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Alzheimers??
Hi this is my first time posting. My husband Is 66 and fell down the stairs 3 years ago and broke his neck, luckily he survived. However he was receiving physio and was struggling with balance, co- ordination and shuffling gait. The physio mentioned vestibular delay, his brain delays sending messages. He was referred to a…
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ChatGPT wrote me a poem
I'm playing with ChatGPT today. I asked it "write a poem about life with a spouse in memory care". Here's what it gave me. I'm a bit spooked by the AI part of it, but the poem is fantastic. In halls of softened shadows, where memories gently sway, A dance of love unfolding in the twilight's tender gray. A whispered vow…
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IT'S BEEN AWHILE...
Hello to everyone, I've been reading many posts and responding sporadically, but wanted to reach out to all of you to let you know that you are in my thoughts daily. We had a funeral Mass for Bob last weekend, and a gathering back at our house. Our grand children all participated in the service-this was their first family…
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Just need some prayers update
I posted the need for prayers a few weeks ago. My DH, 78 has Alzheimer's-Posterior Cortical Atrophy, diagnosed 2 years ago. Current Stage 5 going into 6. I had breast cancer in 2017 with radiation. Now changes caused the doctor to order an MRI which showed some skin issues, Ultrasound with was inconclusive, and yesterday…
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Seemed to have found myself a quiet time.
My DW will shadow me everwhere but not only that she will never just be quiet and constantly is demanding my attention. I can't have a quiet moment. I've found when in my home office and at the computer she will sit just behind me but hardly ever makes a sound. She will just nod off for hours, talking in her sleep a tiny…
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Christmas sadness
I just need to talk today. Put up my Christmas tree and little train, then got the rest of the Christmas decorations out. My DH was in one of those moods where everything I did was wrong and I lost it (not with anger but with tears). I pulled myself together and he got better and was helping me get the decorations up. Then…
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, Magnesium L-Threonate
Has anyone used Magnesium L-Threonate for their loved one or for themselves? This form of magnesium has the ability to penetrate the brain's blood barrier. This type of magnesium is recommended for several problems including for dementia. It is not a cure.
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FTD Group
Hi All, I started an FTD group. I'm not sure exactly what I'm doing, so please feel free to help! I started with my experience with my DH leading up to his diagnosis. I am going to post another discussion about his specific diagnosis and symptoms. Hope you'll share your stories too! Kelly
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Has anyone have this happing ?
MyDW is 1 yr in from diagnosed mild alz, so short term going and confused at times , my question is my DW never has spoken about this to anyone including her two daughters not even me. I sometimes try to but forgets
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DW upset that I hire a sitter 8 hours a week
My wife is 67 years old and has stage 4/5 mixed dementia (vascular & alzheimers). She also has juvenile diabetes (59 years) and is on an insulin pump. I hired a caregiver that watches her for 4 hours on Saturday and Sunday afternoons. My DW continues to be mad at me for hiring the sitter. She says that I don't love anymore…
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Door security
someone posted a while back a link to an outside door monitor and security device. It linked to your phone… anyone have that link please?
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At what point in AD sre Adult Dry Services no longer appropriate?
My DH was going to a wonderful day care two days a week. He really enjoyed going and enjoyed all the activities and being around other people. He was going ther for about 5 months when he became mean and very grouchy. The ADS basically asked that he not return until he is medicated. Of course checked for UTI. Maybe he at…
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Rosalynn Carter
Rosalyn Carter, the former First Lady, age 96, has entered hospice care at her home in Georgia, alongside her husband, former President Jimmy Carter. It has been revealed that she has dementia. She is with her family.
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Sudden decline
Hi - I am new here. My husband has moderate cognitive impairment. In the past month he seems to have decline quickly. It was sudden. He is on Memantine and Donepezil. He has an increase in nightmares, increased loss of words/conversations, some agitation mostly when he wakes up at night, sleeping a lot at night and…
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Is my Husband Forgetting Me?
Today my DH asked me about our first date. Then he asked where did we meet?” He should remember both. When I told him he said “oh that’s right”. We have talked about it often. I know he loves me and things have been very good between us. What was the first sign you knew your LO was forgetting you?
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Finances and Medicaid
One theme I've seen over and over in posts on this forum is needing help. So many of us are caring for our spouses at home. Others are looking at facilities but afraid it's going to financially ruin them. I've also seen people state that you have to be near poverty to qualify for Medicaid. That just isn't true. Our story:…
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Asking for Help
My DH is in early to mid-stage 4. His only sibling (sister) is now in hospice with Alzheimer's and according to her son can't talk, walk, incontinent, etc. My question is: our nephew is wanting him to visit his sister in MC - My concern is that, at this stage, him seeing his sister could advance HIS disease. And my thought…
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DH is driving me crazy. How do we cope?
I just found this site and need emotional support. Husband is no longer the man I married. He's become angry, critical, unreasonable. He asks for my help with his computer and won't accept what I tell him, stating that "you won't help me!" I'm trying my best to stay calm and show him what he's forgotten. But, he won't…
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Namenda , anyone know of this drug??
Neurologist just put my DW on Namenda anyone know anything about this drug or someone who took
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Being on time.
Anyone have suggestions on being on time? My partner has always been a last minute guy (I am not that kinda person). It seems impossible get him ready. He can take care of his own shower and stuff, but I can't get him going. He sits reading stuff on the stupid phone and thinks he can get ready in 15 minutes. I have…
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Taking a break, and needed info for Medication application
Hello friends. I haven't been online much for the last week or so. One of my daughters was visiting, and the subject turned to dementia. While we were talking, I became emotional about some of the things others here have, or are going through. Maybe part of it was because of our own experiences with dementia, or maybe it…
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Feeling Overwhelmed
My DH was diagnosed last year with early onset Alzheimer's. Two weeks ago he lost his job. The sadness, fear and anger I feel is literally overwhelming. I feel like I'm drowning. Any tips to help with this drowning feeling?
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Has anyone had any experience with a Clinical Trial Study?
My wife was on one for about 2 months , meds/placebo saw nothing going on and figured better on a meds by her Nurologist that may at least slow down
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New poster
Hello, I'm new here just looking for some advice and support as I work my way through this. My DH was diagnosed with MCI and ALZ about a year ago. He was actually the one who knew "something was wrong" for a year or two prior to that, struggling with mentally complicated tasks like bill paying and was the executor for his…
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Coping tips?
I understand the shadowing, but how do you handle it? DH will follow me into a room and sit and stare at me then look at something else in the room then me again and back and forth and not saying anything! It’s driving me crazy! I get it, I understand the reasoning behind it but it just gnaws at me. He won’t do anything…
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New technology
So I get teepa snow emails and saw one that discussed a new technology that is an interactive projector and I searched the internet to see how it is being used. I am not trying to sell anything and I have no interest in the company but it's called Trovertafel it is expensive. I am gonna look into possibly helping to fund…
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FTD Group
Hello All, I'm not sure "grateful" is the appropriate word, but I am comforted to see more and more FTD caregivers on the forum. I noticed there is a group option and wondered if there is interest in forming an FTD Caregiver group. Let me know if you are. Kelly
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Third person
Hello, I am brand new to this and am overwhelmed. My DH was diagnosed with moderate stage dementia in April and last night had another episode of thinking he was not at home. He was trying to leave at 2:00am. This morning he started speaking to me in the third person. I am afraid to sleep because he may wander. Any…
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What do I need?
After a rough week I put out word that there will be a familiar meeting in December after the college semester ends for my kids (19 & 21). I need time for myself and some way to ease the decision overload I have DH has moved from stage 4 to early stage 5 and I need help. But with what? I don’t need errands run or groceries…
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Feeling Guilty
My DW is 15 years older than me (she’s 72) and I’d say in stage 4. She’s still largely present, though confused by many things. We still can have pretty good conversations and a lot of laughs. With that, I feel so damn guilty going to work during the day. We moved to a remote small town to lower her anxiety about living…