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separation anxiety
I finally hired a home health aid for 2 three hour days thinking that i would be able to attend my doctor appointments but it didn't work. I did a trial run and went to the market while i was there i received a call that DH was very anxious and looking for me. Any help on how to deal with this issue will greatly be…
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Safeguard your sanctuary
Because he snores, jerks, and rolls over on to me, I sleep in a windowless room in the basement. In trying to engage my husband in a task I asked him to help me clean the light fixtures in the basement (holding the screws, wiping the inside of the fixtures, etc.) Now he states that he never knew about this room and insists…
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DNR(1)
My husband has Lewy Body dementia, probably stage 6, 76 years old. Getting increasingly weaker and needs wheeled walker, almost no short term memory , cannot follow movie/TV, incontinent (including occasional bowel). Still eats well and can feed himself. I am considering ending all doctor visits except for neurologist.…
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oh oopsie! COVID deaths
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“Don’t Put Me Away”
That’s what my DW said yesterday, completely out of the blue. With a lot of folks here lately confronting potential placement, the issue has been much on my mind. But not in my speech! I’ve never mentioned this possibility to her. DW followed up that imperative with, “I don’t want to be put away.” I recall a Teepa Snow…
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Missing from dementia treatment and care
I am not a spouse or partner of a LO with dementia, just a daughter trying to help in any way I can. I have read and read the posts here and it occurs to me that what we are missing from the medical profession is the "team" approach for this disease. A group of like minded professionals who not only treat the patient but…
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stage 5 symptom becoming prominent
I review the stages every so often. One stage 5 thing I'm seeing a lot of: difficulty interpreting background noise. My partner heard fireworks last night and thought it was shooting. Ditto with doors squeaking, she thinks it's the cat or dog crying. She's more 5 than 4 now, clearly progressed compared to a year ago. No…
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Is the anger a stage will it abate.
My husband was a very gentle man. But now 7yrs into our AD journey he is very aggressive and angry . It started with short bursts but not lasts several days. Will this abate or is this how it will be from now on. Any insight from you all would help.
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Time(2)
I think the time has passed for waiting for the time. Recent trip to Neuro new to DW due to original Neuro schedule so full. Doc was so impressed with physical attributes that she overlooked mental deficits initially. I could see the shock in her face immediately recommended in patient memory unit evaluation in addition to…
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Lost my cushion
On July 7, I lost my beloved Cairn, Brinna. She was my cushion in dealing with DH. I enjoyed being able to focus on something else that was living and breathing. At 75, I feel too old to get another dog. Brinna was a retired champion show dog that we got from a couple who wanted to find a forever home for her. We were…
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TUMERIC
Living with the fear of Alzheimer's, I was glad to read this in Sunday's newspaper https://www.seattletimes.com/author/teresa-graedon/ It turns out that India has very low rates of Alzheimer’s and the spices may be part of the reason. (Lower age of mortality is no doubt another factor.) So I bought a bottle of tumeric…
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Karsikoff syndrome
Pretty new to this. My DW was an alcohol abuser. After several seizures and falls she has gone sober for about 2 years. Her short term memory is awful and she has confabulations. No doc has yet diagnosed her with anything other than dementia, My own research leads me to think she may have Karsikoff syndrome. The difference…
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The right side
When I guide my partner in the shower, I'm pretty good at getting him to wash the right side down, but not the left side. For the arm, it's the opposite. He washes his right thigh and left forearm a lot. And it's the same for wiping. He only wipes his right leg, I can get him to wipe his left foot but never higher. At the…
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Self Care
Last Christmas I developed a mysterious rash on my hands. It was very red and itchy and began working it’s way down my wrist and heading down my arms. The dermatologist determined it was stress induced Eczema . He asked if I was stressed lol. Ah yes. Yes I am. That rash was a visible representation of what stress was…
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I thought this was great survey and it shows what people do not know.
https://www.aarp.org/content/dam/aarp/research/surveys_statistics/health/2021/dementia-diagnosis-perceptions.doi.10.26419-2Fres.00471.001.pdf
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Selling home and moving
Well, I'm back again. DW still at home but slipping further into dementia. I have a question that hopefully someone can help me with. our home and yard are more than I can handle and care for her too. I would like to sell the home and downsize, taking her to the new home of course. I fear a move may really upset her but at…
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Frozen Cake and Cole Slaw and Many Thanks!
Many thanks to all who have spoken into our lives since I joined this group last week! I have read every topic in this forum! I have made an appointment with a CELA for August 17th. I downloaded and read Understanding the Dementia Experience by Jennifer Ghent-Fuller which was incredibly helpful. I ordered the devotional…
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The newest care plan
I have most of a plan for the next school year. Just thought I'd update for those who read these boards and want to know what others do. How to handle full-time care when the time came has been a huge a worry of mine from the first time I heard DH's diagnosis. Last school year (I'm a teacher) I put together a variety of…
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Reality hit me right between the eyes!
So, a year or so ago I took an online quiz to determine estimated time for long term type care. It said a couple of years and I thought things would have to progress quickly for DH to get there. Well today I was thinking, my Mother is in a retirement residence and I thought about what she is expected to do in a day and…
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ALZ dream
This is partly for Stuck in the Middle, as it has two main characters, the spouse and the offspring that he may recognize. Last night: I woke up screaming “No, no!” In the dream, I was on the phone with a former student and friend, who told me she had been hiking in France with my husband and my psychotic brother. She was…
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More on FDA approval of Aducanumab
What a Bad Day Science Had by Tia PowellShare: Published On: June 8, 2021Posted in Hastings Bioethics Forum June 7, 2021, was a bad day for science. That was the day the U.S. Food and Drug Administration approved aducanumab for the treatment of Alzheimer’s disease, even though a committee of its own selected experts…
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What a pill
DH was restless all night Tuesday, waking me with his fidgeting movements. At 5 a.m. he was rummaging through the stuff on his night stand looking for a pill he dropped. Pill, what pill? Sometimes he calls cough drops pills so I figured that was it. Wrong! He had taken the medication that wasn’t due until bedtime (16 hours…
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Losing the ability to walk suddenly
My husband was walking fairly well, although slowly, without any assistance until the last couple of days. Today he has been struggling to get up from a sitting position and is having a very hard time walking even with a walker. After lunch, his legs gave out from under him and he dropped to the floor. Please share your…
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Men and women as caretakers.
From another thread Most of my father's family does this as part of their religion, one of the many branches of Protestant Christianity. Those men don't refill their own coffee cups. From my personal experience men of all cultures and religions can be lazy thoughtless entitled boors. Alzheimer's has given me exposure to a…
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Newlywed New Care Giver
I just wanted to introduce myself as I am new to the site. After 38 years of marriage my 1st husband past away from cancer and I devoted myself to our children and grandchildren; I was just 54. I really didn't think love would happen again for me. But 8 years later, just two years ago I met a wonderful 70 year old man at…
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Dealing with anger
My DH was always a laid back guy. We never fought or called each other names. Exception goofy ones. But he gets angry a lot, some times for long periods , some quick out bursts. I have some meds that seem to help but can’t be used on a regular basis. And if it turns out to be a bad one he won’t take drugs.....at least not…
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Moaning
My DH has starting moaning, sometimes repeatedly sometimes off and on, or all night the. All day. I have asked him about pain and checked him for pain or possible need to go to the bathroom. Most of the time there is no reason. He verbalized he didn’t like the way things were as he just had gotten out of the hospital and…
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an article was sent
https://venturebeat.com/2021/07/06/linus-health-raises-55m-for-early-screening-for-alzheimers-disease/
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Just need to talk to my friends (149)
Morning, I woke up and couldn't go back to sleep. Stormy and Sheena wanted to go outside so when I let them out decided I'd see what was on TV. I found Designing Women. One of my favorite shows in the 90s. This is the first time I've seen it back on TV. Also I was hungry so had some milk and a cookie (well, three, little…
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New here with questions
My DW, only 68 has short-term memory loss that is pretty significant. I can live with that. In the last 30 days she has become convinced that I moved out of our house of 30 years and have just come back to try to take the house away from her and our sons. We never split up or even spent more than two nights apart over the…