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Hospice care
MC just called. Long story short, reviewing progression, they want to put her on hospice care. It’s hard for me to not feel this is it. They explained it just means she’ll get. A lot more care. Thoughts?
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Newly diagnosed
I’m 54 and was diagnosed formally 3 weeks ago. Having a tough time dealing with it, but I’ getting help, have lots of support and understand that all these emotions are pretty normal. I had my first Leqembi infusion last week and am hoping that helps. I am just not sure what to expect in the near term and could use some…
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A helllful
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Lost
I'm new to these discussions and I feel completely lost. My DH has become increasingly detached from reality. He doesn't know me at all. He thinks I am mean, even though I do everything for him. He daily wants to "go home" even though we are at home. Has anyone else had this experience?
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Wife has stocks in her name
my wife has some securities in her name, what can be done if you don’t want to sell just now, can you have transfer to my name or what to do??
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Tests and medications
Here is a philosophical question for everyone to ponder. As healthy human beings, we all do what we can to insure as long of a life that we can have. We eat right, we exercise, we take supplements. We do all the tests that is required by our age group like mammograms, colonoscopies, and so forth. We get flu vaccinations,…
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…
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“Woozy, Head Feels Heavy”
Question for you caregivers—does your LO ever report their head feels, “heavy” and they are “woozy”? If so, has anyone consulted any doctor about this? Thank you in advance for sharing.
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memory loss
My husband is being treated for a third breast cancer recurrence. It has been 6 years of: masectomy, chemo, radiation, injections and constant meds. He sees an oncologist and neurologist but no one has addressed his memory loss. He is losing words unable to find the label for things, memories, directions to familiar…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Dementia and cancer
I need major advice. My mom has dementia and was just diagnosed with stage 1 lung cancer. Very treatable, if not curable. All she has to do is go through some radiation. She is probably in stage 5 or 6 with dementia... very very paranoid about everything and anything medical all but traumatizes her. She is also a recent…
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When both parents need support!
Hi everyone, This is my first post. My parents are both almost 79 and live in a 55+ community. My mom has moderate dementia, and my dad, who has Parkinson’s (and possibly some early cognitive issues himself), is her primary caregiver. One of the biggest challenges is helping him understand that my mom needs simple, clear…
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Spending time with mom with Alzheimers
We are getting ready to put my mom in a MC facility. Physically, she is in great shape. She loves to go for walks if the weather is nice. I was planning on picking her up often from MC and taking her on walks to enjoy the beauty of Colorado. I was recently told from a friend that that was a bad idea. When we go to visit…
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Going crazy
Taking care of my mother in law and we are so lost is anyone available to talk
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Father Diagnosed, What Now?
Hello everyone! My father was just yesterday diagnosed with EOAD after his father was hit with Alzheimer's, and his brother is exhibiting the same symptoms. In January my father will be tested to see if there's a genetic link, but my understanding is that it will be almost certain that I will have the same condition this…
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Ivermectin for dementia
Ivermectin gained popularity during COVID-19, where some people claimed it could treat or prevent the virus. The problem is, sometimes, news articles or social media can misinterpret early research and spread misinformation. When it comes to dementia, what most scientists and major health organisations, like the…
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Progression and caregiver changes
DH continued to decline with the rivastigmine and has developed significant hallucinations and a persistent delusion about a dead friend who isn't dead. The companion who had been with him almost a year quit because he couldn't tolerate DH's rants and accusations. He was started on Trazodone and Buspirone due to his…
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Moving mom with alzheimers to a different state
My dad passed in 2020 and once he passed, my mom mentally checked out. My brother has lived with her since then and the Alzheimers has gotten worse. I live in a different state and come out every other month for a month at a time. It's straining my relationship with my family and my brother is mentally/emotionally done. We…
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Questions to ask Memory Care Facility
My brother and I are wanting to move my mom to a MCF. My dad, thankfully, bought long-term care insurance and after 5 years, we just mentally can't do it anymore. I have made note of the obvious questions to ask on my visit, but wondering if there's some questions that I may not have thought of. Also, has anyone else had…
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Seeing Two of Things
My mom has advanced dementia, about stage 5. She is constantly saying we have two dogs or two cats (we only have one). Sometimes she will double a person and say ‘Dan and Dan went there etc.’ Has anyone else encountered this doubling? Is she really seeing two of things?
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Looking for a regular online support meeting to attend
Hi, I am the life partner of someone with between mild to moderate dementia. He and I would like to attend something together so we can hear together what is ahead and what works to help with different aspects of the disease and its progression. Any links appreciated. Thank you
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How to get LO into assisted living
DW is in late stage six, with complications of paranoia, panic attacks, tachycardia, separation anxiety and is highly likely to have a complete meltdown upon being admitted to memory care or assisted living. How is this handled? I have been putting it off for over two years. Are strong sedatives an option? At least to get…
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Caring for mom with a/s of dementia
my mom clearly has signs of dementia. Have taken her to her Kaiser PCP to confirm and get HELP as I have no idea on what I need to do. Unfortunately after four visits, still no diagnosis or referrals or assistance/advice except deal with symptoms as they come! It’s really hard dealing with this. I want the best for her but…
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We Don't Talk Anymore
My wife has ALZ Stage 4, entering Stage 5 this year. There have been many noticeable changes, most obvious is that we don't talk anymore. She is very quiet, sometimes sitting and staring for long periods. Occasionally she tries to speak but can't think of the words and then just drops it. This is creating an atmosphere of…