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Discussion List
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Cross country transport CA---MO
MOm has been hospitalized - no injuries but they would rec waiting a few weeks before travel. For the 3.5 hour flight we'd need to find someone to assist my brother- do we look for a nurse or ? How do we find such a person- are there any resources for these sorts of things? thanks My brother will be there, I will not. We…
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Ideas for things dh could “repair”
or take apart. My husband fiddled with taking apart an old garage door opener the other day (why he thought it needed taking apart is a mystery) and I thought more things like this would be good to have around to keep him occupied both here and at the day program he attends. They are having trouble with him being anxious…
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Mom Newly diagnosed
Hi, My mom's dr confirmed that she has Alzheimer's. She had some early memory problems on and off for about a year now. My parents are in their late 70's and my dad and I will be her primary caregivers for now. But I'm a wife and parent of two children, 7 and 15...I also work full time. I'm just exploring support for all…
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Dementia and Medications
My grandmother was diagnosed with moderate dementia not long ago.. I moved in with her a year ago. And my husband and I are really the only family members involved.. well, about a month ago she was complaining daily about how many medications she had to take and said she didn't need all of them. I explained well, most of…
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Medigap F, G and N, also high deductible
It's real now, we are moving from CA to NC. New house closes Friday, getting our home here ready for listing. We are leaving Kaiser Medicare Advantage and i am thinking of original medicare for my husband, since we are moving out of state and keeping Kaiser is not an option. We have the rare opportunity to select Original…
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Will a psychiatrist help?
i wonder if a psychiatrist will help my DW with her delusions? My DW has had a noticeable increase in delusions of someone trying to kill her and also of my imagined infidelity. These delusions occurring day and night are causing her to express ongoing anger, anxiety and sometimes depression. What has been the experience…
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NEWBIE too
Hello Everyone, I’ve been reading posts since I found alzconnected last week. Before that I think I was in denial about my DH; lately I can only read small doses of all of your helpful posts without feeling really down. But I am getting braver. My DH is diagnosed with late onset Alzheimer’s mild with anxiety. He doesn’t…
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Any tips for transition to memory care?
It's becoming clear that it's time to apply for Memory Care waitlists. My LO is rapidly declining and we are no longer able to leave her for any amount of time (she's been living with us for 18 months). We've been unsuccessful finding in home help and we both work. I've cut back to working 3 days a week and my husband and…
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Need advice
Hi all! I just joined needing support , advice, somewhere to vent. My mother has had several mini strokes (TIA) in the past few years. Since then she has rapidly declined with memory, decision making, daily functioning etc. She is now diagnosed with mixed dimentia (vascular dimentia and alzheimers). It explains her…
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preparing for end of life
Just thinking ahead a bit—it's so hard to gauge. We have several excellent caregivers, and I kind of hate to think of telling them "Well, he's gone, bye." What do you think about telling them we'll give them 2 weeks pay afterwards so they're not left in the lurch?
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New here. Not sure of help we need.
I am new here. My Dw and I have been on this journey for 6+ years. There were signs before that but they didn’t register until later. We have been going along since. I have looked for advice on how to do specific tasks, activities, appointments, etc. from our Primary DR, Neurologist DR, Senior Center, Alzheimer's…
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I am new to this community
Hello, I am new to this community and looking for support and help. I am 78, and my husband is 5.5 years younger. I have spoken at length with my doctor about what's going on in my life, and she has been very supportive and suggested I come here for guidance. I have seen my husband's decline over the past several years,…
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Delirium or progression
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Rough Day
On the night of the 3rd my DW started emptying out her drawers and packing up her clothes. I ask what are you doing and she said I am going home as soon as my sister comes(her sister has been dead for years). I did everything I could to convince her that she is home and no need to pack up her things, but she wasn't hearing…
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Newly dignosed
I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.
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The Last Two Years
Two years ago I thought I knew what love required. I thought it was anniversaries, vacations, inside jokes, holding hands in church, dreaming about the future. Then a thief named dementia walked through our front door and rewrote every definition. Love became lifting instead of leading, briefs instead of bouquets,…
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Stressed Rambling Because I'm new to This
Hi everyone, my mother was diagnosed with early onset Alzheimer's and I started living with her about a month ago because she requires full time care. She was able to hide her mental decline for a long time because she has always been very independent, and we didn't have the best relationship. She is already in stage 5 or…
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Seeking Advice: Managing Toilets with Dementia Behaviors
My father has late-stage dementia and is exhibiting challenging behaviors that are making it difficult to maintain our home. He’s been pouring food down the toilets, which has caused clogs and damage. He also removed the bolts from one toilet, breaking the wax seal, and it’s now unusable. He’s fixated on guarding the…
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venting
The general advice is to take care of yourself so you can take care of someone else. I can't even get to a #$%& dental appointment. Frustrating is not the word for it. Thanks for listening.
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Needing advice
Hello, My mom, 87yrs old, with mixed dementia, Alzheimer's and vascular has continued to decline over the years and lives in a MC facility. I am an only child and visit regularly and her biggest advocate. She has been on hospice care since Oct. 2024. Her health has been like a roller coaster since that time. She is still…
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My dad who cares for my mom at home wants to move into Memory Care with her- not sure about this
My dad who cares for my mom at home wants to move into Memory Care with her. Dad is 88 years and my mom is 87. He has been caring for her at home and in the past 9 months she's declined quickly. We have hospice now, bath aide 2x a week and he needs help all the time, especially with her "sundowning' daily and with…
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Ques for new memory care facility
Hello, new to this group. My dad is currently in a memory care facility and has had alot of issues with inappropriate sexual behavior with other residents. Other than just watching them and keeping separate they’ve done nothing else Also has been sent out to the hosp for a fall but told me that it was because he fell and…
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Exercise Suggestions?
The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…
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Mom with dementia went downhill after Lexapro antidepressant was stopped
Hello- Mom has been in a NH for about a year due to dementia. They are doing a very good job but I had to fight to get her Lexapro antidepressant restarted after she went downhill very quickly a few months ago. She became very depressed and has not been eating or drinking much. Before the stoppage, She would not eat a…
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Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!
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Alzheimer’s and autonomy
Hello. I’m new here and I have a father diagnosed with late onset Alzheimer’s. I take him to all of his various appointments but I don’t quite understand why the providers rely on him for answers on his health. Sure I can provide some of the information but questions about his own depression levels or nausea only he can…
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Small Study at Cornell University
Hey Guys, if you are in the New York area there is a free new small study of 20 patients with early Alzheimer’s disease symptoms utilizing a monoclonal antibody that blocks ccr5 receptors called Leronlimab that theoretically decreases inflammation in the brain. This study will measure neuro inflammation pre and post…
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Game playing
My DH, who is in stage 4-5 likes to play Rummicube and we play weekly with some others. He is surprisingly quite good and wins about 50% of the time. Lately he can’t remember the rules of the game and it is giving my an anxiety attack, trying to convince him to follow the rules. Our fellow players are very patient and…
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New to the group
Hey There My spouse has mild late onset AD and polyneropathy. We're in what I call the Dr Jekyll and MS Hyde stage. She can shower when I get her too, go to the bathroom though I question the paperwork, and she can walk within the house. I do all the finance and meals. I started having some folks come over to help…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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