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Caregivers appropriate decisions
Hi, New here. My mom has moderate to severe dementia. She is in an assisted living . I manage all her financial and medical decision as she is not capable per the doctors. She knows me and her friends. However, she does have hallucinations (seeing deceased husband, animals in her room). She regularly accuses people with…
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Have to drive our mom 7 hours
My brother and I are all new to this. My father kept if from everyone. My mom is entering what we think is late stage and we have to get her to a care facility 7 hours away. My father just passed away and she was not well cared for at home with him. We found an amazing memory care facility, but it's a 7 hour drive. Any…
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My mom coming home
Hi my mom was diagnosed with both alzheimer/ dementia. Several yrs ago. Its getting worst. I placed her in a facility over a year ago. I hate it. I decided to bring her home. Im so overwhelmed with this journey it is very emotional. Im hoping talking to other caregivers will help me cope.
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Stage 8, Hospice & End of Life...
Sadly, I'm in Stage 8. My husband & soulmate Lonny passed August 12th after a rapid decline. One of the many questions asked on this forum is when to know it's time to call hospice & how do you know when someone in Stage 7 is moving to Stage 8. I recently saw a video on Facebook that I wish I had seen 2 years ago. It's by…
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Rexulti
My DH 78 yrs old stage 6 some toes in 7 has been on Seraquel worked for awhile no longer. Next week will try Rexulti anyone have used that med and better results? Also very expensive.
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Small Blessings
Well, I lost the young woman who has been cleaning our house. Big bummer. She gave me an entire day at work knowing my DW had eyes on her while that gal cleaned, did laundry and stacked wood for me. I will miss her help, no question. But, them's the breaks and I know that's how it goes with any type of extra help. I used…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version 30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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Lewy Body
Hi ..my guy has Alzheimer's along with Lewy Body disease and he's struggling with the "people" who are in his head but he thinks are here. He thinks they're putting cigarettes in his drinks and stealing his things. Plus he thinks I'm on heroin and sleeping around with all these imaginary people, who some actually are based…
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Looking for a Friend to Get Through This With....
Looking to meet with someone with a similar situation as myself for normal discussion and friendship. In the Saint Petersburg/Clearwater/Pinellas Park area.
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…
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My kids and my mom
My mom moved into our home ( mine and my husband) in August due to mild dementia. Our children have been less than supportive of this because it changes the dynamics when they visit. They think she is a stressor for me. She probably is but at this point I want her with us. I look at her being here as a gift. I can not get…
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Self Motivated Activities
My mother has dementia. She’s progressed quickly the past few months but is still aware (mostly) of her decline. She seems to get “bored” and restless when not fully engaged. My family and I do our best to keep her active and engaged but the reality is we need to rest and reset regularly to be our best for her. She used to…
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Hopeless
Happy New Year. This actually is my first post. My DH just turned 60 and seems to be in moderate point in his battle (been dealing for 4 yrs). Someone said how guilty they feel having happiness while their DH is going through this. I also feel guilty. I have a full time job and am exhausted. I hate to say this but I feel…
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EO Long Island long term care
I believe is my first time posting. My loved one will be 60 in April. He was diagnosed five years ago, but of course symptoms were prior to that. I have MS and really can no longer care for him at home. I’m having difficulties even leaving the house to go to work Because he follows me all the time. I’ve looked into Memory…
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My essay on navigating the overwhelming journey of caring for someone with ALZ was published. Please
I lost my father after an incredibly long battle with Alzheimer's about 15 months ago. Wanting to help others finding themselves in the same horrible situation, I wrote an essay about the experience, which was recently published. I wrote it not only to tell my story, but to provide insight, guidance, resources, and to…
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MC/Long Term Care
Hi everyone, My mother (59) has Alzheimer’s and is started to decline. She has a home health care nurse come in once a day to help her with the basics. Unfortunately, I do not live with my mom (I’m about an hour away and work full time) so I cannot be there to help her as much as I’d like. I’m starting to stress about the…
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Highly Recommend Citicoline Supplement
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Why Stay?
I hate the life I am living now. Why do I stay? I love DH but not his behavior. He is not his behavior but much more. He does not choose to behave this way. This disease chose him. Fifty two years ago I vowed “in sickness and in health”. I keep my promises. This disease may rob me of him but not of our pre-ALZ life we…
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Caregiver
Caregiver for my husband. He has Alzheimer’s. Urinary and fecal incontinence starting. Suggestions on how to handle. Becoming hard to deal with.
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Getting my mom to her doctor appointment
I made my mom a Neurology appointment on 1/13. My dad is worried that if she finds out she'll have a total breakdown. So far she doesn't seem to have gotten any notifications about it, but she likely will get a text and/or email reminder for it. If we can even make it to the appointment day without her finding out and…
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Length of stages 6 & 7
How long was your loved one in stage 6 and stage 7….or for how long have they been? I think we’re mid stage 6….been here for about a year.
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Electric Razor
My husband has been diagnosed with ALZ for 5 years now. The progression has been slow, thankfully. I notice that he is having a hard time shaving. Can someone recommend an electric razor for me to buy that is very simple and basic. Thank you
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Apologies...
I came here today to apologize to this community. I belonged to 3 other groups in addition to this forum. I was asked by the moderator of one of those groups to no longer use the words "terrifying" or "heartbreaking" when I refer to Alzheimer's. The reasoning is that everyone progresses differently and some don't have the…
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New for me
Hi all, DH was finally diagnosed with early onset ALZ (he is 66, I had struggled to get him to get evaluated for the last few years, so the doctors say he is the end of early stage, beginning of middle stage - although I still don't know what all the terms mean). He was able to pass a driving test so has a conditional…
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PTSD with an ALZ diagnosis
New here. My DH (diagnosed at 55 now 57) previously struggled with PTSD. We still have a teenager I want to do the best for her as well as him. Does anyone have experience they can share - what helped navigate it? what didn't?
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Dizziness
Good morning all. We are in this journey now for about 10 years. My DW is in stage 4.5-5 or so. Two days ago she got very dizzy at the physical therapist and while it’s gotten better she continues to complain of being dizzy. At the PT a paramedic assessed her for the emergent problems of dizziness. Before we head to Urgent…
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How to deal with dangerous “lies”
Hi all, new here and first post. My husband is the primary caregiver for his elderly mom. Her dementia is progressing and as such, so is her misperception and “lying”. We attempt to redirect her when she claims her jewelry and money is missing or has been stolen. However, recently she told another family member that my…
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Looking for someone to help me launch Support Grouo.
I am the Pastor/Chaplain for Holbrook Acworth. I am looking for someone to help me facilitate a monthly support group at our location.
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Depends
How do you get them to wear deoends? My BF 45yo EOAsoils himself everyday. He has peed on my side of the bed several times and today on his side of the bed. I. Am. Over. It. He is convinced it's not him and yells at me that it's not. I tell him I'm not even home and that I'm potty trained. The caregiver wants him to wear…
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when should caretaker prepare for incontinence in bed?
Hoping for some advice from the more experienced here... I've been reading posts about pads and adult diapers and getting up with a demented spouses at night, and while we're not really there yet (no accidents, he gets up by himself at night), I expect we will get to that point at some point in the future. I would like to…