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Four years in memory care
It's now been 4 years since the woman who was my lovely, brilliant, loving wife went into memory care. She has not the slightest idea who I am, or anyone else for that matter. She is unsteady walking so she sits much of the time, often silent as if gibberish takes too much effort. She seems to enjoy the blueberries and…
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VENT: noise, stress and poop
DH gets super needy in the afternoon now. He needs something else about every 5 minutes. He wants water, then a snack, then another snack, then a cigarette, then a soda, then the bathroom and then water and on and on and on. DH shuffles his feet as he paces around. I have misphonia, so the never ending noise, as minor as…
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I just started reading this and so far it looks great.
I only got to page 39 since yesterday. https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
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Cards stating your LO has Alz
Morning! I have not been on this site for several months. Can I purchase small business cards that state “Please be patient, my companion has Alzheimer’s” on this site? If yes, please direct me where or how to go about ordering. I read I can order them on Vistaprint. Thank you for all your help! Dottie
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Virgil how are you?
It is in the subject. Thinking to you and wondering if everything is ok for you wife.
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This might be venting
Well, it took a few years but I realize I need some breaks to this caregiving madness. That seems to be a rather common realization on this forum. If I'm not burnt out, I don't know what that is. So, I first looked for in-home help. There's nobody providing that kind of care where I live. Then I looked for adult daycare. I…
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A note to Biogen
The Neurological Center in Washington D.C. has posted this message to Biogen representatives outside their door: In response to the growing controversy over the new BIOGEN Alzheimer's medication, Aduhelm, BIOGEN pharmaceutical representatives are no longer welcome in our offices. BIOGEN representatives should not enter or…
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I've given up all expectations
DH's delusions and paranoia resurfaced over the weekend after taking a short hiatus. He said a man was looking into our living room window and tried to come in our front door on Saturday night. He ranted all day yesterday about how he's going to shoot these men and call the police, etc etc. He is angry at me because I…
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I was thinking it wouldn't be holidays, but it is !
Tunisia wahou ! We arrived and he was taken in charge by a very Nice caregiver. She took his hand and conduct him everywhere. At the moment i am sunbathing after a Nice time in the swiming pool with him. I Just swim with him. She helped him to shower, to put his swiming suit on... i do nothing but resting. So i enjoyed…
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Read the fine print
I have been trying to help my folks find a care community which has aging in place facilities...i.e. start at independent living, move to assisted living then on to memory care or skilled nursing care. In this area, most of the nicer places you have to enter at the independent living level and buy the apartment. We thought…
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Funeral home advertisement
https://www.cbsnews.com/news/anti-vaccine-billboard-funeral-home-truck-pro-vaccine-goes-viral-charlotte/
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Dropped wife off at MCF
Well, the deed is done. We were met at the door and ushered in. We went right to the room, and I explained as best I could that I need an operation and that the nice people would take care of her while I was recuperating. She said “ok”, typical response when she doesn’t quite understand. The staff took her into the…
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My favorite folks in the world
https://www.youtube.com/watch?v=FeczfCOFZE8
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apathy about the future
I used to plan for the future. Saved money, watched my debts, took care of my stuff. With the loss of my wife's capacity my caring about the future has drained out of me. I have debts and I don't care. We have enough money to cover the cost of living, but not much more. I don't care. I bought a new car I probably can't…
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Help! I’m Forgetting Too!
It’s been approx 6 months since my husband’s Alzheimer’s diagnosis. It seems that I am forgetting too! Trying to remember all of his “stuff” (banking, paying his bills, doctor appointments, household chores, etc.), is overwhelming at times. But even when I’m not around him, I am forgetting things! I don’t have the best…
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Antipsychotics Lead to Dementia; New Research Illuminates Why
https://www.madinamerica.com/2021/09/new-study-sheds-light-antipsychotic-use-leads-dementia/
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Couples dealing with dementia/Alz in the Dallas-Ft Worth area
Are there any couples receiving this in the DFW area who would have an interest in actually meeting together (both spouses)?
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Care for my DH while rehab for me a heart surgery?
I really don't know what to do. within 6 months I will be having a heart valve replacement and will need around the clock care for a few weeks. My problem is Im the sole care taker for my DH and he needs constant care. I just talked toa rehab center and asked if there were a short term complete care while Im rehabing. They…
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Emotional Calculus
Meeting my DW's physical needs is easy. Laundry, cooking, bill paying all come naturally to me. So much of my own energy is spent on trying to include her; trying to keep her mood stable; trying to keep her "happy." It's time for me to start living again, beyond the confines of this disease (we're both 56). An in-home…
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Dawn took care of it
I was considering getting rid of the nasty, dirty lazy boy recliner DH sits in because the cleaning agents I’ve used (including carpet cleaner) have proven unsatisfactory. I decided to try Dawn dishwashing soap and to my amazement, it worked beautifully. The chair looks almost new again. I guess if Dawn can clean up ducks…
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Need suggestions for DH who is bored, lonely and angry
Hi everyone. My 54 year old DH who has dementia has been exhibiting significant frustration and sadness lately due to his isolation during the week. I still work full time and DH is home alone from appox 7:00 am - 4:30 pm every day. He sleeps in until about 10 am on most days but then has a long stretch with no interaction…
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terminal or paradoxical lucidity
I was wondering if any of you have heard of this in dementia patients. I have heard of this in coma patients, and those who have been severely ill for other reasons. From what I have read it can occur for hours, days or even a month before death in dementia patients. The reason for my asking is that my father has had a…
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Just wondering(4)
We've had some talk here about what information people get from the doctor. My wife's neurologist did not even give the diagnosis. He had another doctor do it. And that was pretty much the end of the conversation except "Do you want medication that might help with memory?" Nobody told us this was a terminal illness. In our…
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Evaluation by an expert physician for the court
In order to protect him and me, I decided it was time to activate what we call here a « mandate of future protection ». A little over a year ago, we went to the notary and my partner signed the documents appointing me as his mandatary (to take care of his person and his financial and patrimonial affairs). In order for this…
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The speed of deterioration
My DH was diagnosed in Feb of this year. Today, for the first time, he thinks I was out last night without him and that there are two people here that aren't including him (it's just me and the two dogs)... He thought he was in line for flyers and that I grabbed them all so he couldn't get one. I'm floored at the speed of…
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Support groupmconfidentiality
I was surprised when I checked out a local Alz/dementia group! One of the members of the group told my friend that I was at the support group. I didn’t mind my friend knowing but I thought support groups are supposed to be confidential. They didn’t mention that at the meeting. I just always assume support group are…
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Finding Hope
I am new to this journey and to this forum. I have appreciated comments from others who are feeling what I am feeling. While my family is very supportive, they aren't "in the trenches" 24/7. My husband was diagnosed with MCI in June, 2018, one month after my much-anticipated retirement. I initially felt cheated to finally…
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Where did my friends go?
I haven't seen this topic addressed recently, and I am sure it has...but I have missed it. It seems I am not included in neighborhood get-togethers and other social events any longer. My DH is 70 and in moderate to late stage mixed dementia. Over the past two years (when he has had more difficulty communicating) I have…
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Update to placement
A month ago I said I'd made the decision to place DH. I thought I'd share an update to it all. Beware - it's long! The first week I called a ton of care homes. Several didn't take Medicaid for their memory units. Scratch them. Two didn't even want to talk to me. "He's not a good fit". All I told was that he had Alzheimer's…
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DH is having mobility challenges - suggestions are welcome
I mentioned the following in another thread. I'm reposting in hopes of reaching a larger audience for suggestions: DH is starting to have mobility issues. His balance is worse. I think it is a combo of the apraxia and lack of meaningful movement. When the OT and PT therapists were coming, DH did his exercises. When it is…