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Question on Shadowing
I have noticed the last week or so that if I say I’m going anywhere, i.e. Mailbox, take a walk, store, etc. my husband quickly says he’s going with me. We have always gone to the store together, but the others are new. This is not typical for him. I was hospitalized for a pulmonary embolism late July and have been to…
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The Driving Thing
Last week we saw the neurologist, who gave DH another cognitive test. DH did more poorly than he did last month and the neurologist gave us pretty much the same diagnosis as the primary care physician—an Alzheimer’s type of dementia. And also told us DH will need to quit driving. At the time, DH seemed to accept this…
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A naive question...
So as I think ahead to caring for DH, and having unknown caregivers come to the house.....I read about theft issues and wonder what do you do? Do you put "everything" in a safe deposit box and never wear your wedding rings again? How do your "theft proof" the interior of your home, especially while dealing with the obvious…
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Possible New Diagnosis
My husband of over 30 years recently went to his neurologist. He had a seizure back in 2020 due to a head injury. He's been OK up until a few months ago. I've really noticed that his short term memory has gotten really bad. During the visit to the doctor I brought up this issue and they administered one of those tests to…
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To travel or not to travel, that is the question
At Easter, I had planned a trip with my DH to Florida to see my parents (14 hours by car). Decided against it bc I wasn't sure I could manage it (and him) on my own. My sister and I are currently discussing a drive down together with my husband and her teenage boys. Pros: my sister and her boys are great with him, she's a…
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My hospice experience today
Hello to everyone, This has been quite the week. My husband has his days and nights reversed, and i am pretty sleep deprived at this point. I feel that this could be a slow process, and we need all the support that is or could be available. 24 hour care is not an option , but i will certainly need to put a more rigorous…
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Allow me to vent.
So, my feelings after posting this are no longer positive. I vented. Glad for that. I'm obviously in a really bad place because I can't take any help without having it make me feel worse. This is the longest, hardest road ever.
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I am trying to change my profile page but it does not seem to change.
What is the trick to doing that? Thanks
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M1 -Thinking Of You
Hello, M1; have been thinking of you and wondering how things are for you right now. Sending warmest of thoughts your way. J.
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Temporary or Respite
I’m in Texas. Does anyone know of temporary or respite services
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Truly Thankful!
I don't post often but read daily and often lol. I just want to thank those that respond to all the newbies (like me) and offer such great advice. You know who you are and do not need to name names. I'm so grateful for your willingness to share and most importantly to reply to posts from those seeking direction, support. I…
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Help! I've fallen and I can't get up solution
Hi Y'all, My DW of 55 years fell last night while I was asleep. As I am quite deaf without my hearing aids, I did not hear her call to me. Fortunately, she managed to get up by herself. with no damage other than a bump on her head and a sore finger. She appears much more frail (Overnight!!!) so I got her a walker today.…
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Another rough night only worse than before.
At 12:30 this morning I woke from a sound sleep because I heard someone yelling, "Help me! Someone please help me!" I rolled over and saw that my husband wasn't in bed. I found him in the bathtub with his arms hanging over the side of the tub and the water still running...and the tub starting to fill with water. I have no…
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How to Deal With Angry Ex Spouse
My daughter and I are Co-Conservators for her Father (my ex-spouse). He has always had an angry and resentful attitude. He now has mid-level Alzheimers but denies it. He blames us for "putting him in prison" (assisted living). She lives in another state, and I am his only local contact. How can we best deal with his…
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Now this behavior pops up
My DH has 24/7 care. I still work full time. His daytime CNA is quite good, but sometimes requires a lot of hand holding and sends me numerous texts throughout her shift. He does not walk independently (in the house, if he's vertical, he requires hands on with a gait belt 100% of the time) Today's text was regarding his…
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Sleep Issue
Anyone have suggestions on how to improve sleep? My DH is awake often during the night. It doesn't generally disturb him (or me most of the time). If you ask him in the morning how he slept - he always says great, however he wears a fitbit so I can tell how restless he is. It's like he's awake for 10 minutes, sleeps for 10…
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Has anyone obtained a ramp and other equipment through the VA?
Hi, I'm trying to get a ramp and a chair through the VA. I sent a message to VA PCP, but I'm wondering what comes next. My daughter works for a medical equipment company, and told me i need a PO from VA. Of course, i need the ramp asap as my DH has had a dramatic decline. Any input would be appreciated. Thanks, MAUREEN
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Different results for men and women
Popular media has been promoting the lecanemab (Leqembi) clinical trial as slowing the cognitive decline by 27 percent, which is not much of a benefit, but it is presented as significant. What you don't see in most of these news articles is that there was a big difference in results in the latest lecanemab trial between…
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The "Oh thats new" moments
I didnt know what else to call this thread. My newly diagnosed husband functions pretty well most of the time. Then moments like today happen. We pulled up to the store and he had the grocery list, but I mentioned getting coffee and he completely forgot where we where & what we were doing there. I just said "we're going to…
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Rough few days... What other medication other than Risperidone??
My DH, 78, diagnosed 2 years ago, recent change in possible diagnosis to ALZ-Posterior Cortical Atrophy. (he can't have an MRI). The Neurologist put my DH on Low dose Risperidone 1/2 tab at night for hallucinations and it does help him sleep. After I mentioned his agitation & anger recently to the Geri Psy. she added 1/2…
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Zoloft/Celexa
Has anyone had experience with either of these or in combination for helping with anxiety in PWD?
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Time for a Laugh
One thing that gets me through the day are the laughs I and DH still share. As you probably can infer from my handle, I and my DH are fierce Buffalo Bills fans. We have been looking forward to the Bills Jets game all week. So I turn the game on. After the very stirring 9/11 introduction, it is time for football. My DH…
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Bible Verse to Lift You Up 8/14/23
COMMANDMENT OF LOVE BIBLE REFLECTION Matthew 22:36-40 (ERV) “He said, ‘Teacher, which command in the law is the most important?’ “Jesus answered, ‘Love the Lord your God with all your heart, all your soul, and all your mind.’ This is the first and most important command. And the second command is like the first: ‘Love your…
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Bible Verse to Lift You Up 8/26/23
JESUS SAVES US * HE IS OUR SHEPHERD Isaiah 53:6-7 New King James Version 6 All we like sheep have gone astray; We have turned, every one, to his own way; And the Lord as laid on Him the iniquity of us all. John 10:27 NKJV 27 My sheep hear My voice, and I know them, and they follow Me. me: We've been compared to sheep. They…
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Veterans Agent Orange Exposure & Dementia
My husband is a USMC Vietnam Veteran, 100% disabled for other service related conditions due to Agent Orange exposure. He was also diagnosed 2 years ago with Dementia. I found this information and it may help veterans diagnosed with Dementia get help from the VA. "Is dementia linked to Agent Orange? In a nationally…
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Day care and Covid risk
DH attends day care twice weekly on the first floor of a continuum of care facility. The memory care unit on the 2nd floor is in quarantine because of a Covid outbreak brought in by an employee. The day care program is still running. My dilemma is that DH wants to go to the day program but I am reluctant to send him…
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sundowner
Any suggestions on what to do during this crazy time ?
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Nervous
My husband recently diagnosed, June, with dementia/Alzheimer’s. He is so irritable and angry I’m scared. He has not been violent. I think it’s triggering an abusive childhood. Maybe he is not as bad as it seems to me.
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Hello dear friends this is ladypeewee.
We Had Peewee's service today and I want to interduce you to my wonderful Husband His real name is William. I am going to share a few memories that I have of William. He was a small man with a big heart and he loved me with everything in his heart. all through our life together he always took care of me until he couldn't…
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time for a hospital bed?
My dear husband is incontinent, and it is no longer reasonable to share a king size bed. He is I would say later stage 6, fully ambulatory, but has aphasia and really can do no activities of daily living by himself. Since I'm getting him a twin bed anyway, is it time to go ahead and get a hospital bed for him? I do not…