-
Mild Cognitive Impairment - What to expect?
My 92 year old mom was diagnosed with mild cognitive impairment a couple of months ago, but has been having noticeable memory issues since having a heart valve replacement in July 2021 (she was under anesthesia 2x in 2 weeks). The CT scan she had several months ago did not indicate Alzheimers. Two weeks ago, my sister and…
-
Cutting back on visits
Because of moderate stage dementia, my dad is at the best possible facility for long-term care. I can't take care of him myself for various reasons. Since I trust the facility, talking to clinical and administrative staff often, and keeping in touch with dad, it seems the necessary hovering I did up until a week or so ago…
-
won't go to appointments
Well my brothers neuro testing was to be tomorrow. He won't go. He says there is something fishy about it and he isn't going to go. I can't make him. He doesn't want to go to any of his appointments. I have no POA so I can't make him. What do you suggest? I waited till he was in a good mood and til the day before so he…
-
seeking residential care suggestions near Boston/Quincy, MA, WITH INSULIN SHOTS
Hello, I posted here once before but didn't get many good suggestions, and perhaps my subject line was confusing, so I am trying again with a clearer subject. My mother has both Alzheimer's and diabetes, and is at the stage where she can't be trusted to take her own meds (really, hospitalized and nearly died this past May,…
-
hubby not doing so well
he's had episodes of what nurses from hospice think are TIA's. Twice this week very unusual. He was awake 70 hours straight, was giving him lorazapam, haldol and morphine, after 4 doses of morphine over the day yesterday he finally fell asleep around 10 pm. Sleeping most of today, no meds given at all but his breathing is…
-
We're all REALLY lost and worried we're too far behind the curve
Hello all, I apologize for the length in advance. First time poster here. I've spent the day desperately trying to find support & I'm so glad to know this resource exists. My grandparents (86 and 84) have both been diagnosed with dementia. Unfortunately, we are not sure the type, what stage or much of anything really. We…
-
First Time Poster Searching For Support
A very long vent …. hoping someone has some words of comfort and wisdom I am new to the board, but have been lurking and reading posts for years. I decided to join because I have come to the conclusion that you can never truly understand what we as dementia caregivers go through with our loved ones … unless you have lived…
-
She's missing her grandparents
Lately, mom has been stuck in a loop of missing her family. For a while it was her parents and now it has changed to her grandparents. I sat with her this afternoon and she kept bringing up her grandparents, saying things like "I wish I could go back" or "it isn't the same" and getting teary. I'd talk with her about it for…
-
Dad has aspiration pneumonia, not treating, stopped sustenance 3 days ago
For someone I didn't always like when he was well, I'm surprised how hard this is. My dad last ate some thickened liquids Monday, kept choking, today is Friday. He's got aspiration pneumonia, is on oxygen and coughing up gunk that I wipe away and my stomach is turning but I don't want to wuss out and leave him alone. So…
-
Hallucinations(23)
Please excuse me if this post shows up again somewhere else because it' my first time here and not sure I'm adding post correctly. My aunt appears to have early stage dementia. She is 86 and has become mean and hateful and has memory issues. My brother lives with her. Recently she has started getting up in the middle of…
-
Saliva choking and looking ahead?
Hi everyone, I'm looking for some advice about what to expect with aspiration of saliva. Mom is late stage Alzheimer's, in a SNF, on Hospice. She's no longer walking, but she isn't bed-bound. She is up in her chair and visiting with others on a regular basis. She has had a long-standing cough (last ~3 years) which was…
-
Cancer Diagnosis and Hospice
Last week, my LO was early Stage 6. He was happy and maintained some independence. Then he fell and broke 5 ribs. After 3 ER visits and poor communication with the hospital, I discovered yesterday while looking in his online chart that he has a 3.5x 1.5 cancerous mass in his neck with metastasis in his spine (C1 Vertebra).…
-
Brand new here- Father in law Just diagnosed
Hi. I’m new here. My father in law just got diagnosed just last week with Alzheimer’s. What tools, tips, advice can you give? Thanks in advance, Alicia Roark
-
Cold Autumn Day
It's a cold and dreary day here, rain on and off. Mom's been sleeping for most of the day. Still not eating much but everytime she wakes up, I offer her water and a pretzel. She takes one or the other, not both. We got in touch with a lawyer to get the guardianship process started. We're going to try and do it ourselves…
-
Medication Suggestions for Sundowing
We have reached a pretty emergent situation with my FIL. MIL has extreme burnout and can't take caring for FIL anymore. We have been looking at Adult Family homes and Memory Care Facilities to move him to but haven't found a place yet. He is on the wait list at one facility. In the meantime we have overnight caregivers 4…
-
It feels hard to find good help...
Hello, everyone: I'm a caregiver in the Denver area. I work for a couple in their 90's. She's very active, still and he is the one mostly affected by dementia. He just loves to sit and reminisce. He still can do all of his activities of daily living, but he doesn't take any initiative until prompted. I do a good job. I…
-
Looking at the bigger picture
Hello. There was a topic posted recently about some conflicting feelings regarding the death of their LO with ALZ that really sparked off some thoughts for me. I was thinking that the reason that we have so much trouble emotionally dealing with ALZ is not always because our LOs are confused/upset with their situation(see…
-
Losing Mom...my first time here - Hospice time?
Good evening, This is my first time posting. I have tried to find a local in person support group but there are not any in my county. My mom has had dementia/alz for 1 1/2 years. It feels like it went so fast and I have no more time with her. I am an only child which is great in making the decisions but bad because my…
-
Long night
My husband is getting so sad. He's afraid I know. Changes seem to be happening so fast.. Until now I have been able to help him but don't know what to say to him to reassure him. After awhile he will act like everything is fine. I'm left with sadness and helplessness. Just need some understanding
-
Father Unwilling to Help my Mom
Hello. My mom (76y/o) was diagnosed with Parkinson's Disease in 2014. She currently resides with my father whom she's been married to for 40+ years. Over the past year, her decline and dementia have gotten worse, and over the past month, it's been the worst yet. I take my mom to al her appts and get her involved in…
-
My father is burnt out
My grandma was diagnosed with ALZ several years ago. Since then, she has lived in several minimal care facilities. Mainly they provided meals and housekeeping duties, but no actual health care or medication help. Since she moved into these facilities from her home, my father has taken it upon himself to be there for her on…
-
Unwilling to use the toilet
Hello...my mother with dementia has recently developed an aversion to using the toilet. While she wears a diaper and incontinence pad, she sometimes refuses to change them for more than 24 hours with her regular pants getting wet. Then, in the last two days, she has had bowel movements in her pants and not said anything.…
-
Close to moving
Hi, well, DH is extremely fearful of reflections. I have pictures, mirrors, and some windows covered. He’s on two different meds. He broke our toilet tank in fear (reflection of water?) our front door window, and visor in car with mirror . He hit the shutter and cut his hand not to mention his thin skin bruises on arms…
-
Having to find another home to move to
My grandmother (86) has Alzheimer's she lives with me, I take care of her, and she has been living in the home I grew up in since 1970. The city we live in is now forcing us out of our home. They want our whole property for their new main street sidewalk project. There is already a sidewalk alongside main street, well they…
-
California conservatorship reform
California has a new law to make it harder to get conservatorship and to make it easier to get out of one. This might be great for adults like Britney Spears, but what about others who will never regain their intellect and judgement? I could not copy a link, but you can search for "California conservatorship reform". Iris
-
First time on message board
Hi I'm new here. My husband was just diagnoised with Alz. early stage. He has been tested and that's it. I feel absolutely lost and don't know where I should take him/me for answers. We have been to the neurologist (see you next year) and a neuro psychiatrist (who is in a hurry and we leave there not knowing what to do.…
-
Life insurance question.
There is so much knowledge here. Hoping for some help. I don’t have many details so I need do do some brainstorming with you guys. LO purchased a life insurance policy in the 90s. It was paid in full around 2015. My sis in law is the beneficiary. She has a piece of paper with the details. When she tries to contact the…
-
Mom's decline(1)
Hello Everyone, Anyone here praying for their LO's death? I feel so guilty but this is no life for her She is already gone and in pain. I am praying she moves on and be welcomed by the Lord and my Father. I feel like I can't take much more. It's been years in the making. This is very heavy and I hope I haven't brought…
-
Somone asked about this VIAGRA have no idea who
https://southfloridahospitalnews.com/nih-dream-study-finds-viagra-and-cialis-do-not-reduce-risk-of-alzheimers-and-related-dementias/
-
I have a question about pay
My mom who has Alzheimer's lives with me. She has for the past 4 years. I was wondering about pay for DPOA, electricity (I do so much more washing now), gas, groceries etc. My mom could afford to pay me, but I don't want to take it if it's not allowed. My husband does not think that its fair to him to keep paying all the…