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Burning down the house
Talk about every day is different for PWD’s. On Thursday, DW almost set the house on fire. I was away on the first business trip I’ve taken since Covid. Our aide told my DW that she would fix lunch shortly, but was first going to go downstairs and throw a load of laundry into the washing machine. When the aide came back…
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Behavioral and/or Dysexecutive variant of Alzheimer's
Recent visit to specialist neurologist with MRI reveals my SO has dysexecutive variation of typical Alzheimer''s, somewhat earlier onset, rather than frontotemporal dementia which we suspsected due to his progressively worsening behavior and social skills, frightening by the time we got him into a hospital for evaluation.…
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Don't put gasoline in plastic bags
If this is not a test for dementia I don't knows what is!!
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Waiting for the big call
Wife had an MRI today....now the wait for the results.
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Should I have “the talk” or not?
In a previous post, many of you gave me ideas to get my DH not to drive anymore, as this is what was mandated by his neurologist. This morning, we were getting ready to go to the lumberyard when my DH said, “If you’d let me drive I could just go by myself and you wouldn’t have to go, but you don’t want me to drive!!”…
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Covid vaccine reaction (new topic)
My relative, in her 50s, has had gastrointestinal side effects for the past two weeks. They began after her second Covid vaccination, I don't know which one. Her Covid test was negative. Has anyone heard of gastrointestinal reaction after Covid vaccination? She is under a doctor's care for this. Otherwise she is well, not…
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I Can’t Do It!
We just received a confirmed diagnosis from a neurologist on Friday, of AD. Primary dr diagnosed him a few months ago. My DH’s symptoms started with severe hallucinations that lasted for months, and now he’s on meds and they are lot better. I posted once before because they were so severe. Neurologist ruled out Lewy Body…
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urinates too often
My DH is stage 5/6. he pees all the time. hardly ever makes it to bathroom. up number of times at night. just dribbles sometimes, others full stream. He is more confused cause irregular sleep and I am not getting sleep by getting up with him all night long. day time is just as bad. He doesn't seem to know how to hold his…
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Is this how incontinence begins?
However, even though we ask my DH if he needs to urinate, he'll deny it. Then in a minute he gets up to head to the bathroom and never makes it on time. We are changing his jeans and underwear a time or two every day. I spoke to the neurologist yesterday about his escalating dementia symptoms and he removed Depokote from…
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Seeking advice(1)
I'd like some advice and insight from those in the medical field, survivors or those who've cared for persons in chemotherapy. My wife is stage six and of course requires 24/7 care. I am midway through what appears likely to be a diagnosis of esophageal cancer. Today I have a CT scan. A PET scan is to be scheduled, then a…
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dementia long haul
I am struck by how many people in DW's facility have been in stage 7 for years. DW was on hospice over two years ago. By then she had lost all recognition of me, all intelligible speech, could not feed herself etc. The only decline I can see over the past year is a loss of smiling and an inability to respond to any spoken…
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Pushes my buttons
Thank you all for your helpful information that you provide on this forum. I have tried to follow your good advice like not over reacting to some of the outlandish statements that come out of my DH's mouth. I have also stopped getting upset and angry about things that been lost or are missing, sort of. My husband had his…
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Building Workforce Capacity to Improve Detection and Diagnosis of Dementia
https://milkeninstitute.org/reports/building-dementia-workforce
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Not sure this is significant
My sister has EOAD and in long term care facility. My niece, her daughter is getting married soon. I'm struggling with whether I can go to her wedding because my brother-in-law is going to my niece's wedding with his girlfriend, while my sister is still alive. Am I making too much of this? Thank you for any advice.
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What do you look for when you are researching facilities for when you can no longer care for your DH
My DH's Alzheimer's is progressing to the point that I have decided to start looking for a facility for him when he no longer knows who I am. I don't want to make the decision under duress. I want to make it when I have had time to check out the different facilities in our area.
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Having a really hard time
16 years ago my DH took a heart attack and it took EMT's 7 minutes and 3 attempts at shocking his heart to get my DH breathing on his own. At the time neurologist said short term memory loss, Since he needed double bypass, I just let the short term memory loss go. I was worried about bypass. Thought memory would come back,…
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DH obsessively complaining about not driving
My spouse was told he MUST NOT drive 4 months ago by both his psychologist and neuro-psych doctors. His pickup truck is now in the custody of our son. We have a small car that he has always regarded as mine, which provides transport wherever and whenever he wants/needs to go somewhere. He has complained bitterly about the…
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How to post a link to an internet web site:
To post a link to an internet web site you have to copy and paste TWICE. 1. Copy the link. (at the top in the 'search field'. 2. Paste it into a word processing application, like Microsoft Word, or others. 3. Hit return (enter) after you paste the link into word processing, and the link will show up in underlined blue,…
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Any suggestions for thermostat wars?
Goodness this is annoying. My partner is cold ALL of the time, and she's always goosing the thermostat up on heat, while I'm suffocating and goosing it back down on cool Unfortunately the separate rooms do not have separate controls. I know this is common, but it's another thing that keeps us in separate parts of the…
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A win and a loss
Late this afternoon, when I might anticipate DW asking if I know where her husband is, she turned to me and said, “I really like being your wife.” I smiled at her and told her she really does it well, and I like being her husband. Soon after, the dog walked in. DW said, “Who’s that?” I told her it’s Emma, our dog. She…
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No Mother's Day break!
So.....Mother's Day.....Ha! Obviously there was no card, no gift, no special breakfast in bed, but I was hoping for a good day. Just a day without having to watch every word I say and everything I do. But no such luck. Everybody is always saying don't forget to take care of yourself, how is that even a possible thought…
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Happy Mother’s Day(1)
I would like to wish a Very Happy Mother’s Day to all the Moms in our community. Also, a nod to the guys who have taken on this role along their journey.
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End is near
Hello all. It has been a little while, as life has been very busy. DW has declined extremely fast in past 3 weeks. Past week alone has been the worst hell of my life. She no longer recognizes me as even someone familiar. She is constantly yelling the same phrases weather someone is in the room or not. If I go in the room…
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Celebrating mother's day
I took lunch to DW and her caretakers had gone all out to dress her up for mothers day . She was wearing her flowered dress from Hawaii, earrings and a neck pendant. DW ate the chocolate cake I brought and we got some photos. but there was not the slightest flicker of recognition. I filmed her walking for our daughters.…
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Happy Mother's Day(3)
Happy Mother's Day to all the mom's here! I hope you have a nice day.
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Hip replacement rehab
DW has been in Memory Care facility since March. Has been a fall risk since coming out of her psych evaluation. Talks in word salad and has difficulty following instructions. On Wednesday morning she fell and broke her right hip and they did a partial hip replacement that evening. The doctors and I are concerned that she…
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Case of House Cleaners Financially and Physically Abusing Elderlly Dementia Woman
Horrible case; the perpetrators went in as house cleaners and then took advantage stealing, decimating finances, putting house up for sale, withholding care to the woman with dementia, isolating her from family and friends . . . Certainly family was not looking, and there were no safeguards in place. All was preventable…
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My Experience Taking Care of My EOAD Husband
It's going on Year 6 of taking care of my 62 year old EOAD husband. He's now early stage 7 - he can still feed himself (finger foods only) and is still mobile although he walks at a very slow pace or stands in a certain area of our house for periods of time. Still knows who I am most of the time except when he's in his…
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confused(4)
My DH and I are planning on taking a trip to FL for April. We are going to an area we know and is not crowded. The condo is in a small complex and the beach is across the street We will go to the grocery store and maybe lunch or dinner at the restaurant down the beach (if not crowded) where we can sit outside. I feel…
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First Post, starting the journey
Hey everyone. Just joined. We're starting the journey officially now I guess. I had noticed behavior changes over the last 5 years or so and finally forced the issue to get her into the doctors office. My wife, who had a highly technical career in medical care, retired 4 years ago at 63, shortly after symptoms began.…