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New here and wondering what’s what .
Everything has looked like my wife has dementia but I don’t want to believe it . This mornings angry outbursts over nothing made me look on the internet for information and all the boxes got ticked . I know , I know - being a self styled internet doctor and making my own diagnosis is probably barking up the wrong tree but…
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Toilet Paper
I am used to my OH pulling out toilet paper ,neatly folding and then hiding it . Today was a first . She hid the toilet roll and holder . Looked in all her normal hiding places with no luck . When I went to put some laundry in her dresser , I found the toilet roll and holder neatly tucked in her night dress. Of course she…
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Feeling guilty
My DH husband and I have always been open with each other and he has been tested, but has not been officially diagnosed yet with dementia but all the signs are there. I feel guilty talking to our children about him behind his back, but I feel like they need to know what’s going on. They have seen some of the signs as well,…
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Does speech therapy
I asked about occupational therapy, I should perhaps have asked about speech therapy. DH with ALZ most noticable problem is lost words.
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Oh Hello Alzheimer's book
Just wondering if anyone has read the book by Lisa Marshall about her caregiver journey. I just finished it and have a lot of conflicting thoughts. I did not want to put the book down but then did not want to finish reading it because I knew how it would end. Even reading her experience, I looked for ways to deny that my…
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Update on how to talk to Doctor in advance of DH appointment...
Hello all. Just an update on my saga about alerting DH's doc to issues before DH's doctor appointment. My solution this time was to book an appointment for myself with the same doctor, scheduling DH for the appointment directly after mine. I am also a patient of the doc and booked my appointment for medication management -…
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Echocardiogram scheduled-how to get him through it
My DH sees a cardiologist regularly. This time we had a little trouble with the EKG - when they put the stickers on his chest, he complained vehemently about how cold they were, how he was going to leave, etc. I managed to calm him down and we got through that. Next he usually gets an echocardiogram so we scheduled that…
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Bath tub conversion
Seeking comments from those who've converted the traditional bath tub to a walk in tub vs. a walk in shower. Thank you
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I am very sick with covid DW also infected. Help with ER visit
my DW has rapid Demetia, she is in late stage. Which is challenging enough, trying desperately to get some respite relief which I have been granted 12 hours a mont( which are now cancelled due to the Fact, we both now have Covid… DW doesn’t have the severity of symptoms as I do. I am trying to get to the hospital ASAP for…
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diagnosis meaning?
My husband was diagnosed with Mild Cognitive Impairment secondary to Early Onset Alzheimers. I am unsure if that means he has Early Onset Alzheimer's and if I should apply for SSDI under the Compassionate Allowance, or if he is Mild Cognitive Impaired.
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Caregiver of DW 24/7 for almost 2 years w
The most amazing perfect woman has Severe Rapid Dementia, diagnosed officially September 2024. When we bot( refuted early from our careers, we owned businesses together, so being together has been wonderful… well, until truly these last 6-8 months. I stepped down for. My latest BUSIENSS as CEO, June of 2023. After noticing…
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Any experience with Rexulti?
DH has been getting more delusional and agitated. Doc suggested a switch from olanzapine to rexulti. Wondered if there is any experience with rexulti out there. I know every PWD is different but would still like to hear about experiences with this med. Also what dose at what time of day? Doc suggested a cutback reducing…
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When does PWD stop voting?
I have seen previous discussions of spouses assisting in varying capacities (sometimes total, wink wink) with early/mail-in voting process. In my state it clearly says POA is not permitted to vote for someone else and I respect that. I have a gentle conversation with DW and she can answer yes/no questions like do you want…
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Hospice to Stage 8 in 35 Days
I'm heartbroken at the loss of my LO. He took his last breath at 5.15 am today while I held him in my arms. I am thankful I was able to keep my promise to keep him home until the end. It was gut wrenching to watch the life leave him. I guess we all know the day will come to let them go but I thought we would have more…
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What is the best incontinence brief for men?
I know this has been asked before, but we are just now dealing with urinary incontinence with my DH. He is in memory care, but the product they use is chafing the inside of his thighs, not to mention that it also doesn't work very well. I would prefer to provide him with something comfortable and effective. Thank you all…
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Help
Maybe I'm a failure at this. I know I shouldn't argue, and I try hard not to, but what do you do when your DH gets so angry at things? (Not physically ever at all, but starts swearing and telling him I am never on his side or never agree, etc). I am on edge every minute. I'm really trying - I even got a prescription for…
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I have a legal question about POAs
My brother has (finally) signed POAs. He assigned his stepdaughter as his primary. He once told me that I'm mentioned as a successor agent, but I'm not sure whether I'm second or third. Anyway, his stepdaughter just gave birth on Saturday. She said she can't serve in that capacity and has asked if I can do that. I think…
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I never thought about this !!!!
first let me say I love this site. But after feeling sorry for myself I thought of how lucky I am to have found this group. That being said I was thinking about how many lives do you think have been destroyed by this illness to the very young. And what I mean is at 40-55 to be married and not realize what’s wrong or even…
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Life expectancy for FTD
My husband has been diagnosed with FTD. I think he’s had it for at least 5 years. He is 64. I’m trying to make a decision about whether to extend his life insurance policy which will be expiring soon. Does anyone have an idea with early onset FTD what his life expectancy might be? My guess is he’s in the later middle…
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Three Magical Words
My DW and I have gone through a 7-year journey since a 2015 stroke. As many of you have described, we have had very difficult moments. This may not sound profound, but I have found that when we are at our most stressful moments if we just say to each other "I love you!" peace enters our world together. I have to believe…
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Paying taxes once a year by withholding from an IRA distribution
Small hint that many people don't know about. We both have pensions Social security and IRAs. Because of DWs medical expenses I don't often know my tax situation till the end of the year. So I have no taxes withheld from the pensions or social security but instead pay the taxes as a withholding in December (both federal…
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My Long Boring Story ….
Being from Canada I was lucky to find this wonderful Forum where one can express their inner most thoughts. Having said that, I feel that i will be able to relieve some of my stress by putting pen to paper to relieve my stress. I am 75 years old and my pretty and physically fit wife is 70. I had a good job and my wife ran…
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Things have progressed
I haven't posted here in quite a while, but things with my Significant other/life partner have progressed recently. At first, her only problem was short term memory loss which was easy for me to deal with. A few months ago, she started sleeping all day, often 16-18 hours a day. She also was getting no exercise and was…
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Death of sibling
Friday night my DH'S younger brother passed away. He is one of 7 and this is the first to die. I am having a hard time figuring out how to tell him and what to do about wake?/funeral? Any suggestions? I did call Alz Ass and talked to a lovely gal who gave me some suggestions. Just wanted to see if anyone has gone through…
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Frustrated with the system at KP
DH was diagnosed with MCI 3 years ago after an MRI showed evidence of an old parietal stroke. He has 2 more strokes in the last 2 years and he was finally seen at the memory clinic in May. Cognitive impairment, possible early VD was the outcome. Reassess him in 6 mo. Called to get Nov appt and was told 2 staff quit and he…
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Bible Verse to Lift You Up 10/20/24
WORKING FOR PEACE Psalm 4:8 NLT "In peace I will lie down and sleep, for you alone, O Lord, will keep me safe." Matthew 5:9 NLT Jesus' Words "God blesses those who work for peace, for they will be called the children of God." THINK ABOUT THIS Do you lose peace often? If so... What tends to make you lose peace? Have you…
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DH doesn’t think we are married
my DH with vascular dementia and Alzheimer’s doesn’t recognize our home as his, doesn’t think we are married and has moved into a different bedroom. He tells me he’s not comfortable here and needs to move. Is it time for MC?
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Legal and Financial Transition
MY DH is in early stages of dementia, but I can see it accelerating. We need to shift responsibilities to me and also to our adult son. Though we own our assets and make decisions jointly, and it was he who insisted we revisit (together) our wills recently (thank goodness) DH has held the legal/financial reins for over 40…
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Sundowner
My wife has advanced dementia. 2 months ago she fell down from the top stair and suffered a TBI. She is in pretty bad shape. Physically she's not bad. Mentally equal to a 4-5 year old. She is 63. The hardest part of the day is 3:00. When sundown starts she gets desperate thinking she's done something wrong. Nobody loves…
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Seroquel too strong?
The doc recently prescribed it. My DW is small framed, which is perhaps a factor. But the first day she took it at breakfast - wham! - she fell asleep 2 hours later, woke up for 2 hours, then out (hard) again. I called the physician, said cut the pill in half tomorrow. I will try it but am still worried this will be too…