-
FYI(13)
https://www.nia.nih.gov/sites/default/files/2022-11/2022_nih_progress_report_ad-adrd_research_1.pdf
-
Moms “man-friend”
My 82 yo mom was recently diagnosed with mci. But the drs and I believed then there was more to it. Mom wasn’t taking her medication correctly so we have corrected that now. I have no doubt we will get the official diagnosis on next visit and believe it’s much farther advanced . My mom has a man friend, and since I had to…
-
Fear of physical harm
Hello all. My mom is the primary caregiver of my step dad with Alzheimer’s. He had a heart attack on Halloween and had three stints placed. He was brought home this past Sunday. While he was in the hospital he became very violent several times and was restrained most of the time he was there. Now that he is home the…
-
How could Hell be any worse.... Venting
First of all, to all you caring for a loved one who's suffering from this disease.... you're suffering from it too. This is Hell. And it's only getting worse. Sometimes she so sweet and we share laughs during the day and I think she's still in there somewhere... then something will happen, or she'll say something and who…
-
New to here : Wishing all of you (and your loved ones) the best
Hi everyone, My FIL (father in law) has dementia. I believe it is VD, if i recall. Sadly, he has been violent for the past 1-1.5 years with my MIL. She is the primary caregiver and both are not working. Is there a FAQ or section where I can quickly read up on that relates to: - where is the "best" memory care facilities…
-
Prescriptions
My DH is at the beginning of stage 5. My work open enrollment for FSA card is coming up. What’s the average monthly cost I could expect for prescriptions for him. Seraqol, Zoloft, etc
-
Vent -bad morning, fixation on dad's junk and fictitious woman
Mom won't sit down, can't focus on anything and is super stressed out about everything. She keeps trying to fix Dad's piles of junk and stuff which is stressing me out because he gets so angry when his things are moved. His stuff is just everywhere. I hate it. Everything I see says homes with those with dementia should be…
-
Being a caregiver(1)
Greetings to all of you fine caregivers! I know I'm probably not alone in this one but it's been on my mind. I have taken care of and most recently become mainly the manager of my Mom's care. She is 96 and lives in a house across the driveway from my husband and I. Her care has been my main focus for the past 5 years. I am…
-
getting help when it is not wanted
So I've been caring for both of my parents (dad- Alz and Dementia) and (mom- lung disease). We live next door and have cameras in the house. We lost mom 4 weeks ago. Dad wants to be home alone. I'm okay with this with the cameras and us being back and forth many times per day. My issue is now is we have some family…
-
How to deal with my FIL feeling pushed out and lonely, and my bf's fear of abandoning his dad?
Hello my lovely people, I was just looking for some advice, especially from others who are in the same boat. x We are just awaiting a diagnosis on my FIL (cancelled twice) and have been making hopeful long term plans to manage his illness and us. My FIL is at a stage where he has forgotten who my boyfriend is a few…
-
Expecting too much from in-home care?
I have a question about how much I should be expecting a home care company and the home care aides to be able to do. I'm an only-child who lives in another state from my dad who has suspected Alzheimer's, likely mid-stage (working on getting a diagnosis but he's been resistant.) He has been living alone for a LONG time and…
-
PT for festinating gait
My DW quickly moved from a slow walker to strange, small steps when turning and then with all here walking. My DW is 68 and through the summer we took regular "mini-walks". I took her to PT and the therapist called it a festinating gait likely related to dementia. PT to strengthen the legs and learn to use a walking is…
-
New -advice for mom moving into senior living center
Any advice would be cherished. New to this board. Since my dad passed away a year ago my moms memory issues went from noticeable to really alarming. They were married 60+ years so this makes sense, but it got bad. Thank god they retired in 2019 so the move from their life house to retirement apt was done. Seriously, thank…
-
Transitioning to Caregiving Daughter
Greetings all. Allow me to introduce myself. Some of you may remember me from the Spouse Forum. I cared for my DH who had EOAD. DH died in April 2022 at the age of only 58. As you might expect, I am heartbroken beyond words. Somedays are harder than others. Somedays I question my sanity. Grief is real and it is a monster.…
-
Adding a med - I’m afraid
Hi. Mom is 93 in memory care with dementia and hates it. Mostly because she has never accepted losing her car, her summer cottage, independence, etc……she is agitated a lot, has angry outbursts and wants to leave. She was in AL, but would sit outside weird times thinking someone was coming to pick her up, or try getting…
-
It’s not falling out of bed….it’s loss of balance
Hello everyone, I just returned to my bedroom after another episode of finding mom on the floor. When I looked in mom’s bed she had several things from her dresser. The dresser is not near the bed. Obviously, mom gets out of bed and begins to find things to play with from her dresser. At some point she looses her balance…
-
A rocking chair? Your thoughts on furniture
Good morning. My mom's antique furniture is not very comfortable or easy to get out of. I'm considering shopping. She's quite petite. I'm considering a recliner and also a rocker. She's mid-stage and not terribly steady on her feet. There's a glider chair she has that seems to like, but it is getting worn out and I don't…
-
Complexities of Diabetes w Dementia
90 yo mom with diabetes spanning over years is prescribed (2) meds for high blood pressure, one of which is said to be a high dose. Infrequent fainting which is now frequent (7 mos apart) results in ER/Hospital/Rehab/VN/PT...(3xs since 8/21). Last incident 10/6 insulin was added (33 units daily) with no home health care to…
-
Just Starting
My family is just starting down this path. My father has recently started displaying worrying signs of dementia. He has yet to receive any official diagnosis beyond “mild cognitive degradation” however, he’s started some behavior that feels like a diagnosis is likely imminent. For 60 years, he worked as a meat cutter for a…
-
New to board just became only child caregiver
My dad is moderate approaching severe Dementia/Alzheimer’s. My sister, who was my only sibling, just passed away suddenly at the end of August. She lived with him her whole life so while I helped with him she was the primary caregiver. My dad I believe also has the condition Anosognosia after reading some posts on this…
-
Alzheimer's soap opera
A friend of mine, whose wife also has Alzheimer's, suggested that living with someone who has the disease reminds him of a soap opera. So, what would a soap opera about living with an Alzheimer’s victim be titled? Here are a few ideas: Now What? The Next Stage The Downward Spiral As the Mind Turns Any more suggestions?
-
Scared to eat
I tried looking through the search but I kept getting results of caregivers being scared of how their LOs are or aren't eating, instead of the PWD themselves being scared. Last week mom threw up a couple of times, not sure what days but they were all in the evening, between 60 to 180 minutes after eating. Twice were after…
-
refuses to get into bed at night
My DW has very recently begun to refuse to get into bed at night. At first it was hesitation/delay. The two previous nights it has been direct refusal and expressed plan to "go downstairs." She says "this is not my bed" and "I do not know who you are." I have given her more time. I have gotten into bed. These tactics have…
-
How to get my mom to her doctor appointments
I have posted here before and all the comments I received are so helpful! Update on my mom, she had 3 really great days, and I am forever grateful. The great days mean she was not angry or rage filled and I loved being with her, she was happy and interested in "her world" and the things she loves like playing cards,…
-
This is so hard!(1)
Just having a bad day. My mother took a 'turn' a little over a week ago. Hospice thought that she had a week, maybe a week and a half to live. She rallied and is better, still not where she was before the turn. Some days are better than others - none are great! Hospice says that she has nine lives, and they may not be able…
-
Why she can’t go home
My Mom told me this the other day: “I feel like I haven’t been home in a year. I just want to go where everything is normal and things make sense.” This is the best definition of HOME I have seen. In fact Mom has been in a SNF for close to a year, but she has wanted to go home for a couple of years now. Home is not back to…
-
Another memory care trauma - solved
The latest mystery/trauma that I've been dealing with this week has to do with Peggy's hair and the orange thing that is everywhere and everything. A few weeks ago Peggy thought her hair was blue. Then she thought it was orange. Her hair is, and always has been, blonde. Even today she thought her hair was orange. I didn't…
-
Falling out of bed(2)
Hello Everyone, For some time now when Mom lies down at night to go to sleep she is crooked. She never tries to change her position or make a remark when I straighten her. I thought it was odd but never gave it a second thought. Two weeks ago I found Mom on the floor playing with papers (happily) in the morning. EMS was…
-
Help maneuvering unwilling dementia patient
My grandmother was diagnosed with dementia two months ago following a hip surgery, the family has been trying for years to get the diagnosis. Since that diagnosis she's undergone two surgeries', three weeks out of a full ankle replacement she cannot be weight bearing, but she also doesn't feel intense pain anymore. Shes…
-
feeling so alone
Hi, my name is Kathy and I'm 63 years old. My husband Billy, who is 65, was diagnosed with early age onset AD in January 2022. His symptoms started roughly a year prior (2 years after retirement) but we initially thought that his forgetfulness, misplacement of personal belongings, repeatedly asking the same questions and…