…
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My husband was in the hospital. Again.
I can only write this post because my husband was just released from his second hospitalization in a month. Last Friday,after he had been at memory care for only seven days,I I got a call from the nurse. She said my husband was running into walls and doors deliberately, and if he didn’t stop, she’d have to send him out. An…
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Early Onset Webinar
I just watched the Early Onset webinar that Lane Simonian had posted from Michael Ellenbogen. Most of the information is what is discussed here all the time, about signs and symptoms, having to leave work, and isolation. There were suggestions about setting up a support group. Here are some websites. The webinar itself may…
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DH is diabetic, has a sweet tooth
added problem with DH with Dementia is diabetic, lately he sneaks in the kitchen & will eat anything sweet, icecream, candy etc, shoots his diabetes up! i hid the cookies, wont order any more ice-cream,, its hard to keep an eye all day & night. Would rather not put a lock on the cupboard & fridge ! anyone else facing this…
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What kind of safety gate should I use?
My husband is in stage 5-6, still very fit physically. I need to keep him from going upstairs, to prevent falls on the steps. Has anyone found a good 'baby gate' for this? I have solid wood to attach to at the base of the stairs. The latch has to be complex enough that he can't easily open, and it has to be sturdy enough…
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Wanting to go home, when we are home
Everyday my 80 year old husband with moderate dementia, wants to know how he is going to get home. We live in a home in the same community that we have had several houses. We have lived here for 4 years. I try to explain that we are home, he says no. I tell him not today, he says he can’t stay here. I have tried to divert…
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Accelerated Progression from Stage 5 into 6
My DH's Alz has advanced significantly in the last 6 months. Then he contracted COVID and in the hospital for 2 weeks. The illness and hospitalization have made him much worse. He is going to be moved from the hospital into a Rehab Facility. Are there any suggestions on how to lessen the fear and anxiety for him? I then…
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Behavior shift-FTD
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New stage
DH has entered a new stage. He's sleeps almost all the time. We're having difficulty waking him enough to eat. For almost 3 weeks now he's eaten very little, decreasing more by the day. Almost nothing in the last week. His drinking has also slowed over the past 2 weeks, to just a little bit. I've told them that I'm ok with…
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MC facility not communicating about anger issues
I have learned from my DH's staff at memory care that he has been in several altercations in the last month, always in the evening after dinner. He struck other residents and caregivers on several occasions. The only reason I know about it is from the CNAs who are on the floor. Neither the head of the nursing department or…