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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Without love where would you be now?
my DH Lonny passed August 12. My son came to visit and we went to dinner. After dinner a band started playing. I said to my daughter “I wonder if they know the song “Long Train Running” by the Doobie Brothers. It was “our song” that we danced to many times in the 1970’s. The next song they played was our song. 😭💔 Grief is…
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Anyone use revastagmine?
My DH was taken off donepizel a few months ago and put on revastagmine because he also takes escitolopram. Apparently there is some concern about an interaction with donepizil. I am not a doctor so I am not sure what the story is. Just wondering if anyone else is going through this.
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@ M1
You have often mentioned that sleep fragmentation is a part of AD. As you may know, I don't have AD, but a diagnosis of cognitive impairment nos. Lately, I have been having worsening sleep fragmentation. I may sleep for one to three hours, or not at all during the night. Yet around 6 am, I will fall asleep for another five…
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Afraid to use the toilet
Hello, fellow travelers. Today was day 17 of DH’s hospital stay, and I am weary to the bone. I am spending 10-11 hours there a day because he is so lost. Yesterday and today, a new issue popped up: he is afraid to use the toilet. He will use it successfully all morning, fall asleep, then wake up afraid to use it. We make…
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Air Tag
My DW has been showing signs of memory loss for 3+ years and continues to decline. We were gifted air tags last Christmas so I set them up and placed one in her purse (she does not carry a phone and would not know what to do with it), and included children in the connections. This last Sunday afternoon we took our usual…
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My DW changes moods
Every week I take my DW to a local "equine therapy" farm because of her love of horses. When we arrive, she often grumbles that "I'm not getting out of the car!" or "I don't feel good. I'm going to stay right here!" And so I reply by saying, "Okay, we'll sit here for a while." Yesterday when the same worker we see every…
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He is like my shadow
God love my bf (eoa age 45) but what is with the following me around like a puppy? I was cleaning around the house and every time I turned around he was right there. I went to shake out a rug and he was right behind me. He is so light footed I didn't hear him. I got upset and told him I'm not going anywhere I just need…
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post placement
Over the past 7 years I've been caring for my DH I've benefited so much from the advice and knowledge of these discussions. We celebrated our 60th wedding anniversary this year and next week I will be placing him in memory care. I am devastated and and would really appreciate hearing from those who have been through it…
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PT recommending Subacute Rehab
Hi All! My DH is in the hospital with viral bronchitis. He is stage 6 dementia and is always disoriented and delusional. Last week he caught a cold and it settled in his lungs. On Saturday he fell a few times so I called for an ambulance. He fell twice in the ambulance. They couldn't wheel him in because we had snow. They…
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Totally inappropriate and weird clothing choices
We live in a CCRC and have a communal dining room. My husband has started picking out really bizarre clothing ensembles to wear to dinner. For example, last night he wanted to wear jogging pants, an orange long sleeved biking shirt, and a white button down shirt with a white undershirt over it, a tie that was tied with the…
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Recommended meds for anxiety and obsessions?
I am going to be seeing my primary care doctor soon (she is also my husbands doctor) and am going to push for meds for my husband to control his obsessions and anxiety. He has anosognosia. Has anyone used Zoloft/sertraline with good results? Are there other meds to consider? Our doctor is fairly young and I am not sure she…
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Just dropping in
It's been a while since I've posted. I've been reading some of the threads, and nothing seems to have changed. It's still heart break and difficulties, and carrying on. I'm sorry that good people have to deal with such a difficult problem. For those of you who had a LO pass on, I can't say I'm sorry they are no longer with…
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Do former caregivers get anosognosia?
I'm just wondering - after all that I've been through and all that I've learned, is it possible that I might have insight into my disease if I develop Alzheimer's? Or am I just as likely to give my future caregivers the same hard time that my hubby gave me and my brother is now giving me? Both men angrily denied that there…
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Night time going home trips
LO will drag herself (or I'll help her) get to bed. Usually falls asleep in the recliner. Just totally tired. Probably around 9-10. And suddenly reappear with her comb and brush. Refreshed and ready to go. We go and she nods of on the trip. Help her to bed. And about an hour later back with comb and brush ready to go. One…
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Running away from me
I had an appointment with my eye doctor and took my DH with me because I couldn’t find anyone to stay with him while I was gone. We checked in and had a seat in the waiting area. After about ten minutes he got up and started heading toward the restroom. I got up to make sure he went into the right one. I tried to take his…
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Wandering
Question: how to redirect or distract a LO that has begun their journey to “that” place. Many posts on this forum about wandering and attempts to redirect/distract before, but, i could use some thoughts on how to get a LO that has started of on their journey. I have posted before about wandering and a recent event. 99% of…
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plan
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So which end is up?
Yesterday, my DH and I saw the neurologist in response to recent deepening confusion. But at the appt, he was on track, MMSE test higher than last year and he sounded much like his old self. I was shocked. From there the conversation with neurologist was light and overly optimistic. My DH said he exercised regularly,…
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Sleep
I have read several posts about long sleep sessions. I think I even posted one. But, up til this month they have been maybe one a month. This month they are weekly. Normal bed time between nine and ten. Later if the "going home clause" is invoked. She is normally up ten or eleven. Getup time has moved out til as late a…
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Does your loved one complain??
like I always say for now my wife isn’t too bad yet, but was wondering do others complain of issues like stomach ache , back pain, leg pain etc????
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Random Bits
I am so sure we all see a variety of new behaviors in our LOs, some of them even maybe lighthearted (if still sad). My wife now thinks the local newscasters are looking at her from the TV. She finds that fun and funny.
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smoking. How do you all deal with it. I am
running out of ideals. Peewee (My Husband) Smokes so much more now than he ever has before. It's because he can't remember when he put the last one out. What he don't smoke himself he gives away. Has anyone's loved one just forgot that he or she is a smoker and just quit?
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In-Home Respite Care
I am new to posting. My DW was diagnosed with ALZ about 5+ years ago. Her Neurologist says that she is toward end of MS ALZ. I am her only caretaker and spend nearly all of every day with her. I need to to get her to accept someone coming to the house so that I can get some respite time but she is adamant that she doesn’t…
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Memory care placement update
as some of you may recall I placed my sweet Tommy in memory care 2 weeks ago. It was soul sucking, one of the worst things I’ve ever had to do. The placement day was terrible but I followed the doctor and directors instructions and didn’t visit for the first 2 weeks. I went today for my first visit and it couldn’t have…
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Communication problems
For the past month or so my DH does not make sense when he tries to communicate. He cannot find the right words for what he wants to say and most words he uses for nouns or pronouns are made up words. He still talks quite a bit, more so late afternoon or early evening but never anything that is reality, as no longer is…
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Just venting about driving...
My DH hasn't driven for over 2 years now. I don't mind driving us around everywhere but it takes all of my patience to stay calm. He hates any little bump so I have to drive around them if I see them. I'm either driving too fast or too slow. I have to park EXACTLY between the two white lines (he gets out to check, then…
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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Compulsive behaviors
1st time here. My DW of 47 years is in final stages of dementia, she's on hospice. Mostly non communicative, incontinent, but can walk. She is on a liquid diet as she can't swallow solid foods. I am essentially her only caregiver. I can handle most things but she drinks too much, milk, water, protein drinks etc. Then she…
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I'm shaking as I write this
Today was supposed to be a happy day. I had invited some close friends over to thank them for all their help during my recent move. Right after they arrived the MC called. It was the social worker and her voice told me something was wrong. She told me my DH had tried to get too friendly with a volunteer. She said the…