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Discussion List
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
-
Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
-
Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
-
Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Mom's brother passed away
My mom's brother passed away yesterday. We have not told her yet. She still knows who he is but hasn't seen him for a year and a half at a funeral and was years before that. I don't think she is going to be devastated by his passing (he had lots of health issues and my mom always had negative things to say). Mom is still…
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Venting
I come here to vent often. I tried a support group they were lovely but none of the other participants were living 24/7 with their pwd. I also lost my HHA and couldn't take the time anymore. I'm looking for a new HHA now. My mother has vascular dementia and LATE. We're in our second year with it, the prospect of this…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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Validating
I guess what I need is advice on how to deal with my mother's decline. Tonight she called me to tell me that she thinks someone drugged her because she slept past dinnertime (she lives in a memory care facility). I don't want to "humor" her by validating her fears because I don't think that's healthy. But, I don't know how…
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kikippa, a TV speaker for listening to gamma waves
I saw on TV a"kikippa", device that modulates gamma waves, through a box that resembles a sound bar, and was used for cognitive care for elderly in Japan. [1] Gamma wave modulation is said to help with some elderly cognitive therapy. [2]. It takes audio (like from a TV), and alters it to include the 40Hz sound that is…
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Gamma 40Hz light treatment
Has anyone tried this treatment? A friend of ours whose father is 92 and has dementia has seen a "dramatic" improvement in mood. So - we ordered a lamp for my father on Amazon (arrives tomorrow). I've read articles that state this 'light therapy' helps those with dementia (calms aggression, improves mood, etc). The reviews…
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Cataract surgery for someone between Stage 5 and Stage 6?
Hi all, My mom has advanced Alzheimers and Vascular Dementia. I guess it is between stage 5 and stage 6. She gets full time care in a skilled nursing home. She can´t do any daily tasks without assistance (though the nurse sets her up to wash her own face and brush her own teethI, can´t walk, needs a machine to take her to…
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My heart is broken
Here I am again unable to sleep because my mom has said I hate you, get out of here, you won’t give me my meds. I’ve devoted my life to her. Given up my own. It’s hard to wrap my head around this and I’m so burned out and depressed. I can’t find my footing or my hope. I really need someone to talk to who is going through…
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How to control non stop repetitive questions?
There is a non stop question about where to sleep by my mother who has Vascular Dementia and Alzheimer. She navigate all night without problem going in and out of her bedroom but during day, keep asking on and on, where to sleep. This can go hours and hours non stop. Any possible solution highly appreciated. Tried…
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Dirty Old Man Syndrome
My DH is stage 5 or 6 with Alzy's. He has been acting like a dirty old man. Talking about let's go have some fun (sex). We have been married 37 years and this behavior is out of norm. Very hard for me to say however, he grosses me out and has ED. My question is that has anyone else experienced this.
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Moving to Another Facility
I am in the process of moving my DH from a MC facility to a Care Home. I feel lucky to have found it because it has a much smaller caregiver to resident ratio and is actually in a residential house, so it is much smaller than the place he is in now. My DH is stage 6 ALZ and I believe he will benefit form the calmer…
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In his mind he’s home??
i visit hubby in MC every 2-3 days. As soon as he sees me he’s shocked and says why are you here. Don’t I live with you. Where am I. I redirect but through the visit he wants to know why he is there. He wants to come home. So sad. I spoke to nurse asking if I’m hurting him by visiting as often as I do. She told me it’s…
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progression of disease
my DH has been kind and fun and compliant although he needs 24-hour care.. but now he sits on the couch humming and staring for hours. i try to offer activities and he says no. the past two days at bedtime he has accused me of having an affair and says I need to leave the house. i just agree to leave and the next morning…
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Good news (I think)
My Dad was originally diagnosed with MCI Stage 3 and then the doctor upgraded him to Stage 4. He just had his MRI & blood work done. No proteins found in his blood and the MRI was not bad at all. He had Mild changes consistent with his age & Hypertension history. The doctor wants to give him another cognitive test to…
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Searching for a baby?
My mom has started exhibiting a new symptom: she is unsure where a baby is and is desperate to find it. She even wanders outside to look in our tool shed! She cannot be consoled or redirected. My dad and I do what we can to intervene but we end up just going along with it until her delusion subsides. My question to this…
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Another night on the couch
My DW in the evening is wanting to go home so I drive her in a loop of 3 miles back home. Then she needs to go to bed by herself. Says she can’t have men in the house. Of course I encourage her that I’m here to keep her safe and watch over the place which is fine sometimes. There is a LOT of discussion, usually taking an…
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Resources
If you are not familiar with Neal K. Shah and the web site careyaya.org, you might want to check him and the site out. I have found many very good tips and explanations which are helpful. Neal K Shah is on Facebook and posts regularly. You can find his many YouTube videos at: https://www.youtube.com/%40nealkshah His…
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New to Discussion Group
I am new to this discussion board; I really need to vent just a little. I have worked with many PWD in long term facilities but having a BIL staying with us at home is so much different. He was in a nursing home in Georgia, and his sister was the one who placed him and was responsible for him at that time. She passed and…
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How to tell DH that I’m getting help
Greetings everyone. Sorry for the long post. My DH is in mid stage Alzheimer’s. We’ve been doing ok so far. I haven’t brought in any help, but I know I have to now. He doesn’t need assistance dressing, bathing or bathroom. He has a lot of trouble speaking, using the correct words for his thoughts and can’t complete a…
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House Arrest
It's been a long time since I've posted or visited. It's four years since since I quit working full time. Husband is progressing. He is still continent and feeds himself but can't do much else expect walk within the house and up the driveway; anything else exhausts him. He is very happy. He is driving everyone crazy with…
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When to reconsider Memory Care?
I've written a few times before about my mother's difficulty adjusting to the memory care facility and a worry we placed her into one too early. In the past the recommendation was to wait longer for her to adjust. We're at the ten week point and I'm still struggling. On the positive side: my father was her primary…
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Alzheimer's Quirk?
The person whom I assist who has Alzheimer's has a quirk that I am wondering whether is Alzheimer's-related. I go for walks with them, and when they spot something on the ground, they pick it up and take it home. Some things they have spotted are a hair tie, a nickel, a small velcro strap, etc. Recently, they spotted a…
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Frequent short naps
Lately, my wife (who is in midstage Alzheimer’s disease) has been taking frequent short naps all through the day. She’ll go to bed and snooze for 10 - 30 minutes, then get up and play solitaire on her iPad for a while, then go back to bed, and repeat all day. Sometimes she comes downstairs after a cat-nap and immediately…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources
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