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Tips for the Phone
My DH, loves his phone. He uses the timer when he's watering the lawn so he knows when to move the sprinkler. He calls our son and daughter frequently. It has a tracker on it that gives me some comfort. If a text appears on his phone, he runs to me to deal with it. He's excited to share it with me and doesn't know what to…
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I find it hard to get my head around this!!
im Married 54 1/2 yrs , you live most of your life with your mate and know everything about them. You know there moods likes and dislikes then this terrible illness hits someone close and you slowly see a different person emerging , very sad to watch it’s like an illness that surly makes the other suffer in a different…
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Tips on tone of voice
I’m finding it hard at times when my wife says or does things that really aren’t her. I understand it’s part of illness but maybe someone has a tip on how not to speak or try not to sound frustrated. I’m sure someone know what I’m trying to say. Thank you this is not an easy illness to deal with I’m seeing now. Wife in…
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How to prevent those nasty UTI’s
My DH is taking antibiotics for yet another UTI. This is the 6th one this year. He never had one before becoming urinary incontinent. He wears incontinence underwear along with a pad around the clock. He goes into the bathroom on his own or I take him but he’s usually already wet. I don’t think he can tell when he has to…
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How to respond?
Hi all. My wonderful Hubs has Alz at 66 years old. I'm wondering how others might suggest I respond when he says things like, "Well you never told me that!" or "I never knew that." Of course, he's been told of schedules, plans, etc. I even write them on his calendar now. But how do you respond? I don't want to snap at him,…
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Daycare for EOD PWD
Yesterday while talking to an attorney I mentioned that our local adult day care will not accept anyone under the age of 60. She had a suggestion for a non-governmental program that would probably accept DH. Ever since he retired over 2 1/2 years ago he has sat in front of a computer playing games and watching youtube…
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Long ago and far away
Today marks 6 months since DH passed and today this popped up on FB “memories” from 9 years ago. So bittersweet. It’s hard to believe that things went South so fast. . I miss him every day, but reminders like this are comforting.
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Finding an Elder Law Attorney
I feel like I should know how to do this, but I'm struggling to find an Elder Law attorney and also am afraid that I should have done this a lot earlier. My DH of 45 years was diagnosed almost a year ago, with moderate dementia and with the shock of that diagnosis, I'm now trying to get this sorted out. We do have a great…
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Big Changes Lately
My DW is 69 years old and is stage 6. Not sure exactly where in that stage. Her neurologist says maybe a year to eighteen months till late stage. I've managed her fairly well at home but she seems to be progressing. I have dealt with her illusions for the last couple of years but they seem to be getting worse. She doesn't…
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vision test
My DH has deteriorated since his last eye exam. At this point, I'm not sure he can identify the letters on the eye chart. Has anyone experienced this?
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Further discussion with DH Mild Cognitive Impairment
A few weeks ago, I posted my DH was showing jealousy, anger, shadowy me, some sexual remarks. Within that time I wrote a note to Neurologist asking him what to do. My DH is on Donepezil 5 mg. We don’t see neurologist again until Feb. 1st and he has been no help whatsoever. I thought he would call me to discuss, but…
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Help
Why is it so difficult to receive respite help. I'm the only caregiver for my husband. He is blind, disabled and in middle/late stage Alzheimer. I feel so alone and exhausted. He does not sleep well at night which adds to my exhaustion. I have reached out to the county and Alzheimer association.
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Macular Degeneration and Alz
Took DH to specialist today to check on his macular degeneration, he is several years into it. Doctor was concerned about increasing blurriness in DH's vision, checking for stroke and considering other tests and reasons. I mentioned to doctor the Alz was progressing, doctor had forgotten that and said, "Oh, that explains…
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Is this progression?
Yesterday after doing some errands we stopped at this small restaurant for lunch. It was about 2 so it wasn’t too busy. My husband wanted chicken fried steak so that’s what I ordered for him. I was watching him eat and just had to stop and look at him closer. He had his knife in his left hand and fork in right hand trying…
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New and frightened
My beautiful wife was diagnosed with dementia, likely Alzheimer's last week, she is 69 and I am 71. Two and a half years ago she didn't do well on a MOCA and we were told it was likely dementia but didn't do any additional testing other than the MRI and other blood work. She finally did some comprehensive testing and the…
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Telling others when diagnosis is FTD
My husband has some type of FTD. It has been around 6 years, looking back, that his symptoms started. His primary doctor is aware and did the initial test 2 years ago after I sent her a message I was worried he had dementia. He was unaware I did it. He did pretty good on the memory test and was upset she did it, flatly…
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DH Meltdown over TV this morning
Just need to vent. Another gut punch today. 😪 My DH, diagnosed 2 years ago recently changed to ALZ-Posterior Cortical Atrophy sat down in his recliner to watch TV this morning at 10:30 and became very angry & agitated because he couldn't watch Wonder Woman ☺️ which didn't start until 11am. So that's the latest smack in the…
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Name calling, accusations,
I know this has probably been discussed before, but my partner continues to accuse me of having a guy friend (or 26 guy friends). Accuses me of undressing in front of guys. Accused me of having sex with the wait staff at one of our favorite restaurants. Accused me of having sex with the plumber in our basement. Tells me to…
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Alzheimer's in Families
I just learned yesterday that my SIL will be moving to MC this week and has been placed on Hospice. She is my DH only sibling. She was diagnosed about 2 years prior to my DH. We had dinner with her at a restaurant on June 13 - and now, 4 months later, she is unable to walk, bathe herself, and is incontinent. My DH Mother…
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THE END OF THE JOURNEY
Hello, My husband ended his long and arduous journey with this dreaded disease yesterday afternoon. Thankfully we had hospice, as they swept in like angels and worked with compassion and care to make things easier for us. Right now I am physically and mentally depleted, so i will sign off , but will write more at another…
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Family Choices
My 76 y-o DW was given a Mini Memory Test nearly a year ago. Her result was MCI, which didn’t tell me much. I first really realized something was wrong 3 years ago when several of my friends and family members told me DW said it was me that was experiencing dementia. They said they could readily tell it was her. Thinking…
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Little things that make it real
DH was diagnosed in June 2022 and it's taken me a year to wrap my head around what exactly is wrong with his brain. It's been hard since his doctors will not use the word "dementia" in their discussions with me. Finally a family member who is a doctor took the time to talk to me about what exactly is going on ...VaD or…
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Thursday's smile
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Where are we…..
My DH was diagnosed a year ago after several years of knowing there was a problem. They said he had a high IQ and mental reserves and that is why it took so long to show up. More often than not, he forgets who I am on an evening, forgets he is married. Every night he asks if anyone else is coming. He will explain where…
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Getting a diagnosis
I’m in Auckland, how do I get a diagnosis please? I feel with out my DH hearing it from a professional, we can’t move forward. Help anyone, please?
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Mum referred to memory clinic
Thankfully the doctor responded to my letter and called my Mum for a health check. Asked her several questions (including about cataract operation) and at the end asked if Dad had any concerns and he mentioned the memory issues. Dementia and Alzheimers were not mentioned but she has now been referred to a memory clinic.…
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New to this group and to ALZ
I'm new to this group, and DH was recently diagnosed with Alzheimer's. He is 61, and his father was diagnosed with dementia, as well. I can see, now, that he has actually been struggling with symptoms for about 2 years, but I had hoped that they were simply post-surgical cognitive issues. Today, he was told by the…
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Progression confirmed and my heart breaks a little more
I've been seeing changes in my husband's understanding, abilities, and behavior over the past few months. I knew things were worse. We had a follow-up with his memory care doctor yesterday. Taking the advice of everyone here, I sent her an email in advance detailing what's been happening. We've been in contact quite a bit…
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Can't Get A Clear Answer/Diagnosis
Hi, This is my first time here and I feel like I'm finally talking to my people. My husband began his mental decline around Easter he is 66 years old and has a complex medical history. He started by thinking that things that just occured had occured before, then he started saying that this car that was driving beside us is…
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Caregiver Patience
I am caring for my husband who was recently diagnosed with moderate late onset Alzheimers. Not sure what that means as far as stages but recently it has become more difficult dealing with the various mood swings. He was fine most of the day and all of a sudden in the late afternoon he stopped talking to me. This happened a…