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I have Covid and haven’t been able to see my dad. I miss his hugs
Really missing my daddy today. I want to just hug him. I’ve had Covid for 9 days. At first it was nice to have a reason not to go everyday but now it’s killing me. I just need a hug from my dad. He doesn’t know my name but he knows I’m “his little girl”
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Ending Driving
Can anyone share how they were able to get their loved one to stop driving
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Refusing care
My mom lives with me, I’m 62 and she’s 84, I think she has dementia but I can’t get her to leave the house. She refuses to see a doctor stating there’s nothing wrong, says she’s dying and there’s nothing to be done. She’s been refusing solid food for many months only drinking ensure for sustenance and smoking. She really…
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Mom forgets that Dad has passed
We helped my mom move from her home of over 45 years into a retirement community last December. I'd say she's in Stage 5 of Alzheimer's, but still in independent living. She doesn't love it and hasn't embraced being around other people, mostly because she knows her memory is not good. She recently started forgetting…
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Doctors Visits
Trying to support my father who refuses to go to doctors appointments due to the build up of anxiety related to going. He has what we believe to be getting closer to end stage dementia. Are there online neurologists that can help so he does not have to go to appointments? Any other tips for dealing with personality changes…
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Update
Hi everyone, My heart is going out to everyone reading posts tonight! I haven’t been as active on here because my mom now has her official diagnosis (NPH) which brings a whole host of other issues. I just feel like I wanted to check in here. Like many people, I started this journey thinking things would go slow: not so.…
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Staging
How do I know which stage my dad is in? From looking at articles online I would say 6, but I am not sure.
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Dentures
How do get your LO to take their dentures out of their mouth? We take his teeth every night when he is getting ready for bed so we can clean them for him. Now he just stares blankly at us and doesn't seem to hear us asking him to give us his teeth. Everything seems to have gone downhill quickly. He's not eating much,…
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Am I doing the right thing?…..because it feels awful
My dad 82 with mid stage Alzheimer’s has been in AL for 3 weeks. He was absolutely loving it until about 4 days ago. His girlfriend of 20 years ,with whom he lived with until I moved him to my house about a month prior to AL. I am his MPA. I’ve had to have several discussions with her about what not to say when she visits…
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New here
Hello group. I’m new to this forum and I’m looking for resources and help with my mother. My husband and I just moved in with her. Her sundown has her kicking us out every night. How can I divert this behavior or learn how to deal with it without it hurting me? Are there zoom support groups? Are there any 12 step programs?…
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Where to find help
How to help someone who is caring for their mom who has dementia. The Mom does not speak English, has no health insurance and is a new immigrant to the USA. The Mom is living with her daughter and the dementia symptoms are getting worse. The burn out is extreme for the daughter. My heart aches to help her. I often visit to…
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Introducing a Caregiver
Hello, I am new to this group. My mom was diagnosed with Alzheimer's dementia 2 years ago. She lives with my dad about 5 minutes from me and my family. After much waiting, we are finally getting some hours with a respite caregiver to give my dad some much needed time off of caregiving. My question is, what is the best way…
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Ready for Long Term Care?
Hi Everyone, New here! How do you know when it’s time to move a parent to permanent care? Mom is 76, diagnosed w/Alzheimer’s two years ago. She no longer does personal hygiene, wanders all over the house, nasty behavior, difficulty communicating, incontinence, accusatory, argumentative, difficulty eating, swallowing,…
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Housing options
Hello I am a daughter of a mother with Alzheimer’s. I am trying to get advice on living situations. She’s living alone in a big house and I don’t know what type of housing she should move to. Some of the communities I’ve seen are insanely expensive..!! She’s still independent but I’m seeing her progress… any advice would…
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Delusions
I am struggling with my mom. She has had mental health issues since her 20’s- diagnosed with schizophrenia in the 60’s. Who knows if that’s accurate, she refused to get any updated diagnosing since. Now she has AD mild stage diagnosed in 2019. She is taking Seroquel for the paranoid delusions and I thought they were…
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Sharing a piece I wrote: Living in the Paradox of Alzheimer’s – a Family Member’s Birdseye View
Paradox is defined as a thing that combines contradictory features or qualities. To live in a world where my dad has Alzheimer's disease is to live in paradox. This is evidenced by contradiction in the man himself, a former United States Air Force and commercial airline pilot, highly intelligent, organized and competent,…
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What device have you used to monitor their vehicle?
I want to put a tracker on my brother's truck so I know where he is driving. What tools have y'all used that worked well for you?
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Product ... have you used? ViewClix Smart Frames
This looks very interesting to me and I'm wondering if anyone has used it. We tried using one of those "senior" phones where the phone numbers are pre-programmed with big buttons and screen but that was too much for Mom and too stressful. This looks like it could seem like a frame sitting on the coffee table that I could…
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Any tips for meeting with administration, director and DON?
Wow, reading this post and comments was the inspiration I needed. This is so hard and I am trying to stay positive, encouraging and hopeful. Good days are great and bad days render me hopeless and defeated. Reading others' experiences really help me to understand that I'm not crazy or alone in this, but then again, it's…
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Caregivers Support by Participating in a New Study
Hello! I am new to all of this, only have had experience with dementia and Alzheimer's when both my Grandmother and my husband's Grandmother were diagnosed many years ago. We just learned my Mom's results of recent neurology tests, and all of this is overwhelming. I feel helpless, especially living 3+ hours from the rest…
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Thanks for your experience
Hi, I'm new to our group. I have lived with my parents for 11 years. Dad and I care for my Mom who's 76 in stage 6. She has had early onset for 15 years. I'm no expert, just read about stages. Occasionally I work a month at a time 7 days a week 12 hours a day and this is my "break time" to get away from home. My Dad is a…
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Can I receive phone support for assistance to the aid or caregiver about parent
Can I receive phone support for assistance to the aid or caregiver about parent
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Covid 19....All of Us Sick
I'm trying to decide. I had plans to enter Dad into hospice after he graduated from regular home health. Transition while doing well. We were down to two weeks. Live-in-sibling contracted Covid 19. Now we are all sick. About seven days for live-in-sibling. Five days later for the rest of us. The dilemma is dad was fairing…
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Crying for several hours each day
Hi friends, I have commented on a couple of posts but have not started a discussion. Thank you in advance for reading. My mom who is in LSD cries often. Sometimes it will last for 2-3 hours several times a day. Other days are not as often but all days there is crying at some point. She is physically still ambulatory but…
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Wandering with a purpose?
My mom has Alzheimers and has a little dog. She lives alone (with the dog) although she shouldn't. She refuses to move. Anyhow, last night she was found wandering around her mobile home park looking for her "second dog." She somehow thought that she had two dogs and lost one of them. When a eighbor found mom and walked her…
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My frustrations are getting the best of me
My mom has lived with me for 13 years . In 2014 she had several hospital stays with everything you can imagine . She was finally diagnosed in 2019 with LBD. She was on hospice for 8 months & somehow , again bounced back . Her health honestly has improved but her memory & cognitive senses have worsened. I never thought that…
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Parent in AL - Do you wish you have more information?
Hi All, First time posting. Glad to find this resource. We moved our father into a nearby AL from a different AL many hours away back in May. I'm very close to the new facility, and have a sibling who lives out of state. The move was smooth, father is settling in nicely, and from that standpoint, we're VERY lucky! Curious…
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When to move mom to a care facility
Mom is no longer ambulatory and very heavy, and doesn't sleep.