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Voice change
I’ve read about LO’s voices changing. It’s happened here. Her voice has gone up and is a constant whining. All day. Think of the worst toddler tantrum you can remember. She’s almost nonverbal. She can say Hi. We say hi to each other in and endless loop. She understands little, can’t answer yes/no questions, is not happy,…
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Daddy is in stage 7b
Daddy came home today to inhome hospice. The nurse came out shortly after the transport ambulance left and gave him the initial home assessment. Before he passed out at home 2 weeks ago he was able to move around on his own a little. Now that he's been in the hospital for 2 weeks he is bedridden and can't feed himself. He…
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Quick Vent
I know my mom is in the worst possible position, one that I wouldn't wish on my worst enemy. Right now, I'm just frustrated that I will always be the bad guy. I'm the only child, she's divorced. It's just me. Doing everything I can to make her life as good as it can be. And she will always be suspicious of me, and will…
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Sort of a caregiver - feeling lost
Hi everyone, and thank you for providing a space for support and commiseration. My situation is that my Mother in Law was diagnosed with AD several years ago, and managed to live independently with weekly visits from my husband until this year. Our plan had been to place her in AL, but now there are concerns about funding…
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Family support has dwindled.
I need to tell my story. My LO is in the final stage of EO. We were very lucky to have found a residential home where he is staying now, after a horrifying experience during the Covid-19 lockdown. I am not the person making decisions for him, but his wife listens and certainly loves him. The family has now fallen apart.…
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Excessive sleeping and difficulty walking
I'm new to this forum. My mom has vascular dementia, was diagnosed over 10 years ago. lately she sleeps excessively, sleeps on one side all night and has difficulty walking. she even sleeps while eating, in shower etc. it's dangerous and very difficult figuring out what to do, Does anyone have experience with this? thanks
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Ideas to help loved one stay mentally stimulated
I apologize for the length of this, but it's my first post so I want to give a little back info... My father (diagnosed this month) has always been a "techie" using his phone to order household supplies /equipment. He started ordering things like a whole security system (already had one) and other expensive items. He was…
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AL vs. MC When to know the difference
My father is 93 in at mid stage dementia. He is quite physically capable and still has decent memory. He does not wonder (yet), but lives alone in our 60+ year old house (super stubborn to leave). He can no safely drive and that is his major bitch, no independence. He periodically get nasty tempered and can be down right…
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Seeing Mom for first time in years
I will be visiting my mom for the first time in 2 years next week. She lives in MC, and due to the pandemic, we have not traveled to see her until now. During that time, she has declined significantly. She's probably stage 6 on the 7-stage scale--she's incontinent and is very difficult to converse with. When I call her,…
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Looking for guidance(5)
My Mother has dementia. My sister promised my father on his deathbed that she'd make sure mom was taken care of. At the time sis lived across the Country from our mom. But then Sis's situation changed and she retired before she planned. She was set up okay where she was. But she decided that it was time, so she sold…
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best route to take as caregiver
My mom has mild cognitive impairment; she has trouble with her short term memory however with some prompting she does remember. Her Nuero-psychologist mentioned some things for her to do to help avoid decline such as mental and physical exercises, social activities and change in diet. That being said I have recently…
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Bible Verse to Lift You Up 10/17/21
Virtue for both MEN AND WOMEN * Proverbs 31:15 New King James Version * “She also rises while it is yet night…” * Joyce Meyer, in her book THE CONFIDENT WOMAN suggests we would do well to get up early, pray, and make a plan for the day. She writes, "This is so important because I don’t believe we should be vague and…
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The Gloria has landed!
Hello all, I spent September roaming around the U.S. meeting in-person the virtual caregiver friends I've made throughout Mom's dementia. Then I filmed it. I filmed the crap out of it. Now I'm onto the post-production side of the upcoming documentary Wine, Women, and Dementia - which for me is the most exciting part. In…
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New here(50)
I need to vent so please bear with me..June of this year my husband and I agreed I would care for a friend's mother (101yrs old) Was not told she had dementia, friend ( her son) told me she was confused from being in a care facility during covid lockdown. She was removed from facility and brought back home. I moved in. I…
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Shxt storm, marathon ER visit, a fall and hospice
[Posting in 2 forums] I haven't posted in the last week or so because it has been absolute chaos here. 1. Spent 7 hours in the ER last week on Friday but at least we got the horrible balanitis under control. 2. Then, diarrhea set in (maybe antibiotic side effect?) and triggered bowel incontinence like I can't even explain.…
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Dealing with ridicule
Hello, My husband is quick to anger and yell at me, sometimes for doing the things he told me to do. Other times it may be in a conversation and he is talking in circles but says I am. I am having trouble emotionally coping with the ridicule. Deep breaths help and reframing my perspective that he can't help it helps but I…
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At The End.....Are We Doing Enough?
I would like to hear from others on how your LO approached the end of their journey with this terrible disease? My mother is 78 and three days ago her hospice nurse admitted her to the hospice inpatient care center. Mom was choking severely and has not been able to eat or drink without choking for several months now. Mom…
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Cobalt hip replacements associated with dementia
I recently watched a documentary that talked about neurological effects associated with cobalt hip replacements that cause dementia symptoms. The film was generally about surgical devises that probably should never have been on the market...a real eye opener. Cobalt levels in these people’s blood is way above normal + when…
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Zoom Memorial Service
Hi friends. As some of you may remember, I lost my mom on her 87th birthday on August 1, 2021. While I know that you don’t know me personally or my mom, I would like to extend an invitation to any who might be interested, in joining us for my mom’s Zoom Memorial on this Sat. Oct. 16, 2021. I know that some of you may soon…
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Dealing with ridicule(1)
Hello, My husband is showing signs of dementia. He ridicules me for things that I di but he actually did, or for things that I did he told me to do. I take a sigh quietly and reframe my perspective thinking he can't help it but I am still having trouble emotionally being ridiculed. I would appreciated any other ideas.…
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Spouse diagnose with ALZ and VD
My husband has been diagnose with ALZ for several years then with more testing he was diagnose with VD. He got the double whammy. I would like to talk to people who spouse has the same diagnose. Right now my husband has more short term memory loss then long term, and most of the day it is a repeat of the last 10 minutes to…
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Untreated diarrhea ImpactionDepression MalnutritionUrine Burns
Hello, I am not a doctor but have a question about IAD. Is this considered neglect. My LO had a rash on her buttocks. Any advice on what to do in this situation would be great. Thanks
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My mom hangs up on me
This has been a very difficult journey watching my very strong 85 year old mother experience anxiety, become paranoid and hear and see things that aren’t there. She was living alone and is now safe in a long term care facility but when I call she hangs up on me. It really hurts my feelings. When I visit with her she will…
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Can delusions/hallucinations/paranoia stop
Hi all, I have read many posts and find comfort in them. I haven’t posted myself in quite some time. My mom has not been formally diagnosed, but we have noticed some cognitive decline. A little short term memory issues. Some trouble in making large meals with all the steps involved. But for the most part she is still able…
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Looking for doctor resources
We are in the north DFW Plano/Allen/McKinney area and are trying to find a new primary care (after a great one retired) and neurologist to help us with treatments and medications. The ones we found so far do not have much experience with Alz/Dem or they don't take the secondary insurance we are using. One red flag was when…
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In home hospice
Daddy passed out early Friday morning and I had to call an ambulance to take him to the hospital. Turned out he was very dehydrated again even though I had been pushing liquids toward him every hour he would be awake. The dehydration led to a UTI and his blood pressure dropped and they suspect he had another stroke, mild…
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I don't know what to do.(1)
My mother has had a personality change and her short term memory is almost non existent anymore. My Dad, brother and I tried about 4 years ago to approach her about her memory possibly seeking help when we noticed it and she went off angrier on us than I can ever remember in my life. So, it just became something we all…
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Antipsychotic meds (Seroquel)
My ADLO (Mom) takes multiple meds (Citalopram, Memantine, Donepezil), some for many years. She is in her middle stages and her confusion, aggitation, anger and aggressive verbal behavior with AL staff and family is growing. Her PCP wants to begin Mom on Seroquel 25mg @ night, with another 25mg available daily. As I read…
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You CAN Still Smile
So on Monday I posted about my anxiety because my son was taking me to my first Ravens football game that night for my birthday and I felt so guilty about going. Thank you to all that responded and encouraged me to go. After having my breakdown and seeing that my husband was having a fairly decent I went to the game. It…
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Bible Verse to Lift You Up 10/13/21
A GOOD NAME GOD THOUGHT: Proverbs 3:3-4 NIV “Let love and faithfulness never leave you; bind them around your neck, write them on the tablet of your heart. Then you will win favor and a good name in the sight of God and man.” * VICTORY GOAL: When I am faithful and loving to those in my life, I win God’s favor. * POWER…