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Reflections and a new lease on life
Here I am almost seventy year’s old, living in a new state, with my husband residing in a memory care facility, our grandchildren busy in elementary school, and our kids working full time. It’s not been easy to make friends in this new locale as a senior. I’m lonely living alone. Since I’ve been swimming laps for two…
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TSA UGH! Airport Experience
I need to vent! DH with ALZ and I just got back from California visiting family. I expected some increased challenges due to travel but did not anticipate this one. DH was pulled out of line for “pat down.” search in San Francisco International Airport. I tried to tell them he might need me close by to help communicate…
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Clothing
Hello, can anyone suggest a source for clothing that's easy to put on/take off? Especially the take off part. This morning I had to literally cut the back of his sweatshirt open with scissors. He's always cold and wears long sleeves but they are too hard to get off. Thanks for any advice!
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Redirection on Delusions
Hello my heroic, supportive, and likely exhausted friends. DWs waving at the people on tv has gone from sad/but kinda cute, to just sad. She now thinks they are waving to her and sometimes coming out of the tv into our house. I've found her hiding in the pantry from them yesterday. She also really thinks there are people…
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Irritating new popup-am I the only one?
some setting has been changed this morning so that unless I “accept all cookies” there’s a pop up with every thread. Anyone else seeing this? It won’t accept anything less than “all cookies…”
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Power of Attorney
I am my DH POA. We have a joint account at our bank. He is newly diagnosed for Alzheimer's a few months ago. He and I both have a debit card. He is still driving, and goes to Walmart frequently sometimes 2-3 times a day buying over the counter medications for cough sinus bandages, tools, etc. whatever he thinks he needs.…
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One of my biggest concerns
I am concerned about having to get medicaid for my husband in the future for help with caregiving Having to meet there spend downs and leaving me in bad financial situation for my life after. I have researched it all. I know that is just the way it is. So my only plan to avoid is to keep him home until the end. Which I…
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Really disheartening first experience with hospice
Yesterday, I asked DH’s doctor at memory care if it was time for a hospice evaluation. DH has been there less than three weeks, but those of you who have been following our story may recall that since his first hospitalization Aug. 14, he has lost, by my estimate, 20-30 pounds. He pretty much stopped eating four days into…
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legal issues
people say to get power of attorney, but because of his dementia he, my husband, can't hand it over to me. I've talked to several lawyers, and they say no. The only way to get custodianship is to take him to court in front of everyone he knows, it's a small town, and have him deemed incompetent. I can't do that to him. So,…
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eating too much
DH in ES ALZ, has lately started eating everything put in front of him. Six months ago, if I served him a large steak, he would eat his fill then save the rest of it. Lately, he eats the whole thing in addition to sides. Yesterday, I made chicken salad, enough for 3-4 lunches. He ate the whole thing for lunch, in addition…
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fists and toes clenched
My DH has been home with me for two months after being in memory care for six months. He has started clenching his fists and toes, and he is amazingly strong. He will hold on to blankets when we are trying to get him out of bed, and it takes two of us to get his hands free. Does anyone else have this problem or a solution…
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how to have a discussion
My husband gets $75 every 2 weeks for groceries from rent we take in. I was helping him get groceries to last that time and he was doing good. then I stopped checking because I thought he got it, he didn't. if he didn't get meals on wheels he would be in trouble. so, I got advice to make meals ahead of time and freeze…
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Help!
I DH has been in the hospital 3 weeks due to COVID and pneumonia. He has recovered medically, but the COVID has advanced the Alz and they are keeping him to get his agitation under control. His agitation has greatly improved but now he just wants to go home. It is all I hear when I visit and he is constantly badgering the…
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Vasovagal Syncope
My wife has stage 4, early 5 Alzheimer's. She's had 3 fainting spells in the last 3 months. Bloodwork, MRI's, Echocardiograms, Holter monitors, medication changes have found no cause. The most recent ER doctor theorized that it's vasovagal syncope brought on by her damaged brain trying to deal with the stress and confusion…
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Illusion, hallucination or delusion?
Every night lately, my DH asks me questions like, "where is everyone else", or "where is the little girl", or "where is the dog"? I understand the dog question, because our dog died after us having him for 10 1/2 years, but the other questions confuse me. There are just the two of us living in this house. Sometimes he asks…
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Newly diagnosed early onset alzheimers
Hi I’m new here…so my 62 yo husband was diagnosed w early onset Alzheimer’s within the last year. MRI was normal but the “tests” done in the doctors office showed it. So I’m just watching and trying to figure out it he has it. Question, he has always worn his hair short and now he is letting it grow! Besides looking…
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Legal
Husband with dementia lost all the money in Fidelity. I was never contacted.Do I have any recourse?
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Sometimes you gotta laugh...
Aha! Been trying to figure out why I get so caught up in HDW's conversations in the late afternoons. As I explained to my stepson, dad's disease is not bad memory (from which he always suffered) but it's brain processing. We are huge sports fans. Today is NFL Sunday. Except that today all of the teams playing at noon…
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What is the importance of annual doctor visit?
My DW was diagnosed three years ago and is still in the mild stage but clearly some progression. She also has anosognosia. Our memory care unit recommends an annual evaluation. My questions is, why? The diagnosis hasn't changed and she's still doing pretty well. I worry that the appointments will upset her and don't see…
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Cela lawyer
Can anyone recommend a good relationship lawyer. I am in Mahopac ny
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DNA testing for kids
My DH was diagnosed with Alzheimer's five years ago (at 70) but had symptoms for at least 5 years before that. Both of his parents died at 60, so we don't know what might have happened had they lived longer. His brother had his DNA tested and had two copies of the 'bad' APOE gene and recently tested positive for…
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Today I feel ... unstuck
I've been feeling pretty stuck—I am doing an OK job with caregiving and surviving, but the future looks bleak for me financially and I am bored, frustrated, and lonely in the present. Rather than continue to feel so many negative emotions I started exploring possibilities for change after reading this from Maya Angelou:…
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DH now stage 6
my DH is now stage six. I’m exhausted physically and mentally. He hallucinates, delusional, wanders, paranoid, agitated and confused. The speech is so bad. He can say a word and make a somewhat sentence but cannot put two sentences together to make a thought. He sometimes thinks his children are small. He asked me to tell…
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Alzheimer's homebound status
Am I correct here? Medicaid pays for 35 hours of home care for people who are homebound and people with Alzheimer's who are a wandering risk are considered homebound. Please correct me if you think I've misinterpreted this. Here are my references: From Google AI: Yes, wandering can qualify for Medicaid homebound if it…
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Help - Decisions and Options: Any advice/suggestions are appreciated
My DH was admitted on Sept. 2 with COVID. He is off of isolation and want to transfer him out of the hospital. They have been unable to come up with the right meds to calm his anxiety (he constantly wants to get out of bed because he thinks he has to urinate, but he doesn't). He has been checked for a UTI. They have had…
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UTI or Just a Progression of the Disease.
My DH has been sleeping almost around the clock for the last 3 days and eats only small amounts of food when hand feed. He will walk with assistance but very slowly. He does not appear to be pain. This new behavior came on suddenly. He was walking unassisted, feeding himself and sleeping maybe 8-10 hrs a day prior to the…
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Your thoughts on Aircept
My DH was diagnosed “probably vascular dementia”, scored 22 on cognitive test and is 70 years old. The doctor made no other recommendation other than to start taking Aircept. he has no other health problems What are your thoughts on this drug is it worth trying? He is very thin and has dizziness in morning. Doctor said to…
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New here
My husband was diagnosed around six years ago. I would guess stage 5 and some stage 6, He has had difficulty speaking his thoughts for quite awhile but understands what I am saying as long as I am clear and concise. It is so hard to explain your alzheimer spouse to others they would have to live and deal with them 24/7 to…
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Well Spouse Association
Has anyone heard of or joined Well Spouse Association? If so, what are your thoughts?
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new to dementia
To start out with my husband and I are married in name only, the marriage died long ago, I do care for him, and we live in the same house, but different floors. My husband was diagnosed with dementia 2 years ago, but within the past 3 months I've seen some decline. I was in denial until he couldn't check the fluids in the…