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Selling home and moving
Well, I'm back again. DW still at home but slipping further into dementia. I have a question that hopefully someone can help me with. our home and yard are more than I can handle and care for her too. I would like to sell the home and downsize, taking her to the new home of course. I fear a move may really upset her but at…
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Frozen Cake and Cole Slaw and Many Thanks!
Many thanks to all who have spoken into our lives since I joined this group last week! I have read every topic in this forum! I have made an appointment with a CELA for August 17th. I downloaded and read Understanding the Dementia Experience by Jennifer Ghent-Fuller which was incredibly helpful. I ordered the devotional…
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The newest care plan
I have most of a plan for the next school year. Just thought I'd update for those who read these boards and want to know what others do. How to handle full-time care when the time came has been a huge a worry of mine from the first time I heard DH's diagnosis. Last school year (I'm a teacher) I put together a variety of…
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Reality hit me right between the eyes!
So, a year or so ago I took an online quiz to determine estimated time for long term type care. It said a couple of years and I thought things would have to progress quickly for DH to get there. Well today I was thinking, my Mother is in a retirement residence and I thought about what she is expected to do in a day and…
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ALZ dream
This is partly for Stuck in the Middle, as it has two main characters, the spouse and the offspring that he may recognize. Last night: I woke up screaming “No, no!” In the dream, I was on the phone with a former student and friend, who told me she had been hiking in France with my husband and my psychotic brother. She was…
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More on FDA approval of Aducanumab
What a Bad Day Science Had by Tia PowellShare: Published On: June 8, 2021Posted in Hastings Bioethics Forum June 7, 2021, was a bad day for science. That was the day the U.S. Food and Drug Administration approved aducanumab for the treatment of Alzheimer’s disease, even though a committee of its own selected experts…
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What a pill
DH was restless all night Tuesday, waking me with his fidgeting movements. At 5 a.m. he was rummaging through the stuff on his night stand looking for a pill he dropped. Pill, what pill? Sometimes he calls cough drops pills so I figured that was it. Wrong! He had taken the medication that wasn’t due until bedtime (16 hours…
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Losing the ability to walk suddenly
My husband was walking fairly well, although slowly, without any assistance until the last couple of days. Today he has been struggling to get up from a sitting position and is having a very hard time walking even with a walker. After lunch, his legs gave out from under him and he dropped to the floor. Please share your…
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Men and women as caretakers.
From another thread Most of my father's family does this as part of their religion, one of the many branches of Protestant Christianity. Those men don't refill their own coffee cups. From my personal experience men of all cultures and religions can be lazy thoughtless entitled boors. Alzheimer's has given me exposure to a…
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Newlywed New Care Giver
I just wanted to introduce myself as I am new to the site. After 38 years of marriage my 1st husband past away from cancer and I devoted myself to our children and grandchildren; I was just 54. I really didn't think love would happen again for me. But 8 years later, just two years ago I met a wonderful 70 year old man at…
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Dealing with anger
My DH was always a laid back guy. We never fought or called each other names. Exception goofy ones. But he gets angry a lot, some times for long periods , some quick out bursts. I have some meds that seem to help but can’t be used on a regular basis. And if it turns out to be a bad one he won’t take drugs.....at least not…
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Moaning
My DH has starting moaning, sometimes repeatedly sometimes off and on, or all night the. All day. I have asked him about pain and checked him for pain or possible need to go to the bathroom. Most of the time there is no reason. He verbalized he didn’t like the way things were as he just had gotten out of the hospital and…
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an article was sent
https://venturebeat.com/2021/07/06/linus-health-raises-55m-for-early-screening-for-alzheimers-disease/
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Just need to talk to my friends (149)
Morning, I woke up and couldn't go back to sleep. Stormy and Sheena wanted to go outside so when I let them out decided I'd see what was on TV. I found Designing Women. One of my favorite shows in the 90s. This is the first time I've seen it back on TV. Also I was hungry so had some milk and a cookie (well, three, little…
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New here with questions
My DW, only 68 has short-term memory loss that is pretty significant. I can live with that. In the last 30 days she has become convinced that I moved out of our house of 30 years and have just come back to try to take the house away from her and our sons. We never split up or even spent more than two nights apart over the…
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4th of July
I was dreading the 4th of July more this year then in years past because I was sure there were going to be more people out celebrating with a tone of fireworks since it was a long weekend and the first since Covid. First is becuase my dogs and cats get terrified with the loud explosions to the point where the cats hide for…
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how do you know it's the end?
DH has EOFTD and his doctor had him admitted to the geropsych unit back in March and from there he transferred to an assisted living memory care unit. His decline has been rapid as he was still testing in the MCI range in June of 2019. Then January 2020 he was at 21 on the test, December he scored a 16, and in March at his…
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Joyful Moments
Today my sister and her boyfriend came over for a backyard cookout. She orchestrated pretty much everything, hot dogs, burgers, pickles and grilled veggies. I made a pie. Thanks to Alexa, we played some wonderful mariachi music. The weather was great. The music was so festive. I asked DH to dance and HE DANCED WITH ME. We…
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New Drug - False Hope
https://apple.news/AFW4TegAmQGqetkaQvSwmVw There’s no way we’d spend $50k/year for a drug that shows such little promise. Just removing plaque isn’t going to make things better.
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DH Will Not Bathe or Shower - Update
Well, I almost don't know how to start this update post without writing a whole screenplay or movie script (which I don't know how to do ). But that's what yesterday's good news/bad news adventure feels like it requires. I am still replaying things in my mind from our latest wacky dementia experience. All's well that ends…
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Stomach pain(1)
I need some advice, especially from you medical people out there. And the "been there, did that" group. DH has complained for years that his stomach hurts. Years. Even before dementia, it was a common complaint. It's ramped up. In the past 3 years we've been to the doctor for stomach pain MANY times. He's had a…
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Tips for simplifying the journey - PLEASE SHARE
Within another post, jfkoc suggested simplification. I have tried to simplify our household with the intent of making the dementia journey more manageable. For example: * Making meals that are easy and that can be eaten for several days. My go to meals are pot roast in the slow cooker and chicken pot pie. * Replacing DH's…
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Lost and alone
this is my first experience with dementia and I am so exhausted and overwhelmed. My DH has not had a formal diagnosis, can't get into neurologist until September but he has serious short term memory issues. The memory loss is hard enough but the bouts of anger directed at me are horrible. I don't know when is the time to…
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Rapid progression
I believe the last time I posted was the night before I placed DH which was May 6. In the short time since then many things have happened but I will try to keep it brief. He has had a second and third seizure. He is no longer able to walk. He sleeps almost constantly. Hospice brought a hospital bed into the memory care…
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DH with early AD
Is letting papers pile, won’t file them, I offered to help but gets agitated. When we need the papers, I can’t find because they r not filed! Solution? I noticed that not only that he can’t remember where his drinking glass goes for daily use but he couldn’t tell the difference between a dark blue towel and a light…
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sleep study
Pre COVID, our neurologist suggested a sleep study, With my DH's rapid decline the last year, I'm not very optimistic about apnea as a cause. Has anyone see improvement with C PAP machines?
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Stirring up trouble
This is a good example of what my days are like. We have bats roosting in our wooden rafters, and carpenter bees boring holes in those same rafters. The bats (I'm talking a lot of them, this is living in the woods) are pooping on the driveway and urinating on the windows. There's absolutely nothing to do about it unless…
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Four hour trial visit to Adult Day Care; need some advice.
I have arranged for a trial visit on Tuesday (2 days from now) to an Adult Day Care Center in my town that just reopened since Covid. I would have to say my DW (age 68) is early stage 6. Starting about a year ago She know longer recognizes me as her husband. I have become a Caregiver that is on thin ice all of the time. DW…
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Intervention
I came here about 2 1/2 months ago wondering if spouse had some sort of dementia. Now convinced. I've chats with drs, he won't. He's still working part time but covers mistakes. He acknowledges memory loss but IMO he covers it up a lot. One incident recently when I walked into a room where he was and he didn't recognize…
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First in- person tour of MCF
Today I had a tour and interviewed the Executive Director of a local AL/MCF. It is a high end facility and more expensive than others I have looked at. I had a virtual tour last year, but this was the first in-person tour I have had of any facility. I came away sad and frustrated that this the best(?) I can do for my wife.…