-
Cameras
Can anyone recommend cameras that are simple to set up and operate? thank you
-
Hospice and end stage Alzheimer’s
UPDATE and RECAP: My husband with Alzheimer’s, diabetes, etc started hospice care March 8th, 2024. He is 71, and was diagnosed with MCI 8 years ago, which quickly progressed to an Alzheimer’s diagnosis through a spinal tap done to check for biomarkers. I am 62. Anyways, hospice gave him 6 moths give or take when he was…
-
Going out coming to an end?
My dh has been living at assisted living and has now been moved to the memory care unit where he gets more support (help showering, making sure he changes clothing—I don't think he's incontinent). Every Sunday I take him out for lunch and to take a walk somewhere—the mall, a store, a park, a variety. But I'm afraid that's…
-
Seroquel and now he’s showering again
The neuropsychologist increased the seroquel to 25 mg twice a day and now my DH is showering again almost daily! (Happily!) Before he would give in and shower maybe once every 5 days. And -he is so much more manageable in the evenings. For weeks he was incredibly agitated about going “home”. He would go back and forth to…
-
antipsychotic meds and dementia
Others are likely very aware of this, but I just saw an article on a new study from the United Kingdom about adverse reactions in people with dementia from antipsychotic drugs. If anyone is interested, the article I saw was in "Worst Pills, Best Pills News" June 2024 issue. Perhaps someone more tech savvy than I can post a…
-
Just need to talk to my friends (196)
Amazing how fast we got to page 20 this time. We are good friends and we like to talk. We almost had more rain this afternoon but ended up with only thunder and a sprinkle. The weather man just said there will be bad weather all through the south tonight. Prayers for everyone in the path of the storms. David, it's May…
-
Stuck on going to CVS to demand drugs
My DH does many things repetitively, and I can usually deal with it because it's just me. But now, he insists on going to CVS to ask for medication but he has nothing to be filled. If I try to redirect or explain, I'm a bitch who wants him to suffer. I even got an old prescription refilled hoping he would be satisfied, but…
-
I feel like I’m in another country and don’t understand the language
Today my DH had a follow up Dr appt for his last ER visit. He told the doctor he didn’t remember being in ER and feels his memory is getting worse. After the visit, driving home, he seemed worn out. He turns to me and says “I think I have it” and I asked what does he think he has and he says I have “it.” It is what his…
-
Should I or shouldn’t I?
Should I involve my DW, early-mid stage, in planning for later stage care? Thinking about things like bringing in a hospital style bed and sit down shower, other changes to make the home safer. On one hand she will object, now, for aesthetic reasons, on the other hand I feel it might not be good to “spring” such things on…
-
Sorting
My gal likes to sort stuff. This is mostly making piles according to some mysterious logic. This has a soundtrack that goes with it: "this goes here, and that goes there, and this goes here, and....." and then a resorting. it can be magazines, or picture books, and unfortunately anything i leave in plain sight. Bills,…
-
SSDI for Early Onset
for those of us who are still working while on this journey and your significant other has had to stop working and applied for SSDI. I have a couple questions. At what point did your loved one stop working? It is my understanding this disease is considered a compassionate allowance under SSDI. Since we are officially…
-
In -home Care, Topanga, Ca. sources
-
“I don’t belong here. I don’t belong anywhere.”
My DH has started saying this on an almost daily basis. He was DXed June 2021 with mild mixed dementia (ALZ and vascular) and has progressed to what I estimate to be mid-to-late stage 5. I started him at a day program two days a week and on citalopram 15 months ago. Three weeks ago, via a geriatric psychiatrist, we added…
-
Hospice timing with Alzheimer’s .
Hello, My husband is 71 with vascular dementia and was also diagnosed with early onset Alzheimer’s about 8 years ago. He also has diabetes and coronary artery disease , along with a couple of other things He is mostly in stage 6 Alzheimer’s, and has declined a lot in the last 2 months. He can no longer be alone, tries to…
-
One success, one scare and one funny
Success—took my HWA to an adult day care for the first time today and he loved it! Scare—have an appointment with an oncologist tomorrow to investigate some odd blood test results. Funny—getting ready for bed last night and my HWA looked at me and asked, "Just what is your purpose here?" 🤔
-
Reading post
How do I read someone’s full post?
-
A good Geri psych is hard to find and even harder to get into
The quest for psychiatric help for my DH continues. My husband came home from 2 weeks in an acute care Geri psych unit not much better than when he went in. I’ve been trying to get him into one of the two non-acute Geri psychs in our state so that all his psychiatric meds can be adjusted. Apparently the acute facilities…
-
Dementia
My wife was diagnosed in Feb of this year and she has asked why she has that problem, I have told her why but she denies she has dementia. It has been hard to but I have gotten better which consists of listening and being patient. Things have changed. Is there any suggestion?
-
Heartbroken
I know I'm not the only one but I am just so sad. I make myself get up and go through the motions of life everyday but it takes all the energy I have. Knowing I will be without him someday is breaking my heart. The tears won't stop.
-
I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
-
Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
-
New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation
-
Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
-
Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
-
When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
-
This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…
-
His words - so true.
DH is silent most of the time now. He sleeps a lot too, but lightly. Catnapping around the clock here in early Stage 7. At any time I may realize he isn’t fully asleep, but eyes are closed. He may open his eyes, semi-smile and make clear eye contact. He may or may not say anything - well at least not in words. I sit next…
-
Extreme anxiety, fatigue, apathy in DLB
I have done a lot of internet searching but can't find these as major symptoms. After about a year of testing my spouse was diagnosed with MCI, probably caused by DLB and secondarily by Alzheimers. Most days she awakens early worrying about something, then when she gets up about 10 she immediately feels tired and lies down…
-
New to the community - First post
Hi all - This is my first time on the site and my first time posting. My DW was diagnosed with MCI but no definitive diagnosis of Alzheimers yet. She is most likely still in the early stage but when she is stressed or in an unfamiliar environment her symptoms get much worse. She was diagnosed with MCI by a neurologist at…
-
Trouble Redirecting
Hi all, My poor DW. She's spent the last several days crying, asking about why there is such distance between us. Like our relationship has changed and I don't love her anymore. Of course I do, it's that she is moving further along and away, but she can't grasp that. I can't seem to get her off of it. She's a former…