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My father has finally been placed in a nursing home.
My mother has finally found a place for my father. She has been caring for him for the last several years. Things have gotten worse with the dementia and she no longer feels she can care for him safely. Our family agrees this is the best thing. She is in her 70s and at her wits end. I know she needs a break. Unfortunately…
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New here, no diagnosis
Hello, all, My 79 year old mom has been showing signs of dementia for several years, but in the last year, things have gotten much worse. She lives on her own and refuses to get a diagnosis. She had a neurology referral in January, made the appointment under heavy encouragement from me, but then cancelled it the day…
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New to Forums and Alzheimers
My husband had first time Epileptic Seizures in 2018. 4 years ago to the month At that time I was told (,but he was not) that it was the beginning of Alzhiemers, as that is what most men in their 70's with first time seizure end up with.. .His health records show he has some mild cognative imparement but I notive it is…
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Fiblets(1)
I saw this article about using fiblets and thought I’d share. It’s one woman’s experience. https://protomag.com/uncategorized/yes-mother/?twclid=2-2adybxbjqduprpzh3hdydc9m9
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Hi, new to this group - and disease
My mother has recently been diagnosed with Dementia/Alzheimer’s. I have no experience with this but every day is bringing on new challenges. She has caregivers in her home but doesn’t think she needs them. She gave up the car keys voluntarily a few months ago after several instances getting lost in nearby, familiar places…
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Well I did it…
…against my better judgment. The very rare occasion arrived that all moms six grandchildren were here. My husband and I decided to have a BBQ gathering with the fam. I thought that getting mom out in her wheelchair would be a good thing. I curled her hair, put lipstick on her and off we went. After all, it’s only just…
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recognition lost and found
Hi everyone, My mom is late stage Alzheimer's and I'm her only daughter. We have a good relationship and she has, for the majority of her journey (started in 2012, dx'ed in 2014) felt safe with me and as though I am "her person." Up until recently (last ~2 months) she has quite consistently understood who I am. Even when…
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After spouse dies
I’m pretty sure my fathers body is shutting down. My mother is in memory care. She is still physically well, verbal and does well with outings, but obviously still very much as Alzheimer’s (mid to late maybe?). I literally have no idea what to do after my dad passes. Does she attend the funeral? Do we tell her at all? What…
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My LO
My LO is my 95 year old cousin with Alzheimer's Disease. She lives in herhome with 24/7 caregivers. I telephone her every week to keep in contact. I'm sure she doesn't quite know who I am. The other day, our conversation went like this: Her: my sister was supposed to visit me but she isn't here yet. (her sister died over…
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in home care and car use question
Does anyone have an in-home care person that uses your car for errands or to take their LO out and about? If so, is there a special insurance you get for this? I've had caregivers use their own car but haven't been in a situation where the caregiver may use our car.
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Scammers in the family
I am completely blown away! I have spent almost all year getting my EO LO finances in order (yes I have POA) only to find scammers in the family!!! They want to "borrow" money from my EO LO for their own personal use....OMG. I thought the scammers on the web were awful. Her own family is trying to take her money! I am…
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New to all of this.
Not sure where to begin. Arrived 2 weeks ago to give assistance at home. Father (89) has dementia; younger brother (61) suffers mental illness past year or so, he was previous caregiver to my father, brother is admitted to hospital again after a stay 25 June-16 Aug. House is in terrible condition, filthy and in disrepair.…
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Bible Verse to Lift You Up 8/24/22
THANK YOU, MY FRIENDS. Thank you for all your comments on the last Bible Verse. I treasure them always. Peace, Veronica Kelly Badowski, (Ronnie) FORGIVE OTHERS GOD THOUGHT: Luke 6:37 “Do not judge, and you will not be judged. Do not condemn, and you will not be condemned. Forgive, and you will be forgiven.” VICTORY TRUTH:…
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Caregiver Concern: What If Something Happens To Me?
Excellent planning information along with some useful links from Family Caregiver Alliance for Caregivers regarding, "What if something happens to me?" Just keep scrolling down the pages for some really good planning information: https://www.caregiver.org/resource/what-if-something-happens-to-me/ J.
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Socialization with a DH with Alzheimer's
Hi. This is the first time I've reached out to this group. I feel like my husband and I need more socialization with others. I am hesitant to meet new people as my DH has Alzheimer's. His socialization skills are still good, most of the time. Out of fairness to others, I think it helps if they have a heads up about what is…
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Moved mom into AL yesterday - hardest thing I have ever done
I wanted to share my story, one to get comments/advice, and two hopefully someone else experiencing the same thing reads and get some comfort that someone else is going through this. My mother contracted melanoma about 10 years ago. At the time, we were told she had 1-2 years to leave. She went through surgeries to remove…
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Facility to help sort out meds for Dementia for mom
Mom has been in AL for a month now. After a few days in, she was doing 'ok', but she has gotten worse. Only sleeps from about 7pm - midnight, then they need someone in her room with her or she starts screaming and being very agitated. We are trying different medicines (she is on Lamotrigine, Zoloft and Trazadone now). Went…
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Mom ok physically
We are getting ready to move mom to memory care. She has dementia but not Alzheimer’s. She and dad have been in IL for 4 years but she is now requiring more care than he (age 86) can provide. She pretty much needs to be watched or supervised 24/7–from getting dressed in the morning, thru toileting issues, supervision while…
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SNARL Voucher Program in NY
NY specific question: Does anyone have experience with the SNARL voucher program that provides financial assistance to dementia patients (residents) of participating memory care facilities? Full program name is Special Needs Assisted Living Voucher operated by NYDOH
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Brand new here and scared
In the last week it has become clear that I need to take action to get my mom evaluated. I’ve noticed changes for the last 3 years, but she refused to let me contact her doctor. I have decided I’m going to go ahead tomorrow and contact her doctor and tell her my concerns and request she refer my mom to a neurologist. I’m…
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DH with Alz.
I am new here. My 77 year old DH with Alz is probably somewhere in the level 5 or 6 on the 7 point scale. I have been looking into MC. My problem is that he currently has a AUS because of complications from prostate cancer radiation. He can no longer consistently operate the device. We can deactivate the device and he will…
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Has your LO had these types of symptoms
I’m cross posting this from the spouse’s and partners forum because I want to see if anyone here is familiar with these symptoms. My DH was diagnosed with probable Alz and behavior variant FTD. It think it was based mainly on symptoms of obsessive/compulsive behaviors. He has never shown aggressive or violent behavior, but…
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Another sad warning that disorientation and driving can end horribly
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Pure Wick
What has been your experience using a pure wick catheter at home? Did you end up paying for this out of pocket?
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Powder recommendation
As much as my FIL wiggles in his Geri chair, I am thinking dusting the chair with powder would reduce friction. I tried one with cornstarch but it made me sneeze non-stop, I don’t know if it was the fragrance or what. One person I know recommended baking powder, but I wasn’t sure, so I wanted to see if you all have a…
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Two topics - How do I weigh her? and What to expect when evaluated for Hospice?
HI All, Question No. 1: Mom has been progressively losing weight. I believe maybe 10+ pounds just since April (4 months or so). Now that she is not as mobile or can't stand on her own without assistance or holding onto her walker or holding onto anything, I don't seem to be able to get an accurate count of her weight. At…
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Getting your loved one to accept a in home caregiver
Hello, I found a great in home caregiver. My wife has moderate cognitive decline. AFter 1st day she keeps asking who it is. I have explained a few times someone to help out around the house. Any suggestions on what have workers for others to get them to bond? Thank you
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Visiting someone with Alzheimer's in a nursing home
My father and I are struggling with how to visit my mother in her nursing home. She is medically sound, although she is in a wheelchair now and has become unable to engage in meaningful dialogue. She suffers from low attention span and at times gets anxious and even agitated. Her nursing home is great and they provide a…
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Long Nights
My 101 year old dad turns into another person once he goes to bed EVERY night. He talks, shouts, yells, etc. A lot of swearing about everything or gibberish that makes no sense at all. He is much more agitated and harder to deal with than during the day( and daytime is no picnic either). You can't talk to him or get him to…
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Family Caregiver Alliance Free Online Webinar Class Re Caregiver Stress
Family Caregiver Alliance is offering a free Webinar class on the topic of Caregiver stress on Agust 31; if you are interested, the following will provide some information and also provides a link to enroll: https://myemail.constantcontact.com/FCA-Webinar.html?soid=1101399948055&aid=khqLs_BIQ5k They have a wonderful online…