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Eli Lily new drug
any info????? added from the Wall Street Journal; https://www.wsj.com/articles/why-theres-new-hope-for-alzheimers-patients-11624466924
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from bad to worse
Two weeks ago, my DH's best friend died suddenly. We are both crushed. This was a friendship of 40+ years. Lunch together 3-5 times a week, daily phone calls. The guy who would do anything for us. My husband remains aware of his death, but continues to tell people the wrong thing when explaining the manner of death. I fear…
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Discussion with my son
I was alone with my 15 years old son this evening. We discussed and his question was : How long can you keep going while working. I answered « I promised myself I would make it to the end of the year. » He replied « it will be too difficult, this week you have been 3 days out for your work. It was ok because I was at home…
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They can use our help
Michael, Did you see Tamara’s email? Together, we have already accomplished some incredible things in 2021, but we need to hit our end-of-quarter fundraising goals to keep up this fight. Don't forget: RIGHT NOW is your chance to DOUBLE YOUR IMPACT. Any donation you make will be matched. We need to make sure that we have…
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how to get DH INTO the shower
DH occasionally refuses to get into the shower. He seems afraid to actually get in there, not the showering process itself. It has a very small lip to step over. Any suggestions? Thanks in advance.
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What a week(1)
Wow it’s always something every week. This week we got the probably AD diagnosis on the phone since the neuropsychological testing. Today before he went golfing he said he’s been dizzy and unbalanced. I told him to stay home if he didn’t feel like it. Then he decided to go. Hate for that to stop as it is social. Since we…
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AADvac1 for Alzheimer’s
Has anyone heard about this treatment for Alzheimer’s? Is it available in USA? Any feedback would be helpful. Thanks
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I feel so lost
Hello..I am new here. We’ve had a diagnosis for over a year of Frontal Temporal Dementia but we are 3 years into the process. It took 2 years to get a diagnosis and I thought I was handling things but as his symptoms continue, turns out I’m not doing as well as I thought. My best friend, the person I would turn to when I…
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Elder law in Naperville area
My husband was recently diagnosed with younger onset alz. He is 60 I am looking for an elder law lawyer in or near Naperville IL to help with financial planning and I believe we have to adjust our power of attorney as well. Any suggestions would be great. Thanks
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Cable account in LWDs name. How do we change that?
Hi All, I'm posting for my father (I'm a secondary caregiver and daughter). My father is trying to get access to the cable account (Xfinity) but it's in my Mom's name (and she's the LWD, mod-stage ALZ). Mom rarely recognizes Dad anymore, so most things like this are met with suspicion and contention. I was going to call…
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Terrible week - its gotta get better
I just shared this in a different thread. "Long story involving lockouts (me, in the garage/him barricading door), attempted 'carjacking' by DH, and a wandering episode (complete with police rescue)." This has been a week like no other for us, so far: I don't know if its another UTI but its been crazy around here. My LO is…
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Question Re:incontinence
I realize that incontinence is extremely likely as dementia progresses. My DH is not there yet but his bathroom habits have started to change. He flushes the toilet many times while urinating and/or having a bowel movement. When I casually mentioned this he said that he is worried about overflowing/plugging the toilet. I…
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So True
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Guy cooking -simple blueberry pie.
Woke up feeling very discouraged so I am using pie therapy. I am making both a blueberry and a turkey pot pie. I have developed a simple reliable blueberry pie recipe You need 1) Frozen pie shell (deep dish) 2) Refrigerator pie crust (this is flat and comes in a roll) 3) can of blueberry pie filling 4) Pint of fresh or…
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Just need to talk to my friends (148)
Hi, Thought it was time to begin #148 since we've gotten to page 5 and posts might be beginning to disappear. It's been raining, heavily, here since before 4. That's when thunder awakened me. So, that's over four hours. We're under a flash flood watch and roads west of here are closed. I can only imagine what the county…
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Who determines when 24-hour supervision is necessary?
This may be a double-edged sword. My husband sleeps much of the day and does not get into trouble. When he is awake, he does not attempt to cook, does not wander, basically does not get into trouble. But he does leave the front door wide open, let pets out, leaves the tap running, leaves the fridge open, etc. I get away…
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What should I say?
My DH has been in a Long Term Care facility for about 30 days, he spent about two weeks prior in the hospital. He is feeling that I put him there since I am the one who took him to the emergency room. Whenever I call to try to talk to him he insist on knowing "when are you coming to get me?" I am not sure how I should…
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As a caregiver, what time of day seems to be most challenging
There had been a delay in the post hospital discharge home health care. I hope the issue is resolved soon. I wonder if its because the discharge was from a psych hospital and not say, a post surgery discharge from a medical hospital. The things I currently need help with are not DH's mental state, they are general physical…
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My husband doesn’t want to get rid of the guns in the house.
Have been to this site off and on these past few years. Very seldom post but just reading the questions and replies have been most helpful. My husband has dementia consistent with Alzheimer. His last visit with senior health six months ago he tested 19/30 on the MoCA test. Not sure what stage he is in but I’m thinking he…
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I’m learning.....one thing at a time.
My bride of 46 years gets restless and keeps moving from her chair to her rollator every few minutes. This has been going on for quite some time. She has no explanation for it when I ask. This evening I got upset (not vocally) because I was watching a tv show I was really interested in and DW needed a foot massage. How…
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Hope(1)
I am suppose to take wife to airport to meet our son and return to South Carolina. She is already balking. This crap started in 2012 and this will be my first respit of more than a few hours. She is suppose to be there for a week. I am betting 3 days and hoping for two weeks.
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a post from 3collies
This was posted in an existing thread: "I need to install a safety device on our stove and would like recommendations for a good one. My main concern is gas stove top, but microwave and electric oven are also of concern. Want to have device in home before I have electrician out for install."
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Day care volunteer
DH is going to start day care 2 days a week in July. I told him he signed up to be a volunteer before Covid shut everything down (fiblet). Now he wants to know if he will be getting training. Tonight after dinner at our son’s home he asked if I was proud of him because he didn’t talk about his new “job”. He decided to wait…
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lots of goo info/correct site
https://www.pbs.org/video/revolutionizing-dementia-care-vjv5m6/
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Happy Fathers Day!
I am Wishing all you fathers out there a day of blessings and bliss. As I have gotten older, I appreciate more and more, the values my father has passed along to me. He is an amazing man. I no longer take him for granted. I am grateful to have him in my life. I frequently tell him so. God bless you all.
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New Here(14)
Hello. I'm new to this space. The message board, and the world of living with this ugly disease. My 58 year old husband started acting "out of character" a couple years ago, and progressed to the point of me being ready for a new life. My best friend convinced me that perhaps he needed some medical help. Several months of…
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Post Surgical Delirium?
Hi Friends - I'm reaching out for some guidance and direction. My DH, diagnosed with mild dementia about 8 yrs ago, had extensive spinal surgery on 5/17, was under anesthesia for 5 hours and was given hydrocodone, muscle relaxants and early on, percoset and dilaudid (the latter 2 briefly) for pain. He experienced…
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I made the decision & I am taking a leap of faith
I have listened to trusted individuals and professionals. I have considered the options. I have visited nursing facilities. I have consulted with our PCP. I have prayed about this situation. Contrary to the wise, objective, and logic based advice I have received from the majority of responders here, I am bringing my DH…
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DH is in denial
He says nothing wrong with me. He says he has no AD.
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GPS Tracking(1)
Can anyone advise as to what type of GPS tracking they are or have used on their DH. He has left the house on a few occasions without me knowing. Each time he was returned home safely. I have an ID bracelet but he manages to take it off. Please any advice will be appreciated.