-
Where do we go from here?(2)
Hi. I’m new here and joined in hopes of getting some insight into how to best take care of mymother in law. She was diagnosed with Alzheimer’s about a year ago. She has been living in an independent living facility for about two years. About eight months ago, we realized that it was time to look for an assisted living…
-
Moving to facility...should he keep his cellphone?
My father with moderate Alzheimer's is moving to a facility (board and care) today. I wanted to take care of him until the very end, but he started getting extremely violent towards my mom with a delusion that she has been unfaithful to him...so he cannot stay. I went ahead and deleted my mom's number from his phone, along…
-
Well, it's happened
Hi, I have posted a couple of times; my Dad (pwd) was diagnosed 6 years ago w/AD. He no longer 100% knows who I am. Last weekend was a family wedding; one of my niece's got married! My husband and I flew to where my parents live, and drove them the few hours to the rehearsal dinner and wedding. It was a beautiful occasion…
-
Poem for my FIL (religious)
When the roads to your memories became blocked, and this disease hid you away, the father and grandfather as we used to know was slowly fading away. A man of few words, became the man of no words, with recollections all askew, but when you couldn’t talk, we became your voice, because, when you couldn’t see us, we saw you.…
-
soothing video programs for PWD?
Hi everyone, I'm looking for tips on "video" programming that can be present in the background and provide a comforting experience for a bed / chair bound LO. A friend recommended Zinnia TV (programming for PWD) - does anyone here use this and would you be willing to comment on how it works for you? My mom with late-stage…
-
Too much TV and music as overstimulating
We have 24/7 care for my Mom. I and several of my siblings feel that thecaregivers use the TV excessively, sometimes all day into the night. We have asked repeatedly for them to turn off the TV or music from the TV, while she is resting/sleeping or doing another activity. When she is watching the TV she seems to go into a…
-
Caregiver for my beloved auntie
Hi there, I’m sorry for the long post. I’ve retired and purchased my aunt’s home and moved here from out of state so that she can return to her home after living with her son’s family for a year. It’s confusing to her that I “own” her home and that no one told her about the arrangements (we did). The night before last, she…
-
Neuropathy in Hands - Still
I'm back with the same problem - neuropathy in LO hands. Mostly, his thumb, index, middle finger of his right hand. Some pain in his left. The Gabipentine works some and then not at all. He is now taking it 3x a day (total 300 mgs). He is still very unhappy and told me that he will cut his hand off. I can't stand that he…
-
Sleepless for days
Sleepless for days - help needed. My mom has Alz, mid-stage likely, lives in SNF. Doesn''t sleep all night or day for two days at a time. Over the past year it used to happen once a month. It''s progressed to 1-2 times a week. On the first day without sleep she gets hyper, talkative, her memory gets better (!), but hearing…
-
Thinking about care giving for PWD.
I feel like dementia is a grenade. It doesn't just hurt the patient but everyone around them, caregivers, family, even medical providers get hit with shrapnel. I'm sure Huntington's is similar. And others I don't know of. It makes everything so difficult. I'm so worried about my mom because she gets up when my dad is…
-
keeping car?
Hi, my husband has been newly diagnosed. So far his memory has not been affected but his speech has become unintelligible. He is not supposed to drive so I have arranged for a friend to transport him. Question: Should I sell his car now? Later when I need home care, it may be helpful to have a car for the home care staff…
-
Telling LO about diagnosis/issues?
My Mom moved to my city this week and is doing great, all things considered. I’m giving her time to adjust to her new place (assisted living/memory care), which is super close to me so she’s sleeping here while we get her place set up. She’s so alert sometimes but definitely in the right place. We have to schedule a follow…
-
FYI(13)
https://www.nia.nih.gov/sites/default/files/2022-11/2022_nih_progress_report_ad-adrd_research_1.pdf
-
Moms “man-friend”
My 82 yo mom was recently diagnosed with mci. But the drs and I believed then there was more to it. Mom wasn’t taking her medication correctly so we have corrected that now. I have no doubt we will get the official diagnosis on next visit and believe it’s much farther advanced . My mom has a man friend, and since I had to…
-
Fear of physical harm
Hello all. My mom is the primary caregiver of my step dad with Alzheimer’s. He had a heart attack on Halloween and had three stints placed. He was brought home this past Sunday. While he was in the hospital he became very violent several times and was restrained most of the time he was there. Now that he is home the…
-
How could Hell be any worse.... Venting
First of all, to all you caring for a loved one who's suffering from this disease.... you're suffering from it too. This is Hell. And it's only getting worse. Sometimes she so sweet and we share laughs during the day and I think she's still in there somewhere... then something will happen, or she'll say something and who…
-
New to here : Wishing all of you (and your loved ones) the best
Hi everyone, My FIL (father in law) has dementia. I believe it is VD, if i recall. Sadly, he has been violent for the past 1-1.5 years with my MIL. She is the primary caregiver and both are not working. Is there a FAQ or section where I can quickly read up on that relates to: - where is the "best" memory care facilities…
-
Prescriptions
My DH is at the beginning of stage 5. My work open enrollment for FSA card is coming up. What’s the average monthly cost I could expect for prescriptions for him. Seraqol, Zoloft, etc
-
Vent -bad morning, fixation on dad's junk and fictitious woman
Mom won't sit down, can't focus on anything and is super stressed out about everything. She keeps trying to fix Dad's piles of junk and stuff which is stressing me out because he gets so angry when his things are moved. His stuff is just everywhere. I hate it. Everything I see says homes with those with dementia should be…
-
Being a caregiver(1)
Greetings to all of you fine caregivers! I know I'm probably not alone in this one but it's been on my mind. I have taken care of and most recently become mainly the manager of my Mom's care. She is 96 and lives in a house across the driveway from my husband and I. Her care has been my main focus for the past 5 years. I am…
-
getting help when it is not wanted
So I've been caring for both of my parents (dad- Alz and Dementia) and (mom- lung disease). We live next door and have cameras in the house. We lost mom 4 weeks ago. Dad wants to be home alone. I'm okay with this with the cameras and us being back and forth many times per day. My issue is now is we have some family…
-
How to deal with my FIL feeling pushed out and lonely, and my bf's fear of abandoning his dad?
Hello my lovely people, I was just looking for some advice, especially from others who are in the same boat. x We are just awaiting a diagnosis on my FIL (cancelled twice) and have been making hopeful long term plans to manage his illness and us. My FIL is at a stage where he has forgotten who my boyfriend is a few…
-
Expecting too much from in-home care?
I have a question about how much I should be expecting a home care company and the home care aides to be able to do. I'm an only-child who lives in another state from my dad who has suspected Alzheimer's, likely mid-stage (working on getting a diagnosis but he's been resistant.) He has been living alone for a LONG time and…
-
PT for festinating gait
My DW quickly moved from a slow walker to strange, small steps when turning and then with all here walking. My DW is 68 and through the summer we took regular "mini-walks". I took her to PT and the therapist called it a festinating gait likely related to dementia. PT to strengthen the legs and learn to use a walking is…
-
New -advice for mom moving into senior living center
Any advice would be cherished. New to this board. Since my dad passed away a year ago my moms memory issues went from noticeable to really alarming. They were married 60+ years so this makes sense, but it got bad. Thank god they retired in 2019 so the move from their life house to retirement apt was done. Seriously, thank…
-
Transitioning to Caregiving Daughter
Greetings all. Allow me to introduce myself. Some of you may remember me from the Spouse Forum. I cared for my DH who had EOAD. DH died in April 2022 at the age of only 58. As you might expect, I am heartbroken beyond words. Somedays are harder than others. Somedays I question my sanity. Grief is real and it is a monster.…
-
Adding a med - I’m afraid
Hi. Mom is 93 in memory care with dementia and hates it. Mostly because she has never accepted losing her car, her summer cottage, independence, etc……she is agitated a lot, has angry outbursts and wants to leave. She was in AL, but would sit outside weird times thinking someone was coming to pick her up, or try getting…
-
It’s not falling out of bed….it’s loss of balance
Hello everyone, I just returned to my bedroom after another episode of finding mom on the floor. When I looked in mom’s bed she had several things from her dresser. The dresser is not near the bed. Obviously, mom gets out of bed and begins to find things to play with from her dresser. At some point she looses her balance…
-
A rocking chair? Your thoughts on furniture
Good morning. My mom's antique furniture is not very comfortable or easy to get out of. I'm considering shopping. She's quite petite. I'm considering a recliner and also a rocker. She's mid-stage and not terribly steady on her feet. There's a glider chair she has that seems to like, but it is getting worn out and I don't…
-
Complexities of Diabetes w Dementia
90 yo mom with diabetes spanning over years is prescribed (2) meds for high blood pressure, one of which is said to be a high dose. Infrequent fainting which is now frequent (7 mos apart) results in ER/Hospital/Rehab/VN/PT...(3xs since 8/21). Last incident 10/6 insulin was added (33 units daily) with no home health care to…