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Intro... this will be long
It all started when the pandemic hit. Wait, back up. My Dad died on Christmas Eve of 2014 and my mom hasn't been "right" since. I begged for her to get counseling, get out of the house, DO anything, but to no avail. Okay, Pandemic. She's due for a colonoscopy but no one is doing elective procedures. But she buys her…
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Financial management softward/process input
Hey, y'all. I am POA and manage my Mom 86 and my early-onset age 62 brother's money matters. I pay all the bills, etc, as well as our own personal finances. I want to keep all 3 "household" financial matters completely separate. I'm great at admin stuff but thought I'd ask if anyone is using some awesome software / apps to…
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Alzheimer's Spouse in ICU
My mother has alzheimers and it's a new diagnosis (fall 2021), so we are all still learning. My father was put into the ICU yesterday and I know it's thrown all of our worlds upside down. My dad is her primary caregiver too. What suggestions can anyone share for helping my mom cope through all of this uncertainty and…
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VA Benefits - Staring into the Abyss
Just to be clear, I'm posting this information as forewarning for others - not to ask for ideas or sympathy. At this point in the struggle to find help caring for my DH with vascular dementia and a side order of dangerous psychotic behavior, I am clinging to a ledge and staring into the abyss. The emotional and physical…
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Abusive Narcissist Now Obviously Has Dementia/Alzheimers
TIL: My grandfather is and has always been abusive towards my grandmother and is escalating as his symptoms get worse. He doesn't have a diagnosis because my grandmother has 50 years of Stockholm Syndrome and does absolutely everything for him. We're struggling to keep up through the abuse and my mother's (their only…
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NYC Area: Recommendations for caregiving
Hi Everyone, My father lives in Brooklyn, NY. He currently has 24/7 live-in help. The aide, however, can't lift him out of bed on her own, so he's bedbound for most of the time. I'm looking for an organization/agency that can send help during the week for a few hours a day to assist my father's aide with cooking, cleaning,…
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The NAC Protocol - Dark to Light
I’m making this post because something has come to my attention. I’m talking about a cure to many age related ailments, with ramifications far beyond anything we thought possible. The brain of an alzheimer’s sufferer is infected with mold. Autopsies have been done and fungus is ALWAYS present in the brain. This is the big…
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Neighbor Has Alz Need HELP!
You all gave wonderful advice when my mother, who had Alzhimers, lived with me. Now, I need advice about my next door neighbor. My neighbor is in her late 60s and has Alzheimer's. She has started roaming the neighborhood and recently I saw her take mail out of one neighbor's mailbox and take it home with her. Today, she…
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Bible Verse to Lift You Up 8/16/22
JESUS IS THE VINE GOD THOUGHT: John 15:5 NIV “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit; apart from me you can do nothing.” VICTORY THOUGHT: A close relationship with Jesus enables me to please and serve Him. POWER PRAYER: Come into my heart, Lord Jesus, remain with me…
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Toilet troubles-flushing Depends
Hi all, My Mom has Alzheimer's and is primarily cared for by my dad, who is healthy & active, but also 80 years old. Recently, Mom has started flushing her Depends underwear. My Dad and brother had to spend a good part of the day today digging up pipes to clear the plumbing line....for the second time in a month. I've been…
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Guidance on Tooth Extraction and Sedation or General Anethesia in SF Bay Area
I'm brand new to the caregivers forum. I called the support line and they suggested I post something here to get some peer feedback. Has anyone needed to have their parent have dental extractions. My 84 year old mother needs a few extracted in a few different sessions. Actually several teeth have fallen out and many have…
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Dad falls because he thinks he can walk
Hello, all, and thank you for welcoming me to this forum. I've only posted one question so far, but the answers and sense of community have been incredibly helpful. I've got another challenge that I'm wondering if anyone else has dealt with and hopefully found a solution, even temporary. Dad had a stroke in November. He is…
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Haven't posted in awhile - looking for encouragement
I haven't made the time to post in a while. Just busy-ing myself riding the ebbs and flows of Mom's dementia as her 24/7 caregiver and only child. Just when I think we have sailed into a good period (ie., sundowning not as severe, delusions decreased, sleeping through the night) then we hit an iceberg (ie., UTI, not…
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Please answer two beginner questions
Hi, My questions: 1. at what point can someone not live alone? 2. Who can make her not live alone? 3. OR - who can answer these questions? The internet websites I've looked at are very wishy-washy on answers through searches. She has strong ongoing delusions, hallucinations, and confabulations. Cannot pay bills, use a…
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Some memories can be retrieved
There was a study a few years ago (albeit in mice) that memories were not permanently lost they simply could not be retrieved. Memories retrieved in mutant ‘Alzheimer’s’ mice Study suggests that patients with Alzheimer's disease can still form memories, raising hopes of new treatments.…
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Tucson area caregivers: recommendations please!
Dear Caregivers, My sister and I are in the process of moving our mother to Tucson where my sister lives. We have been looking at memory care assisted living facilities. There are a lot! My mom has two small dogs, who are the most important thing in her life right now. We really want to let her keep one or both of them as…
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What I would ask myself if I could go back in time
Are you really prepared to care for someone who has the mind of a child and the body of an elderly person? Are you ready to deal with someone who will have fits, rages, and is uncooperative- that you cannot change or discipline?
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Desitin
This is going to sound crazy, but has anyone's LO been agitated after using Desitin? I don't mean when putting it on or any type of skin irritation, but temperament the next day. I started using Desitin recently. My mother doesn't mind when it is being put on, but the next day she is agitated and her behavior is not good.…
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Alzheimer's/ dementia treatment prognosis.
My spouse has dementia/ALZ symptoms since her mid 60's and she is now 75. Her symptoms were minor at first, things you would expect with age, but now has all the classic symptoms I have read about. She has not been actually diagnosed with ALZ. She looks at the problem as a minor memory issue and refuses to get a workup for…
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Cleaning for a person with Dementia
Hello, Brand new to the message board. Wish I didn't need to be here. Would like any suggestions on cleaning around my LO who has had memory issues for a long time and was just diagnosed with Dementia. The house is very cluttered with lots of trip and fall hazards. This is going to be a challenge. Thanks in advance.
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Difficulty speaking (Aphasia)
My fathers disease started showing with his forgetfulness of memories, words and finding items. Little did we know it would get worse as time went on and it's become difficult to have a conversation with him. He pauses trying to find the words to speak about something. I want to talk to him very badly but it's so…
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95% clarity for the past 6 days for mom after 5 years of steady decline.
We are truly at a loss with what to do next. Mom has been on a steady decline for the past 5 years after diagnosis of dementia. She is pretty high functioning in regards to self care, however; cannot cook, clean, pay bills, keep appointments/make appointments, etc. My brother is living with her and is at wits end with what…
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Estranged mother with dementia
My mother was very difficult for many years. She is affected by an alcoholic family, unresolved trauma, and possibly a personality disorder, and was very hard on me, including repeated specific patterns of harm over time. A few years ago, it was clear to her that she was becoming demented, and being in the healthcare…
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Second guessing(1)
I’ve posted before about my 79 year old mom with ALZ. I would put my mom at a stage 5. She had a knee replacement about 6 weeks ago. I have POA. She’s a widow and lived alone in a condo building. After the surgery, my sister and I got her into MC. We told her it was for PT. Then after a while, she was done with PT and…
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Please help me with where to start?
I live with my elderly mother who is exhibiting some troubling symptoms. She has been chronically ill and in and out of hospitals and rehabs for the last few years. Most of her medical issues are pretty much under control but lately she has been having what I guess you would call delusions (I have never been 100% clear…
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Feeling lost(4)
I have been reading everyone's post for a few days now and have finally gained the strength to write my own . For the last year my family has notice some memory issues with my mother, my best friend. At first we thought it was just signs of aging since it did not drastically impact her daily life and she is 75 yrs. old. On…
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Advice for MCI and anosognosia
Hello everyone. I wrote the board a month ago and the advice has been so helpful. I've done more research and am working on moving down to my LO, getting an elder care attorney, and POA. But, my question now is how do you go about making lifestyle, particularly financial, changes for a LO who doesn't have the awareness of…
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Question re reading strategies
My husband who has been diagnosed with Lewy Body & Mixed Dementia in 2020, but I believe has had the dementia even 7-10 years prior, does the following to a book that he reads. When asked what he was reading about, he can't really accurately say, but is good in making up a story. Look at what he does to page of a book he…
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When consider moving to medicalized home?
Hello to all, My mom has Alzheimer. She’s stage 5 going into 6 for those who know about the levels. I have 3 care givers at her home who shift and take care of her, alongside my sister and I who manage every day and shift twice a week. My mom is still pretty healthy (though declining as her brain says no to everything) as…
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Wants to go home - won't be redirected
Dad is in an SNF after a stroke last November broke his hip, weakened his right side, and affected his cognition. I had hoped he could recover enough to come home, but he refused to do PT or OT after a couple of months, and his cognition has continued to decline (he usually thinks he's still in college or the army). He's…