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Extra Help in California
Hello - New to this forum, but searching for all the help available that we may not know about. Long story short - my partner's mother has Alzheimer's and is in a long term care facility (coming up on one year). They have very little family, so he takes on a huge role in her life and in her care. He visits her near daily…
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Why does medicare not cover hospice
My dad is not eating or drinking and only tiny amounts. I was told medicare will not cover hospice. This is nuts .. Maybe someone can explain this to me.
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Sock puppets
Sometimes whenever my LO has outbursts or aggression, I put on a sock puppet to talk to her. She will talk back to the sock puppet and it seems to calm her down.
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Hallucination... what do I do? How should I react?
I'm my mom's caregiver. She was diagnosed with ALZ/Dementia in mid-2020 after my Aunt passed away from the same thing. I was her caregiver too. Everyone's journey is different and I understand that. My aunt was like my second mom but I didn't go through what I'm going through with my mom. in her last stages, my aunt was no…
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This is great.
https://nadrc.acl.gov/details?search1=232 See the Guide_Billing_Codes_Dementia_Services_508_RO_Final_12-29-20.docx
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Successor Trustee and POA guidance, please
My mother has mid-stage dementia. She now lives with me and my family, and I am her primary care giver. Most of her assets are in trust. I am her successor trustee as well as POA for healthcare and property. I met with her attorney about a month ago, and she explained the content of all her legal documents. Now, I have a…
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Neighbor Complaining
My mom was diagnosed with Alzheimer's two years ago. She is a widow who lives alone, quite well for now, but often relies on her kind and supportive neighbors for things like replacing a furnace filter, a lightbulb or help with her TV remote. I live out of state and visit regularly, but am not there daily to check in on…
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No longer on the same page...
Well, I guess I should've expected it. My EO-ALDO's kids have decided that there is no real need for any future planning at this time. I am the kind of person who "takes the bull by the horns", if you know what I mean. Since the diagnosis and prescription meds (which she doesn't remember to take), they feel as though…
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Massive Anxiety for my Dad that we moved into memory care
We moved my Dad to memory care a week ago. He is experiencing massive anxiety regarding being worried about getting his car and his wife. (My Mom passed 3 years ago). He calls my phone and my 3 brothers phones probably 20 times a day. Sometimes it's that he's mad at us, sometimes he's so confused and thinks he's at work…
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Sleeping problems about to lose my mind.
My mother keeps me awake all night. I have tried 10 mg melatonin, slow release melatonin, valerian root And it doesn’t work. I have been up for almost 24 hours straight. What have you tried to get your loved one to sleep at night? I need to figure out something very soon because I also have medical conditions that I need…
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So many changes!
My mother is declining quickly now. Eating less than two ounces of baby food per day and not much interest in water/milk. We offer her food and liquids several times a day. We do not force her to eat or drink because we are concerned about aspiration. She pockets her food and liquids. She is so thin, it’s hard to see her…
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This may be helpful
https://pblob1storage.blob.core.windows.net/public/nadrc/docs/2022-NADRC-Emergency-Prep-Toolkit-04202022.pdf
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dreading each day
My situation is not as bad as many others but I feel very dejected about life in general. My DH sleeps on and off most of the day and after I put him to bed around 11 pm he is up several times during the night attempting to make coffee and eat his breakfast roll. I hate to put him on a sleep med because I worry this would…
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possible dementia or Alzheimer's
My mother is 43 years old. I know this isn't typical of dementia, but she shows symptoms of early stages. She is forgetful. She often gets lost or takes the wrong turn when driving. She struggles to make important decisions. She loses her train of thought a lot. If I change the subject in a conversation, she wil forget the…
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Incessant emails
MIL recently had an injury that has kept her indoors for several weeks. She has deteriorated quite a lot because of this. We are looking to get her back to exercising & getting her some daily care, but one of the biggest issues has been that she is now emailing my husband about 20 times a day. The emails range from worried…
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Skin Breakdown
I thought I saw a post here asking what people do about waking their LO to change them so they are not wet. I cannot find the post. We just recently started to have to deal with nighttime incontinence, and I'm looking for advice on how best to handle. Sometimes my mother wakes in the middle of the night, and I change her…
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Knee replacements and Alzheimer’s
I know this is probably a long shot but here it goes. My mom (79) has Alzheimer’s and she’s to the point where she can’t follow directions, can’t remember her address, time, date, day, can’t remember taking medication, etc. she lives alone. she’s having a knee replacement next week and they make it sound like no big deal.…
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New to caregiving(1)
I am now the caregiver for my 87-year-old aunt who has dementia/Alzheimers diagnosis for about 4 years. On March 30 she fell and broke her right hip and right wrist. Hip replacement worked great and the wrist was only fractured so no surgery. After one week in hospital and 3 weeks in a good-for-nothing rest home, she was…
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Trazodone long term effects? Does anyone have first hand experience with LO?
My dad is in Early stage of Alzheimer's. Mom is his main caregiver with my sister and I living close and helping when not working as much as possible. Dad recently started having nightmares which were keeping mom up all night too. He had been taking Meltonin to aid in sleep. So, took him to Dr. thinking he needed to go off…
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Mom died this morning
Mom died this morning. I have been thinking about this day for a long time, but there is no way to prepare for this intense grief. It's so different than the grief I have felt the last six plus years. It's just so final and I miss her so much. I have no regrets. I gave it my all. I have read other posts from people who…
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When to make my first visit.
My wife is going into memory care next Tuesday. Our son is taking her in. My question is how long do I wait before I make my first visit? The next day? wait a few days until she gets settled? Those of you have gone through it, what's your experience?
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When to split a couple?
My father and Jane, his wife of 20 years, both have dementia and moved into memory care at Thanksgiving. She has always been angry and paranoid and he is passive. They were sleeping in separate bedrooms at their house so we got them single rooms next door to each other in the assisted living residence. They immediately…
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in the active dying stage
I keep telling myself Mom had a good long life. She turned 92 yesterday - the day she started the active dying stage. I have grieved for the last 6 or so years and of course knew this day would come, but my emotions are all over the place. I feel ok and then intense grief knowing I will never be able to hold her hand again…
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Screaming and Wailing In Persons With Dementia
Excellent: Does NOT happen with all person with dementia, but for those with such a problem issue: Good scholarly articles on Screaming and Wailing in Dementia Patients http://www.stacommunications.com/customcomm/Back-issue_pages/AD_Review/adPDFs/january2004/11.pdf…
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reconsidering SNF placement
I had a difficult day yesterday with mom calling seven times in four hours. And following a visit to her last week (I live about 500 miles away), I’m reconsidering her placement in SNF. We placed mom in SNF about eight months ago. We moved her to a better facility Feb. 1 when a room became available there. She’s been moved…
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My grandmother has Alzheimer's and insists on going to back to Mexico
Hi, My grandmother has Alzheimer's and she isn't able to stay by herself anymore. She tends to get lost and gets confused now in familiar locations. We are doing our best to have her busy such as in adult day care and she goes to gym too. Her schedule keeps her really active. All of my family works and we can't afford to…
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Long-distance transport - sorry this is long!
Hi! I just joined this discussion board and am hoping others with some experience may be able to help me. My father is 82, has vascular dementia. My 79-year old mother is his primary caregiver. She is in good health. I live in Virginia. They moved to Florida several years ago but my Dad is from Pennsylvania. My Dad's…
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Dad - 2nd neuropsych appointment - the long one
Today was my step-dad’s 2nd neuropsych appointment. We were told to expect it to last 3 hours. It lasted 2.5 hours. Dad has a very raspy, scratchy voice, some times he sounds as if it is painful to talk( he says it isn’t). This is due to 4 thyroid cancer surgeries over the years. He was sounding pretty bad at the 2 hour…
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From SO scared, to super sad, back to my baseline (numb)
I hope everyone has some joy and relaxation today. The last couple of weeks at our house were so crisis-filled I felt almost guilty posting more bad news, plus had trouble even catching my breath to post about some of this, so did not. My challenges are not nearly as tough as what some of our forum mates have had to deal…
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Bible Verse to Lift You Up 7/14/22
Psalm 139 The Message 139 1-6 "God, investigate my life; get all the facts firsthand. I’m an open book to you; even from a distance, you know what I’m thinking. You know when I leave and when I get back; I’m never out of your sight. You know everything I’m going to say before I start the first sentence. I look behind me…