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This, this, this, and...THAT!
I haven't been around for a couple months because it's going not so great. Ugh. However, while I make no sense to me anymore, some other dementia folks are killing it! So I wrote about their successes, and, of course, my failures. https://www.stumpedtowndementia.com/post/this-this-this-and-that
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Houston, we have a movie.
The dementia family caregiver documentary Wine, Women, and Dementia is done! Sometimes in spite of me, not always because of me! The latest updates: https://www.stumpedtowndementia.com/post/ta-done We've got a finished film. Now what?
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Wild stories
My Mom is in MC, been there three weeks. She had been telling me that a man had been picking her up at night and they go to her sister's house and some other stuff that sounds all jumbled up. She says she's in trouble. I don't really know how to respond to these stories(there has been others). Today I said, maybe it was a…
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Support groups etc
I dont know what i need. I feel so blessed i found ths group. Looking for support groups in Manatee Sarasota Fl Area and anything. I feel so lost; its my dad
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A giant rough patch
I haven't been here in a while. Chaos abounds. My sister Margie is not doing well at all. She moved to Memory Care at the end of December. She thought she worked there, so she wouldn't visit long. (It is a similar setting to her last job.) There have been at least a few times that she thought she said something that…
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What I saw in memory care yesterday
I visited Peggy in memory care yesterday. She was having a great day! And homemade cupcakes never hurt. That was the good part. Peggy's memory care facility is small - maybe 20 people? She and I were sitting in the back where there's a cozy little living room area. There are two big windows that look out onto trees and…
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Mom not liking caregiver
This is my first time posting. My mom is about two years in to having Dementia. It feels like it's moved beyond mild and is it some middle stage. My Dad passed away in Jan. 2021 and that's when things got really hard. We just moved my mom from Florida to Chicago area in May to be closer to my sister and I, in senior living…
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How to plan for the future?
I am looking for the best way to get oriented to what is ahead… legal, financial, and logistical. There are so many resources, but I find it a bit overwhelming. I am unsure which suggestions apply. What first steps do people recommend to orient to the situation? My mother is in her 70s and has been identified in ES of Alz.…
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No advice needed, just a musement
Please, bear with me on this as I’m making an observation. Someone posted on Facebook, “You now call your love life the last thing you watched on TV. What is it now called?” Our daughter responded with, “Ink Master”. I responded to her with, “The Twilight Zone. Somehow it seems appropriate.” I thought it was funny and the…
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NYC - New to this and overwhelmed and confused
Hi everyone, Never wrote on a message board before, but hoping someone has been in a similar situation and can offer advice. I have a long and short story, but for this sake, I'll go with the latter. My dad (who just turned 71) is an alcoholic and was diagnosed with Wernicke-Korsakoff last year and has vastly declined in…
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@Harshedbuzz
There was a post a couple days ago I wondered if you saw. It was titled "NYC New to this and overwhelmed." The person was looking for advice regarding a parent with Wernicke Korsakoff. I thought you may want to pop in on that thread since your experience is so valuable and unique. Thanks for all your contributions here.
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Adult Day Cares - dumpy? no windows mostly?
Hello ALZ Connected, I'm thinking about ADC and was wondering if they're basically all the same, kind of dumpy looking, either at a low-rent type strip mall or by Autozone (or something like this). While some look nice on the inside, the surrounding neighborhoods these things are in are depressing. I know I wouldn't want…
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Haven't posted in a year - bank account question
Hi All - I haven't posted in more than a year as my MIL no longer lives with us. Incredibly long story short - she had to leave here or my marriage would have ended. DH told his sibs that we had to have relief. Oldest sib stepped up and took MIL and that lasted for a whopping 6 months, then MIL was shipped off to another…
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FIL Delusional in Rehab
Hi, My FIL is in rehab. He has become delusional at night and even though my husband requested a consult and that he be placed on medication (haloperido or quetiapine) they have not. Is it because it is a no restraint facility? Last night he barricaded himself in his bedroom and locked the door. It took hours for the staff…
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New to this community and being a caregiver.
I am new to this forum and would like to connect with others that are going through similar circumstances. I recently became a caregiver for the my sister who has dementia. She is 15 years older than me and we were never that close and we live in different parts of the country. For over 20 years she has become increasingly…
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Dad follows Caregiver around in MC like a puppy
So, I read this article tonight because we find it funny that our dad follows the main caregiver around like a lost puppy in his MC unit. This article explains every stage I've been through with him. I just thought I should share it in case others are dealing with the same behaviors!…
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Thinking about Queen Elizabeth II
Often in our culture we think our children or grandchildren will be there to take care of us in our old age, especially as we are failing. In her case, only her two eldest were able to leave where they were to get to her bedside at her time of need. She had doctors and attendants, but it probably wasn't the same as having…
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Is this what is called sundowner?
Back story, my brother had a lady friend in his apartment complex that like to feed feral cats that were living down in the garage area. She always said she didn't have money to feed them and couldn't go down there because of her bad leg, so my brother bought the food and fed the cats. So anyway today around 4 in the…
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Elder Law Attorney Suggestions in NYC or Long Island?
Hi there, I am looking for a reputable elder law attorney located in either New York City or Long Island to help get POA documents signed by my elderly father. I would greatly appreciate any recommendations from this community. Also, if you've used a elder law lawyer to get POA docs signed in New York State, how much did…
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75 year old father - newly diagnosed Alzheimers/Dementia
Hi All, My 75 year old father was diagnosed last month with Alzheimers and dementia- moderate stage 5 out of 7. I am seeking some general advice as we are all fairly new to this disease but then also if anyone can relate to some of his habits. A few notes: He's a Vietnam Vet. He can semi hold a conversation and is starting…
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Anxiety, paranoia and fixation
My mother lives in an ALF. She still knows routine such as meal times and how to get around in the facility so the staff says she is not ready for total MC just yet. There is nothing she can do for herself other than getting dressed, using her walker and hitting a button on her cell phone. She has lost all processing…
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Newly Diagnosed(5)
My mom was recently diagnosed with Alzheimers. She is 62. She lives alone currently. She's fiercely independent still wants to live alone, she is still doing laundry, bathing, chores, bills, driving etc. She cooks mostly in microwave. She us no longer baking which she always loved. The symptoms are with language-not…
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Re: Test/Experiment
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Caregiving when you're their child (Young Adult)
I don't know if this is even the right place, I know I'm the only one willing to take POA for my father (age 70, EO, and was ES in 2020, AD) so I guess that makes me the closest to a caregiver at this point. Thankfully he's only at the stage where he forgets recent conversations, he still knows who he is, where he is, ect…
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Vision care for dementia, need advice
My mom is well into her moderate Alzheimer stage now, still conversant but would have a hard time cooperating with an eye exam. And she's very mobility restricted now, takes only small shuffling steps with a walker. She's been having problems with vision lately, and I wanted to take her to an opthalmologist. The lovely man…
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Unbreakable TV/Remote
Are there an TVs or remotes out there that are unbreakable? Or at least some type of protective shield or case? My mom keeps getting frustrated & angry when she can't get the TV to work & she ends up throwing remotes & breaking them or worse, throwing them at the TV. Thanks!
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Where we are now
So, here we are. Peggy is now later stage 6, and it's been eleven months since I placed her in memory care. There have been no cliff dives since she moved there - thankfully. It's been gentle slow slide downward since the end of last October. I know it's only temporary, and I'm always looking up and over my shoulder for…
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Is it excuses, or does she actually believe the TV and computer aren't working properly?
My mom is saying she must not have paid her cable bill on time and that's why sometimes the TV goes off and she struggles to get it to come back on (there is nothing wrong with the TV). And she has stopped emailing (used to email daily) and says something is wrong with her computer and "it won't let me send links anymore…
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Test/Experiment
I'm about to test the light theory I've learned here. Meaning, my mom starts freaking out when dusk appears outside (lately its 4 o'clock everyday) she starts a little panic even saying she wants to go to bed. So, I'm going to close all the shades and put on some lights. Maybe even all the lights. So she'll think it's…
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Tell LO she has Dementia...or no?
Hi, I'm new here. I could use some advice. We admitted Mom into Memory Care in May following a procedure to remove a cancerous mass from her kidney. She has early/mid stage dementia and is very stubborn and would never have gone willingly so we told her she needed to be there for rehab. She is also still very smart in many…