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Early incontinence question
I would appreciate a little counsel. My DW with is still pretty self sufficient. She was diagnosed about a three years ago. She has had just three accidents over the past few months. She also has anosognosia and doesn't have a clue why she's had the urinary accidents. Each time she's had an episode it was when we were…
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The essence of living in limbo
So my son and his fiancee are planning a destination wedding in the spring. This ought to be unadulterated happiness....but honestly, my first thought is how much easier it would be if my partner is gone before then, how much more I could enjoy it if I didn't have to worry about getting back. And of course I feel guilty…
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Progression from hospitalizations?
My DH has been hospitalized repeatedly this summer for aggression/agitation. After each hospitalization he seems a little worse. He gets better, but not back to where he was. Last Sunday he went from the Geri-psych unit to the ER and then a medical floor with aspiration pneumonia. The doctors say his pneumonia is…
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NA
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I Just Don't Care About Work Anymore
As many of you know, we moved from the SF Bay Area about two years ago to a small, rural town far, far north. We thought then that my DW might just have exhaustion from the stress of 17-years as a caregiver for both of her parents who had dementia. I was lucky to get a good job in my field up here, but the rest as a cure…
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Need to talk to someone
My husband is 73. I did not know about anosognosia and I was so relieved to read about it on this site. We moved to another state 5 years ago (right before COVID) to be closer to our daughter, her husband and our grandson. It has been a rough transition for my husband. COVID kept us from meeting new people and my husband…
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First MC Visit
I haven't been to visit my wife since placing her in the memory care facility on the 22nd. The thought of seeing her fills me with dread. I'm worried about how we'll both handle the emotions, and I fear she might think I'm there to take her home, which would cause her unnecessary pain. The activity director and the rest of…
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Veterans Home
Is there anyone else other me who has Dementia and is on the waiting list to get in to a Veterans home like I am? I'm on the list to get into the new Veterans home near Boston and it is state of the art each veteran has his own bedroom and bathroom.
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Memory care Monday
Provided everything goes smoothly, my husband is moving into a memory care facility on Monday. I’ve struggled with this but, as the kind people here always say, safety has to be top priority. This morning my sweet husband, who rarely talks at all and never speaks above a whisper, told me with his full voice, “I’m ok.” He’s…
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A life well lived
DW is 72 and has been on this road for 14 years . 7 years with me as 24/7/365 caretaker. 7 in a memory care facility, It is more than five years since she had the slightest idea who I was and has had little or no cognitive functioning for 4 years. She will swallow food put in her mouth and that is it. She has no other…
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Missing him so much today…
My husband Lonny passed August 12. MY HUSBAND, MY ANGEL. Your Battle is Now Over. No More Pain No More Suffering. I Still Do Not Understand Why This Happened to You. But I Am Proud to Say You Are My Husband, A Great Man, My Soulmate. Now You Are My Angel, So Spread Your Wings Out Wide, Please Wrap Them Around Me Whenever…
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Just need to talk to my friends (199)
September 1 is a good time to begin 199. Hope everyone is having a good Labor Day weekend. I am ready for cooler weather. This Oklahoma summer has not been good. We have had drought, grasshoppers and now army worms.
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I just want more time.
4 years, 1 month, 1 day. From diagnosis to my husband is gone. I don't know how to process. I want him back. I am not even sure why I am writing this. I feel like I just joined this forum, trying to understand the why. And no, I don't understand. He fought hard. It doesn't make sense. I am sad. I am angry. I am numb. I am…
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Wife has stocks in her name
my wife has some securities in her name, what can be done if you don’t want to sell just now, can you have transfer to my name or what to do??
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Agitation and paranoia
My DH is convinced that I am leaving him for another man. I don’t know where this came from. He is very confused and hallucinating all the time. Now I am also trying to solve non-existent issues that he has imagined. He sees and talks to people in our house all the time. I know we are not supposed to argue or try to use…
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Short-term rehab facility vs. home care ?
DH is in the hospital and they want to release him to Short term sub-acute rehab facility. He was in for a fall but he is not seriously hurt - except for the agitation/aggression/anxiety and some balance issues. The hospital won't let him out of bed at all. He begs to come home. The list of facilities available changed…
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New here. DW is having issues.
Hi everyone. I joined some time ago but haven't looked around much or posted at all. I'm posting now because my DW had an incident a couple weeks ago, a story you've no doubt heard before but is new to me. She was diagnosed with ES about 18 months ago, along with Parkinson's. Our silver anniversary is this Wednesday, 10/2.…
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New here - Contemplating my future while grappling with current issues
I am glad that I found this place. I have been reading some discussions, and I don't feel as alone anymore. I apologize for the length in advance. I feel like I just need to vent... My backstory - I have been married 30 years. I am 53, husband is 54. We still live together, but have been estranged for about 8 years. We…
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Disability benefits
Hello, I’m new here. My husband who is 48 years old was recently diagnosed with early onset Alzheimer’s. We filed for disability back in March and it still hasn’t been decided on. We are struggling as he is totally unable to work. I guess my question here is has anyone been this route? I know because of his diagnosis his…
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Routine schedule
My SO is 45 with EOA. We had an update visit yesterday with his neurologist. They said he is in the moderate transitioning to severe stage. She also said he can be in this state for a few years still as he is still able to bathe and eat and walk on his own. (Which calmed my heart). With all that being said I got a new job…
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Finding it difficult making decisions for my DH
The knee injections are no longer giving relief for my DH. It tires him to walk short distances. We have an appointment for consultation that’s moved out again to December. I know knee surgery is not an easy one. This week he had oral surgery for extractions of 2 wisdom teeth, and one tooth. Difficult for him to follow…
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Might be losing my husband’s placement
my husband’s been in Geri-psych for about a week after his latest aggressive incident.The nurse at his memory care came to visit him today and told the social worker they may not take him back. I can’t really blame the memory care. The social worker told me he would be very challenging to place because he’s had 7…
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Today it hit me !!!
I’m reading the other day what everyone is doing in my over 55 community, trips , clubs , shows etc. and it hit me my poor wife who worked over 30 yrs with own business raised two great girls was Cheated out of a retirement life she deserved . She’s happy in the things we do everyday, I make sure I take her out everyday…
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DH wants to know diagnosis
my DH keeps asking about his diagnosis and when given facts he denies situation and argues about it. I’ve tried changing the subject but he insists on talking about it. The last two Sat nights started the discussion got annoyed and agitated and went to bed. What am I suppose to say to answer this constant question. He says…
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Conversation with phone
my DW was diagnosed with EOAD about a year ago. She has always been a talker and she still talks a lot except now she doesn’t make much sense even to me. I the past I was Able to fill in the parts of the conversation and was able to figure out what she was saying. Today a new thing happened. My DW has followed a lady on…
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Traditional Medicare assistance with at home long term care
Finally a major candidate is talking about long term care being covered by Medicare for people other than those covered only by Medicaid. I heard Harris talking about it on The View earlier today and now it’s being talked about on several news broadcasts. If only……
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Resources for spouse?
Are there any support groups specifically for spouses of Alz patients? The spouse dynamic is VERY different from the child dynamic. I’m really struggling with the intimacy aspect and desperately need to talk with people who understand.
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Another step down
Since his stay in the ER, my DH has continued to deteriorate. Before, he could speak a little and was able to recognize me and say he loved me. Now, he is not speaking, is eating very little, and sleeping pretty much all of the time. As I live 3 hours distant from the MC, it is devastating to make the trip and not have any…
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First Bout of Pneumonia
A week ago, Monday, had the ambulance take DW to the hospital with what turned out to be right lobe pneumonia. 2 1/2 days in and got her right back home. Week later, she's made almost a complete recovery. Pleased with the nursing she received; CNAs needed prodding though on skills for 1 on 1 feedings, fall risk precautions…
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Am I being written out of DH history?
DH is in ES stage ALZ, but most likely moving into MS. Married 65 years. This week DH has told two stories from our joint history where he has written me out of the story for the most part. What he did was to take credit for things that I had done. I don't care so much about that as I am wondering if this is a "thing" that…