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Life Alert type device recommendation?
Hi everyone, My Mom was diagnosed with Lewy Body Disorder a few months ago. For many years, she has had issues with walking and used a walker. At this point she is doing pretty well, but living completely alone is no longer an option so she will be moving in with me in the next few weeks. I am wondering if I should…
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Can't give up(1)
My first post here was titled Can't Give Up and with the help and advice from the kind people here, I hadn't. I learned more about this disease and took on the battles it threw at me. There are so many awful truths in this fight. Though I can't give up, sooner or later, I will have to. And that day was this last Friday. I…
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Bible Verse to Lift You Up 1/9/23
NO MATER WHERE WE ARE, earnest, honest prayer is heard by God. CAREGIVERS, take good care of yourselves. Hugs, Ronnie (VKB) Psalm 100 AMP A Psalm of Thanksgiving. Shout joyfully to the Lord, all the earth. 2 Serve the Lord with gladness and delight; Come before His presence with joyful singing. 3 Know and fully recognize…
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2022 National Strategy to Support Family Caregivers
https://acl.gov/CaregiverStrategy https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf
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A clock winding down
Last week Tuesday my mother turned 89. Each day she seems a little more weak. She still gets up and dresses herself, eats her toast and drinks her coffee. She appears exhausted from getting dressed. She goes after breakfast and sits in her rocking chair and falls asleep. Sometimes she just sits and stares. On the rare…
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Is there a database of canned answers to LO questions?
Does anyone know of a database/website/article of literal answers to questions that our LOs ask? Sometimes I just can't do the mental/verbal acrobatics to come up with new stuff on the fly and it would nice to just grab a list of canned answers. I'm sure I could search the forums and pull out lines that other people use…
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VENT: Balancing my wants and their needs
Yesterday, I learned, from my mother's caregiver, that my mom fell in her bathroom at home on Thursday. The caregiver states that my mom appears physically okay but that both my parents are rattled. I further learned from the caregiver that my dad is considering placing my mom in a facility out of state. My dad told the…
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A couple of thoughts
On Regret “How to hold regret tenderly: I wish I would have done that differently, and, at the time, I couldn’t” ~ Syanna Wand On Selfishness Not sure how many times I either said to myself or asked myself while caring for mom… am I being selfish?…was that selfish?…I’m just being selfish… I see fellow caregivers here…
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Moved in to MC, showtiming
Hi again to the group. My mom was staying with my sister and me for the few weeks between her Independent Living Apartment (which she was unable to stay in due to continually wandering/getting lost/unable to do many ADLs). During that time, she was really bad, seemed to be always in distress, pacing a ton, moving things…
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Should Distance/Elderly Aunts/Uncle Matter In Decision Making?
I am living a nightmare trying to appease every whim/wish of my 91 yr old mom with dementia (stay in the community, etc.) while listening to her elderly siblings who live afar. The only support I receive is from local resources via state/federal programs. Aunts and Uncle only provide phone support to mom (lip service) and…
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Dealing with angry resistance
First time posting. I am the daughter and POA for my elderly mother. She was diagnosed with mild cognitive decline almost a year ago, but has been displaying more troubling behavior over the past several months. In looking at the stage descriptions, I'd say she has progressed to Stage 4. Mom still lives independently,…
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30 page Alzheimers paper
Somewhere in here, I was reading a 30 page paper on Alzheimers. I found it to be very informative and very interesting. Does anybodyknow what paper i am talking about, and where i can find it.
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Missing Mom and I have Covid
Hi Y'all, My Mom lives about 20 minutes away in a small residential memory foster home. And, I have a bad case of Covid. Of course, I'm staying away and keeping her safe. I'm just really, perhaps jealous, of losing this time with her. She's very late stage, and we have Hospice care involved. They're all wonderful. Just…
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thinks she’s coming home…help
New Year’s Day my mother chewed me out for putting her in Assisted Living. Today, she has been telling her friend/sitter that I talked to the lady that owns the place and told her (the mystery lady)that she was going home in a few weeks. I don’t know if she pieced this together from something I said, or someone else said,…
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Geriatric psych hosp direct to SNF longterm care...
After 15 months of 24/7 care in my home, LO has been in geriatric psychiatric hospital/section for 4 weeks because of altered mental status, via ER. (She suddenly started becoming agitated, beligerent, and exit seeking. Imposter syndrome. Completely separated from reality; not even aware of the type of place she is in --…
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Caregiver journey map
https://www.caregiving.org/wp-content/uploads/2020/05/Journey-Map_Book_v1.3.pdf
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Caregiver who is without family resources
Is there anyone else out there who is caring for a dear one (husband in my case) who is in a situation without close friends or any family to help. I get so depressed and am concerned about my ability to figure everything out and keep going myself. My husband and I were unable to have children and we are both only…
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Need some advice.
Looking for some advice, my mother has dementia and I have been trying to get her services for the better part of the year. I have done eight fair hearings so fair with professional help unfortunately her total allotted care is maxed out at 22.3 hour for the week. I have been as her condition progresses I can try again to…
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I feel
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For what it is worth...
For the past 2 years of caregiving my LO -- remotely and in my home 24/7 -- I tried to establish a 'signature' for her. By that I mean, something unique to connect us -- something that hopefully would remind her that I was a friendly. A secret handshake, if you will. Signature: My LO takes a drug called Olmesartan, for…
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How to overcome the frustration?
I take care of my mom who is in the middle stage of Alzheimers, she is not violent, on the contrary, she can says THANK YOU for every single thing around 30 times. I get very frustrated when she makes the same comment (about how beautiful is the day, how early or late it is, ask where is my husband when he has been ALL DAY…
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I want to go home(2)
my wife and I are caretakers for my 80 year old brother who I think is in stage 6 alzheimers. One thing he asks me is that he wants to go home. I think that he means the house he built here in the middle of Alaska. He insists that the house we all live in is not his home. Does he really want to go home to where he grew up…
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Down Syndrome, Alzheimer's Disease and Drug Trials
Stunningly; 90% of people with Down Syndrome will develop Alzheimer's Disease, much of the onset being in their 40's and 50's. Considering the recent disagreement re drug approval, this is an informative link, and in some aspects, heartbreaking. Well worth reading the entire article:…
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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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Question concerning POA
Hi, I'm hoping for some help? My DH was diagnosed in July with Alzheimer's. Doctor told me I needed to get a durable POA. At first I had thought of just getting forms on line, and filling out and then having them witnessed and notorized. However, I m afraid my husband cannot even communicate reasonable enough for notary to…
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Child of someone with Alzheimer’s
Hi everyone. My 80-year old mom was diagnosed with Alzheimer’s a few years ago. She is doing well mostly, just repeats herself a lot and her short term memory is going. Long/term memory is okay. My dad (also 80) is her primary caregiver but all of my siblings and I frequently visit and prepare/cook meals, clean, run…
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Need Microwave recommendations
My mother is stage 5 dementia. She is starting to struggle with the microwave, with over cooking items. I've read in articles there are microwaves specifically for the elderly and dementia patients, that feature a shut-off sensor if foreign objects are placed in the microwave or if something is overcooking. However, I…
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Activities for PWD and visual impairments
Hi, this is my first time writing. My mom is in MS dementia I think (we do not have an official diagnosis). She also has severe visual perceptual impairment (which we thought was from a car accident years ago but is consistently getting worse). We have been through a lot of therapy for this and going back is not an option…
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Got the POA (Thank You Jesus!) Now what?
I haven't been online recently, but things have been going on. Got POA signed by the grace of God and a very kind and understanding attorney. Spoke with bank, but they won't allow me to put any kind of limit on her cash withdrawals. They cancelled her debit card because she was a risk to them due to many "suspicious…
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Narcissism, Intelligence, and Alzheimers
My LO has all of these issues. After 4 months, he is being very difficult to deal with. He is extremely intelligent and very narcissistic. He still can reason a bit, and seems to know whenwe are telling him fiblets. Has anybody dealt with this insane cocktail of issues. How did you deal with this ?