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Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
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Home care
I’m so tired and drained. I need help or I’m going to pass out. This week I’m calling Visiting Angels and asking you all who else can I call? I need someone to come in a couple of times a week just so I can have a break. Asking hubby to get ready this morning was a huge challenge. I’d ask him to get dressed and he sits and…
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Doesn't know me anymore
Hello, I'm new to this forum. My husband & my Mom both have dementia. My hubby is in a long-term care facility now. We've been on this journey for 10 years. He's been in care for 2. He doesn't know me anymore. I knew this day would come. He thinks I'm the nice lady that comes to visit him. We've been married 34 years. I…
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Planning trips
we are trying to plan a few trips to see family and it’s very frustrating to my Lo. He has always been the one to plan everything down to the last detail. It frustrates him that he can’t do that now. So he just wants to shut down and go no where, He says he can only see/think about today. He would just as soon stay home as…
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Veteran's Resources - for Housing Modifications, etc.
HISA grants: — Lifetime benefit for Veterans and Servicemembers. $6,800 will be approved to: Address a service-connected disability; Address a compensable ...Clothing Allowance · Guide and Service Dog page · Automobile Adaptive EquipmentPeople also askHow much is the VA hisa grant? Will the VA compensation increase in…
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New to this
My DH is in the early stage of Alzheimers or dementia. He will not go to a doctor and is in denial about what is happening to him. I am slowly picking up all of his responsibilities but he is still able to do some of the things he used to do. Lately, it has just been so exhausting and I have become so isolated. I could use…
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Memory care question
I’m wondering for those of you with loved ones in a memory care facility. Do you write a message saying,” ‘Name’ will visit you tomorrow? “ I see my husband every day, but as soon as I’m out of sight he forgets I was ever there. When I see him the following day, he seems so relieved and asks, “How’d you find me”? This…
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Drugs
what drug works best to manage delusions?
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Husband fell in MC
Last Sunday my husband either fell forward out of his chair or fell in the hallway picking something up. It was 6:28 am when I got the call he was going to ER. He was there several hours and returned to facility. My son who was with him said he slept most of the time. Since the fall he is totally different man. Not…
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Constant anger
I’m sure you have experienced days where nothing that you say or do is the right thing. Well I’ve been having many days like this! I understand DH is angry with his situation and has an overwhelming need to have control of his life again but this is becoming absurd! I am finding it very difficult to deal with . This…
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Prolonged sleep
Hi, my DW is late stage (I think early stage 7) at age 61. Over the last few months her sleep pattern has changed such that she now routinely sleeps 20 hours a day. She would sleep longer if I didn't "help" her wake up to get some food in her and change her underpants. Her meds have been changed somewhat in effort to…
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DH won't wear his dentures - latest thing to happen...
MY DH Lonny has been in Memory Care for 6 months. The latest in behaviors: more agitation & they have him heavily medicated. He's urinary incontinent & doesn't like them to change his adult diaper & clothes and becomes combative with his caregivers. He took out his dentures & refuses to allow them to put them back in. So…
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Is there any life left after Alzheimer's caregiving?
I would truly love to hear from those survivors of the Alz. nightmare about whether they were able to recover from the physical and mental strain of caregiving. It sounds like we all are pretty much physically and mentally exhausted.
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new guy here with wife who has dementia 1st started 2 years ago
im hubby and sole caretaker with my wife caroline shes 63 im 60 i would like to find some kind of online chat group in real time that i can talk to i cant go to no in person thing right now as she gets whelmed what do i do?
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Memory care wait list
i had looked around for memory care for hubby awhile ago just to be prepared. The place I chose says can pay one thousand dollars to put him on waitlist. If I never use them I’ll get money back and if I use them the money will go towards their care. I thought ideally I’d like him to stay home and get care inhome. However…
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Husband thinks he needs to go somewhere
my husband thinks he is supposed to go “home” when we are already at home. He is quite adamant. How can I dissuade him without getting into a big hassle?
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Incontinence Question
My DH is starting with urinary incontinence. I have seen multiple wet briefs in the hamper on different occasions. He does not speak of it as I am sure he is embarrassed. He has not had nighttime incontinence yet. Because he isn't speaking of it, I am concerned that he will try to hide the briefs by flushing them down the…
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Disillusioned with Geri-psych unit
My DH will be released from a Geri-psych unit soon. I placed him there because he’s had four aggressive incidents at his memory care in the last few months. His Seroquel was increased at the unit, but no other med changes were tried. The unit social worker told me the unit is only for acute care, and that any other med…
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I have breast cancer… now what?
I’m at the very start of testing and diagnosis process. So far i know it will be at least a stage 2 involving lumpectomy, lymph node biopsy, radiation, and some form of drug therapy. Any one been through this with a very need clingy DH at Stage 4 at least who won’t stay with anyone? He knows but not sure he totally “gets…
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Wits end he won’t get ready
hubby gets up and has become a couch potato. Up at 11. It’s 1 pm and still not moving. I Said it’s showertime. Tells me 15 minutes. Still nothing. He did this Sunday when we had to be at a bbq. Waits for last moments to get ready. And I always tell him earlier than it is. Today another bbq leaving 5:30 pm. I told him 5.…
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My SIL wants me to care for her too?
My DH is definitely in stage 4 and dipping his toe in a couple stage 5 behaviors on occasions. My health is not the best, I have complications from Scleroderma an incurable and possibly fatal autoimmune disease. My DH sister that is an 80 yo widow is beginning to ask me to help her. I’m 65 and my DH is 75. Im already…
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Any suggestions?
Okay, need some help here and I know this is the only group that may have some ideas and not judge. My DH has been sundowning fierce! I have locks and alarms on the doors so he can't get outside. I usually get up and guide him to the bathroom then tell him the time and guide him back to bed. He becomes resistant so I let…
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What is normal progression?
I’m confused about something. Maybe a dumb question. I’m not sure what I should perceive as further progression/decline that I should just accept vs. symptoms that require further managing. Here is the scenario. DH’s behavior has been manageable and I can usually redirect him when he starts to get upset about something. We…
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I am a very lucky man
We have one daughter who has been a great help with her mother (my wife). She has been sick with coronavirus, as has her husband. So we haven't seen her for a while. Another daughter, a good cook, brought us stuffed cabbage, potatoes, green beans, and peach pie today. She said she would like to make dinner for us every…
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I guess he told me!
Whenever the caregiver or I look the other way, DH now spends his day grabbing anything in reach and putting it in his mouth. Chewing off a piece if possible, and gnawing on it forever, it seems. This requires constant vigilance and redirection.😟It is impossible to put EVERYTHING up. CD case, towel hanging on the rack…
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The Cavalry Is Not Coming (reposted for new platform)
As promised, I have re-posted this to the new platform so folks could find it. The Cavalry Is Not Coming April 1, 2023 marked seven and a half years since my wife’s dementia became obvious, and that I knew for certain that this journey would begin. I had sensed something was “a bit off” before then, but that date stands…
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Is Remission Possible in Lewy Body Dementia?
It's been over 6 months since Depakote was added to DH's meds. He continues to do extremely well, as if the disease never happened—a complete turnaround from the aggressive, combative and deranged psychopath he displayed last October (not caused by UTI infection). If you didn't know it, he appears/behaves as normal as can…
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MC hookups
At times when I visit my DW in MC she is sitting with and holding hands with another resident. The male resident said to me that she, my DW, was his girlfriend and that she was beautiful. I think it's innocent enough and I don't think he would touch her inappropriately at least I hope not. I'm ok with them finding comfort…
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Another MC Question
After a year in her second facility, my partner is both more settled and more progressed in her disease. She is having more sensory processing issues—sounds and sights don't make a lot of sense to her and she misinterprets. A lifelong introvert, she is also in the noisiest part of the complex—a room right outside the…
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Thoughts
I went to every doc appt. Kept telling them about the continued memory loss, personality changes. He is freezing all the time and continues to loose weight. He scored a 10/30 on his SLUMS. I felt like I was banging my head on a brick wall…like no one was listening. I'm witnessing this slow, agonizing decline that I can't…