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OT: Sad day
Today would have been my father's 98th birthday. I was glad he didn't live to see 2001. I can hardly bear to watch any of the remembrances, still too close. Any one else feel this way too? I know I can be seasonal, and the light is going down--but it's hard to feel like there is anything to look forward to right now. Maybe…
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Covid rates verus vaccination rates
This is a list of every state in the USA with a Covid death rate higher than the USA Average (Deaths per 100,000 per day) All but Florida are BELOW the USA Average in Vaccinations Whatever reason, excuse, rationale, prevarication, religious belief, science disbelief or whatever drives people to not get vaccinated, the…
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Taking Charge
I read this today in “Daily Comforts for Caregivers “ by Pat Samples. “When I’ve had to take charge of some areas of my loved one’s life, he doesn’t want to let go, even when he can’t manage anymore. He’s used to being in charge. Sometimes I have to be strong and insist. I can understand why he wants to maintain control,…
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I think I found it
I have been washing bed sheets 4 or 5 times per week, but not this week. Parentgiving.com has a new brand that they are handling. It is called Dry Direct. We have been using them for 5 nights now, and I have not had to wash sheets. But I probably should say that she only slept through 1 night (10 hours or so), and the…
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I feel like a terrible person
I am so down today. Last few days have been rough but if I could just remain patient things wouldn't be as bad. My DH isn't as far along as some of your LO's but I feel like I'm really losing it!Started on Friday. We went to the beach about an hour from home. DH picked the beach, it was the first time all summer that we…
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I am glad to see them go after these companies.
So much more needs to be done to stop these companies. https://www.washingtonpost.com/health/prevagen-memory-loss-does-it-work/2021/09/10/53e5d3e8-f3a6-11eb-a49b-d96f2dac0942_story.html
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Lost The Love of my Life
As difficult as the last five years have been I never imagined that we would not battle it together for another 10 beautiful bride passed away last Friday after an extremely large brain bleed fortunately my son daughter-in-law and grandchildren were able to be present as she passed it is the most painful thing I have…
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MC Visit only a Half Hour
After tormenting months and months, my DH started to decline more rapidly. He's only 68 with usual endurance for walking and more, but suddenly, he could do nothing and family noticed prodding me to act sooner. So - I did. After a very rocky start with him yelling, "I don't want to be here", we left abruptly and within a…
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Nothing Much
Hello Gang! My DW passed june 2020 and ive felt no need to come back around here. I served in the army 20 years grew up on my reservation and went to war in the Gulf. I felt numb i suppose . I faced death and was prepared to die over there. I was changed by facing death. I remember the instant my DW passed. I prayed for…
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Paying employees to be vaccinated
Our grandson works for Cleveland-Cliffs, a steel maker. They offered their employees a nice bonus to be vaccinated. He took them up on it. Here's an article on the plan. https://www.cnbc.com/2021/09/08/covid-vaccine-cleveland-cliffs-ceo-says-offering-workers-a-bonus-increased-uptake.html
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Please help me change lives
Hi folks, I need you help ideas and if you have funds, I need them to. As many of you know I have been an advocate for this cause for a very long time. What you may not know is that I do this work all over the world. I have focused a lot of my work in Africa were they believe dementia is which craft and may are locked in…
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DH final days--so sad
A while ago I wrote asking how to break off a visit to my DH in Memory care. Now he is in Hospice care on Morphine every four hours and non-communicative and doesn't recognize me. How I wish I could go back to the problematic visits with him. He fell on Sunday, went to ER, had x-rays which showed multiple pelvic fractures.…
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VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
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How Do You Respond to Casual Friends Automatic Question, “How’s (Name of Spouse)” Knowing She Has A
This is a wonderful group of compassionate spouses/caregivers, and I have learned so much from this chat room. In the grand scheme of things, this issue/pet peeve of mine is minor. I’m seeking your advice on how to best reply to casual friends in my retirement community who ask how my wife is doing EVERY time they see me…
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My wife won't accept care from me or home care women.
Lexapro quit working. Tried Seroquil, it kept her up all night. She's in severe Alzheimer's stage. 70 years old. She still walks fine, but hard to get her out of bed, and get her to eat and drink liquids. Friends and family members can cheer her up and get her motivated, but there are only a handful of people that are…
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Turning in bed
My husband , on hospice, is spending most of the time in bed. I have always tried to stay ahead of where he is at to buy products and think about what I will need to do. Right now his skin is good but am beginning to worry about turning and bed sores. Any advice out there from people who have dealt with a bed bound loved…
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Delusions-you can't make this stuff up!
Hi Everyone. I've been inspired by the "Found What Where?" thread and thought I'd start a list of my DH's delusions over the past few years. I don't typically post but think it might be a good time to start. My DH has a tentative diagnosis of Posterial Cortical Atrophy, but Lewy Body Dementia is also still on the table.…
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Camp Counselor
Perhaps this might help someone else... My DW was recently officially diagnosed with EO ALZ after several years of decline. I can still leave her alone for a while but the time is fast approaching when that won't be possible. While she still mostly recognizes family and close friends, I'm keeping our calendar full with…
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Manly adult bibs
Meal times are messy here. I am considering purchasing adult bibs for DH. * Does your loved one use an adult bib? * Is using a bib worth the expense and/or the hassle? * Does the bib fasten with a snap, tie, velcro or other? * Besides ClassyPal, where can I find masculine looking bibs? Thanks all.
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Seizures and Dementia
I was wondering if anyone had experience with their LO and seizures. My husband experienced the first one, that I noticed in June while we were in the car. He was staring, stiff, hands clenched and became incontinent. We went to the emergency room at Penn and they put him on 750mg Keppra 2xdaily. He has declined since that…
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I'm so tired(1)
DH isn't sleeping more than a few hours at a time. He wanders the house for hours in the middle of the night. I lay in bed only 1/2 asleep, so I can hear where he is. I feel so bad for those of you who have been doing this for years, and cleaning up messes and changing sheets in the middle of the night. It's only been a…
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Causing a scene
Hi again. I posted today about the telephone and now I have another concern. I didn’t want to leave him home alone so I took him to the grocery store where I could keep an eye on him while I shopped. He made a huge scene at the check stand because the groceries were not bagged the way he wanted them, yelled and called me…
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How Do You All Deal with Obsessions? What works?
Hello again, this is my second post, and I am thankful that this forum exists for those of us new to this to learn from those of you that have already been through it. My husband met a guy while getting the oil on our truck changed. Both are retired from military service. The man he met invited my husband to his VFW…
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My DW Thinks I'm Her Step-Father
I need advice from some of you experts. My DW was diagnosed with ALZ about a year and a half ago. Her short term memory is not good, but we're doing fine after 55 years of marriage. However, in the last few weeks she periodically thinks I am her step-father. Sometimes this goes away after a few hours. I have found leaving…
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Telephone frustration
The police were at our door today. It seems my DH was so frustrated on the telephone he threatened a business. Now I am afraid to leave him alone even if I am in another part of the house. We need to keep our landline because it is captioned for the hearing impaired. It is difficult for him to follow a conversation and to…
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Respite stay to his brother and friend : feedback
In august, my partner spent 10 days to his brother and then 10 days to his friend (she is his princess… his fiend when he was a child). It isn’t the first time. The brother, whose wife is a nurse, already welcomed him one week last year and one week in February. His friend welcomed him one week in 2019 and also last…
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Is being cold a common symptom?
I have noticed a number of you mentioning your LO will be turning up the heat. This is something my dad does routinely. We have tried to get him to put on a sweater, with limited success. He always wears long sleeve shirts and usually wants to put a jacket on to go outside no matter the temp.
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A Bit of a Rough Morning and a Sign
This morning my husband got into the shower and I got him washed and dried with no issues. Then when I tried to get him dressed he spat at me and clapped his hands together and caught my arm in between. He would not let me dress him. As I was trying to put his disposable briefs on him he cursed, etc. I pleaded "Please send…
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anger when asked for opinion
Don't know if this is common, but it seems to be more frequent with DH. Tonight, I asked him about having my parents over for a meal on Labor Day. He said "sure". When I asked whether he would prefer lunch or dinner meal, he became very angry and said "why do I have to make all the decisions?" and withdrew from me (usually…
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Thank you(7)
I’ve shared less than most, however I gained alot of knowledge and peace from this group. My dear husband Paul passed away peacefully at home on Saturday the 28th. He was on hospice since early May. You guys and gals made me laugh and cry but mostly I felt understood. I also made several good friends along this very sad…