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Has anyone else experienced this?
My HWD keeps insisting that his clothes are wet. They aren't, although they may feel a little cool to the touch due to the air conditioning. He is putting things in the dryer on high and leaves them in for a long time until they feel dry to him. If I tell him they aren't, he gets very angry and begins shouting that I am…
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Checking in
Hello my friends! Just thought I'd check in. I just "celebrated" our 32nd anniversary, so thought it would be a good time to update everyone on what's going on now. DH is finally fairly comfortable. After years of his extreme agitation, anxiety, and whatever else was going on, he's now fairly calm. He turned 60 last…
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Hallucinations
I'm new to this group and hope to get some suggestions on how to handle this journey. My husband is 75 and I am 66. He was diagnosed with dementia over a year ago but there has been signs for 5-6 years. He's told me many times he sees old people at night and I just blew it off and told him they were probably ghosts since…
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A new unexpected life.
I worked hard for 45 years in a self employed stressful medical business. Have a wife and three kids and I worked scared all my life. Always what if. what if I die. What if I am disabled. What if the kids aren't brought up right and get into trouble. What if they can't find jobs. Etc. I denied myself enjoyment in the name…
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Tam Cummings: Loss of ability to smile - indicative that death is near
Yet again I seek your insights into my DW's decline through Stage 7. She is still losing weight, but is still with us. The document from the Fisher Center, recommended on this site as a staging tool, further breaks down Stage 7 into six substages 7a-7f. Although my DW has Semantic Dementia not AD, in Stage 7 the issues are…
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DH not "feeling well"
my husband was diagnosed with Alzheimer's about a year ago, but showed symptoms for several years. Like others, I was dismissed by physicians and nor believed by this children. He is still pretty functional, but lately sleeps a lot. Says he "does not feel well" almost every day. I ask if stomach, headache etc. he does not…
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Never ready for this
I met with hospice intake today and the nursing assessment is scheduled for Monday. Part of me is protesting that it feels too soon. After all, we sat outside this morning, ate lunch in the community dining room. But: they will get her an adjustable hospital bed, which I think will be much better for her back; and they…
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The age old question - Is there life after caregiving?
Just wanted to touch bases, and let you know my experience with this. June 24, just a few days ago, marked 2 years since my wife passed. This has been harder than I ever could have imagined, although I don't know how much, if any, was due to caregiving. I had absolutely no interest in doing anything, and I think I just…
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Choking
Yesterday was his young son's birthday (20 years old). I had made a roast beef. He made the pieces too big and put two in a row in his mouth. Result' it got stuck in his esophagus. This happens often because he eats very quickly. I haven't finished serving everyone and I haven't started eating yet, but he already has…
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Delusions
My LO when he gets angry with me he accuses me of having affairs. Today I caught him sneaking food to our overweight dog in which I have had him on a diet for the past couple of months. I got angry with my LO for doing so. I tried to apologize for getting angry and told him i don't like being lied to. When he gets angry…
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Unknown road
I'm not sure where to start. I'm not used to having to ask for support. My hubby was diagnosed a year ago w/short term memory loss. They wanted to do more tests, but he's refused. He states there is nothing wrong w/his memory. He's 68 & we've been married 23 yrs. His father & grandfather passed away w/dementia. Out of his…
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Processing Grief During the Journey
I recently placed my spouse of 46 years in memory care and am grappling with the process of grief. I visit daily, and when I'm not with him, I'm often overwhelmed with sadness. It's like the relief of being able to sleep and not dealing with constant anger and aggression managed to move me straight to grief and I'm so sad.…
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M1
Sorry, duplicate post. While I am a big advocate of Hospice I know first hand that there are stupid people who get employed by them. I learned the hard way. I switched Hospices after interviewing several. You are still in charge of your partners care! Further you can continue to use a private Dr. It sounds like it may be…
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Osteoporosis Treatments?
Anyone have experience with osteoporosis treatments (pill vs shot vs IV) for women with dementia? Wondering what experience you had, how well they tolerated treatment, etc. I’m not asking about the side effects. Rather, for example, if you did the IV was it a big deal doing the prep, sitting still long enough for the…
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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50th Anniversary
For better or worse we’re going to Alaska with the below group middle of this month. My dh is in advanced stage which is a peaceful stage for us. He walks and responds in short answers, but does not generate much conversation and no longer speaks of delusion or tells paranoid stories. He smiles and is happy to see me. We…
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Stage 4
I have posted before and your responses are appreciated. We are 83 and 84 and my wife has ALZ. We are about 6 years down this road and my best guess is that she is in Stage 4. She is a wonderful person and doesn't realize she is sick. She is happy. However, she is totally dependent on me. I make all decisions, plan…
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LO just diagnosed with VD
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Husband recently diagnosed
Hello everyone. My husband was diagnosed mid February with early onset Alzheimer’s. he is 55 years old and I am 50. Our whole future has changed and it’s been a roller coaster ride of emotions for me since. I live in fear and with anxiety most days. Then I’ll have good days where I feel like I’ve come to terms some. I can…
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DH has 1st Geriatric appointment
The Memory Care called about appointment. I asked what takes place at 1st appointment. She said review history, testing…clock, word, memory…less than an hour. My DH asked what was that all about. I told him to meet with geriatric doctor that would help me in future if I need help with his medications. The neurologist is no…
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Care giving kickback in stage 8
Hello, It's been a long time since i've posted, although i still check in periodically to see how you all are doing. I thought it might be helpful to share some information about stage 8. It has been a little over 8 months since my husband died, a home, with hospice care. My initial reaction, as sole care giver with little…
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Anyone else’s LO seem to get worse after starting seroquel?
DH got his first dose of seroquel Monday night. The geripsych originally prescribed 25 mg twice a day, to be increased to 50 mg twice a day on day 5. He fell asleep immediately after I gave him the first dose at 8 pm, along with his donepezil. Gave second does Tuesday at 6 am and took him to day care, where they said he…
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Anther story about PWD working and risking being fired
Today I was cleaning out some paperwork that DH had left scattered around the basement and I found a disciplinary warning letter from his boss dated from 2018. He never told me about the letter while he was employed so finding it was a shock. He retired in 2021 after I got some info that he was in trouble at work for…
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MC move
My wife moved to MC a week ago. She seems to be adapting well; engaging with other residents, assisting the staff, being her cheerful self. I visited yesterday for the first time, and it was fun and fine, until I was leaving. She wanted to come with me. Staff tried to distract her with activity, but she was still resentful…
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Looking for my Care-Giver Peers with Spouses with Early-Onset ALZ Denver Area
I am a 60 year old man living in the Denver area. My wife was diagnosed with early onset at age 53 in 2020. I have attended our local monthly group but it gets so crowded and rarely is there enough time for serious discussion. It is emotionally draining and hard to find coverage so I can attend the meetings at the time…
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Dr. Natalie video about four things we can do when our loved one is upset
I found this video helpful.
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Namenda Seroquel Newbee
neurologist started LO on Namenda 5 MG twice a day. She will take morning dose with other meds. Other dose has to be mixed with Jelly in PB&J at lunch or if no lunch with applesauce at dinner. Also started LO on Seroquel25 MG once a day. Instructed to crush with second dose of Namenda and add to PB&J or applesauce. I have…
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New To Group and Need Help
Hi all, I am new to this group because I don't know where else to turn. My wife has had Dementia for a few years now. She is steadily getting worse. She can still care for herself but has had increasing bouts of anger and depression. She is diabetic and takes insulin shots and on 3 occasions now has used her low sugar to…
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Dementia and explosive fireworks
I don't know how it is in your area but in my area, my neighorhood end entire city, people are lighting off fireworks that sound like canons. This will be the first firework holiday where I won't be able to comfort my DW during those times. I'm concerned, because she'll be in her room all alone, she'll freak out becoming…
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Seizures
DW with late stage early on-set had a seizure at home last Friday. Called 911 and EMTs transported her to local hospital, where she had another seizure in the ER. She was admitted and stayed in the hospital for 5 days. The first two days she did not wake up. They did a number of diagnostic tests but didn't determine a…