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Mix Dementia Stage 5
Hi Everyone,, I did received my father folder from doctors , He is on stage 5 with mix AD and vascular. He did have ST Lukes Charity program , now he need to do a lot of therapy . He live with me and he only have a green card. My question is if anyone know how should i apply for disability medic ad or any other program…
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Respite/In Home help
My LO is late stage 6 and I need a break. How do I go about getting help. He has Medicare and BCBS. I have a hard time asking for help but I'm getting so anxious and depressed. I don't need help with housework, just need a break from the 24/7 care. Suggestions?
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How and when should I tell my DH I am placing him in MC
Thanks to encouragement from people on this forum, I have decided to put my DH in a Adult Family Home dedicated to memory care. A bed will open up in about one month. I can't decide when to tell him he will be living somewhere away from me. If I tell him the day before placement, I am afraid he will refuse to get in the…
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Dementia
Dementia... a word I have come to loathe. It has been horrible to watch my talented, brilliant husband experience the horrors of this horrendous disease. Being aware of what Alzheimer's or likely Lewy Bodies stole on a daily basis was so difficult and sad to observe. Medically the support we received was to treat the…
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Having a massive attack of guilt
My parent is going to be placed in memory care and it's going to have to involve some fiblets. I didn't expect to feel so guilty about this as ltc has been my goal for several months now. There is no feasible alternative and we selected the very best memory care in the area after a comprehensive search. I also feel guilty…
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Not sure what to do
My mother has dementia, pretty advanced in my opinion, though maybe not for others. Her primary care giver is my father who has recently been diagnosed with Diabetes. My mother will not leave the apartment, she is argumentative with my father specifically and she is becoming more incontinent, having accidents. My sister…
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Mom berates dad
my dad is trying to care for my mom. She hasn’t been diagnosed but we are all sure she has dimentia and with that paranoia. She accuses him of having a girlfriend and says very mean nasty things to him and gets very angry at him. What kind of advise do you have for my dad who is trying to do the best he can.
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Shower and BM
Hello there My mom is in the moderate stage of dementia. She's been in AL for almost two years now. Hospice has been visiting her since April. I saw her yesterday and she was just exhausted, she was laying almost flat in her Broda Chair and covered with a blanket. I spoke to an aid and she said when my mom has a big BM and…
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If it seems like a cold
Hi my bf 45yo eoa has been having a cough. Yesterday he had a fever, cough and I can hear junk in his chest. His voice is hoarse too. To me it seems like a chest cold. With his eoa do I need to be overly cautious when he gets sick like this? Which is rare. I ask him if he feels fine and he says yes. I tried to take his…
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To those with LO in memory care
My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't…
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Long distance support options
Hi everyone. I'm new here. My 77 year old father was just diagnosed with Alzheimer's and I'm just starting this journey with him and my wonderful stepmom. But I live a plane flight away (or two day car drive). I'm looking for tips to support from afar. Scheduled phone calls? I want to keep my father engaged but it is hard…
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How to deal with Family Members in denial?
My 92 yro Mom moved in with us 6 mos ago after a fall where she broke her femur and could no longer live alone. She was diagnosed with VD 9 years ago. She has mobility issues, bowel and bladder incontinence and requires much assistance with ADLs. My issue has been with my husband of 3 years. He feels that he needs to…
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Mom and Vascular Dementia
New to the community. I moved in with my 81 year old mother when she started missing meds, forgetting to eat, constant repeating stories within minutes. She was diagnosed with Vascular Dementia. She does not drive anymore and does not wander. She does stay at home by herself while I work, I watch on cameras and my sisters…
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What now!!
Well today’s events knocked me for a loop. My DW became very anxious and kept saying that she wanted to go home. I tried to comfort her and tell her that she was already home. Of course she didn’t agree. She told me she was going to take a walk which she has done occasionally by herself. Never had a problem before. After…
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Mom recently entered MC and not sure if I should visit
My dad recently made the difficult decision to place my mom in MC. We dropped her off just over a week ago and she is having a very hard time adjusting. She goes between being angry at my dad and desperate for him to bring her back home. I was cleared, so to speak, to visit 4 days in since she was not asking for me and…
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Foreign Language
Every day when I pick up my beautiful 73 yr old DW from the Activity Center she is very happy & excited to see me . Unfortunately, the minute she gets into the car she starts blabbing & speaking this “ foreign “ language” non stop …… Yes ! Another condition I was afraid off …. Receptive Aphasia. All I can do “go with flow…
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Care documents
I tried enrolling my DW in day care a couple of days a week. After all paperwork was completed and just a couple of days before she was to begin, her enrollment was denied due to possible fecal incontinence. (The facility did not have a shower). This information is being mentioned because of things I may have subsequently…
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Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's
Been hearing a lot about this book recently through podcasts and interviews with the author. Very important to know about this misconduct in the Alzheimer's research field. It's so discouraging to know this is happening. Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's…
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Pros and cons of a safety gate
I've read other posts on safety gates, such as the ones used to prevent falling down stairs. Do you have experience in using a gate to prevent entry of a PWD to a kitchen? I suspect it will cause intense anger, but let me hope I can control that. I've tried to use distractions to prevent PWD from entering the kitchen and…
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The Guilt? Sorry for this being SO LONG.
My Mother was diagnosed a few years ago and is now mid stage, I guess. I live with my parents and my older brother. (Long story.) My parents are in their 80s. My brother is mid 50's and I am 48. I'm divorced (and single) and have 3 children of my own ages 15, 21 and 22. I work full time and commute an hour each day. I…
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The Laugh & Cry Moment of the Day
Ok, just venting here, but…DH leaked a bit into the multiple pairs of pants he wears (still trying to find some sort of disposables he will tolerate). He didn't say anything; I found them over on the air purifier and threw them into the laundry. This happens frequently, no big deal. I then asked if he would wash himself…
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Treatment for AD with Lecanemab injections
Has anyone undergone treatment for AD with Lecanemab injections which are given via infusions every 2 weeks? If so, I'd like to know how it's going, the length of time the treatment has been going on, and the efficacy of it. Do you see any improvement in cognition and memory? Has cognition and memory remained about the…
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Living situation options
Mom has been recently diagnosed and extremely suspicious of Dad. So much so, that she does not want to live with him. She has wandered twice, but I've been quick enough to corral her which was tough even though I work from home (if it keeps happening, I'm sure my job wouldn't appreciate it). The second time was especially…
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What to do in emergency!!
I asked my wife if I collapse and was unresponsive what would you do. She had no idea who to call I told her 911, 15 min later I asked her again had no idea. This does worry me as shit happens. Has issues using phone. ANY IDEAS
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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tracking watches
Does anyone have experience of tracking watches? My husband can get slightly lost when driving so I would like to get ahead of the game. We are not terribly well off so am looking for something simple but effective.
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Sold my DO car
well… I finally figured out how to stop my DO from driving, I sold our other car. He always drove the jeep and now only “my” car is left. I told him I’m the primary driver so he can’t drive. So far it’s worked! Desperate times call for desperate measures, I feel so much safer. He tells me I don’t trust his driving anymore!…
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ho perso mia moglie a causa della sindrome Alzheimer/Corpi di Lewy.
Salve sono stato il marito di Margherita, la mia bellissima moglie, giovane intraprendente e amatissima compagna. Dopo alcuni anni di questa malattia incredibile lei se ne è andata lasciandomi solo con due figlie, Alice e Valentina, già grandi. Ma la sua assenza è incolmabile, per me e per loro anche se stanno reagendo…
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Phone concerns
Hello. I'm new on here and newer to this in general. My great aunt is in AL and was diagnosed with dementia back in November when she was declared incapacity by 2 doctors. She doesn't want to accept this. She is constantly using her phone to make calls to the library to get phone numbers. To call her insurance company and…
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Burnout
Well…I sure have it. I don't know how so many of you have been able to manage caregiving and working. I finally got some day caregiving in place, but a bit too late for my own mental health. I'm not physically having issues, but I just cannot get myself up and out of the sad, crying all the time, agitated and worn out hole…