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Discussion List
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Seperating married couple
I'm not sure if anyone has experience with this. My sister and I are my mothers DPOA and we have documentation from 2 physicians stating she is no longer competent to manage her affairs. Unfortunately, my stepfather and his son have done some very underhanded things ( family drama) to the point 3 attorneys we consulted…
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Plan B
I realized what plan B meant today. I went to urgent care for an asthma exacerbation. When they called my name I stood up and for some weird reason my right leg buckled and I was on the floor. I broke my fibula near my ankle and my 5th metatarsal. I totally freaked out everyone in the waiting room including the staff.I was…
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bank statements causing problems
My mom used to always take her bank statements and financial records and create this complicated spreadsheets. Once she moved into AL, I take care of all her finances, and I have been working hard to ensure her statements are not mailed to her— NOT because I don't want her to see her income and expenses, but because she…
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Glucosamine
Important news about taking glucosamine: https://www.sciencedaily.com/releases/2026/06/260610003044.htm
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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One more time
Just thought I'd drop in to say "Hi", and share a little story about what's been going on with me. Seventeen days will mark four years since DW passed. Yes, there is life after dementia. Following is a little story some may find worth reading. Feel free to skip this post anytime. I'm not even sure why I'm sharing it. About…
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credit card
We are looking for ideas for a credit card for my dad. He needs a low limit. He has given his card number out to phone scams Currently we took his card away, but he needs something.
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Guilt
Does anyone feel from guilt, feeling like somehow our loved one wouldn't be an Alz sufferer if we'd done things differently in our lives, not hurtful things but just maybe taken different paths in life overall, provided better, etc.? Thx HK
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Just starting the journey
My DW has dementia and I will be the primary caregiver. We have been married 52 years and I am at a loss as to what to do, how to start, what to do or not do.
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DW Doesn't Understand Questions
I'm really fighting hard to help DW to understand the questions shes required to answer prior to her annual physical exam. I.e. The form asks "Over the last two weeks, how often have you been bothered by any of the following problems?", and then comes a list of potential problems like "Feeling down, depressed, or hopeless"…
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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Coping When Loved One Remembers Things Wrong
Hi everyone, I wanted to share something that’s weighing on me after my recent visit with my husband. I spent a few hours with him yesterday at the nursing home, and while things went smoothly during lunch, he became anxious and started exit-seeking after. The toughest part is how his memories of these visits sometimes get…
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Non Stop Talking
My DW has not stopped talking since we came home from shopping at 1 pm today. When there is a slight pause she streams all kinds of accusations at me whch I deny as calmly as I can. She rants about people watching us or people stealing money she claims she has hidden. There is or has been a variety of caustic topiics…
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In need of advice on having a certified caregiver come in
Hello all. It has been a minute since I have written here on the forum. I want to be more active here, but I am more so often on the Reddit forums. To preface, I am 21 years old and still living at home. Currently on Summer break and just got a new job that I am starting Monday. Mom has Alzheimers, dad and I are primary…
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To choose or not to choose
I'm recently diagnosed positive for early stage Alzheimer. Currently I am taking a prescription to help with some memory issues. My Neurologist wants me to decide on one of two intravenous medicine. I am not crazy about the possible side affects. I would like to hear from someone who is on this one and of any side affects.
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I need your empathy and suggestions.
New to this. DW has cognitive issues and is being diagnosed over next 2 months. Most times I am able to deal with this and we still have many good times together. But there are many times when this is so frustrating for both of us and very depressing for me. Walking outside or into another room sometimes relieves the…
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Did I do the right thing?
There was a notice in the mail that my LO would have to take a driver's exam in order to continue to hold her driver's license. In the report it stated quite clearly this is a result of her Alzheimer's diagnosis. My LO is in total denial, and any mention of Alzheimer's can become a trigger for agitated and aggressive…
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At home activities
Would like to receive any suggestions for an activity my husband can do with moderate ALZ.
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questions
My grandma has dementia and needs help doing things. She has been wanting moved every 5 mins to her chair and bed. She keep saying she don’t no what’s wrong and can’t see her dog in front of her everything is on repeat for her. How do I confront her or help her? Trying to not get upset but it’s hard
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Turning the corner
My last post, about mom's progression, was five days ago. Things have taken a huge downturn since then. She is eating nothing, sleeping 99% of the day, opens her eyes to my voice (sometimes) but no longer reacts with recognition. No speech or sound. MC staff got her to the table this morning but she just slumped sideways…
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This disease has made it impossible to _______
Any one of us could fill in the blank, this disease has made it impossible to_________. I have many answers for that blank, but my current answer would be, to dress my DH. Putting on and taking off shirts, especially over the head has become impossible. He fights it, and having a contracted left hand plastered to his belly…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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First Time I Couldn’t Wake Dad Up
My dad is in MC (stage 6, age 92) and has been sleeping more and more this whole year. He is almost always in bed asleep when I visit in the late afternoons. I am told he is often up for a few hours in the mornings. I work full time and cannot visit weekend mornings either. Usually he wakes up when I arrive, and I get him…
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Technology Question
Hi all, I am lucky enough to still work and have part time care at home. DH has lost the ability to use his phone (no executive functioning). At the beginning of the year I purchased a Memory Board to set up reminders (that I had fed the dog, that I would be home at X time, etc.). For the first few months he checked it…
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…
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Mom making dementia/ALZ assessment spreadsheets
My mom, (mild-mod ALZ), (AL w/no leveled support) loves making spreadsheets on Google Sheets. I have access to her acct and review it daily to see what she is up to. She makes lots of lists and writes letters to companies and friends and it is a good look into what she's thinking. One spreadsheet she makes is copying and…
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Sad realization
We are visiting our grandchildren and yesterday while playing games with my DH and 4 year old grand daughter I realized she got the rules quicker than her grandfather. She kept saying, “It’s ok, and your color is red and mine is blue etc. while playing Candy Land. He could not keep the pieces straight or match the colors.…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Just another day
I took my DW out shopping for a new pair of sneakers, found a pair she loved. The next day we were going out and she wore the new sneakers and raved about them. When we got home she put them back in the box and placed them on the couch. The next morning I noticed the sneakers were gone from the couch but didn't say…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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