-
Dementia
My wife was diagnosed in Feb of this year and she has asked why she has that problem, I have told her why but she denies she has dementia. It has been hard to but I have gotten better which consists of listening and being patient. Things have changed. Is there any suggestion?
-
Heartbroken
I know I'm not the only one but I am just so sad. I make myself get up and go through the motions of life everyday but it takes all the energy I have. Knowing I will be without him someday is breaking my heart. The tears won't stop.
-
I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
-
Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
-
New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation
-
Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
-
Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
-
When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
-
This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…
-
His words - so true.
DH is silent most of the time now. He sleeps a lot too, but lightly. Catnapping around the clock here in early Stage 7. At any time I may realize he isn’t fully asleep, but eyes are closed. He may open his eyes, semi-smile and make clear eye contact. He may or may not say anything - well at least not in words. I sit next…
-
Extreme anxiety, fatigue, apathy in DLB
I have done a lot of internet searching but can't find these as major symptoms. After about a year of testing my spouse was diagnosed with MCI, probably caused by DLB and secondarily by Alzheimers. Most days she awakens early worrying about something, then when she gets up about 10 she immediately feels tired and lies down…
-
New to the community - First post
Hi all - This is my first time on the site and my first time posting. My DW was diagnosed with MCI but no definitive diagnosis of Alzheimers yet. She is most likely still in the early stage but when she is stressed or in an unfamiliar environment her symptoms get much worse. She was diagnosed with MCI by a neurologist at…
-
Trouble Redirecting
Hi all, My poor DW. She's spent the last several days crying, asking about why there is such distance between us. Like our relationship has changed and I don't love her anymore. Of course I do, it's that she is moving further along and away, but she can't grasp that. I can't seem to get her off of it. She's a former…
-
Agitation and anger and a couple of questions
My DH is starting to have angry outbursts when things don't go his way. It's intermittent but noticeable. For example, he gets easily frustrated around tasks that used to be easy for him - the TV remote is the most recent source of frustration- he has replaced the batteries several times in the last few weeks, blaming…
-
Help locating text
I have not been able to find a post that was a very good point by point summary of advantages of MC vs home care. It was not an account of the writer’s experience but was in response to someone else’s. I believe it was 2-3 paragraphs. I’ve had no luck finding it with the Search function and am hoping someone remembers it…
-
Anticipatory Grief resources
Does anyone have any idea on where I can get help with this? I will soon be in a Grief support group due to my mom passing. But the grief of seeing the changes in my husband has been so difficult. As I see each new thing, he cannot do it hurts. He knows I am an important person to him, but I am not totally sure he knows…
-
Funny- “ The Calvary Isn’t Coming “
About 3 am DH comes busting in my room and tells me in no uncertain terms that “I will never be the Queen of the Castle and that this is his house and I’m a squatter.” I was so darn tired that I started laughing uncontrollably. That didn’t sit well with him. I still can’t keep my mouth shut. When I think he’s downstairs,…
-
just placed in memory care
Just placed my DH in memory care 2 days ago. He was diagnosed with Alzheimers in 2021. I spent the first day with him getting him settled and talking to the staff. DH doesn't understand why he is there and is very sad, tries to argue that he is fine and wants to go home. The second day, I went to visit, took him for a walk…
-
End of life
My husband is close to the end of this terrible disease. I live in Broward County, Wilton Manors. He is not on hospice what happens when dies? We have cremation paid for. Will they take him to do an autopsy or will I just call the funeral home? I want to bath him and dress him in his army uniform . I want to be prepared…
-
Change in handedness
My husband is right-handed. Recently I noticed he is using his left hand and not his right. Has anyone else seen this happen? I was curious why he is doing that now. He is in the later part of the middle stage. I tried looking it up but could not find an answer.
-
Primary language
My DH's father was Mexican and mother was hispanic from Texas. My DH was born in Juarez and grew up in El Paso and his primary language was Spanish. He learned English threw the years and was fluent in both languages. As the disease is progressing he is speaking more and more in Spanish to me (which I understand very…
-
New to this group
My DH was diagnosed with dementia several years ago. The doctor said that his was triggered by a TBI he received due to a car accident he had in the early 70's. He crushed in the front left side of his skull. At first it wasn't bad but now it has progressed. An MRI done five years ago showed that approximately 1/3 of the…
-
From bad to worse
It has been a challenge navigating my DW dementia, AFib, and related health issues. Recently, I have been looking into the possibility of moving her to MC. She doesn't like doctors and wasn't feeling well for a week or so. Finally, I was able to convince her to go to see a doctor. So, Sunday night before Memorial Day, we…
-
Sweet but sad...Buck up, honey
Some days in this journey are memorable and this was one of them. The trauma of her Monday fall caught up with my partner today, she was sleepy, achy, sore, and tearful. She has no memory of the fall nor of the night in the ER. She woke up about lunchtime a bit. Crying, she looked at me and said, "my life is over...I can't…
-
Doing what I gotta do
Tonight I called my MIL and said I'm dropping your son off tmr before i go to work. He can't be here at home. I came home to my laundry soap (that isn't cheap) not in it's container. Some on the floor. The bed we sleep in was a disaster. (He put my pillow in the dryer caise it was cold). His new CPAP machine on the bed…
-
Trying to get DW to Understand Time/Dates/Calendars/Schedules
My DW is in early to middle stages of cognitive impairment (not sure what exact diagnosis is yet – evaluation still in progress). She has lost all ability to understand timelines related to dates, schedules and appointments. She often confuses what was a past appointment with what is yet to come in the future. Here’s a…
-
“She’s mostly in her own little world now”
Those following our story know my DW is in the final stages of Semantic Dementia and on hospice. She is losing weight in each monthly weighing. But she is still hanging on although clearly declining weekly. I was discussing my DW’s situation with the hospice nurse. I noted that my DW seems to be in a state of being either…
-
Tale of the phone: master manipulator?
My DH has been in MC for about a month now. I visited him once and he actually seemed happier than he had been at home for a long time. It was a quick visit with my DDIL and granddaughter (age 3 yo). I brought him some items he had asked for and he seemed happy to see all of us, especially my granddaughter. Throughout his…
-
Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
-
Home care
I’m so tired and drained. I need help or I’m going to pass out. This week I’m calling Visiting Angels and asking you all who else can I call? I need someone to come in a couple of times a week just so I can have a break. Asking hubby to get ready this morning was a huge challenge. I’d ask him to get dressed and he sits and…