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Stage 5
My DH is now stage 5 cognitively and memory wise. He is still able to attend to his personal care. Our specialist said this stage can last 6 years….can you share your experience in terms length of time and behaviors? DH has had a couple of angry outbursts where he kicks us out the house, no recognition of me for over 6…
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How will I get through this
Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…
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Dementia and Personality Disorders
I know there are many of us here who deal w persons w difficult personalities and dementia. I saw this Dr. Natalie video and wanted to share. My DH doesn't have a diagnosed PD or diagnosed dementia but he sure does "quack like a duck." 😁 Im sorry it isnt hyperlinked. I never seem to be able to get it pasted that way!…
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Awkward and Embarrassing
I am asking folks on this platform for advice on how to handle a spouse who no longer speaks with a filter, seems unable to "read the room", and says embarrassing things in public. I understand that my spouse is no longer the woman I married almost 50 years ago, and she is not to blame for the disease that controls her…
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Very interesting book
I almost hesitate to put this out there but decided to do so as I see improvements in my DH since starting him on this program. “Alzheimer’s Disease What if there is a Cure?” by Mary T Newport, MD is a very interesting read. I started following her suggestions with coconut oil and MCT oil on November 11th and have…
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Facebook and DH _ no way to delete my post??
I had already posted about this in the past, but can't seem to see a way to delete a post? My DH is in stage 4 going into 5, a year after alz diagnosis. He's still able to care for his daily needs and does many routine chores on his own. He's been on Facebook since 2019 and enjoys reading posts and posting his own things.…
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Drumming in his sleep
My DH is at moderate stage 5 and sleeps well through the night. He went to sleep at 7:30 this evening. In his sleep, from about 11:15pm to 11:30pm, he started a very fast, vigorous rhythmical drumming with his finger tips on the wall behind his head, lasting from 3 to 25 seconds each and less than a minute apart. My quick…
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Christmas tree
With all the issues there are to deal with, this seems so very trivial. But, maybe someone here has some wisdom for me. I used to LOVE putting up the Christmas tree. It was almost a "ceremony" for me, with holiday music playing and every single ornament being hung on the tree. Window swags, candles, a village of ceramic…
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Companionship for the caregiver
I live in MA and for the last 3 plus years as my wife’s condition has continued to worsen the isolation has become overwhelming. I need social contact, adult conversation. I cannot be alone with this struggle and my hope is to connect with a woman who may be experiencing issues and to at some point meet for lunch, coffee…
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Hospice
It has happened. My DW has qualified for hospice. She lost 12 lbs in the last two months and can’t bathe herself anymore. That’s why she qualified, not because she is 6 months from dying or anything. Thought that might help some folks to know. Honestly though, I don’t see her making it to 2027. I am both a wreck and…
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First time caller
My wife (60) has been struggling remembering things that happened yesterday or even an hour ago. I thought it was stress related because we had major events in our lives: retirement, moving across country, empty nest, new grandchildren. But that was just the start. We tried playing games like pickleball, cards, dice - most…
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Meeting with the Neurologist
New to this forum…We have met with the neurologist 4 times over the coarse of the past year. My DW does not understand why we are there, yet we sit and talk about her condition in front of her. It is very uncomfortable for me. When we leave she resents what has been said and voices her dissatisfaction with the doctor. Is…
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Bible Verse to Lift You Up 12/18/25
GOD IS OUR PEACE Isaiah 26:3 NIV You will keep in perfect peace those whose minds are steadfast, because they trust in you. John 14:27 NIV JESUS'S WORDS Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Pray + Trust the Lord = Peace
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Memory Care Facility
There are so many MC facilities in So Cal that I just don't know what to do. Are any of you able to recommend a MC (or several MCs) to me in SoCal. Happy holidays, Russ
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It's a sad day
It's a sad day. I was in the backyard when I heard Donna bawling. I came in to see her yelling, jumping up and down and hitting the wall with her fist. When she saw me she charged at me saying I'm going to bash your face in (she stopped short) saying that if she had a gun she'd kill me. She's been on Quetiapine 25mg for…
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Using AI
I was curious as to how many of you may be using an AI platform like ChtGPT to converse about your LO. I have found this to be a very useful tool for several aspects: understanding observations, understanding the medications more in depth, confirming I'm doing the right things, confirming I'm not the only one that loses my…
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Hospice while in MC
Before I ask the people here at MC, can anyone comment on the benefits of having hospice while your LO is in MC? I’m not sure yet if he’ll qualify but wondering if it’s worth trying. He’s in late Stage 6. I don’t know how it works between hospice and the current staff nurses and caregivers. Just looking for some comments…
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TV Response
My DW with EO late stage 5 sits and watches a lot of TV lately. Her favorite is Hallmark movies but she does like to watch NCIS or Law and Order. The problem is she thinks the TV is real life. Watching Hallmark she is very calm but with the others , she jumps up and gets a foot away from the screen upset with what’s…
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87 yr old man with dementia missing…
Please don’t leave your loved ones with dementia alone for any period of time. When you are caring for them, have locks on the inside of all exits. This is so sad! Petro Kugo an 87-year-old man with dementia, reported missing and endangered from Largo, Florida, as of December 13, 2025. 😢🙏
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transition to incontinence
Most of us understand that we will eventually have to deal with this, but are any of us really prepared? This weekend DW went from having a rare, occasional accident to being unable to use the toilet. It felt like she was peeing everywhere but in the toilet. She still has good mobility and seems to get up when it is time…
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Did I draw the short straw...
I have really enjoyed being part of this forum. I get a lot of good information and it's great to share experiences. One thing I notice though is that many of you mention 'watching tv' or 'listening to music' or just in general interacting with your LOs in ways that I can't relate to anymore. And you say they are in the…
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PET Scan Amyloid results
DH just had amyloid pet scan. Just reaching out to see if anyone has any insight on where he might be with all of this based on the widespread findings. Findings were: "Tracer activity is noted in the brainstem and cerebellar peduncles but not in the cerebellar hemispheres. Tracer activity is noted in the frontal,…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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Anger
My DW was recently diagnosed with ES. She suddenly turned angry at me as if I was to blame. She is violent in her behavior with horrible language, extremely scary facial expressions, and on a couple occasions physically striking me. Should this type of behavior be expected or is it evidence of another behavioral issue? At…
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Snacking problem
My DH (stage 4-ish ALZ) is snacking constantly. I've stopped buying anything "junk food" (nuts, cookies, etc) and have been buying him grapes, raisins, and mandarins which he will consume as much of as I leave out. I've hidden most of the foods that he can snack on but I'm at my wits end. He goes through the fridge,…
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The final blow to my Christmas spirit.....
My DH is in hospice care, and I know this will be his last Christmas. I have been trying to find some joy here and there, but on Wednesday my beloved 14-year-old kitty had to be put down. He had a mass in his abdomen and had stopped eating. His brother, my other kitty, died in September. I just feel like everything from my…
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Impulsive
DW decided this morning that she "had" to be at church early this morning to tell the pastors something. I caught myself realizing that this was one of those situations where I knew there would be no reasoning with her broken reasoner so we went early and upon arrival I just dropped her off at the door and parked the car…
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I wish you all peace
This is an extremely difficult, unexpected journey we are all on. Every day has so many challenges, it sometimes feels like the rest of life is passing us by because our loved ones and our focus have become narrower. While everyone else is getting ready for Christmas, we struggle every day to give our very best and run on…
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Newly diagnosed with Dementia. Caregiver.
I am a caregiver for my husband who has Dementia. I am very sad to see my partner in life in this stage. Some days he is better than others. What book or reading materials would you recommend for me? Thank you.
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Interesting article
After reading this, I truly believe that Gabapentin caused my DW’s EOAD. She was taking this prescription for her lower back pain caused by a car accident many years ago. Chronic and interventional painRisk of dementia following gabapentin prescription in chronic low back pain patients…