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Take LO along to doctor appointments?
Have any of you taken your LO with you to your doctor appointments? I can’t always get someone to stay with my wife when I go to appts and I don’t want to leave her home alone for the amount of time I would be absent. Today I’ll be taking her with me. This doctor knows my wife so I don’t see any problems. I’m just…
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feeling down(1)
DH is 91 and I am 81. He is probably moderate stage. I find I am getting extra down re: this whole situation. Recently I was diagnosed with wet macular degeneration and will have to get monthly shots in my eye. My vision is compromised. I am in charge of everything and also have had fibromyalgia and chronic fatigue…
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Delusional episodes
My husband had a delusional episode last night that lasted about 2 hours. He was very suspicious of me and thought he was someplace else, I won’t bore you with all the details. This morning he didn’t remember it until I started telling him about it, then he remembered some of it. Is it normal for a person to remember all…
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Prep for legal appt.
So Im ready to make an appointment with an elder care lawyer. Is there anything I should do in advance to be prepared for that appointment? Documents to gather, lists to make? Enquiring minds wanna know!
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Late Stage 7 - hanging on
Dh is still hanging in there with us. He is sleeping more and more though, which is worrisome. This just started the past week. Can barely get him to wake enough to feed him. Which is especially worrisome. He is still at home with me and my daughter. We have hospice aid come in 3 times a week to help bathe him. We can…
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Who to tell, what to tell them?
We are beginning to socialize, post COVID, seeing many people who have not seen my DH since his rapid decline. I don't know what to tell people,. Family are aware, but few others. If I mention dementia, people always assume (or ask about) Alzheimer's. It's exhausting to explain Alzheimer's vs dementia. My husband says he…
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Sleeping a lot. It’s new
My partner sleeps a lot for 3 days and doesn’t want to have dinner. After the daycare he sleeps about 3 hour (from 5 pm to 8), when he wakes up in the evening, he doesn’t want to eat. And he sleeps a normal night of 8 to 9 hours. One morning I even had to wake him up at 9am for the daycare. This is very strange. Suddenly…
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How it's going with DH back home
My decision to bring DH home from the psych hospital was an extremely difficult one. One thing I remind myself of, is how dynamic and unpredictable this disease and its demands are. There will likely be a time in the future when DH is better served in a nursing home. The memory care options in our community are all private…
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I've Got You
"I've got you." Three simple words that helped my husband, Bill, navigate this awful disease called Alzheimer's. These are the words that I told him when he started having memory issues 17 years ago when he was still in his late forties and we had no clue what this journey would look like. I've said these words many times…
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Profile Story
On your profile, on the Story tab, please include minimal information and make it available. Knowing something about the patient, your relationship to him/her, and how involved you are in their care and decision making, can make it easier for others to give you more informed advice.
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Let's talk day programs
I'm putting together full-time care for DH when I return to work in August. Last year's plan was pieced together with lots of people, and DS was living home and helped. He'll be moving back to college in August. I've looked into the day programs around me, as suggested by many on this board. I live in a rural area, so…
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Process for Admission
I have been visiting a lot with my kids and we will start the process of having wife admitted to Memory Care. Have a couple of homes in mind and will followup with them. However any tips on how, where or any suggestions would be appreciated. I guess this is ugly but no "I think" but real life or? This is already real and…
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Can Someone Really Get Better?
I am wondering could the meds really be helping this much? DH has been on Aricept (10mgs) and Mamentine (28mgs) and got better as soon as he started taking them. Memamtine has been increased in dosage from 7mg to 28mgs, but he was good at 7mgs. I don’t manage his meds, he functions independently as well. How can someone go…
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Websters!!
Just read a great quote in one of my grief books...thought I'd share. "If you're looking for sympathy, you'll find it between sh-- and syphilis in the dictionary" Whatever gets you thru the nite...LOL Michele
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sweet and sad
My partner told me this morning that she wants to stay healthy so please to buy this new meat/chicken substitute (Incogmeato?) she saw on television. Bless her, it's so sweet but it also has absolutely no insight into her limitations. I feel like at eighty, with lymphoma, dementia, rheumatoid arthritis, and scoliosis, if…
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Help, I'm sleep deprived.
For the last several months, DH has been waking me up several times during the night wanting to have sex. I tell him to go back to sleep but it isn't long before he is patting me and rubbing my arms and back and trying to get as close as possible. As soon as I get to sleep, he wakes me up again. It's frustrating and I end…
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Red flags today
For the very first time today, my partner forgot that her sister died (six months ago). Really new and different, as we have rehashed the death pretty much every day since it happened. She woke up not feeling very good and has been off all day, so my antennae are up. Only thing different about yesterday was going to a…
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Late stage 7(2)
Had lunch with DW yesterday at MC. No recognition or comprehensible speech. No smiles. I fed her finger sized fish sticks and a slurry of chocolate cake yogurt and blueberries. She loved the food. All food has to be put directly in her mouth. She can bite a fish stick and chew it up. She could not understand a suggestion…
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A great Teepa Snow
https://www.youtube.com/watch?v=dmPQLf9IUNI
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Eli Lily new drug
any info????? added from the Wall Street Journal; https://www.wsj.com/articles/why-theres-new-hope-for-alzheimers-patients-11624466924
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from bad to worse
Two weeks ago, my DH's best friend died suddenly. We are both crushed. This was a friendship of 40+ years. Lunch together 3-5 times a week, daily phone calls. The guy who would do anything for us. My husband remains aware of his death, but continues to tell people the wrong thing when explaining the manner of death. I fear…
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Discussion with my son
I was alone with my 15 years old son this evening. We discussed and his question was : How long can you keep going while working. I answered « I promised myself I would make it to the end of the year. » He replied « it will be too difficult, this week you have been 3 days out for your work. It was ok because I was at home…
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They can use our help
Michael, Did you see Tamara’s email? Together, we have already accomplished some incredible things in 2021, but we need to hit our end-of-quarter fundraising goals to keep up this fight. Don't forget: RIGHT NOW is your chance to DOUBLE YOUR IMPACT. Any donation you make will be matched. We need to make sure that we have…
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how to get DH INTO the shower
DH occasionally refuses to get into the shower. He seems afraid to actually get in there, not the showering process itself. It has a very small lip to step over. Any suggestions? Thanks in advance.
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What a week(1)
Wow it’s always something every week. This week we got the probably AD diagnosis on the phone since the neuropsychological testing. Today before he went golfing he said he’s been dizzy and unbalanced. I told him to stay home if he didn’t feel like it. Then he decided to go. Hate for that to stop as it is social. Since we…
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AADvac1 for Alzheimer’s
Has anyone heard about this treatment for Alzheimer’s? Is it available in USA? Any feedback would be helpful. Thanks
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I feel so lost
Hello..I am new here. We’ve had a diagnosis for over a year of Frontal Temporal Dementia but we are 3 years into the process. It took 2 years to get a diagnosis and I thought I was handling things but as his symptoms continue, turns out I’m not doing as well as I thought. My best friend, the person I would turn to when I…
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Elder law in Naperville area
My husband was recently diagnosed with younger onset alz. He is 60 I am looking for an elder law lawyer in or near Naperville IL to help with financial planning and I believe we have to adjust our power of attorney as well. Any suggestions would be great. Thanks
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Cable account in LWDs name. How do we change that?
Hi All, I'm posting for my father (I'm a secondary caregiver and daughter). My father is trying to get access to the cable account (Xfinity) but it's in my Mom's name (and she's the LWD, mod-stage ALZ). Mom rarely recognizes Dad anymore, so most things like this are met with suspicion and contention. I was going to call…
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Terrible week - its gotta get better
I just shared this in a different thread. "Long story involving lockouts (me, in the garage/him barricading door), attempted 'carjacking' by DH, and a wandering episode (complete with police rescue)." This has been a week like no other for us, so far: I don't know if its another UTI but its been crazy around here. My LO is…