-
Feeling lost and overwhelmed
Hello, first time posting! My mom with dementia was hospitalized about a month ago due to severe dehydration. Since then she has moved in with my sister using the "therapeutic fib" of "your house is getting some work done." She has accepted that and perhaps we will be able to keep this fib going or maybe she will…
-
Looking for Support Group
I am a 51 year old single male co-caring for my mother with Alz along with her husband (my step father). Would love to find a in person or virtual support group for men like me who are facing issues surrounding the care of their parent(s) with Alz. and other age related issues. I am in WNY and volunteer for the local walk…
-
Recommendations for senior communities
Hi, my parents are thinking about moving to a senior community in the Boston, MA surrounding area. They want a community with indep/assisted living/memory care options. They are also interested in not for profit facilities, since costs are so high in the Boston area. Does anyone have any first hand experience with any area…
-
Power of attorney?
* My grandma has late stage Alzheimer’s . Her husband is primary caregiver . How do we go about obtaining a power of attorney ?
-
Anger issues
Anger has not been an issue with my wife, but I have a friend whose wife does. She gets angry, shouting and making accusations. Then she isolates herself in her room and refuses to talk to anyone. She resists doctors and medication, so he may not be able to get her any treatment. My wife had a three-year obsession with…
-
Participated in a study
We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We both participated in this one. Pretty cool and easy and we earned some money for it too. Qualitative Analysis of the Content…
-
Slipping away
Joy is slipping, just slipping away.... https://simplebender.com/2024/08/23/joy-in-alzheimers-episode-50-slipping/
-
If you are not convienced, let me share this...
Most caregivers know that you should plan as early as you can. And plan for contingencies. Murphy follows Alzheimer's around like a puppy dog. (Murphy's law that says if anything can go wrong, it will.) My 81-year-old DW was officially diagnosed two years ago. She is now in stage 4 or 5, depending… She needed hip…
-
What do you say? Suggestions?
As more family and friends learn of DH's disease, I have experienced an increase in the question: "How is he doing?" I am really at a lost as to how to answer this question. I want to say how do you think he's doing with this terrible disease- with a sarcastic tone but of course I do not. I usually say he is doing ok and…
-
Help
maybe a little rant here but I cannot be the only one that feels this way!! I have been doing everything I can think of to make DH happy and not to agitate him. But every night he ends up losing it and yelling at me! Ok sundowing whatever! I’m done I can’t deal anymore I can’t even be nice or understand! Help!! What do you…
-
A little funny
My DH and I were watching the evening news. He said "would you call my wife and tell her I am ready to go home?" In an attempt to divert the discussion, I said "I am about to start making tuna melts for our dinner." He responded, "that's funny, that is what she's making, too."
-
How to discern whether symptoms are due to dementia or other issues?
Hi all. My Dad is 88, lives in MC, diagnosed with mixed Alz/vascular. I tend to be a worrier. Over the past two or three months, he has shown progressive symptoms that worried me: He is sleeping more. He is skipping meals. I think he has lost some weight (about 7% of body weight). He's generally weaker and has gone from a…
-
LO who lives alone and refuses help
-
New Aggression, Anger and Agitation
We are experiencing something new with my mom who is in a memory care unit. She is having particularly bad sundowning episodes. About 3:30pm each day she becomes very angry, and aggressive. She starts fighting with and yelling at staff. Yesterday she actually struck one of the nurses. The nurse usually calls me to ask that…
-
Socializing
My DW is in mid stage Alzheimer’s, we go to a campground with a pool, which she loves. People tend to socialize at the pool, and she repeats questions many times. I try to let her know that they have answered that question, and I’m not sure others understand what’s going on. I try to keep her in the conversation, but not…
-
Staying up late
My DW was diagnosed with Alzheimer’s about a month ago, pretty sure she’s at stage 4 . She recently started staying up until 2 or 3 am. I go to bed around 10:30. Then, I wake up around 6am, she wakes up around noon. Is this a common behavior?
-
Wrong PET Scan
For context, let me post a few paragraphs that I shared back on April 30th (with minor editing): … The dr then turned to me, noted that I had been quiet, and what could I add. I talked about DB's memory in terms of word finding and getting stuck mid sentence. I confirmed that this had been better since the Aricept, but it…
-
READING
Does anyone like reading books? Right now, I am reading a book by James Patterson. I also like Danile Steele. I especially like mysteries I just finished Jessica Fletcher's The Murder of Twelve. Can anyone recommend a good mystery?
-
Good review article M1 receptor targeting
I came across this good review article from 2022 when I was looking for things to help my wife who is experiencing adverse effects from donepezil and rivastigmine. It’s a good review article of the progress being made to develop drugs that have less adverse effects. Doesn’t look like anything is coming on the market…
-
New here. Mom with relatively early dementia
I live a long way from my mom, a 4 day drive. She is relatively early in things. Her PCP never actually told her when she wrote dementia on her problem list a few years ago. Recently I went to ophthalmologist’s appointment with her and asked “she has Alzheimer’s, so you should add that to her problem list”. My mom said “I…
-
Dad has Parkinson and dementia
Hi everyone. Dad has been diagnosed with Parkinson. He's currently in the hospital awaiting placement in a nursing facility. He's blaming me for not taking him home. I know it's his disease but I'm have a hard time dealing with everything. Any others with this problem?
-
Nasty Comments
My wife is in stage 4 ALZ and is otherwise very healthy. So we are out and about and have a limited social life. Lately, if she is unhappy about something she is likely to make a snide comment to a friend or acquaintance. This is embarrassing for me and while I understand the cause it is annoying. Do others have this…
-
Iris' Story part 2: What I learned from Mimi S
That would be Mimi Steffen, an emeritus member. Mimi was one of the first members I met on the board. She was in her 80s and had a diagnosis of Alzheimer's Disease. She was also a myasthenia Gravis patient. Mimi gave us hope. She wore a bracelet, "A Reason for Hope" and she sent me one. In those days, there was no hope for…
-
AL or MC
My 89 year old mother has been living in IL for about 5 years since my father died. She plays bridge a few times a week, but otherwise her activities are eating meals in the dining room with her friends and watching tv. Over the last few months she’s stopped taking out her garbage, washing her dishes, or doing laundry. Her…
-
I now realize how easy this disease can get it's two for one.
My immune system is more compromised than I realized and a second round of shingles seems to confirm that. Most of it is my fault as I don't know how to deal with the constant heartbreak and stress for so long other than taking things to the limit. I think I can handle this but in reality I really can't on my own. I think…
-
The Fall
Probably the worst situation possible…91 year old with Alzheimer's now with a broken femur… http://simplebender.com/2024/08/17/joy-in-alzheimers-episode-47-the-fall/
-
So Where Do We Go From Here? This is an old thread revisited
Originally posted Jan 4. There's a number of us here dealing with spouses in stage 7 and a few folks still hanging out who are now in stage 8 (spouse has passed). I'm hanging in stage 7, my wife's in MC, so I have time to think about what's next, i.e, what am I gonna do when I'm in stage 8, and my spouse is no longer in my…
-
Strategies to distract dad with FTD when doing obsessive and repetitive things
Hello all, thank you in advance for reading this message and for any idea you may have. I'm looking for new ideas to distract my dad (with FTD) when he starts with his obsessive routines. Until a couple of weeks ago, he would still listen to me and trust me if I would offer an alternative, now he is solely focus on his…
-
Questions to ask when choosing facilities
Please list questions I should ask when choosing AL/MC facilities.
-
Recent dementia diagnosis
Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one week to the day of my diagnosis, July 30, 2024. I was my mom's full time caregiver while she lived with me the last 4 years…