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What gives you a headache?
I swear at least every other day I get a pounding headache from all the drama and yelling that my son with EO has daily. Today: "You just fricasseed my brain!" Repeat 20 - 40 times. Not exaggerating. Loudly. Poor son just got shaved and a great shower from an extraordinary and patient caregiver. Life with Alzheimer's. Boy,…
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Losing my grandfather
My 18 year old granddaughter is struggling as she is losing her Best Friend , her grandfather, to Alzheimer’s. If I could direct her to a forum that includes this type of relationship it may help her to cope with his final stages.
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How to Encourage LO w/Alzheimer's to Socialize?
My mom was just diagnosed with the early stages of Alzheimer's and the doctor recommended that she get more intellectual stimulation from interacting with friends and peers - but unfortunately, my mom has been increasingly withdrawing from seeing people other than her immediate family members. After her diagnosis, we had…
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Dad's Paranoia
I haven't been here in some time. My dad has gotten better physically, but continues his decline cognitively. He has been started on Serequel by the doctor because of his aggressive behavior. It has helped, but paranoia has been a new symptom. He calls me and tells me that I have stolen his money. That is upsetting, but he…
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Support Groups for Family Members?
Does anyone know of any virtual support groups that have been helpful for them? My father has late stage Alzheimers and is now in a memory care center for about a month now. Struggling with a lot of it so I’m looking to see if there’s any support groups that have been helpful? Thanks!
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A very resistant FIL - clearly dementia but refusing to sign a POA, see doctor, etc
Hey all, hope you’re keeping well. I made a post about being new to this situation recently and was super helpful and supportive. I was looking for some more advice if possible! We are in the UK if that helps. My bf is looking after his dad at the mo who clearly has dementia. He wanders and gets lost in his two bed flat,…
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Home Health Care vs Hospice
So we’re faced with the daunting real possibility that hospice is going to discharge mom in a couple of weeks. She’s in “the yellow zone” meaning she’s stable and they probably can’t do more for her than I can, so they say. I just pulled the trigger on the hospital bed a week or so ago and still getting used to it. Oh…
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Rehab in late stage
My dad has been in memory care for about four years. The past month has been a roller coaster of increased decline and emotions, with me coming to grips that I have been in denial about just how advanced he is. Last week we saw a dramatic plunge: unable to wake, unintelligible conversation, increase in hallucinations,…
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Chronic headache after Covid vaccine
DW has had a headache all day, every day since her first Covid shot over a year ago. Has anyone else heard of this?
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Arm sleeves
Hi All! Any suggestions for arm sleeves to protect mom from scratching herself? The sleeves the facility uses keep slipping down. She has a bad tear right now. Her dementia is too far gone to reason with her to stop scratching. I've looked at couple on line. Thanks for your help.
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Wants to move to another facility and communication
My mom is 89 years old and was diagnosed with age-related dementia several years ago. Because of declining cognitive and mobility issues (several and frequent falls some of which resulted in ER visits), we have had to move her for her safety from her independent living apartment to AL to the MC unit at her life-care…
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My experience with Covid
I am an older woman, over age 70, with systemic lupus, allergies and asthma, and a few other chronic illnesses. I successfully protected myself from Covid over these past two years until this past week. I attended a house party on Saturday, and on Tuesday I noticed runny nose and sneezing. Since I have allergies I was not…
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Music player
Last year when we moved my FIL to MC, I bought a dementia-friendly music player (one huge “ON/OFF” button) and put all his CDs on it. Around 1000 songs I think, songs from the 40s, 50s, hymns, Statler brothers, etc. So these were songs he knew well, pre-dementia. The player can hold 3000 songs or such. He was able to work…
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Vertigo?
When she is positioned on her side she thinks she is falling. It's so sad I don't know what to do. She calls out "help me please help me" and calling out for her mommy, dad and her husband, my father. No amount of reasoning or assurance she is okay doesn't help. She gets a death grip on the rail on the bed and won't be…
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Transfer to Memory Care
My DH has been in the hospital for almost 2 weeks after fracturing his ankle in 2 places. He is almost finished with in hospital rehab and will go to Memory Care in the bldg next to our independent living apartment. I knew this would happen one day and I am a mixture of relief and anxiety as I have taken care of him for 4…
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Adult Day Care for ALZ bad idea?
Hello ALZ Connected, LO is at stage 5 and lives in my home. Other siblings can't/don't want to take on any caregiving duties at all. LO does not respond well at all to home health aides so I use them as needed now, maybe 1 or 2 days a month. LO is 90 and is overall happy and in good health, no major issues outside of…
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Alzheimer sister lives out of state
I am the youngest of 7 siblings. My 79 year-old sisters currently lives in an assisted living facility in Los Angeles. She has been there more than one year. I live in Florida and have a hard time staying in touch with her. She has lost her cell phone twice. She has one daughter that lives nearby and two other sisters who…
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Are you entitled to benefits you don't know about?
https://benefitscheckup.org/#/
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Weeping Edema
Well this is new and different. Didn’t know this was even a thing. Moms legs, mainly calves, have been retaining water for quite some time. Elevating hasn’t seemed to help at all ever. Yesterday I couldn’t figure out what was going on with this small hole that water would rush out of if I got near it. Otherwise it just…
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First doctor visit
I am a 35 year friend of my LO. She has given me permission to speak on her behalf to doctors. Tomorrow, she, her husband (who may also be having memory problems) have the first doctor appointment to address her loss of memory, anxiety, and “foggy days”; I will be there as advocate. There are a number of factors that…
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Dental Awareness
There was a "ghost" post recently that talked about dental and it reminded me to post a caution based on DH recent experience. A couple years ago when DH was early into stage 5 he kept asking when his dental appointment was. He never said he had a bad tooth but when the appointment came it turned out that he had a wisdom…
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Improved Cognition?
Has anyone experienced a LO having improved cognition? In August 2021 my mom totaled her car while wondering at 1am. She was like a shell and hardly there when I was with her. I moved her from NY to my home in SC. In February she scored 19/30 on the mini mental state exam (MMSE) and was diagnosed with moderate Alzheimers.…
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My client was very upset
Hi, I am a caregiver. I watch and help take care of a man who was diagnosed 2 years ago. He asks where his car is at least once a day. He would even try to go look for it. I am to try to redirect him. Tonight he got very angry and was cursing pretty bad at me. I have been taking care of him for 5 months now. I have been…
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Dad - Spouse of Dementia person - Mom Needs Help
Hi: Just signed up today. Mom and dad have been living with my husband and I for 25 years. Mom got dementia about 5 years. She broke her femur 4 years ago and after the operation her dementia got worse. This past April she broke her hip and once again the dementia is worse. It is a lot of work to care for her because my…
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Mom ignores me now
This really hurts. And I know, I know it's not about me. She seems to be happy with the CNA's and her roommates. I tried to wake her up and talk to her but she just ignored me. She responded to the CNA'S and was smiling at lunch. I felt so alone, like why am I here? I am only going to go see my mom with other family, so I…
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Successful Companions
My sister has fairly advanced Alzheimer's and can't really do activities any more, so I'm always looking for things to stimulate her. A couple have been tremendously successful and I wanted to share so others might consider them for their loved ones. My sister has always had pets. Her cat died not too long before we moved…
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How to talk to dad
I've made a few comments about how difficult it is for my sisters and I to talk with our dad about caring for mom. Every time I get on the forum here, I see how important conversation is between family and caregivers. I feel that my dad and us are on different pages and I'm worried that someone will end up getting hurt…
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New behavior - advice?
So, this was a new one, and I hope we won’t see it again… Last night my DH was feeding his dad, but his dad was angry and hitting DH’s arm when he would offer him a bite. First we thought it meant he wasn’t hungry, but he kept asking for his food, but when we offered a bite, he hit it away, cussing, etc. Then we thought he…
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Help with Everything??
Hi all, I don’t really know where to start with this post - I have so many questions and struggles. I (24) am currently the full time caregiver for my mother (57) who has early onset Alzheimer’s/dementia. I am also a stay at home mom to my son (2) and have been having such a hard time with feeling burnt out/emotionally…
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I took the car away
I feel like I have such a long way to go with this horrible disease and I'm already so stressed. My mother got lost in her car 1 1/2 weeks ago. After 6 1/2 hours and 3 police departments we finally found her. I kept her car at my house the 1st today and then she suggested we let my son borrow it until he got a new car. She…