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For those talking of advocacy
Hi. I saw on an earlier thread where several people were talking about the need to advocate publicly for AD, to lobby on Capitol Hill and to raise general awareness. Some of you may not be aware that the Alzheimer's Association actually has a separate, non-partisan, advocacy/lobbying arm, called AIM - Alzheimer's Impact…
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Henri dropped tree on PWD's house
My sister's husband Mom is the PWD. They were living in her house to take care of her. After the came tree came through the roof they moved her to their own house and she hasn't been able to settle down. Sister says she is pacing. Do you think it is the new enviroment or that she knows something bad happened? How long may…
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I am in the club nobody wants to be in… I don’t remember the name.
I am in the club I can't remember it’s name and can't find the post. But that's what I thought yesterday: oh no ! I'm in the poop club! It helped me a little to dedramatize the situation. Yesterday I came home from work a little over an hour after he returned from daycare and as I walked up the basement stairs, I…
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he thought I was trying to get rid of him
I took my DH to the senior center in the next town over to look at a program they have 2 days a week 3.5 hrs each day for people with dementia. He enjoyed meeting everyone and he seemed to like it. As soon as we left he said I'm not going there. I told him he should try it for a week or 2 but he was pretty adamant that no…
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Who has placed LO in MC?
For those of you who have placed their LO in MC. Did they go willingly? Did they put up a fight? My DH has anosognosia I don't have guardianship, did you have guardianship? What allows you to place your LO? I'm sorry for these stupid questions, but I'm sure others have been in the same place before and could offer advice.
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Showing significant signs of improvement - thyroid med adjustment???
My friend had taken a marked turn for the worse a few weeks ago. He would uncharacteristically get mad at me for the slightest offense and thenwould sulk and be irritated with me for days. During a particularly bad week, he put his pills in the full glass of water, he tried to cook food on a paper plate over a gas stove.…
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Six month wait to see his neurologist
My DH's appetite has gone down even more the last few weeks resulting in loss of weight. He weighed in at 145# during our October visit with his neurologist, in 2019, and is just below 120#s now. Having read some posts on here, I know loss of appetite is common with Alzheimer's. DH is late stage five and early stage six. I…
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In 2 days I understood that I can't leave him alone anymore
Wednesday evening there was the poop in the bathroom, and this morning something I didn't understand, but I could have been poisoned. Every morning I get up early to go running or biking. This morning it was cycling. Sports are important to me. Usually when I get home an hour later he is up and waiting for me. This morning…
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Disaster Preparedness Links For Caregivers
https://www.alz.org/help-support/caregiving/safety/in-a-disaster Some of the links have additional links to multiple different helping agencies: https://www.nia.nih.gov/health/disaster-preparedness-alzheimers-caregivers https://www.aarp.org/caregiving/basics/info-2019/preparing-for-emergency.html…
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Advice from this forum that made a difference
Wow. This bit quoted below made a profound difference in my day. I have been reducing choices over the years, and I stopped at binary decisions. Do you want X, or Y? From dinner choices to what she is wearing, to showering or not. It's really frustrating, and sometimes we go all day without getting anywhere. It did not…
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Caregiver starting. Need excuse he will believe
I have a lady coming in tomorrow to walk with my husband and make him lunch. He would be angry if he thought she was here for him. I thought I would say she was here to help me with my computer and then suddenly get a call from the dentist about a available appt if I can come in right away. She can agree to wait until I…
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How to redirect difficult behaviors
I haven't seen this yet, but thought it might help someone here. How to redirect difficult dementia behaviors (3 mistakes to avoid)
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Booster vaccinations
My sources in medicine are strongly supportive of booster shots on an eight month schedule , especially for Nursing home and MC patients. This is especially true if you are in an heavily unvaccinated state or area. County level vaccination data is at https://www.nytimes.com/interactive/2020/us/covid-19-vaccine-doses.html…
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Is there anything like Scottish Dementia Working Group here?
It's made up of people with Alz. but supported by family & community and Scottish Alz Assoc I was a caregiver for my husband for many years and I wondered if there was anything like the Scottish Dementia Working Group here
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Great experience at a concert
My HWD is pegged at stage 5.5 with mixed dementia. He walks the dog and enjoys sitting on the deck watching birds. He does not engage in much other activity. We went to a concert last night. It was an hours drive away, parking and access were easy (he is ambulatory but slow). He loved it. A couple of people engaged him in…
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crushed(8)
do you happen to know how many Dr members there are in America's Frontline Drs
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if you are a caregiver
I hope you will take time and read/listen to this. I believe the content is really, really helpful. https://www.thehearth.org/tbuilder-layout/news/
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small tailspins
Funny (not) how many things we take for granted. The remote for the TV in my partner's bedroom went out--she had trouble working it, but managed--so I called for a new one. But I didn't think to ask for the old model. This one is different, and she can't figure it out and couldn't even find it this morning because it looks…
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Neuro Today Update--Possibly FTD
Today was our 6 month neuro appointment. I took all of your advice and wrote the doc a note and delivered it yesterday which he read right before the appointment. In it I described DH's shed/yard tool sexcapades, his sleep issues, his anger/agitation & agression, his impulsiveness (he gave away his car at church last…
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I can't follow my own advice when it comes to travelling
DH rarely leaves the house. Nearly every outing with DH is exhausting to me even if it is just a walk around the neighborhood. Our last hotel stay was 2 years ago. It was anxiety inducing for us both. DH couldn't operate the card key or find the elevator that was right outside our door. The noise in the hallway bothered DH…
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SS Disability
Can anyone enlighten me on applying for Disability benefits for my DW. She is 60, unable to work but has many years of employment in her past. The nueropshyc doc delivered a 13 page report with test results indicating dementia consistent with early onset ALZ but FTD is not ruled out. Appt with the Neurologist is the 24th…
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Breaking all the relationship rules
Being a couple took a lot of work. We made it through some rough spots and grew up together, and one of the good things we did was set some basic rules. Basic rule #1 is don't lie to each other, #2 was don't talk about each other to 3rd parties. These agreements got us through, and really helped make us a solid couple. I…
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Update on Peewee and me.
I have had a lot going on. Daniel the man who has been helping me with Peewee, He has stage 4 colon cancer. Now Peewee and I take care of Daniel. My brother had a massive heart attack. My mother went to the ER twice in the same week.I can't deal with all the stress I am under so I have decided to Retire and stay home with…
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Parkinson's Drug Tied to Increased Hospitalizations, Death
https://www.medpagetoday.com/neurology/parkinsonsdisease/94081
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Leave me if you need to
Things seem to have taken a definite downturn around here, and my partner seems to know it. She told me yesterday she didn't think she'd make it another year, and today she wanted to go over her will and final arrangements. She asked me if I needed help (!), said she wanted to sell her car (!!), would accept household help…
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Meds(6)
DH is on Aricept and Namenda since 2018. He started Seroquel last year around this time. My question is, I really don’t think the Aricept and Namenda seem to be doing anything. The Seroquel still seems to be helping, although he may need a different dosage. My DH is in the moderate to late moderate stage He was diagnosed…
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Overfeeding the animals
This is something I can't seem to stop. My animal lover partner still takes great pleasure in our one dog, three cats (one indoor, two outdoor), and range of ducks and chickens. Fortunately she lets me take care of feeding the dog. But she still considers it her responsibility to feed the cats, and even though I have…
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What does Hospice look like?
Ok folks , we have been on hospice a week now and I guess I had a little fantasy of what it would be like . It would be like the cavalry coming over the hill in the old western. My problems would be over and Peace would come to the valley. We qualified for Hospice because DH spent four days in bed without moving his upper…
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24/7 supervision
My lawn needed to be mown badly, so I mowed it badly! While i was charging around the yard on the tractor, DW was getting into to raspberry preserves with a spoon. Preserves all over her clean blouse and the couch. I am changing DW’s clothes twice a day from incontinence or food stains. I can’t keep up with her movement…
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What a joke!
I went to the grocery store this morning. It's the only one that is close by. They put a big sign on the doors where you walk in. It said something like "If you are not fully vaccinated, a mask is required". Of course nobody asked for proof of vaccination. I wore a mask (and I am fully vaccinated), but I felt as if the…