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Mom with early onset dementia, I'm feeling lost
Hey all, this is my first post here so I hope this is okay. I'm the oldest of two siblings and our mom was diagnosed with lewy body dementia around two years ago at the age of 60. She's been in assisted living for roughly that same amount of time. She's on a laundry list of medication and often seems to be in a daze, is…
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Did anyone else get an email from Vanderbilt about a gift card?
I received an email today, and the reason I'm wondering if it's a scam is because it says "Happy Holiday!" at the end. I do recall some detail about a drawing for $25 Amazon gift cards for those who participated in a survey on ALZConnected. I tried to call Vanderbilt University's medical center to find out about this, but…
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Skilled nursing facility will not sign off on form to let mom go to Memory Care
May 2022 we placed my mom into the local nursing home after a stay at a memory care facility that was over an hour away and turned out to be bad. She didn’t really need the nursing care (she just takes the regular medications that an Alzheimer’s/ dementia patient does) but we decided it would be better to have her only a…
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Dealing with Toxic family members
Please Delete Thx
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Difficult transition from AL to MC
My mother started showing signs of dementia in fall 2018. My dad was in denial - but they finally got her an official diagnosis in January 2021, then my dad died in May 2021. So she has been in assisted living since right after his passing. She moved to MC in the same building in June of this year. This transition to MC…
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When is the right time for AL?
Hello. This is my first post. My 87 year old MIL was diagnosed with dementia (Alzheimer’s +) in March of this year. This brought clarity to the cognitive and personality changes we had been noticing over the past couple of years. Memory changes are really the least of her symptoms. She does have trouble with memory recall…
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2 dogs & 2 cats
First time poster and new member. My wife and I care for my mom who has been diagnosed with Alzheimer’s, although not sure which stage. Her short term memory is almost completely gone. She remembers us but will forget things we talk about after a few minutes. She has 2 dogs and 2 cats. She walks her two dogs and 1 cat( in…
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Dementia with psychiatric issues
Hello, My dad was diagnosed with atypical (non motor) Parkinson’s with Dementia 3 years ago. His major quality of life symptoms are tenesmus (feeling the urge to go to the bathroom) to the point where he spends most of his days on the toilet. We’ve taken him to the GI and they have run many abdomen CT scans and it’s just…
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Time for Facility?
Hi, My dad's aide is great, but she is about my age (69). She told me this morning that she has to go for cataract surgery. She will have a sub come for the weekend. I am worried that is not enough time for her to recuperate. Then she told me that she is going to go on vacation to Georgia (country) sometime later this…
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Remote home care for advanced dementia?
I need feedback from anyone who has cared for their LO long distance. Mom fractured her hip 3 months ago which advanced her dementia significantly. She is now at even greater risk of falling again & is unable to do much without assistance. She uses a walker, doesn’t sleep much at night anymore, pees a ton at night, is…
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Home health aide question.
Hi. New to forum. We moved my mom and aunt from Vegas to NJ about 2 years ago. They live together in apartment but my mom has some dementia. She’s 88. A few days ago had a fall and broke her arm. In hospital for two days but supposed to be discharged tomorrow. Her dementia is getting a little worse as keeps asking same…
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Help
Hi everyone, I’m new here! I am coming on here seeking advice from anyone with experience. I live with my boyfriend, his mom, and his dad. Now the reason we still live at home is to help with his mom who was diagnosed with early onset Alzheimer’s in 2016 when she was not even 50 years old. Obviously it has progressed…
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Time portal!
Does this happen with anyone else? My mom, mid stage, literally forgets where she is if she walks out on to the deck of our home like she is entering a time portal. She has been in the neighborhood for 50 years and in this house for 15 years. As soon as we step outside to get some sun she wants to know when she is going…
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My mom hates her RCF and wants her cat back.
:'( about five months ago. We had to move my mom from an AFH to and RCF. She hates it. There are six other residents with varying degrees of disabilities and some with dementia. My mom has vascular dementia, and Alzheimer’s. She was diagnosed at 69 years old and will be 71 this year. since moving to the RCF, I have noticed…
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Dementia, Broken Hip, and next steps
Hello, First time posting. My mother is 95 and was lving independently with caregiver assistance until she broke her hip a few weeks ago. She has been through a lot since 2018 - kidney timor ablation; treatment for APL (acute promyelocytic leukemia), a small stroke, and now this. She is in rehab connected to the retirement…
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Appreciate some insight
I am new to this organization, just joined. I'm in need of some help and advice concerning my mother. A little history is that my mom and I spent 5 and a half months together going to a hospital last year and unfortunately lost my father, he was 84. During this time, I saw some things that I didn't know were going on with…
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Is my situation crazy? Need advice
Hi everyone, I am very new to this group. Just joined 5 mins ago lol. I am 23 years old and I live with my father, 56, who was diagnosed with early onset Alzheimer’s. He was diagnosed through a PET scan after going through a year and a half of scans, tests, workups. This diagnosis was given to us April of this year, 2023.…
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Suggestions on locked medication dispenser
My mom had been diagnosed with dementia and I've recently had to take her medications to my house to keep her from getting to dose her own or go through them. She had been dosing her own but after her overdosing bc she took her meds twice something has to be done differently. Even with me dosing them weekly she's still…
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First Post (Mom's Caregiver) - It's a long one but please read if you can
This is my first post so it's going to be lengthy and I apologize in advance. I don't know why tonight I got to the point that I felt the need to reach out but here we are. I am my mom's caregiver and it's just hard. I'm a 45 year old female, married to my husband of 21 years and we do no have children. I'm one of those…
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Bible Verse to Lift You Up 8/26/23
JESUS SAVES US * HE IS OUR SHEPHERD Isaiah 53:6-7 New King James Version 6 All we like sheep have gone astray; We have turned, every one, to his own way; And the Lord as laid on Him the iniquity of us all. John 10:27 NKJV 27 My sheep hear My voice, and I know them, and they follow Me. me: We've been compared to sheep. They…
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Becoming DH's Representative Payee for Social Security
Is there any benefit to becoming DH's representative payee? Seems it requires a lot of trouble to get approval and possibly having to open a separate savings/checking account and keep accounting of this money. Currently, every monthly payment is auto deposited and available to pay for bills. So why is this needed?
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70-year-old father living with Alzheimer's for 9 years and has sudden decline & hospitalization
Hello. My father is a retired Pediatrician. 9 years ago he was diagnosed with early-onset Alzheimer's Disease and has slowly been in need of more help and assistance over that period. He is a widower (my mother passed 9 years ago) and has been living semi-independently since. In the past 2 years his care needs increased,…
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AL vs nursing home
Hello. My mom that previously lived with me until she required 24/7 supervision now lives in AL. She’s having more behaviors as the Alzheimer’s progresses. At what point would she need nursing home?
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Ideas on how to help my mother lose weight?
Hello, My mother has mild/moderate dementia with etiology of Alzheimer's (Dr.'s words). She lives in a senior community, still in Independent Living. She is overweight and has multiple health issues that could be alleviated to a degree if she lost weight (arthritis in the knees making walking painful, bladder issues,…
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Intro since "Caring for a parent" is new
I introduced myself in the caregiver's group a while back, but now that there is a group specifically for those caring for their parents I thought I'd re-introduce myself to this group. Sorry if this is super long! My younger sister and I are the caregivers for our mother. Our father passed away in 2018 from a rare disease…
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Looking for tips to get POA
Mother 92 is paranoid ,middle stage demencia (will hopefully get diagnosed in a month) she also has agressive breast cancer (waiting for prognostic also) she is living alone in a retirement home , coping very well still … One of my Sister’s is spending time with her now for 2 weeks ,the other one take’s her to medical…
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My grandma repeats the same question 10+ times in a single day, even if I answered 1 min ago
Does the Alzheimer's patient at your home repeat theirselves a lot as well? This is driving me crazy... I'm fully aware that she's not intentional and it's not her fault, but it's just exhausting to answer the same question over and over, especially because to answer it I have to explain a bunch of stuff... I even recorded…
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Caregivers and doctors' appointments
My 88-year-old mom has mid-stage Alzheimer's. She lives in an independent living apartment in a continuing care facility. She can physically do everything to care for herself but can't always remember to do them. Sometimes she can't remember what I've said a few minutes after I've said them. I live 20 minutes away from…
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Caregiving and working full time
Hi everyone - so far my mom is fine on MC. Waiting on appt with neurosurgeon to see if she’s a shunt candidate. She calls 10 times a day but is still so disoriented and relieved she has a safe place with her crucial and precious belongings (books, pictures, paintings) she is ok. Now I’m worried because I had to take off…
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Should I let estranged granddaughter visit?
My dad is 85 and has moderate dementia. He is currently in a SNF. My niece (his granddaughter) has asked to go see him and bring her 2 kids. She hasn't had any contact with him for several years and he has never met his great-grandchildren (they're both teenagers). Am I wrong to not let her visit him? When he is asked if…