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Financial Help(1)
My mom has Alzheimer’s and it’s time to find a memory care facility for her to move into. She is not eligible for Medicaid but cannot afford to pay on her own and neither can I. Has anyone else had this problem and where do we go from here? Where do we begin?
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Difficult decision
MY Mom is 73. I'm only caregiver for her. She's getting worse. She doesn't know me. Sometimes she thinks she is in a nursing home. She sees people that's not there. She is either sleeping, eating, or screaming to top of her lungs for hours. She had three strokes and now has Dementia. I have been taking care of her for four…
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Forgetting visitors
Yesterday my MIL had her 1st checkup with her neurologist since her diagnosis in August. I felt it was possibly an eye opener for my SIL's who have seemed to not understand the seriousness. I zoomed in to the appointment, and was able to ask questions. The neurologist also did excellent in asking questions and discussing…
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Best Practices in Dementia Care and Caregiver Support
https://www.capc.org/training/best-practices-in-dementia-care-and-caregiver-support/
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caregiver sleep
Hi, all. I searched for possible answers to my question, but found none, so I'm posting my question in hopes someone has thought of solutions to the problem I'm having. Setting the stage: I am currently sole caregiver for my mother, who is mid-stage ALZ and lives with us. She currently needs no help with the ADL, just…
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Advice on care facility- institutional-yet-prepared, or welcoming with no memory care?
Looking for advice on choosing an assisted living facility for my mother. She's 79 and was recently diagnosed with dementia. She has significant short-term memory issues, but she's able to care for herself in all ways and is very physically healthy. We found a place we really like for her--it's just two minutes from our…
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New here - LO's wife abandoned him, and now he's fixated on her
Hi all - Thanks for any insight here. Have been caring for my dad since June 2021, when his wife dropped him on our doorstep. We've known he has had cognitive issues for several years, but his wife had for years kept him away from his family and so we were unable to see how severe his cognition had gotten. My dad was just…
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Early onset Alzheimer’s and/or mentally ill munchausen horror movie. Either which way I need advise.
I return to this board every couple years when I’m totally lost and today is one of those days. Sorry if my story is familiar to anyone here, it’s a grim situation that hasn’t changed for 6 years. I know everyone here is dealing with their own tragedies so I appreciate any insight into my very complicated situation. My…
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remedies for isolation?
Hi there, 7 years into my journey as the only daughter, one-time primary caregiver of a parent with Alzheimer's, I am looking up from my life and feeling like the grieving is just going to continue and that I need some new coping strategies to endure this triathlon of Alzheimer's. I am too isolated and that piece makes me…
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Dark thoughts
Daddy is in at home hospice. I've had a really hard time with him over the last week. He's developed another UTI (less than a month since he got out of the hospital from the previous one). I've had to give him morphine for the pain. His last BM was a week ago and he's taking miralax to hopefully get some relief. He hasn't…
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First Post...Feeling Resentful
Hello All, My mom has been living with my family and me for a month. She had been having memory issues for several years, and after my dad's passing last year and the isolation from Covid, we decided she shouldn't be alone. Physically, she is able to care for herself. She was excited at the idea of moving in with us, as…
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Has any one read this book and what are your thoughts? Someone with dementia said it was good.
https://www.amazon.com/Clinic-Alzheimers-Disease-Other-Dementias-ebook/dp/B08KH53VDY/ref=sr_1_3?keywords=mayo+clinic+alzheimers&qid=1636654932&sr=8-3
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Bible Verse to Lift You Up 11/14/21
GOD WATCHES OVER US Psalm 1:6 New King James Version “For the Lord knows the way of the righteous, But the way of the ungodly shall perish.” Psalm 1:6 New International Version “For the Lord watches over the way of the righteous, but the way of the wicked leads to destruction.” * When we who love and obey the Lord walk…
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How to tell LO she is going to live in MC now.
LO is my mom. She was in full renal failure 10 days ago, they got her kidneys stable but the hospital recommended a stay in geriatric psych for medication reset. She’s ready to go home now but she needs memory care. Dad has this provided for her right next to their home. She is going to only want to be with him…but she is…
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Bible Verse to Lift You Up 11/10/21
PEACE OF CHRIST GOD THOUGHT: Colossians 3:15 NIV “Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful.” VICTORY THOUGHT: Deep in my heart is the peace of Jesus. POWER PRAYER: God of Peace, come to me in the craziness of my days. Come into my heart; fill me…
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Moving out of home state / no longer to live alone
I am trying to care for my mom with Alzheimer's. She was diagnosed with Alhzeimer's in May 2021. In August 2021 she was out driving at 1am in her home town (in NY) and got in a car accident. Luckily no one was hurt and her car was totaled so she is no longer driving. The Doctor suspended her license. She was living alone…
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This may help you with bills and financial issues
https://silverbills.com/
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foolish nursing home regulations
I'm sure most of us that have had to explore long term placement for a family member have run up against this rule, but I just have to vent a bit. My beloved in in a very good care facility. The staff are friendly and attentive, and I couldn't ask for better care. The problem persists that 2 ladies, one on either end of…
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Eating issues & stage question
My grandmother was diagnosed with Alzheimers back in August 2017. She has slowly progressed but luckily she has stayed the same over the last year and a half. As of right now she has a VERY short term memory- but is still safe in her apartment (with a lot of visits and help). She is at an interesting in between stage where…
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I wish there was more I could do
Yesterday morning, mom started reaching for the ceiling, saying she saw my grandma. She cried for her mommy, demanded to know why someone (God? Us?) didn't tell her, and said she needed saving. She needed to go. We knew we would get here, and hospice warned us that patients can rally and seem so much better right before…
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Boom
Apparently, stepmother hacked my little brother's email account using a time he had logged in on her computer to help her with something. She had an old link and used it to get all our dropbox notes about our father's strange behavior. The attorney ad litem guy now is refusing to meet with us on Thursday. She accuses me of…
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Alleluia!
Met yesterday with my lawyer, sister and her lawyer. Meeting was cordial and no blow up thank God. We all agreed my dad need a guardian, it will be court appointed 3rd party lawyer and their firm. Also, my mom who been living away from my dad for 7 months, will now join him in an AL apartment senior facility. This is big…
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Damaging false narrative, at a loss
Hi new to this forum. My mom has been having signs of dementia with Alzheimer's for a couple of years. For some reason she has latched on to my son (age 10) as the center of a horrible false narrative. She has in her mind that he hit into her and injured her arm. The best I can tell, the boy ran down the hall and smacked a…
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Brand New to the Dementia World
Hello everyone, My siblings and I are very new to this. Our father is 92 and just in the last two weeks, he started showing signs of severe dementia. We saw some memory loss of course but nothing like what we are seeing now. I live pretty far away from him and last saw him in May. I was impressed and proud that he was…
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Doc recommended hospice for dad, but he's not dying?
Our sweet 87 year old father has dementia, and has been living in Memory Care for 5 years. His psych doctor told us that he is now in the last/end stage of dementia. We were a bit surprised to hear this because he is still very mobile, remembers his family and can feed himself (sloppily). He is however, very confused about…
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Sundowner dementia
Hello I'm new to this and thank anyone in advance who takes the time to respond. It can be quite a frightening experience alone. My mother gets very agitated at night. She's very restless. In and out of bed etc. She take quetiapine to help with agitated state. Does anyone have any trick to help settle their loved one or…
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Surgery at stage 6+ ?
Hi All, My mother is late-stage 6+ and living in a memory care nursing home. She's mostly non-ambulatory and her ability to verbalize / communicate is limited. However, she's communicative with her face, hands, eyes - very loving, kind, connected, sweet. Her physical health is fairly robust - eats well, at good weight,…
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Update on my situation(2)
It’s been 28 days since my last update. ( I checked). Although I’ve replied to others’ posts, I’ve been reticent to post about my situation. It just feels odd to do so. But anyway here’s where we are: Mom has a nurse, a physical therapist and a speech and cognitive therapist visiting her at the AL. A social worker has been…
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
https://www.nap.edu/read/26175/chapter/1
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Hot of the press form the Milken Institute - Scaling Comprehensive Dementia-Care Models.
https://milkeninstitute.org/report/dementia-care-models-scaling-comprehensive