-
Adult Day Care for ALZ bad idea?
Hello ALZ Connected, LO is at stage 5 and lives in my home. Other siblings can't/don't want to take on any caregiving duties at all. LO does not respond well at all to home health aides so I use them as needed now, maybe 1 or 2 days a month. LO is 90 and is overall happy and in good health, no major issues outside of…
-
Alzheimer sister lives out of state
I am the youngest of 7 siblings. My 79 year-old sisters currently lives in an assisted living facility in Los Angeles. She has been there more than one year. I live in Florida and have a hard time staying in touch with her. She has lost her cell phone twice. She has one daughter that lives nearby and two other sisters who…
-
Are you entitled to benefits you don't know about?
https://benefitscheckup.org/#/
-
Weeping Edema
Well this is new and different. Didn’t know this was even a thing. Moms legs, mainly calves, have been retaining water for quite some time. Elevating hasn’t seemed to help at all ever. Yesterday I couldn’t figure out what was going on with this small hole that water would rush out of if I got near it. Otherwise it just…
-
First doctor visit
I am a 35 year friend of my LO. She has given me permission to speak on her behalf to doctors. Tomorrow, she, her husband (who may also be having memory problems) have the first doctor appointment to address her loss of memory, anxiety, and “foggy days”; I will be there as advocate. There are a number of factors that…
-
Dental Awareness
There was a "ghost" post recently that talked about dental and it reminded me to post a caution based on DH recent experience. A couple years ago when DH was early into stage 5 he kept asking when his dental appointment was. He never said he had a bad tooth but when the appointment came it turned out that he had a wisdom…
-
Improved Cognition?
Has anyone experienced a LO having improved cognition? In August 2021 my mom totaled her car while wondering at 1am. She was like a shell and hardly there when I was with her. I moved her from NY to my home in SC. In February she scored 19/30 on the mini mental state exam (MMSE) and was diagnosed with moderate Alzheimers.…
-
My client was very upset
Hi, I am a caregiver. I watch and help take care of a man who was diagnosed 2 years ago. He asks where his car is at least once a day. He would even try to go look for it. I am to try to redirect him. Tonight he got very angry and was cursing pretty bad at me. I have been taking care of him for 5 months now. I have been…
-
Dad - Spouse of Dementia person - Mom Needs Help
Hi: Just signed up today. Mom and dad have been living with my husband and I for 25 years. Mom got dementia about 5 years. She broke her femur 4 years ago and after the operation her dementia got worse. This past April she broke her hip and once again the dementia is worse. It is a lot of work to care for her because my…
-
Mom ignores me now
This really hurts. And I know, I know it's not about me. She seems to be happy with the CNA's and her roommates. I tried to wake her up and talk to her but she just ignored me. She responded to the CNA'S and was smiling at lunch. I felt so alone, like why am I here? I am only going to go see my mom with other family, so I…
-
Successful Companions
My sister has fairly advanced Alzheimer's and can't really do activities any more, so I'm always looking for things to stimulate her. A couple have been tremendously successful and I wanted to share so others might consider them for their loved ones. My sister has always had pets. Her cat died not too long before we moved…
-
How to talk to dad
I've made a few comments about how difficult it is for my sisters and I to talk with our dad about caring for mom. Every time I get on the forum here, I see how important conversation is between family and caregivers. I feel that my dad and us are on different pages and I'm worried that someone will end up getting hurt…
-
New behavior - advice?
So, this was a new one, and I hope we won’t see it again… Last night my DH was feeding his dad, but his dad was angry and hitting DH’s arm when he would offer him a bite. First we thought it meant he wasn’t hungry, but he kept asking for his food, but when we offered a bite, he hit it away, cussing, etc. Then we thought he…
-
Help with Everything??
Hi all, I don’t really know where to start with this post - I have so many questions and struggles. I (24) am currently the full time caregiver for my mother (57) who has early onset Alzheimer’s/dementia. I am also a stay at home mom to my son (2) and have been having such a hard time with feeling burnt out/emotionally…
-
I took the car away
I feel like I have such a long way to go with this horrible disease and I'm already so stressed. My mother got lost in her car 1 1/2 weeks ago. After 6 1/2 hours and 3 police departments we finally found her. I kept her car at my house the 1st today and then she suggested we let my son borrow it until he got a new car. She…
-
How do I not become the punching bag
My mom is struggling with understanding that she has been diagnosed with Alzheimer's. She doesn't believe the doctor. I struggle with not trying to reason with her when the things she says out of anger are so hurtful. She has a new boyfriend, and to her, there is no one that cares for her more and she is willing to sell…
-
Delusion/Fixation with Aphasia
My dad has some sort of dementia/Alzheimer's and also has pretty significant aphasia. Within this past week he's gotten fixated on going to Lowe's. Thinks he has something there "on hold" to pick up, but can't tell us what it is. We've tried everything we can think of... We've taken him to Lowe's twice in the hopes that we…
-
Word Salad
If you or your LO strings words together that make no sense, it might be aphasia. Aphasia can be caused by a stroke or other brain trauma that damages the communication part of the brain. Recovery is possible for aphasia that is caused by things like stroke, head injury, explosion, etc. Recovery is not possible from…
-
Speech question
Does any one else’s loved one refer to themselves in the third person? For example, he rolled himself into a corner and I asked if he was stuck and he said, “No, he can get out if he wants”. He’s doing this more and more. Just curious.
-
Not sure what to hope for
DH has been in the hospital for a week due to an ankle broken in 2 places. I went to the ER via anbulance this week due to dehydration and anxiety. My nephew and his wife drove 4 hrs to visit. I can tell DH has regressed as when we visited he said he would meet us in the lobby. He knew who I was but had NO IDEA why he is…
-
Refusing MC/borderline
I have been doing everything for my mom (79) ALZ for the past 2 1/2 years. She just had a knee replacement a month ago and we got her in memory care by telling her she needs to stay in this place for rehab/therapy. The nurse from MC assessed her as borderline. I asked her what that meant. She explained that it means that…
-
Responding to violence
Painful to write this post. My mother was diagnosed in April ( early to moderate). We took the path of diagnoses because of the rageful anger my mom has towards my dad. ( I experience this at times too, but my dad is the main target). My parents live together and I live about 2 miles away. My mom becomes very angry with my…
-
Weight loss(3)
My wife has always been a bit on the heavy side. When she retired in January 2017, because of Alzheimer’s, she weighed about 190. By February 2020, she weighed about 200. She started losing weight and now she’s about 130. I understand that this is not unusual. However, her PCP thinks I should be giving her Ensure. I don’t…
-
Once again be careful what you sign
https://www.elderlawanswers.com/can-a-nursing-home-hold-friends-or-family-members-responsible-for-a-residents-care-18969?
-
On Hospice and making final plans.
My mom was admitted to hospice last week ater a fall and fracture. She has been on a downward spiral since then and we are making end of life plans. My mom has had dementia for quite some time (>10 years) and she is over 80. She has lost many of her siblings and friends at this point. She hasn't seen most of her extended…
-
Follow up to rocking/crashing and med question
So, following up from my post here: https://www.alzconnected.org/discussion.aspx?g=posts&t=2147561119 So no UTI, no constipation. His agitation and the rocking, crashing, spinning and trying to climb out of bed is worse and is non stop. He is looking more and more peaked, exhausted, and nurse is hearing an irregular…
-
Bible Verse to Lift You Up 8/5/22
FEAR NO EVIL GOD THOUGHT: Psalm 23:4 “Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me.” VICTORY THOUGHT: In our broken world, I look to the Good Shepherd for confidence and comfort. POWER PRAYER: God of Comfort, whenever darkness overshadows…
-
Its sad as I wasted so much time with them
Good afternoon, I WOULD FIRST LIKE TO APPOLOGIZE IF FOR SOME RESON YOU ARE GETTING THIS A SECOND TIME. But I was going of multiple email list and you sure cannot trust a person with dementia to do it right. I wanted to ensure that I had reached out to all that I have spoken to in the past about DAA. Please share with all…
-
My mom has dementia and needs care and her twin sister is blocking our attempts to get her care
My 86 year old mother has dementia and she is also bipolar. She is an identical twin and her twin sister has been looking after her until now, picking her up in the morning and dropping her back to her house in the afternoon. My mom is leaving her house at night and it’s a safety risk. My aunt now has dementia too and she…
-
Lewy Body Dementia(1)
Hello. I am new to this message board. The doctors believe my LO most likely has Lewy Body Dementia. Does anyone else have any experience with this? I am looking for activity ideas to help fill my LO day with purpose. Currently, we enjoy walks, cooking, folding towels, playing board games and throwing laundry into the…