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sometimes refusing to sit on the toilet or chair
This morning my DW, after getting out of bed, refused to sit on the toilet. This is not the first time this has happened. She has also refused to sit down on chairs and couch. This morning she also refused to take down her pants or underpants. Sometimes she has asked me to help her. This morning she was also experiencing…
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Caregiver Depression(2)
Has anyone else experienced this? I have been living with my mom for 1.5 years and it has definitely taken a toll on my mental health. I have lost 20 lbs and my hair is falling out. My mother is in constant need of companionship. I spend a lot of time driving her around because she does not like to be in her apartment. She…
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Lawyer appointment - successful
I met with a lawyer this morning regarding my sister's mismanagement of our mother's money. She is guilty of embezzlement and conversion. The remedy has to occur in stages. First the lawyer is going to send her a letter and suggest a payment plan, if she resists then we move in another direction. Also we, the other…
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Minor Ventilation
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How to get out of town family to understand what's going on....
My mom was officially diagnosed with ALZ in December, but she's been having symptoms for a couple of years now. She moved to Indiana to be closer to us about 3 years ago. My brother, who lives near where she used to live, shipped her off to us because he can't deal with her. So we've been caring for her, a little to begin…
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Latest interview
Our latest interview with you for “Exploring Different Brains" is now released and viewable on our site differentbrains.org, and the podcast version and transcription are both available on the same page as the video. The podcast version is also available on: Apple Podcasts | Stitcher | SoundCloud The direct link to the 26…
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This Disease is So Strange
My 90 year old ADLO has been living with me for over three years now. The disease has definitely progressed over time but until now, she has had some level of cognitive ability and enough strength to perform normal daily functions (eating, sitting walking with assistance, going to the bathroom on her own, etc.) . Her…
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Anyone ever experience Hospitals do not feed advanced dementia patients?
I recently found out that Stonybrook University Hospital did not want to feed my mom but wanted to keep her hospitalized for a week claiming they were waiting for her UTI test results?
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Bible Verse to Lift You Up 1/30/23
WE PRAY FOR OTHERS Ephesians 1:15-23 New Living Translation Paul’s Prayer for Spiritual Wisdom “15 Ever since I first heard of your strong faith in the Lord Jesus and your love for God’s people everywhere, 16 I have not stopped thanking God for you. I pray for you constantly, 17 asking God, the glorious Father of our Lord…
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Help with talking to the doctor
Both Mom (84) and Dad (87) have dementia, Mom has been diagnosed with Alzheimer's, Dad is undiagnosed but is showing signs of dementia. Last year they chose to move into an assisted living facility, mainly because Dad could no longer help care for Mom. Both of them have become increasing paranoid and are making up lots of…
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Is there a procedure to apply for Medicaid, Guardianship on my own?
I may not be able to pay the continued retainer for a CELA and may have to be forced to re-evaluate my options for handling my demented loved one who is suddenly entering late stages of dementia.
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New caregiver looking for advice
Our neighbor was diagnosed with early/moderate Alzheimer's in March 2022. She has no one to help her except myself and three other neighbors. I have become her primary caregiver this past summer. She is living by herself but we help her with meds/doctor appts, finances, groceries etc. I am trying to educate myself as…
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My frail neighbor
I am writing regarding my 90 year old frail neighbor who does not have dementia. She is a cardiac patient and is mostly homebound, she is also legally blind. Last week she fell in the shower. I told her to call her HMO and tell them that she needed home physical therapy for balance. This would enable her to have a nurse…
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Need to vent(3)
Hello I am new here. Need to vent about my situation My Dad was my Moms primary caregiver but he denied she had any type of dementia. He was 87my Mom just turned 88. My Dad ended up in the hospital for 3 weeks and never made it out and passed on Sept 4th 2022. I took care of my Mommy myself while he was in hospital and…
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Caregiver Looking for Advice
My soon to be 80 year old mom has early to mid Alzheimer's. She also has macular degeneration which has rendered her legally blind. I am her only caregiver. She has severe depression and anxiety from events in her life and now declining health. She has a hard time accepting what she can no longer do or remember. One of our…
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A thread from the spouse and partner forum
I posted this a few days ago over there. But I think people should know about the possibilities. It's worth reading. https://neurosciencenews.com/bvftd-brain-sagging-22351/
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Ventilation
Venting again. There is no battling this disease. No one knows or no one cares. There is no getting better. There is no cure and there isn't even an understanding on how to maintain it. We're all the hopeful idiots. Hoping for normalcy. Little glimpse of what was. But it's gone. If it isn't yet, it will be soon. My mom is…
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Adaptive clothing w/stoma
Hello. Has anyone seen adaptive clothing that has the ability to access a stoma bag for changing and emptying? My father is late stage Alzheimer’s and also has a stoma bag. It’s been very difficult managing both but having him wear a one-piece outfit that has a zippered or buttoned option in the front to access the bag as…
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VENT - Sharing the Caring
Greetings all. I'm feeling resentful and this is a VENT. My Dear Mother (83yo) has moderate dementia. My Dear Father (85yo) is her primary caregiver. I believe I have earned my caregiving badge in the trenches by caring for my EOAD DH until his death in April 2022. I know a little bit about caregiving, although I am not a…
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Alzheimer's or other dementia?
I brought my 94 year old mother who has many dementia symptoms to her first neurologist appointment yesterday. Her primary care doctor had acknowledged the dementia but had not felt the need for another doctor. However, because she has become noncompliant with her medications, her absence seizures are surfacing and I…
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DIAPERS- new name PLEASE
PLEASE PLEASE START A MOVEMENT TO STOP CALLING ADULT INCONTINENT UNDERWEAR DIAPERS. Many of our afflicted loved ones HEAR AND UNDERSTAND THE IMPLICATIONS OF THIS WORD, AND IT HURTS THEM. It is degrading. It reinforces to them that they are losing their status as adults. I have to remind aides to stop, and they often do…
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Sling for commode use - hole or U?
My SO can't stand up anymore so I can't transfer him to the commode by myself. Will start to use the lift but can't decide what kind of sling to buy: the one with a hole or the U-shaped? I've been reading Amazon reviews and it seems people can fall through the ones with the hole, while the U-shaped ones are pricier and…
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Teenagers…
I’m just curious if there are others out there in a similar situation. I’ve got teenagers and am their daytime caregiver to my mom. All 4 are challenging and needy.
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unsure if something I did backfired...
My mother has been in AL since early November (against her will, I might add) but she had begun having delusions and seemingly hallucinations. My father died last February at the age of 94. I threw a small funeral together hastily, there were not many people in attendance due to Covid, and he simply had no other relatives…
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Difficult Behavior(3)
Recently my 101 year old dad with dimension was admitted to the hospital with a UTI. He was released after 8 days to a short term rehab center to get his strength back. During this short hospital stay he lost the ability to walk and his mental state is worse. Now he will at times spit out his pills, he sometimes tries to…
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Hospice and Medicare Advantage
Recently my mom was sent to the emergency room. The insurance company refused to pay the claim because she is under hospice care. Medicare also refuses to pay so the bills are coming back to her. When you go into hospice care does that mean you lose all your other benefits?
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Internet scammer targeted my mother
I'm hoping someone has some suggestion on how to handle this situation. About a month ago, my mother somehow began texting with a scammer. I deleted everything on her phone to do with this guy. And I immediately bought the full Norton Lifelock service. Today she emailed an address he had given her. I didn't know that she…
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Showers(2)
My mother and father-in-law both have a form of dementia. They both are at different levels of progression and tend to rub off on each other. They do not shower as often as they should. My mother-in-law does not accept her diagnosis and thinks she is perfectly fine. She is not approachable with a lot of things. My…
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Worried about mum
Hi, I’m in the UK but seeking help anywhere I can get it. My mum has started forgetting certain things. For example she moved a load of stuff to a seat in the house but then 30 mins later she swore blind she didn’t do it and it was already like that. There have been 3 or 4 of these episodes on different things. She also…
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demands to leave facility
Last time I posted here, my wife (moderate-to-severe Alz) was living at home and I was the 24/7 caregiver. Doctors, friends, and relatives all urged me to find a good residential facility that could take care of her properly and let me recover. Until recently she's been doing well there, but lately she insists that she…