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Vaccines: I cut off my nose to spite my face!
I know there are already numerous discussions on vaccines. I'll add my story: My DH is bedbound, is non-verbal, has ALS and is in late-late-late stage dementia. He is a veteran and receives (thank goodness) 21 hours of respite service each week. There was a time when one of DH's regular CNAs left and another time in which…
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Just need to talk to my friends (152)
Hi, It's August 1st- time for a new segment of our thread. Wanted to start this so Sara's early morning post would be on it.
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regrets
My DW passed at 10:33 on the 7th of February this year I lost her to Lewy Bodies. It seems like yesterday that I was holding her hand and telling her I love her. I am thankful I had the strength to care for her it was not an easy road and I don't fault anyone that cant. I was fortunate enough to have daughters that…
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Knock on wood
My husband has been almost like his old self. We haven’t had any Argie bargy since I have taken to shutting the A/C at night. It has been warm but I will take peace any day over strife.He thanks me now for making his dinner and anything else I do for him. It could be due to the fact I had to go for various medical…
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Buspar in place of Zoloft
My DH just returned from neurology appt. We discussed how the 75mg of Zoloft he has been on for 2 years doesn't help his anxiety and agitation. They are tampering him off Zoloft and prescribing a low dose of Buspar 2x daily. Anyone have any thoughts on this?
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concerned for Scotty Tom
Just in case Scotty Tom, like me, reads this board without posting (only because things are too indescribably bad), I just hope things might have improved for him. Without wanting to pry, or further breach his privacy, I just wanted him to know I've been genuinely concerned for him for months and sending (agnostic) prayers…
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Husband inappropriate looks at daughter
Although I have been reading your posts for years I just joined. Thank you for the help and advice. My husband is 78, I am 64, we have been married for 35 years. We have a 27 yr old daughter living 1 1/2 hours away, who visits every other weekend. My husband has two married daughters living 2000 miles away. My DH was…
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Pending Federal Nursing Home Overhaul Bill
https://www.yahoo.com/news/nursing-home-overhaul-bill-boost-170022034.html
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The sweetest of gestures
So, I am the one holding down the fort for these 11 years now.My DH suffered a near fatal viral infection that entered his brain and caused encephalitis which has lead us down a very long and at times seemingly endless road of ups and downs and setbacks and uncertain diagnosis of just what is it he has been left with such…
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Virgil and All: Great Detailed Infor On Admitting to NH and Thereafter
Hello Virgil, here it is: it is the most complete and detailed information I have ever seen regarding so much one may experience at the time of and long after NH admission; an excellent support guide and takes away much confusion and mystery: http://www.illinoiscares.org/book/chapter01 This book was put together by a group…
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discussion on Delta variant
Had a long talk with DD#1 (She has a PhD from Johns Hopkins in molecular biology and is in the FDA in a division adjacent to the covid folks. While company stuff and regulatory decisions are totally secret general discussion of science is very open. I'll put this way I have 3 young school age grandchildren and they wear…
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Administering medication
how should I respond to my wife when she demands her prescribed medications that I have just given her.nothing that I have done works. There is no changing the subject with her. Redirecting do not work. I have tried giving her a vitimine istead, but she reconise it as not being the medicine . She gets very angry and…
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Who Will Take Care of America's Caregivers?
Michelle Cottle in today's New York Times. https://www.nytimes.com/2021/08/12/opinion/caretakers-elderly-home-health-aides.html ElaineD
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Army Vet(1)
It’s a comfort to read your recent replies to our post. I hope you are doing well or at least, okay. Just so you know, you are thought of often.
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Neurologist appointment, cancel or go?
My LO has not walked more that twice in the past two weeks. She is sleeping more and more. Eating less. We have hospice on board and are interviewing agencies for full time care. We do not think she is near death. LO is clean and comfortable. I see no point in taking her to this appointment at this stage. We'd probably…
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Grateful for the kindness of a stranger
Today was a stressful day. I put our car in the shop this morning. I expected we'd have a telehealth appointment afterwards. The appointment was cancelled by the doctor's office, although I was not informed. The big stressor was a dental appointment for both me and DH in the next county. Neither of us had been to the…
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I have more patience with DH (EOAD), than I have with my Mom (MC!)
My Husband has EOAD. My Mom has MCI. I have noticed that I have more patience with my DH than my Mom. When it comes to my Mom, I do so many things that I purposefully avoid with DH. For example: * I attempt to reason and use logic with my Mom. * I am more like to be inpatient with my Mom * I am more likely to raise my…
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classes on line
please tell me if this works better https://www.communityresourcefinder.org/ResourceView/Index?id=2290930&profileDefinitionId=93 https://www.communityresourcefinder.org/ResourceView/Index? id=2265658&profileDefinitionId=93 list for Sept; https://www.alz.org/media/oregon/documents/2021-September-Webinar-Listings-OCP_1.pdf
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How do you not take it personally?
The roommate that I'm now with is not the one I fell in love with and married 40 years ago. Kindness, caring, passion, planning, and creativity have been replaced with anger, suspicion, depression, passive aggressiveness, and demanding. It is killing me. I'm 5 years into this journey but the sudden changes in the last 8…
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Are there places that will care for a dementia patient for a short time?
I need a place for DW who is probably early stage 6 to go for about a week while I have back surgery to address pain and numbness in my legs. My thought is that when I return home we will employ a caregiver service to supplement our adult son's (who works full time) help until I'm back to being able to care for her. Do any…
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When to seek a care facility
My partner is in the moderate stage of dementia, most likely diagnosis is ALZ. However, she also has an abnormal gait and cannot walk without assistance and is a fall risk when she forgets to use her walker or cane. She has fallen at least 6 times with none resulting in serious injury although the last one could have is…
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Sneaked out and drove when not allowed to
My husband has not been allowed to drive since his stroke four years ago until this morning, when he got into the car and drove to the fruit market. He no longer has a license, since it was surrendered a year and a half ago. Though he often sits in the car and listens to the radio while waiting for me to come out to go…
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The Davos Alzheimer’s Collaborative Calls for Six Key Actions to Drive Early Detection and Preventio
I was at this meeting and we can all thank USAgainstAlzheimers for this. They are the out of box thinkers that made this all happen. The Davos Alzheimer’s Collaborative Calls for Six Key Actions to Drive Early Detection and Prevention of Alzheimer's In the face of the megatrend of aging populations, healthcare systems…
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New member(3)
Hi all, I'm a new member to this group. My DP (dear partner?) has been diagnosed with MCI. This after a 3 hour visit to a well respected neuropsychologist. Learning, Executive Function and Working Memory were the areas indicated as weaknesses. He suggested we consider working with a speech pathologist. The neurologist our…
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You Say its Your Birthday
Its my wife’s 66th birthday, but she doesn't know it. She received cards and gifts, but soon forgot. Her cousin visited yesterday and brought flowers and a card, and my wife denied it was her birthday. We ordered out because we’ve reached the point where her behavior is disruptive to others in the restaurant. She got very…
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how do you get them to take meds when they don't want to
new member - LO has no children, no siblings near by ,no buddies; we are not married. I think he is level 4 out of 7 and in total denial. Have been referred to a neurologist twice and both have said don't come back, as he is totally uncooperative. He doesn't like anyone telling him what to do - not going to get POA on…
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Sorry, Another Covid thread. Dreading this Fall.
This Spring I was finally able to visit my beloved spouse on her floor, and at times in her room-if the roommate was not in with her. Since I'm her only visitor I try to visit 4 days a week for 2 or 3 hours at a time.(80 minute drive each way). My county and one other in my state are at high risk for Covid transmission.…
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Adding Depakote with Seroquel
Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…
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Agitation and agression
Is it normal that my dh is getting almost hyperactive and often resists treatment for various like his diabetes? What drugs are being used to help them? I know about Ativan.
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Have had it!
I have not posted much but tonight am at the end of my rope!! During the night (last night ) DH peed in our hallway (wood floors) which i did not know until I took our puppy outside to pee!! Luckily we have remodeled our bathroom but DH aimed on the floor instead of the toilet, I cleaned everything up and then ths…