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He's Gone
My dear husband's journey ended Sunday night. I feel empty and sick. I miss him so much. Don't know what else to say except thank you to everyone on this forum. God bless you all.
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Any advice on mom's grandchildren visiting?
My mom's latest change is that she went from repetitively asking questions about her life and family members to no conversations at all. She couldn't remember that the love of her life, her husband, died 15 years ago, so I had been telling her he was on a trip and would return shortly. Now, she reads while we sit together,…
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FYI(10)
https://www.statnews.com/2021/11/29/resident-to-resident-incidents-hidden-source-nursing-home-harm/
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Another wacky day- food games
DH has been sort of playing with his food lately. Picking at it a lot. I’m lucky that his appetite is still good, but he’s having weird ideas about textures and appearance I guess. Here’s some of what’s going on: * He just sprinkled raisins on his scrambled eggs * trying to peel the sausage b4 eating it right now. It’s not…
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End of life....how do you know??
Hello all, My dad is end stage alzheimers. At this point he is sleeping a good 22 1/2 hours per day at least. Sometimes its very difficult to rouse him to eat and his eyes always seemed rolled back. He eats sometimes and drinks. Sometimes it might be nothing more than a teaspoon, but sometimes more. He is non verbal, bed…
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A stage 7 surprise/shock
Background info~ my parents live out of state, mom has Alz. She is stage 7 according to hospice. Dad is 85 and fulltime caregiver. My sister, her husband and I went for Thanksgiving week. We all hoped that mom would be able to join us at the table. I picked out a soft, comfortable outfit. Kind of like a sweat suit, Elastic…
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Father won't eat
My dad has had problems with eating food. I first noticed in August that he wasn't eating very well. He would say everything tastes terrible. Even the foods he was used to eating and liked. He would still eat the snacks he liked so I wasn't too terribly concerned. Since I do his grocery shopping I did notice he was not…
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Better to place sooner or later
Hi. First time poster here. I'm taking care of my 68 year old mother who has Alzheimers. She has lived with us for four years and has had a bad year. Based on the levels I read about, this year she's progressed to somewhere between Level 5-6. She is needing more and more attention and assistance throughout the day and…
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MC or SNF
I’m faced with moving a LO from AS to either MC or SNF. I can’t seem to find anyone to help determine which would be best. Mom is in late stage 5 and personality has changed greatly from the recent move to AS. I’m 225 miles away and need her to be in my city so I can provide day to day care if needed. Thoughts
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Toy that helps keep dad busy - Pop It
Hi everyone. I am new to the forum. My father is 72 and is in stage 4/5. Going on 4 years now. He is physically very fit and besides this disease, in great shape. He is a textbook case, however. Pacing. Antsy. Aggression. Likes car rides. Great days. Horrible days. Some days he knows me. Other days I am a stranger. Isn't a…
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Teepa Snow(2)
I don't remember who suggested the Youtube videos by Teepa Snow, but I have to say thank you! I am learning so much from them. My DH who has been in denial about his mom, really listened to these talks and even mentioned a few things his mom did that she talked about. Small step.........but also a huge step if you have…
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Anyone experienced with dementia AND cancer diagnosis?
New here, so just gonna type: Mom was diagnosed with kidney cancer in March. Like most everyone, this was after an already lonely year of COVID isolation. Her memory had been “slipping” for the past several years, but nothing concerning enough to warrant alarm. However, she ended up spending three windowless, drugged weeks…
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Telling mom(1)
thanks in advance, I recently got my mom diagnosed with Alzheimer's. We knew she had some for of dementia for the past two year. she married a guy a 5 years ago, i don't know him very well at all, but my mom keeps wanting to go home, she is home. /she don't beleive the guy she is with is her husband. Her real Husband is on…
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UTI or the new norm?
My dad is in Memory Care. He has vascular dementia. He is probably stage 5 (of 7) with dementia, plus mobility issues and incontinence. Over the past 10 days, he has declined mentally pretty significantly and for the first time has had a few delusions. The facility suggested it may be a UTI but he has been combative and…
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Placement acceptance
How long did it take you LO to accept placement in a memory care facility? What stage were they at when they were placed?
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What is right decision?
My husband was diagnosed with Alz around 2017. He had been participating in a clinical for just over two years and was holding his own. They stopped the trial and over summer he was having delusions, gettin angry at me and basically had a psychotic break in September which resulted in police bringing him by ambulance to…
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How to cope with COVID MITIGATIONS at nursing homes?
Hi. I hope you all had a good Thanksgiving. Can someone please advise from my topic. Again just need to vent here! Everytime we get a mitigation, I feel cheated of seeing my mom with Alzheimer's. I also fear of spreading the virus or getting the virus. I am my Dad's caretaker. Yes we are all vaccinated but now their is a…
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Placement Guilt
So I placed my Mother. Which totally goes against her wishes. The only way we could have avoided placing her was if I totally gave up my life. And still I don’t know that I could have done enough. So how do I deal with the guilt? I have other sibling - but none of them is in the position to help. So why do I understand for…
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New Walking Group in Cleveland, TN
Hi, My Mom and I have moved to Cleveland and love walking on the Cleveland Greenway. She was recently diagnosed with Alzheimer's and we thought it would be fun to meet up with others in the same situation who also enjoy exercising through walking. As she said, "we can reintroduce ourselves at every walk". We hope others…
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Home modifications
I am thinking of making some modifications to my house, to better accommodate DH's increasing problems with mobility. My goal is to keep DH home and safe for as long as possible. Since mobility is our biggest challenge I'm thinking of adding an attached garage with a wheelchair lift inside. (A wheelchair ramp will not…
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Trust issues
My mother in law (early into mid stages) is having trouble trusting her husband when it comes to taking medications, wants to argue, can’t remember already taking or then won’t take. Tried digital timed dispenser but she won’t go by it either. She still knows quite a bit and all of us, but gets agitated more easily and…
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Problem with Rash in his Private Parts
For months I have been battling a rash in and around hubby's groin area. I started out using a zinc oxide cream and the rash would come and go but it finally go to the point that it was almost raw it was so bad. I took him to the doctor and she said it was a fungal infection / jock itch. She prescribed Nystatin cream and…
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Stimulating appetite when there is no interest in food
Thanks again to everyone who supported us in moving Dad from Vegas to NY. I actually made it home for 3 weeks before Dad had another stroke and went into hospital. He was there for 6 weeks with multiple illnesses, and made it to rehab last week. He was COVID+ for 3 weeks in hospital and it drastically reduced his appetite.…
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It is getting weird/nasty
My sister and I finally made the decison to move my mom to memory care. My sister has power of attorney for finances. Finances shouldn't be a problem (she had a nest egg). Here is the weird part, my stepbrother has power of attorney for medical issues and my uncle is the excutor of my mother's will, the two have been in…
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Bible Verse to Lift You Up 12/4/21
CONFIDENT GROWTH GOD THOUGHT: Philippians 1:4-6 NIV “In all my prayers for all of you, I always pray with joy because of your partnership in the gospel from the first day until now, being confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus.” VICTORY THOUGHT:…
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Shadowing... does it end or abate at some point?
This isn't a very thankful message, but here goes nothing - it is driving me bonkers having him all up in my business every waking moment, wanting to know what I'm doing, and can he help me? (No, he can't even figure out how to eat ice cream, so how is he going to help me finish my proposal for work?) Short of medicating…
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Family not all on board
Placing a LO in a care facility is not easy (pray for me tomorrow is the day). As many of you that have so kindly supported me thru our family’s tribulations know, I have not always known when to say when. It has been a struggle. My mom’s full time companion (my sister) broke her hip. But is recovering well. That said,…
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Looking for response suggestions
Evening folks, My mom recently moved to AL and will say she doesn’t know where she is and not sure what she’s supposed to be doing. I wanted to see if there were any suggestions to help ease her mind and be more relaxed. I’ve tried a few answers and she’ll nod ok but it doesn’t satisfy her very much. Thanks
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Not sleeping a night
I moved my parents to live with me since my mom has stage four cancer and she was taking care of my dad with Alzheimer’s alone. We have been trying different things to get him to sleep at night with no avail. If any one has any thoughts or ideas that work please advise . Thanks
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When this person speaks, they all listen
https://thehill.com/blogs/congress-blog/politics/583572-how-to-improve-care-for-people-living-with-dementia?rl=1