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New to all of this and question about surgery
Hi, I am new to this. My 72 yo DH was diagnosed with mild Alzheimer’s, moderate vascular dementia and frontal lobe atrophy. It took 16 months to see a neurologist. In 2004, he had stage 4 lung cancer and 2005 they removed a brain tumor and he had whole brain radiation. He did fine until about 5 years ago and he began to…
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Sparring with Cousin
My dad is dying after a 2 year cancer battle. Mom has always had anxiety and some depression though masked both well. She is admitting herself for quite a while that she cannot do things. Cooking was classically the first. Decision making is not good and while ultimately my dad wasn't going to get cured, her cognitive…
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Juggling changes (driving, moving) with grief
My 84-year-old Mom lost her husband of 60 years — my dad — just 2.5 months ago. She is really grieving hard. So we are hesitant to add more unwanted changes to her life just yet. The problem is, we believe she is around Stage 3 or 4…. (Doctor just did MMES and she scored 24 out of 30, which was just below normal but we…
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Hyper Focus Help
I have been looking after my 89 Y.O. Mother trying to keep her in her home and have been quite successful for the last 6 years. However, this last year she has been turning against the caregivers that we have gotten to help me with looking after her. I have noticed that there are 2 Moms that I am dealing with - one being…
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How to Discuss Mental State
Hello. My mom moved in with me in October because she knew she could no longer live alone. I realized when she moved in that her memory loss and confusion had progressed much further than I thought. Recently, she has gotten into arguments with medical personnel and others when she is confused and doesn't understand what…
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Help me, I really messed up
Ever since my mother's stupid eye doctor told her she was okay to drive, she has been RELENTLESS. She won't drive unless I give her my blessing (thankfully), but it is so bad. In our daily phone call today, she yelled and swore at me the whole time, wanted to know why I insisted on treating her like a baby, why I don't…
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Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
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Need Advice How To Overcome Emotions Putting Your Spouse In MC Home
Unfortunately, time has come for me to make a decision on putting my lovely wife of 55 years into MC. I just don’t know how I am going to handle this. Just the thought of it makes me cry especially when I put her to bed or when I am alone. Just feel so guilty. I can’t imagine being alone at home without her…. breaks my…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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Guilt
DH has been having episodes of aggression. Not really physical more like everything just aggravates him or makes him mad. We went to see his Nero yesterday and I was telling her about it. She increased his seraquel to 50 mg 2x a day. I don't know if I want to do this. Im afraid it's for me because I'm tired of walking on…
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FYI
For those of you who have adult children who are struggling with their parents dementia. Great place also if you are a husband or partner to your LO who has EOAD.
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CPAP advice
Our 82-year-old LO used a CPAP for years but as rapid onset dementia developed he stopped. He still seems able to sleep OK and the MC people say residents generally don’t have them (unless they know how to use them). Is that just the way it is?
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Cashing US Savings Bonds
Another post about banking and the DPOA reminded me of a different financial topic. When I was clearing out my dad’s safe deposit box before a cross-country move, I found a stash of paper US series EE savings bonds that were well past their maturity date. I was able to arrange to get these cashed by taking him to a bank…
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We can’t afford care for my mom
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
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Dad passed away
My dad died on Friday. He had memory issues that went unnoticed or swept under the rug for several years. He had knee replacement surgery in January. I stayed with him for a week and then my brother stayed the next week. It became quite apparent that he wasn’t safe to be by himself so he came to stay with me “until his PT…
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Did you keep your LO home too long? Then what?
Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…
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mild to moderate MCI
My DH was diagnosed last year with MCI. For a few months now I noticed changes. He has memory loss, blames anything or anyone for anything . His temper is off, discussions or conversations are impossible at times, becomes argumentative. I am so sad and fearful that I can not handle this. I cry at night .
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The Stranger Living In My Husband’s Body
There is a man who now lives in my husband’s body that I do not know. He follows me around, repeatedly asks the same questions, is often unable to complete the simplest task even with detailed instructions, blames me when he realizes he forgets things or makes mistakes, loses things that are expensive to replace (like eye…
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Alzheimer’s
My beautiful sweet wife (70) has just be diagnosed with Alzheimer’s. My heart is breaking. I feel numb, lost, disoriented, scared, anxious…etc. My mind races to far ahead and I think of what will be rather then what is for today. It’s early, we just found out last week. it’s raw. Any words of wisdom and/or next steps I can…
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Help Getting the Word Out!
I know none of us wish any type of dementia on anyone but it helps when someone with a "bigger voice" is able to help get the word out! https://www.facebook.com/reel/1394793775239563/?mibextid=rS40aB7S9Ucbxw6v
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Keppra anecdotal study
I just saw an article stating that researchers have noticed anecdotal ‘evidence’ that Keppra may prevent dementia or slowdown decline in those already have it. Keppra is an anti seizure drug. I know some members here have loved ones taking Keppra for dementia related seizures. Have you noticed that the dementia progression…
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Retirement Community Question
My husband is in mid-dementia and is OK right now. My dilemma is wanting to move to a retirement community but if he gets worse, he will need his own housing and I can not afford paying for two communities. If he starts being aggressive or wandering he would have to leave and I don't know for how long he will still be OK.…
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Mom newly diagnosed
My 79 year old mom was officially diagnosed with frontotemperal dementia on March 5. Putting a name to her condition is helpful, but devastating at the same time. How can I as her 56 year old daughter be a help to her and my Dad at this stage, where her symptoms are getting worse, but she's still pretty functional. I'm the…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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When did it start?
My DH is currently in stage four, early stage five. He was officially diagnosed three years ago. I really began to suspect something was wrong when he began having trouble with electronics, something he used to excel at. Looking back, I realize his personality had begun to change long before that. What was your first clue…
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My saddest day
Yesterday my wife admitted that she can't read a clock any longer. We just buried her mom last week at 95 years old. She had dementia for at least 15 years. Probably much longer. She lived alone so who knows . My wife was diagnosed last October but has been having problems much longer. She retired in 2021 because she could…
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My DH just passed
My DH just passed this morning. Although I have been crying and miss him deeply, I knew it was coming and am so grateful that he doesn’t have to suffer any longer. The dementia had taken so much from him and he was just entering stage 7. Along with the dementia, he began to suffer many physical ailments with heart and…
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Husband's Reaction to Caregiver
Two weeks ago, we finally got a caregiver for 30 hours per week through Medicaid HCBS. The caregiver is very helpful, attentive and engages really well with my husband. I tried a few short trips of an hour or so, like grocery shopping, to see how he reacted to being alone with her. It went well, so when I had a dental…
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Showtiming
Anybody have experience with this. My dad presents well, extremely well, you gotta spend enough time to know he has Dementia. He studies for what ppl may ask, watch tv to stay updated, and if he lacks the energy to perform he just stays quiet. He wants to return to much younger gf and friends who were exploiting and…