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Unexpected source of MCF funding
we received a letter from the company holding an annuity we own, to update us on some minor change. In the process of reviewing the annuity document, I came across a section about Nursing Home Benefit. Apparently if DH needs placement we can access funds from the annuity even though typically the money must stay invested…
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Biogen to Present New Data
For anyone following the trials for these newly approved Alzheimer’s drugs, Biogen to Present New Data at the Clinical Trials on Alzheimer’s Disease (CTAD) 2023 Meeting taking place October 24-27 in Boston, Mass.…
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Easy recipes for slow cookers...and go
Sweet and Sour Chicken 2 boneless chicken breasts 4 large bell peppers, sliced (I like to mix green and red) 1 can pineapple chunks in juice 1/2 cup low sodium soy sauce 1/2 cup white vinegar 1 tsp garlic powder 1 tsp onion powder 1 tsp sesame oil Place chicken, peppers, and pineapple in slow cooker. Mix soy sauce,…
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LIFE IN THE "WAVY TIME" STAGE 8
Hello to all, I'm finally able to collect a few thoughts which might be helpful to share. Not sure how to start, so maybe just jot down thoughts as they come to me. One of the most prominent features of these past few days has been the overwhelming fatigue that took over almost immediately when my Husband Bob died. The…
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I miss home
Hi All, I’ve always loved being home. Everything about it. Creating a pretty space, cooking, keeping things clean and orderly, relaxing in it after work and on the weekends. I miss it. Because for years now, it doesn’t feel like home. All Mirrors and some pictures are taken down, blinds drawn that reflect the “goofy son of…
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Working Still
I get so much help here. I can’t thank you all enough. Many of you are much longer on this journey than I am, facing more difficulties. My SO is progressing, no question, but her personality is the same, she’s still relatively present and she gave up driving without a fight. She’s safe alone during the day while I work,…
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psychotic episodes and rapid decline?
My DW has been having psychotic episodes such as screaming, yelling and verbal outbursts including insults and hitting. She doesn't hurt me when she hits me and I'm trying to let her know that hitting is not allowed. She also has "phantom boarder" syndrome where she thinks strangers are in the house when they are not.…
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Need ideas on how to get time away from PWD to discuss care without triggering an outburst
My Dad is my Mom's caregiver and he is burned out. He knows he needs help, but he doesn't know where to start and is overwhelmed with all of the things to consider and all of the decisions that need to be made. As a result, he is basically "frozen" and can't/won't take even the initial steps to bring in care to help him…
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New thread from GloriaByington
"First time posting. My DH seems to be in a downward spiral. He has dementia & onset of Hydrocephalus. He is unable to walk without support and is now mostly in a wheelchair except when I take him to the toilet from our bed when he uses a walker w/me helping to steady the walker. He still received Physical Therapy 2x/week…
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MC placement experience
I rarely communicate on this site, but I feel the need to assure others in the earlier portion of their journey that placement into MC is not always a bad thing. After 10 years of caring for my DH at home with plans of keeping him home to the end things can change. My earlier posts outline this journey. My rule was that we…
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Getting diagnosis
My DW is still fully funtional, she can take care of her personal functions and daily activities. However her memory is getting worse weekly, to the point that now she forgets items from 5 min ago. Aside from the memory issues she has a tendency to create narriatives in her mind that she insists are the truth. This…
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Soon, another year down
It's amazing how fast time flies when all you can see is from one moment to the next. This same time last year I thought my DW would be in MC but she's about the same as she was the year before, just creeping along ever so slowly. I wonder where we will be this time next year. Probably in the same place I am now.
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Driving
I know everyone has read about how difficult it is to get LOWD to give up driving. My problem is husband’s 55 year old daughter (not my kid. Married her dad 27yrs ago) who is currently trying to get her dad to drive 200 miles to see her. She and her husband have threatened to take LOWD away, to call elder services, to help…
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New diagnosis of Mild Cognitive Impairment for husband
Hello all - my first post here. I'm going to type out words - I've found that the list of acronyms is limited. What is NP, for example? Anyway, husband has experienced memory decline for about two years. Finally went to a neurologist today (I was along for note taking), and received a diagnosis of Mild Cognitive…
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Crying, sadness, depression
I'm new here DH 83, dementia diagnosed 4 years ago but started well over 8 years ago. I am 15 years younger. He is well aware that his mind is not working right. I am a retired nurse, both my parents had Alz. So lots of experience related to ALZ and family. I believe he is at least stage 6. He is on the highest dose of…
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Lessons from caregiver getting covid
So I was a "covid unicorn" -- someone who had managed to make it 3 1/2 years without ever actually getting covid, until DH and I flew to Denver for my birthday and that was my gift to myself :-( So I've been isolating in a second bedroom in our condo since Friday night, while dealing with role reversal and you might…
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DW diagnosis of EO Alzheimers. First, new member post
Greetings, DW diagnosis of EO Alzheimers after professional cognitive testing, May 2023. Still in denial and "covering" stage so it has been very difficult having a conversation about the illness. Refused to go to two neurologist appointments, latter was an initial consultation with state medical institute on aging (memory…
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Successful placement
This is a summary of my wife’s journey so far. I hope it might be helpful to someone. January 2013. She reported memory loss to her doctor. She was 58. November 2015. She started having problems at work doing her job. July 29, 2016. She was diagnosed with Alzheimer’s. She was 61. June 2019. Started wandering. She was 64.…
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Experienced my first "shock"
I joined this forum in March of this year - and it has been helpful and informative. My DH was diagnosed with MCI concerning Alzheimer's in August of 2021. Afterthought, I had noticed vague signs probably as early back as 2019. He has displayed the typical signs of memory loss, difficulty operating computer, cell phone,…
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Bible Verse to Lift You Up
FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me. 13 No, dear brothers and sisters, I have not achieved it, but I…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Bible Verse to Lift You Up 9/29/23
*Friends, As always, thank you for your comments. May God bless each one of you. Ronnie FAITH OR SINK Matthew 14:30-31 New King James Version But when he saw that the wind was boisterous, he was afraid; and beginning to sink he cried out, saying, “Lord, save me!” And immediately Jesus stretched out His hand and caught him,…
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Bible Verse to Lift You Up 10/14/23
FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me. 13 No, dear brothers and sisters, I have not achieved it, but I…
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I'm Struggling
I'm not doing well. Physically, my weight is too low...not quite 90 lbs. I'm in physical therapy for a partial tear in my right rotator cuff and a possible pinched nerve in my neck. Both of these have been brought on from caring for my husband. I'm sorry, this is hard for me to write and I don't know how to express it. DH…
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First major incontinence incident
Do I get a badge? I just spent the last hour scrubbing my bathroom because my DH dropped trou and went in the tub. I'm trying not to cry. Definitely feel like we turned a corner today. Thanks for listening.
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Blood test to help diagnose Alzheimers?
Does anyone have experience with, or extra knowledge about, the blood test, "PrecivityAD", that measures the levels of specific types of beta-amalyoid proteins in the blood and that may help with a differential diagnosis in the early stages? I just found an earlier (2021-2022) thread that was helpful! Any other recent…
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Moving to Memory Care Facility
My husband has vascular dementia. After four years as his sole caregiver, I am no longer able physically and emotionally to handle all. I think I've decided a MCF will be better for him (and me) than professional home care. He is very proud and stubborn (he doesn't want anyone but me to care for him). I have toured…
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Struggling with your decision on placement?
Maybe this will help. https://www.youtube.com/watch?v=F6_0coly0Yw&t=861s
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Urinary Incontinence
Just what is urinary incontinence? Well, what it is not is urinating in places other than a toilet. At least that is what I was told. Her is a good read; Incontinence: Leakage, Causes, Diagnosis, Treatment & Prevention (clevelandclinic.org)