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Middle of the day, aide fell asleep
Our new aide is falling asleep sitting in a chair while mom is watching TV. I'm not sure what to make of this. I'm a very understanding person and trying to not pass any judgement but I don't think that's very professional to, especially when PWD tend to wander off. I'm at a loss on what to do about this. I've not been…
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Newbie dealing with LBD - life alert system recommendation?
Hi, My Mom was just diagnosed with probable LBD. At this time she is still at home and I check in on her frequently and also have a Google Home system with cameras so I can see her when I am not there. I also think we need some sort of life alert system, where if she slips and cannot get up that she can press a button or…
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Mom with Alzheimer’s ..
Hello. New here. My mom was diagnosed at 67 with Alzheimer’s. It’s been a roller coaster ride for sure, but a couple of days ago she got lost for the first time, and actually went missing for 12 hours. I’ve never been so afraid in my entire life, and I’m still in shock about it. I feel like it was my fault for putting too…
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LO is Mom, Dad primary caregiver but downplays
Hi. My mom is 68 and has Lewy Body Dementia. She was diagnosed about 2 years ago, but I would say I've seen symptoms for at least 5 or more years. My dad is her primary caregiver, and my brother lives with them but doesn't help much. My dad recently hired a caregiver who comes twice a week for four hours, but I think my…
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Rules for a new caregiver
At the insistence of my brother's wife, because this is friend, an outside the family individual has been hired. I would appreciate suggestions for rules. I have jotted down a few such as not going into the bedrooms, basement or garage as there would be no need. She must bring her own food. I am very concerned as she gave…
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Aggression and Agitation
Hi, this is my first post. My dad was diagnosed with MIC in Spring 2021. He has declined quite a bit since then, though we have no formal diagnosis of dementia. We moved him into an AL/MC place last week. He has become quite agitated, tried to leave several times and even got aggressive with staff. All behaviors that we…
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Reaching the aggressive stage?
Mom's been... off... since Wednesday last week. She spent most of Wednesday being distraught over something and for the most part wouldn't let me get near her, even for hugs. Always acted like I was actively hurting her. I chalked it up to her constipation as I've heard sometimes that causes PWD to be a little different.…
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At the beginning of this terrifying journey
I am at the start of my caregiving journey. My mom was just diagnosed with dementia and possibly Alzheimer's, but no official diagnosis yet until she sees the next specialist. My dad is still alive, but has a lot of health issues as well, and they've just accepted the fact that they need outside help. Meanwhile I am not…
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Two Parents with Alzheimer's - only child as of two years ago
Good afternoon - I am looking for suggestions. I am an only child dealing with both parents having Alzheimer's. I have tried very hard to keep them together but a few months ago, I had to separate them and they are both in different memory care homes. My Dad was becoming increasingly aggressive and I had to have admitted…
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Overwhelmed, confused & need guidance
My DW has been on this downward spiral for over 6 years & I'm feeling overwhelmed- not sure what to do next. I’ve been trying to do everything at home. My DW doesn’t know who I am, can’t stand living in our house & wants to go home but doesn’t know where home is. The delusion of “a girl” coming into our house started out…
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Caregiver Resource Guide link
Here is a link to a guide provided during a recent caregiver webinar. https://lor.nnlm.gov/op/op.Download_Share.php?documentid=4618
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update on Peewee
Saturday night Peewee slid out bed and I couldn't get him off the floor.he laid there for an hour and half. I finally called 911thanks to this site I remembered someone said that an UTI would make him more confused. So a trip to the ER and 4 days in the Hospital we find out Peewee has lung cancer. However we don't know…
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Interviewing additional help
I just interviewed 2 agencies & 1 individual, I didn't like any of them. I am very frustrated, my daughter hasn't been able to help as much as she wants or I need her to because her husband's family keeps pulling her away. She is too nice & doesn't say no. So my brother's wife sent someone she thought would work, she was…
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Holiday staff funds at AL / MC
Hi all, I received an email about the employee holiday donation fund. The facility my mom is in does not allow tipping and so does this instead. What is appropriate? I know the fees for the facility are expensive but this is for the staff (below the director) and I know they work hard and are good to my mom. Thanks for any…
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Think Positive Today 11/19/22
GO TO THOUGHTS FOR CAREGIVERS I know it is almost impossible sometimes to think and be positive. But it actually gives us more energy if we stop those doom and gloom thoughts. They weigh us down and make us sluggish. So, one thing we all can try to find is GO TO THOUGHTS. Anytime you come across an uplifting, encouraging…
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Wants kids to take action
My MIL has auditory hallucinations and is convinced her upstairs neighbor is watching her with secretly hidden cameras and masturbating when she showers and goes to the bathroom. Her kids are at their wits end trying to handle this. Her upstairs neighbor is actually a sweet elderly lady who lives alone. My MIL refuses to…
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Dementia(5)
Is this support group just for relatives or caregivers who have family with Alzheimers? My mother has dementia but her memory is so bad
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Bible Verse to Lift You Up 11/18/22
Hello Friends in Christ, thank you for your comments. They encourage me. Appy, your words are what I needed to hear today. Yes, we walk in God's plan! Hugs to all! Ronnie ROOTED IN CHRIST GOD THOUGHT: Colossians 2:6-7 “So then, just as you received Christ Jesus as Lord, continue to live your lives in him, rooted and built…
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Covid and Dementia
My brother became sick from covid in August 2022. He was sick enough to be put into the lical hospital. During his stay, he became very agitated. According to him, the food was terrible, the doctors were crazy, the nurses were awful…..everything there was just terrible. After a few physical and mental evaluations, he was…
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bathroom frequency especially at night
Do you follow LO's nature's call or do you take LO to the bathroom at fixed time, especially at night. If it is fixed time, how often do you take LO? Now it is a disaster at home. Sometime mom says she's not ready to go when I ask her. Sometime she does not call out and wet the bed. Also, feeling bad for asking her wear…
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Now I only drive 1
Yesterday was Margie's funeral. She died a week before. Last time, I told you how I had to cancel the doctor appointments because I didn't figure out that I couldn't get her in my car if she couldn't stand. I blame it on sleep deprivation. Just before the cancelled appointment, 2 of the directors at Margie's facility…
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Trying to control this is not working
Ever since life “hit the fan” a year ago (after my dad passed) and we all realized mom’s memory issues were worse than anyone thought, I’ve been running on adrenaline and fact finding. TLDR: this sucks and trying to beat it into submission by controlling it only pushes the sadness down, not away. In 8 months we have:…
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That darn cat…
I had to put one of my mother’s cats down on Monday. Thought she had an abscessed tooth or something kind of minor. Turns out it was a cancerous mass under her tongue and she was probably in extreme pain. Also lost quite a bit of weight apparently. She was an older kitty so the day was coming somewhere down the line, but…
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For tmo81: FIL Driving
Your post and replies: Posted: Wednesday, November 16, 2022 3:06 PM Joined: 11/16/2022 Posts: 1 We need to take away my father in laws driving privileges' but have no clue how to go about it, no matter what avenue we take he will forget he agreed to it and be looking for his keys or car the next day possibly thinking it…
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Newbie here-only child w mom in ALF
New here. Only child (no siblings, ever) making sure my mom is happy and comfortable with the best care possible, although I live nearly four hours away. My mom is 94 & somewhere between stages 5 and 6 dementia. She and my dad always lived in the city she's in (he died a few years ago), and she has one younger sister there…
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Processing this
His voice is the same and he looks like him but I miss my dad so much. It's so hard having a familiar stranger with a completely different personality living in the house. It's messing with me. I am terrified I will forget my father and only remember the dementia. Is this likely? Because I want to remember the good times…
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Monster in the Mind
I stumbled on this 1-hour documentary this weekend and wanted to share with you all. It's a former CNN reporter who is now in her 80s and has the APOE-e4 gene and wanted to know how likely she is to get the disease. It's informative, busts some myths that I certainly held about the genetics and avoidance of the disease,…
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Head Full of Honey
I watched this movie last night. Wondering if anyone else has and what you thought? It has some big names in it. https://www.imdb.com/title/tt5836706/
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No shower for months
Hello, I have read a bunch of archived discussions on showering/bathing but I am still at a loss of what to do. My mom does not shower and has no interest in showering. There is no bathtub in the condo but we did install and hand sprayer. She also is incontinent and stinks. Her condo is starting to stink too. When I try to…
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This may be it
I will write more detail later, but just want to ask for everyone's thoughts and prayers. This may be it for my FIL. So he had Covid 2 weeks ago - which he recovered from pretty quickly. Within 5 days, he had no fever, 02 was normal, he was alert, and mostly back to his baseline cognitiviely, and his lungs were clear per…