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Go Home Gone wrong
have not posted for a while, spouse with moderate dementia, diagnosed two yeas ago. 11/6 somewhat normal day, trip to the store for bananas, daughter and grand kids visited to jump in leaf pile, spent more than normal amount of time out doors. had a great time. around 4PM I was taking the dog for pre dinner walk, when she…
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Dealing with Husbands’s delusions
Another tough afternoon/evening. Went for a short walk, tried to clear my head and comeback refreshed. Doesn’t know who I am or why I’m here, wants to know how long I’m going to stay. More settled now but I am done in.
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Today Marks 2 Years in Memory Care
Today marks 2 years since I placed my loving wife in memory care and although I know it was the best thing for both of us it is still a painful milestone to acknowledge. I have been much more fortunate than many here as my DW is happy in MC and has never once asked about home. I believe the transition was easier for her…
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Average cost in NJ for Memory Care ??
Want are cost of care for patients? Is memory care certain amount of times a week? Please explain ? And at what point do you start memory care?? My wife has anosognosia. Live in NJ near shore
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CELA vs Specialist Attorney
Hello - it's my first post! My wife is newly-diagnosed. Probably stage 2 sometimes 3. Most of our financial and legal things are in order (DPoA's, wills, etc.), but I do have some things I need legal help on now that our situation has changed. I see CELA's mentioned on here a lot, but a quick check on the website shows the…
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Caring for spouse
Good day all. I finally decided to become a member of this forum. I'm not sure if I can find the help, or information I'm looking for. but here goes. My beloved bride was diagnosed with alzheimer's nearly three years ago (she's only fifty-three). She was forced to retire two years ago, and since that time, she has…
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Bible Verse to Lift You Up 11/11/23
CARE FOR OTHERS IS CARE FOR THE LORD! Matthew 25:31-40 New Living Translation The Final Judgment 31 “But when the Son of Man comes in his glory, and all the angels with him, then he will sit upon his glorious throne. 32 All the nations will be gathered in his presence, and he will separate the people as a shepherd…
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Refusing to see neurologist or take new meds
My wife has mild Alzheimer, was on a trail for couple of months took off , started taking meds but got rude effect. Now won’t take or go to neurologist. I know in denial
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Rivastigmine
Well things in my world change everyday - last night I was asking about Rixulti and tonight asking if anyone has been prescribed Rivastigmine. With a $500 copay for Rixulti I met with the doctor today and he changed the regimen to Rivastigmine patches. From my research (and for sure I am no doctor) It does not look like…
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Do you need lawyer??
To change or get a POA in NJ do you need a lawyer ???
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First time posting for DH has dementia with onset of hydrocephalus
Hello all. I thought I posted a week ago but does not show up on my discussions. So here goes. My husband is 82yo, diagnosed w/dementia and onset of hydrocephalus. He has progressed quite a bit within the last 6 months. Neurologist does not want to give me a stage let alone see him, just keeps prescribing medication. Am…
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My mom was diagnosed with Alzheimer’s
My mom was hallucinating so I made an appointment with a memory care doctor and they gave her a cognitive exam and a hearing test. She was diagnosed with Alzheimer’s so I made a decision to move her closer to her family out of state so I quit my job and moved closer to my mom’s side of the family. I was not prepared for…
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Caring for Grandma
Good morning. I'm new here. My wife's grandmother is in mid stages of Alzheimer's and is at home. Grandpa is her primary caretaker and does not want to move her to a memory care facility. He also doesn't allow much help. My wife and I go over every couple of weeks to wash grandma's hair and try to get her into a change of…
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Cats
Hi all. I'm still here but haven't posted anything in a long time but I have been reading what you all are putting out here. I have something going on that I haven't seen here and would like to get some feedback. We lost one of our Westies in April and are now down to one dog. For some reason her death hasn't really soaked…
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I feel so lost.....
Im new here. My name is Susan Ascher and my husband, Chris, has younger onset Alz and was diagnosed at 62 in March of 2021. He is now in FT care as of August 1. It's been insanely difficult to navigate and he has moved along quite quickly. We are married only 14 years and do not have any children. I noticed changes when he…
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I just want to say. . .
That I appreciate and respect where everyone is on their journey. Some are dealing with so much more than I am and their spouses are further advanced than mine. I'm right behind you. The struggle is real. Sometimes we get caught up in our own struggles and don't really appreciate what others are dealing with. Thank you…
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How to handle social conversations with PWD
I am having a hard time with this and need advice or tips. When we're in social situations, my DH tries to say something and is not using the right words so it's difficult for someone else to understand what he's trying to say. Understandably, he wants to be a part of the conversation, but really can't comprehend when I or…
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Constant sleeping
Today I learnt that my wife is at the seventh stage by watching Tam Cummings' YouTube video. Rather saddening to understand what comes next. She has been bedridden since 2021 after a fall that caused no injuries but appeared to knock her get up go spirit out of her. In the last five days she has just started sleeping for…
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Another moment of clarity perhaps?
Yesterday when my DW was sundowning, she becomes very, scared and frightened in the late afternoon. Sometimes she is sobbing telling me she doesn't want to die then immediately forgets about saying that but yesterday was different. She was sobbing telling me "Don't let me do this!!, I can't do this!, Please please don't…
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sleep deprived vent
My DH took off last night. He keeps trying to walk to Conway NH. That is only a little over 2,000 miles away. It was rainy & cold here. He was wearing one slipper & one sneaker. Carrying a belt, socks and the other slipper. Thankfully he was wearing his dementia watch, so I tracked him and picked him up a mile away. Then…
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Face to Face Support Group Disappointment
I have made two attempts at finding a local ALZ support group. The first time, no one showed up. Later someone left me a message that it had been canceled and they forgot to call me since I was new. Gee, that sure made me feel welcomed! The other group had a Teepa Snow trained facilitator. As a person with a master’s…
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This and that and ready to quit this journey
Hello everyone. I wanted to post earlier to thank everyone for the welcoming, but you know how it is, one day blends into the next and before you know it, life has moved to the next stage. jerilynn66 - you got my location right. Not too many people know what texoma means. I am on the TX side of the lake. ronald71111 - yes,…
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I’m back
I keep promising to keep up with these discussions but sadly am not doing as well as I would like vis a vis my news. My husband is still in hospital and the good news is that he likes it there. The hospital has set up a mini long term care home within the hospital. The nurses, personal support workers are all lovely to…
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MC doesn't always bring respite
My H went to memory care 9/1. He is fixated on going home and does not understand why he can't. Serious anosognosia. DR said he should not be left alone and should not walk the dogs alone. He is participating in and enjoying the activities. He is in pics and videos on their FB page. The problem is he is infatuated with a…
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Newbie
Hello everyone, My name is Linda and my DH was diagnosed early because I new the signs from my experience with my mother. His diagnosis was made 6 years ago. It has been a slow decline so far. Now things are changing. He can shower, shave and dress but other than that he doesn't want to do anything but watch tv. He gets…
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Venting: Empathy AWOL just when it's most needed
Thank you to anyone who reads this. I am realizing each day just what I have been having to put up with. During the last few days my DDIL suffered a devastating late-term miscarriage. DS and DDIL were simply overwhelmed by this loss and I was also very sad to lose the hope of another grandchild. Although DH had been told…
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Anosognosia
Hello All, Because anosognosia is a prevalent issue and topic on this forum, I thought I'd share an article the aftd.org posted. It's the first time I've read about the part of the brain is damaged that causes anosognosia. Always learning. The website also has other articles on the subject. The Lived Experience of FTD:…
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Sleeping Almost all the time
DH has been sleeping I'd say 95% of his days away. He's only 63 but also has Parkinsons. He does get up many times at night and shuffles around the house, and I know his essential tremor takes a lot of energy out of him. So i know he needs to rest. But the amount of sleeping seems excessive. I work full time from our home,…
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Hallucinations
Have begun...or more accurately, I have finally accepted that they are here. My DW has had auditory hallucinations a lot in the last year, with the question, "Did you hear that? What was that?" repeated multiple times a day. Now, visual has emerged. "Whose cat is in our bed?" "Is that a person standing in the corner?" The…
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Trying to articulate an emotinonal experience I had
I'm a photographer, mostly real estate the last 10 years. Anyway I was shooting a property in Santa Fe while my DW was in daycare, I'm still fairly young and could have a few more good photography years left. As I was wrapping up this particular job and putting my equipment away, there was an apartment complex down the…