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I hope this is not a restricted topic - purpose
My therapist says I need to define a purpose in my life. I understand my purpose is to take care of the woman I love or once loved - I hate to admit that I'm not sure which. But,....does what I want ever count, which is to not exist?
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Head on chest
this might seem like a frivolous post. I believe that my brother is well into stage 6 of alzheimers. He show alot of the symptoms. my LO was a practicing attorney. He is very intelligent and narcissistic. He, too, went into the hospital because of covid, and came out having been diagnosed with dementia.he does not eat…
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How much do I tell my LO?
Last month my DH read the report from the 3-hour memory/neurology testing people that said he has Alzheimer's. He heard it from the neurologist/memory doctor a couple of weeks later. A week or so after that I used the word Alzheimer's, and he said, "Wait, what about that? Tell me." I did tell him, but then he forgot. He…
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Bible Verse to Lift You Up 2/6/23
Have faith! GOD HAS SUPER PLANS FOR US Jeremiah 29:11 New International Version For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." HAVE FAITH! THE HOLY SPIRIT GUIDES US. John 16:13 New International Version "But when he, the Spirit of…
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When aging LO is also your boss
I can likely write a thesis of the issues this is currently causing, but the short of it is my LO and I have worked together at our family company for over 20 years. LO founded it and has always very much taken the lime light as this is their personality. On the other hand, I am fine with just making a positive impact in…
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Moving parents
Hi - I think I have only posted here once before. I'm looking for some input or if anyone might share their experiences in supporting older parents in a move to a new location. In my situation, I have one parent with Alz Disease. The other is the primary caregiver with me increasingly playing a support role. Parent with…
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Moving Mom(8)
I am looking for somewhere to put mom in a new place. Running out of money and am looking for a state run facility that will take her social security as payment. Her Social Security check is too much for her to receive Medicaid. She doesn't have enough to continue where she is at. Where she is in West Hartford CT is…
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X-Border Caregiving?
Hello Everyone. I’m having a tough time wrapping my mind around the realities and implications of what my soon-to-be 75-year mom and all of us would be going through with her Dementia. As a younger lady, and even after my dad passed (almost 12 years ago), my mom has always been independent and bold. And she expects…
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clutter cleaning
I am a caregiver for my parents. My mother has alzheimers really bad and she will be moved to a home, as is common with the disease she became a mini hoarder and amassed tons of clutter. Any idea of possible clutter cleaning and sorting in the northeast ohio area? Please Advise thank you
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Finding it hard keep quiet; tears & anger
My mother, in Assisted Living since November called me today- she told me how good she had been to me as far as babysitting my children. I’m 57. My youngest child is 28. She threw this in my face because I “put” her in AL. She was having delusions, paranoia, hallucinations. Truth is- she did babysit for me at times. I had…
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How are facilities supposed to handle patients with aggressive and agitation
My brother is in an assisted living that has staff trained in Dementia. He has dementia but don't know what kind. He has been there for 5 months but in the last 2 months he seems to get agitated and aggressive and has had some incidents. We and the facility have brought in the Drs. to see if there is some medication that…
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Last stages(1)
Our LO is deteriorating rapidly. Has became bedridden in the last week, and talks incoherently when she does speak. She is barley eating and seems to be in pain. I saw somewhere there was a good video on YouTube to watch but cannot find it now. Does anyone have any advice on how to handle this phase or remember the name of…
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I was not yelling dammit. Just frustrated.
Today I am sad, frustrated and angry. At her doctors & the "let's get her an appt. in neurology- how about in April?" lackadaisical attitude, at her husband and at myself. It was not a good day trying to help her - with the computer - again. And other things. Sigh. I walked out. It's almost 24 hours later and I haven't…
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Dementia family caregiver documentary-1st official trailer!
We've got our first official trailer for the upcoming dementia family caregiver docuemtnary "Wine, Women, and Dementia." We're still going through the sound design and professional color, but this first trailer givers you a taste of the film to come. I hope you enjoy it! YouTube link:…
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AL or MC
What made you choose one over the other? We've been visiting AL facilities and MC places and one day think she'd do better in AL and the next day we think MC. She's in that in between stage of dementia. The MC places in our area we've visited house people who are pretty impacted by dementia. My mom can still get herself…
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Feeling Alone(7)
Hi everyone! I’m new to this forum. I’m an only child and cared for my Dad for 4 years (with my Mom and her partner’s help). Dad was diagnosed when he was 59 with vascular dementia. He is now 68 years old and lives in long term care. We reside in Canada. I’ve been feeling anxious and depressed, despite medication and my…
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Another setback
DH has been in memory care since mid August 2022. He has fallen many times,had some seizure like events and many other problems.We live in NC and the intestinal flu has been rampant. Sure enough he got it and along with it, severe diarrhea and vomiting. Several of the med techs and aides got it and....I got it a few days…
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Understanding what they are thinking
My sister is approaching the mid-stage of her disease, which hasn't been formally diagnosed since she refused to pursue a diagnosis. She was tested by her physician for memory loss, and failed abysmally. We've noticed her increased confusion that has accelerated quite a bit recently. She's begun to display behavior that…
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Looking for Resources as Well as Other to Talk To
I am son who has always been a 'momma's boy'. For the last three years I've witnessed my mother going through Dementia. My sister is her primary caregiver in another state. I've visited to assist with my mother's care as well as cared for her briefly under my own roof. Not only is her suffering breaking my heart, but it…
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current cell phone use thoughts
My brother uses his cell phone alot. Since he was a practicing attorney, phone use was very important. But now, since he is kind of stuck at his home,he uses his cell all of thr time….for entertainment ? to keep from getting bored ? to keep in touch with friends and family… there is a safety component too.. what are people…
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sudden decline(1)
Can someone with moderate-severe Alz suddenly go from reasonably cooperative to lashing out, getting in fights, and refusing to eat or take medicine? I'm accustomed to the steady decline of Alz, but this week it's like she fell off a cliff. She had to be taken to the ER on Friday and was admitted to the hospital over the…
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(For you) Alzheimer’s is…
In September of 2020, a post asked us to complete the sentence, “Alzheimer’s is…” At the time, my response was, “knowing that, if I can’t find it, it’s probably in her purse.” What a difference 2 years have made. She no longer has a purse. At the time, I had a 5-foot tall 5-year-old; now I have a 5-foot tall 3-year-old, in…
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Anxiety behaviors and meds
Hello, I have been lurking for 6 months ,just now posted our story.The forum is comforting, enlightening and therapeutic. My alz. Wife is always active moving items everywhere, walking all around the house tampering with everything,wanting to go outside, get out of here or for me to entertain her. Would this be considered…
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How to organize myself around a disorganized LO?
I am a person who obsessively plans (A, backup B, redundant C, etc) so please bear with me if I ramble. I am currently paralyzed with paths, figuring out the starting line, and am turning a blind eye to the end goal. None of which makes for the start of a good plan. Working backwards: Most recently my mother (nearly 80)…
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Talking to doctor about food and fluids intake?
Hello. To those who have in-home care for a loved one- How did your family deal with the changes in your LO when they stopped communicating needs for food and fluids?
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Called a hospice place
Hello. Some background: we've been caring for our LO in our home as her disease has progressed Her disease has dramatically progressed since last August. She no longer moves on her own unless prompted. She cannot walk because she has no balance and does not have the muscle strength. She has incontinence daily. She cannot…
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Assisted Living Transition Best Practices
Hello, My mother-in-law has cognitive impairment, most likely Vascular Dementia due to other illnesses. She has been on hospice care since March of last year and we have kept her in her home as long as possible with care givers. Due to her safety risk, her main care giver leaving the agency we were using, and a financial…
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How to bring up Power of Attorney
Happy Sunday fellow caregivers. All still going well for mom at MC/AL and it’s a relief. She’s happy, facility has taken on med management; and we even have an appt with a primary care physician. Lots of others with Alzheimer’s/dementia there and families. It’s a huge relief. Next hurdle was getting her spending and I…
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not comfortable with fentanyl for hubby
Hospice started him on it two days ago , a patch. He has not even been on morphine daily, just occasionally as needed. I am supposed to remove the patch tomorrow and put a new one on. From what I read even getting a small amount on someone who has never had an opiod can lead to death. Anyone freaked out by this med? Would…
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Pantry proof your house
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