-
Delusions stop in MC?
We moved my mother to an MC facility approximately four weeks ago. From the chart she is in stage five of Alzheimer’s. One of the main reasons we finally made this decision was because she was having delusions and fixations. Every night for weeks leading up to the change she believed she was having a baby and if we didn’t…
-
Hello
I’m new. My mom has dementia. She’s not reliable enough to be on her own, but not quite ready for assisted living. My dad, who has been her grounding force, is about ready to go into long term care for physical debility after fracturing a hip. They, of course, live out of town. They are both resistant to moving to where I…
-
Formula1 and fighting dementia
Just an interesting article. https://www.latimes.com/sports/story/2026-05-18/how-formula-one-team-pit-stop-tactics-dementia-battle?utm_source=firefox-newtab-en-us
-
Burn out
I am only in my second year of dementia with my 96 year old mother. The 24/7 has gotten to me. Usually I am very patient with her but am losing it. Medicare pays spit, making home health aids very expensive. I joined a support group but I'm not finding them that helpful as I don't think any of the ladies live with the…
-
Private Pay One on One in addition at Memory Care Facility
Hello, My 86 year old mom had a stroke and massive heart attack almost 7 years ago. She survived, but now has vascular dementia and Alzheimer's (Alzheimer's started prior to stroke). She was at a memory care facility that was horrible. We moved her to this new place in February and love it. The staff is very caring and…
-
New at this and scared
I’m 73 years old and my wife is 68. She was diagnosed with very early Alzheimer’s last November (“mild cognitive impairment”) and started on monoclonal antibody therapy in January. Most people wouldn’t notice anything different about her but I can see that she forgets events, loses her keys (or leaves them in the front…
-
Pursue diagnosis?
My 75 yo father is showing signs of dementia. His mother and paternal grandfather both had Alzheimer’s and that’s what to presents like to me—repeating himself, struggling with directions and finding things, mood swings, poor judgement, indecision, a lost look in his eyes—but he hasn’t seen a neurologist. His greatest fear…
-
Lost my DH 3 months ago
My DH passed away 2 days before Christmas. I wasn't there when he passed. I visited him the day before. He was sleeping, I talked to him, played Elvis and held his hand. He held my hand so tight it hurt but I didn't let go. He was very peaceful. He had been on Hospice about 6 months for failure to thrive. His hospice nurse…
-
Hope I am doing the right thinng
I am taking my wife to a memory care center in a couple of days. I really don't want to but Cathy is not improving. She is very inconsistent. Some days I can change her clothes with little issues yet other days it's liking herding cats. The PACE (Program of All-Inclusive Care for the Elderly) facility she is a member of…
-
Dying of boredom
The total silence, the reproachful stare because I can't figure out what will entertain him, the complete lack of awareness of the state of the world, his family, me. Someone on this site said, wisely, we can't make them happy, only make them safe. But what do we do with our days while they sit and wait for us to make a…
-
Dementia and Dating
Ok, just going to be straight-forward here. I've made the decision to get out and date again, find that special someone I can be with moving forward with. I'm exhausted caring my LO who's essentially a 6 yr. old at this point. I'm still in my mid-50s and don't want to continue on this way without a mate whom I can really…
-
Communication Challenges
I’m really struggling with communication and would appreciate any advice. My partner was diagnosed with severe dementia and has continued to decline. They now refuse to visit any doctors, and I am the sole caregiver. Most of the time, it’s very difficult to understand what he's saying. At the same time, he often tells me…
-
Circles of friends and contact lists
I recently received an email from one of my sister's friends who is feeling guilty about not contacting me before my sister was diagnosed with FTD and early onset Alzheimer's. Here's a portion of her email: I asked her to share your phone number with me but it was an odd request and she looked at me like she didn't…
-
TRAVEL CAUSES DISORIENTATION
My LO is 64 with a diagnosis of EOAD. He is progressing faster than anticipated. Everyone is saying 'travel / do things / take them places'. But what I have discovered is there is a huge price to pay. Halfway through the 'experience' I see him start declining mentally. I can see it in his eyes and the disorientation…
-
Severe dementia- yet Mom refuses to move out
Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…
-
Dealing with my mom and driving
Hi. I am new here. My mom who is considered to have Stage 4 Mild Alzheimer's diagnosed about a year ago. She does not believe she has this disease. They told her to not drive and she could take the test through DMV to see if she could continue. We didn't do it at the time. Now a year later she is pushing to drive but I…
-
As POA how do we protect loved one from large purchases they don't understand
My dad has Alzheimer's & can no longer drive. He wound up purchasing a car that he cannot drive when we were navigating his illness last year. (Note: Due to his 3-5 min memory the attorney general is currently investigating that purchase). He forgets that he cannot drive and has made his way to another dealership and…
-
Hi new here…
My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…
-
Buying
It's been a lifelong problem, prepping. A recent move necessitated giving away an entire cellar of goods she had bought, saved for the future. Now at the beginning of our Alzheimer's journey, we're in two rooms. Today I saw her list, we don't need to prep. When I brought it up it became that I wasn't going to control money…
-
Buspar and Caregiver Anxiety!
My DH is participating in an annual memory evaluation study through the Alzheimer's Disease Research Center (ADRC). After a thorough evaluation, the team diagnosed him with Alzheimer's and had several useful recommendations about diet, exercise, etc. They also highly recommended that my DH stop taking Lorazepam and start…
-
Change in behavior
My mom was diagnosed with Alzheimer’s two years ago. Recently, we have observed some extreme changes in behavior with delusions, anger and agitation. Since her Dr consulted AI for medication suggestions, I thought I would check here. Her doctor prescribed Rexaulti but we are having some issues getting Medicare to cover it.…
-
Any guys have have the HHA lady hit on them - How did you handle?
Hello, I am a single man in his late 40s who is caring for his mom with dementia. My mom is now bed-bound and I need help to assist with her. I've had different home health agencies over the years and I live in a very pricey area. We're not moving, not feasible nor can we afford it. So, I'm stuck with what I can get as far…
-
DEMENTIA WITH GRACE - book & videos on Youtube
I saw this on a podcast and thought it would be helpful to so many. The book is available on Amazon or the link below is for the Youtube videos https://www.youtube.com/c/dementiawithgrace
-
Anxiety and Agitation getting worse
I wrote a couple of weeks ago that my DH in MC is having a lot of what I guess is anxiety and agitation. He is constantly in motion. The nurse and aides told me yesterday that he wanders the halls all night going in and out of other residents rooms. He has trouble sitting still in one place for very long. Now he had gotten…
-
FDA Approves First Non-Antipsychotic Drug to Treat Agitation Associated with Dementia
For Immediate Release: April 30, 2026 https://www.fda.gov/news-events/press-announcements/fda-approves-first-non-antipsychotic-drug-treat-agitation-associated-dementia The U.S. Food and Drug Administration today approved an expanded use for Auvelity (dextromethorphan hydrobromide and bupropion hydrochloride)…
-
Early Onset Alzheimers - before diagnosis
I would love to see how many of us has 'horrible' years leading up to the unveiling of the diagnosis. The two years prior were full of arguments / fights / resentment. I look back and I cringe now that I can associate all of those times to his EOAD symptoms. I wonder how many marriages crumbled before diagnosis and the LO…
-
New here
Hi All, I’m 59 and my DH is 63. He has just been diagnosed with Alzheimer’s/Dementia. He is moderate to severe. I knew something was wrong and tried to get him to seek help earlier, but he refused. He isn’t accepting the diagnosis, he just says he’s going to die. We have been married for 31 years and have had a wonderful…
-
Non-emergency "lift assist" rather than a 911 call is useful
This is not specific to dementia, but if your LO falls and you can't lift the patient, you can request "lift assist" in some towns, which will avoid dispatching a full set of vehicles with sirens (or even a police car) to provide medical assistance. It may take a bit longer since it a non-emergency. I have not requested…
-
Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
-
Exelon patch
went to the neurologist today finally! Mom scored 19 out of 30 on the memory test. 6 months ago she was 21 out of 30. Is that fast decline? Dr mentioned possibly doing an exelon patch. Anyone have any experience with this?