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Every moment seems to be a challenge
I think I’m just needing to share what I’m feeling. I know there are no answers. My DH is stage 6 Alzheimer’s with PPA as well. He’s 73 and I’m 62. He is still sweet most of the time but of course gets frustrated with me sometimes. I try so hard to follow all the rules regarding just answering questions over and over again…
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How to make time for calls etc. that involve talking about his dementia when he's always listening.
Hi there. My DH has dementia and I"m finding it difficult to make arrangments / schedule appointments and give those people background information on what is going on when my DH is always within earshot. He is usualy glued to my side. I feel guilty making up an excuse to get out of the house to make calls or even to start…
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Today is my birthday
My Dh wish me happy birthday this morning :) The rest of the day has been all about him. Dh is pretty cognitive. Suggested we go out to eat,no. Was more worried about what he wanted Sounds very petty to complain but is this what it's going to be like? Very how can I say it, self absorbed or like a kid wanting to do what he…
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How do we know the best next steps
I’ve reached a point where I’m withering under the strain of my DH’s disease. He’s in stage 6 Alzheimer’s and has PPA. He can do nothing for himself. I bathe him, shave him, pick out clothes and help him put them on correctly, cut up his food and feed him, make sure he has water and takes his medicine which he doesn’t even…
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waste of time and energy
Hardly know whether to post this, I think I am just venting and looking for validation from people who understand. Right after my partner fell in early June, there was another attempt by her old "frenemy" to visit her without notifying me first. Fortunately the password system at the front desk worked and they didn't let…
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Rivastigmine impact on bundle branch blockage
Yesterday my DH's doctor evaluated three successive EKG's (done in under 18 months) that indicate my husband has developed blockage in the conductivity of the heart in all but one branch. Dr. says it is likely due to rivastigmine. Dr. still believes the usefulness of the drug outweighs the risks. Does anyone have any…
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This morning’s bathroom disaster
I just need to complain for a minute.DH, now dipping a toe into stage 6, announced this morning that he had to pee. When he came out, he had clearly done more than that. The toilet plunger had been used, and it didn’t smell good in there. Everything looked ok, though. His towel had been hung up and looked reasonably clean.…
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DH in the hospital for 3rd time in 10 months
For the third time in less than a year DH has been admitted to the hospital for a skin infection. This time is the worst so far, I'll spare you the details but he's looking at at least 6 weeks with a wound vac. Since he has no clear cognitive impairment diagnosis in his records no one is listening to me about anything. I…
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EO Stopping Work
for those whose LO had to make the decision to leave work. How did you help them through the depression? My DH is struggling with making that decision even though he knows he should. He has been a workaholic his whole life. I think he is worried about not providing that income and feeling like he has nothing left if he…
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Support Group in Las Vegas
We are a gay couple, and recently moved to Las Vegas. We've been together 27 years and my husband has been diagnosed with Alzhemiers last year and he has started Leqembi infusions (9 times) for far. We are hopeful that his condition would improve. He is not as sharp as before. I've done everything that the doctor suggested…
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As caregivers what do we do with all those feelings.....
As I look forward to going to work this morning after a long weekend with DH, I feel guilty leaving him home. But at the same time relieved I am leaving to go to work. DH is still able to be by himself for periods of time and between a combination of home health and my ability to telework he is taken care of. I have to go…
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I want out!
Most of this is just a vent, but I really don't want to do this any longer. My HWD (I can't even call him my DH now) has become so mean. We recently visited with my sister and her husband along with other family members. My HWD has been telling me that he married the wrong sister! He says my sister is smarter, thinner,…
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Rough Week
Another rough week. I thought I had all the documentation to apply for Medicaid for my DH. The lawyer told me I still needed more. Now I have everything except two documents an I am waiting for them to be mailed to me. If they don't come soon, I will be paying Another $6,530 to the MC facility. Since I've already done the…
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Any Gay men out there?
I am a Gay guy living in the Southwest, taking care of my husband who has moderate memory issues. It would be helpful to communicate with another person in my situation. Thanks.
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Should I Tell His Family?
My DH (61) was recently diagnosed with MCI most likely due to ALZ. There’s family history and his IQ has plummeted. He had the full neuropsych work up and that was the conclusion. He’s somewhat in denial, but is coming to terms. He doesn’t want me to tell anyone. I’m seeing declines monthly. I have no clue how fast this…
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Medicaid (MD)
Trying to understand. When an individual gets to a certain point in paying for medical costs, they can approach Medicaid. From what little i have read, there is a provision where they wil require the individual to spend their own resources until they reach a certain limit. In MD 2500 (?) for individuals and a higher amount…
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Has anyone else experienced this?
My HWD keeps insisting that his clothes are wet. They aren't, although they may feel a little cool to the touch due to the air conditioning. He is putting things in the dryer on high and leaves them in for a long time until they feel dry to him. If I tell him they aren't, he gets very angry and begins shouting that I am…
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Checking in
Hello my friends! Just thought I'd check in. I just "celebrated" our 32nd anniversary, so thought it would be a good time to update everyone on what's going on now. DH is finally fairly comfortable. After years of his extreme agitation, anxiety, and whatever else was going on, he's now fairly calm. He turned 60 last…
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Hallucinations
I'm new to this group and hope to get some suggestions on how to handle this journey. My husband is 75 and I am 66. He was diagnosed with dementia over a year ago but there has been signs for 5-6 years. He's told me many times he sees old people at night and I just blew it off and told him they were probably ghosts since…
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A new unexpected life.
I worked hard for 45 years in a self employed stressful medical business. Have a wife and three kids and I worked scared all my life. Always what if. what if I die. What if I am disabled. What if the kids aren't brought up right and get into trouble. What if they can't find jobs. Etc. I denied myself enjoyment in the name…
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Tam Cummings: Loss of ability to smile - indicative that death is near
Yet again I seek your insights into my DW's decline through Stage 7. She is still losing weight, but is still with us. The document from the Fisher Center, recommended on this site as a staging tool, further breaks down Stage 7 into six substages 7a-7f. Although my DW has Semantic Dementia not AD, in Stage 7 the issues are…
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DH not "feeling well"
my husband was diagnosed with Alzheimer's about a year ago, but showed symptoms for several years. Like others, I was dismissed by physicians and nor believed by this children. He is still pretty functional, but lately sleeps a lot. Says he "does not feel well" almost every day. I ask if stomach, headache etc. he does not…
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Never ready for this
I met with hospice intake today and the nursing assessment is scheduled for Monday. Part of me is protesting that it feels too soon. After all, we sat outside this morning, ate lunch in the community dining room. But: they will get her an adjustable hospital bed, which I think will be much better for her back; and they…
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The age old question - Is there life after caregiving?
Just wanted to touch bases, and let you know my experience with this. June 24, just a few days ago, marked 2 years since my wife passed. This has been harder than I ever could have imagined, although I don't know how much, if any, was due to caregiving. I had absolutely no interest in doing anything, and I think I just…
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Choking
Yesterday was his young son's birthday (20 years old). I had made a roast beef. He made the pieces too big and put two in a row in his mouth. Result' it got stuck in his esophagus. This happens often because he eats very quickly. I haven't finished serving everyone and I haven't started eating yet, but he already has…
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Delusions
My LO when he gets angry with me he accuses me of having affairs. Today I caught him sneaking food to our overweight dog in which I have had him on a diet for the past couple of months. I got angry with my LO for doing so. I tried to apologize for getting angry and told him i don't like being lied to. When he gets angry…
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Unknown road
I'm not sure where to start. I'm not used to having to ask for support. My hubby was diagnosed a year ago w/short term memory loss. They wanted to do more tests, but he's refused. He states there is nothing wrong w/his memory. He's 68 & we've been married 23 yrs. His father & grandfather passed away w/dementia. Out of his…
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Processing Grief During the Journey
I recently placed my spouse of 46 years in memory care and am grappling with the process of grief. I visit daily, and when I'm not with him, I'm often overwhelmed with sadness. It's like the relief of being able to sleep and not dealing with constant anger and aggression managed to move me straight to grief and I'm so sad.…
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M1
Sorry, duplicate post. While I am a big advocate of Hospice I know first hand that there are stupid people who get employed by them. I learned the hard way. I switched Hospices after interviewing several. You are still in charge of your partners care! Further you can continue to use a private Dr. It sounds like it may be…
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Osteoporosis Treatments?
Anyone have experience with osteoporosis treatments (pill vs shot vs IV) for women with dementia? Wondering what experience you had, how well they tolerated treatment, etc. I’m not asking about the side effects. Rather, for example, if you did the IV was it a big deal doing the prep, sitting still long enough for the…