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Things are going wonky
Mil fell a week ago. It was like a tree falling in the forest. She had her hand on the counter but just went right over, stiff as a board. She had abandoned the walker in her room. She cut her cheekbone on the floor. At first she was very alert and active. Then she slept a lot. Now she’s back to pacing the tiny house. She…
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Out of the shadows...
I've been reading and learning a lot from all of you (Thank you!) and sharing a little. Now, I'm sharing more. Watch out! I really mean "more"! My sister (and only sibling) was diagnosed with AD a little over 4 years ago. Showed signs of something wrong at least 2-3 years before that. She worked as a psychologist and did…
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Refusing to sleep in bed
We recently moved my 86 year old mother from a MCF to a residential care facility and the caretaker said she is refusing to sleep in her bed. She was also not sleeping at night and would just cat nap so her dr. recently prescribed trazadone, which has helped her sleep some. When she was at the MCF and I would visit her,…
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Recently Diagnosed with Alzheimer's
If your loved one was recently diagnosed with Alzheimer's disease and is interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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Emergency Guardianship hearing
We are prepping for a hearing. Looks like we may be subpoening someone to get a doctor to show up and having all friends and family fill out affidavits. Do more affidavits supporting your position help at all? I keep hearing such conflicting information so I guess I'm pretty ancy right now. Hearing is next Monday morning.…
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Quitting the testing process
My mom has been to the first two testing appointments at a senior resource center. The third test is where she meets with the doctor for the first time, and receives her diagnosis. Prior to this testing process, my mom has been happy - very happy - in her home, quietly doing her daily household tasks and sticking to her…
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Paying for MC but having to spend night with Mom
My Mother is in MC, but has become a falling risk. Because of Covid, finding caregivers has been almost impossible so they have 7:1 resident to caregiver ratio, and say they will likely go 8:1. They are requiring that we spend the nights with Mom as they don’t have staff to watch/help her when she gets up and she’s had a…
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Need help/suggestions on what to do with MIL who has obsessive hypersexuality
My 72 MIL with EOAD (diagnosed in 2018 but symptoms starting in 2011) lives in a AD residential living facility. We were recently contacted via a letter that the facility is requesting her removal due to her obsessive inappropriate hypersexuality with another resident. This is the second facility she has resided in the…
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The Worse Day
Yesterday was emotionally traumatic for me and not sure how I'm holding on to my sanity. I'm my 93 year old dementia dad's caregiver. Yesterday when I arrived he right away verbally attacked me and this time accused me of stealing $9K. I tried to talk rationally to discover what bank account and or credit card. So, I could…
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Suggestions for relief from itching from the Exelon patches
My mother has been on Exelon for about 8 months. About 3 months into the prescription she started to complain constantly of itching where the patch was placed. Over the past 5 months I see her often scratching different places on her body - mostly where the patch is or was. Her neurologist recommended a cortisone cream or…
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UTIs every month?? So frustrated.
Hi everyone. I realize that UTIs are a common topic here. But is anyone else's LO experiencing them EVERY month? Its exhausting and sooooo frustrating. My mom would be doing very well if it werent for these stupid UTIs. Its not a hygiene problem. We escort her and help her in the bathroom (we care for her at home). She…
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assisted living to memory care
So my mom had a shaky arm for awhile and said it was nothing for a few years. Then she fell and broke her femur and it came to light that 2 years prior she was diagnosed with parkinsons, and during her hospital stay about her leg, they pulled her drivers license. The state my mom lives in there is a waiver program, there…
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Toileting fallout - parking on the potty and other issues
Seeking some help with our new stage: I have recently just been squeezing into our small bathroom with my DH as he can't be in there alone anymore. After our nightmare stint with balanitis (the things we learn about on this journey!) and poop galore etc of a few weeks ago I just have to weather the wrath of his indignation…
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Dealing with bed sores - afraid I'm screwing this up.
My mom recently was entered into hospice care. We're keeping her at home, but we know we're getting close. She's refusing most food (we can occasionally get her to drink Ensure, but it's hit or miss), and in the last two days she developed bed sores on her bum, right between the cheeks. We have an in-home caretaker on…
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Hawaii
Hoping y’all can give me some suggestions. My Mom and I live together. I work from home every other week. So Mom can be by herself without harm. Im going on a 10 day Hawaiian vacation with my boyfriend in May. Haven’t been away from mom for that long in a long time. I NEED this mentally and emotionally. I won’t give up the…
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Bathing(9)
We would love any advice on bathing tips, our mom was diagnosed this past May, she is 87 and has always been so meticulous about herself etc. If we suggest shower etc. she sometimes becomes angry and will not want to.
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Thank You As My Mother's Journey Comes to an End
Hello all, I'm an only child and I've been caring for my 89 year old mother with VD, emphysema, and myelodyplastic disorder since 2014, first in her home with paid caregivers then in MC, and now in SNF since November 2019. I've done so much learning and lurking on this forum, and the past few days of sitting with my mom…
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Questions about the drugs
I need some advice from people who’ve maybe seen this. I’ll lay out the timeline and see if you all think my plan makes sense. Mil is solid stage 6 and slipping steadily. 1) 3 months ago hospice nurse suggested we discontinue Donepezil and Mementine. 2) We did and she declined. She slept more. 3) 2 months ago we started…
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need advice hubby now has covid
called ambulance yesterday he fell and started peeing blood. While admitting him they did a covid test and it's postive. They never called to let me know found it on the portal and called them, I was shocked as he is homebound but was in the hospital a week and a half ago for an operation. So he tests positive yesterday…
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Is this the right time to move to MC?
My mom has been in AL for 3 years but has needed a caretaker 6 hrs/day for the last 5-6 months because she was eloping, wanting to go for walks. Our only choice is to keep the same expensive combo of AL + Caretaking or move her to MC. Mentally she is degenerating but physically she is fit and active. She can walk 1.5-2…
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Any Advice?(1)
Hi, I'm a 33yo daughter, currently PT caretaking for my 70yo mother, who is in good physical health and very active. She was diagnosed w dementia, alzhiemers-likely, in Apr 2021. This was after ab 5 years of memory decline that both she and my father refused to recognize, despite my sister and my pleas to take her to a…
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Bad... very bad
Stepmother has gone full out war with her estate planning attorney. Apparently, they filed both a document revoking Dad's prenup and also a gift deed for my Dad's house, worth a little over $300k. She's been spending about $20k a month, I'm thinking she may have cashed or remortgaged the house to get funds. They've been…
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Sometimes, You Just Have To Laugh...
I know some may think it's politically incorrect to share a moment of humor about a LO's antics in this disease, but I believe you have to, or you will truly go stir crazy... One of my girlfriends is going through with her father. He is at the paranoid stage and believes one of CNA's in the NH is trying to poison him. The…
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A Sweet Moment
We've started hospice care for my mom. It's incredibly difficult to get her to eat, so we know we don't have much time. But since we've started hospice care and I moved back down here to be nearby for the next several weeks, she's become so much more vocal and responsive. I've had conversations with her over the last…
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Heartbroken(7)
I am new to these message boards. My 84-year old father was officially diagnosed with Alzheimer's about a year ago, although I know he had been having symptoms for years. He and my mother live in a small town in Alabama (I live in northern Virginia). My three siblings and I made plans to move my mother and him to a safer,…
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My mom keeps telling me to get out of her house
Every so often my mom will ask me why I am at her house. She will get angry and tells me to get out. I realy don't know how to respond. Usually, I just leave (reluctantly). I don't like leaving her when she is in one of her anger moods. But sometimes I find that I am not able to calm her down. Does this happen to anyone…
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Let go of suspicion?
New to community. Honesty welcomed! Reluctantly agreed to try my dad (91, late stage Alzheimer’s and Parkinson’s) in memory care. I am POA. He was admitted as respite resident on Oct. 1st. and added additional month in view of what’s happening. In the beginning he made comments about going home. Within those first few days…
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Progress
Emergency Guardianship hearing set for the 15th of this month, with my siblings and myself. . I filled out a bond application for a surety bond/guardianship bond; apparently, it costs between $2000-5000 to be bonded. I'm now registered with the state to be a guardian and took the online class and got my certificate. Being…
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Automatic Pill Dispenser w/WIFI
I am looking for suggestions of models for automatic pill dispensers (preferably with WIFI) people have bought and liked. I am a caregiver with my mom living in Independent Living and trying to keep her there.
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Things Don't Have to Get Worse - We are so blessed on the farm
My 87 year old mother has vascular dementia. Last year she was confined in an assisted living facility in Las Vegas. She was hardly speaking and very combative. I live in Panama on a rural permaculture farm. It was a big decision but I took her from Las Vegas and moved her with me on the farm. I hired a live in care giver…