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Just popping in
Hello friends. I just wanted to wish everyone a Merry Christmas and a Happy New Year. I hope you can all find something to bring you a little joy, even though I know it's a hard, hard life. I haven't been on the site for a while, and I just read several threads. Much to my surprise, I found out that M1 and Jo seem to be…
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Merry Christmas and holidays and whatever
I was traveling and just got back last week I asked DW if she would marry me on Christmas day 1972. She was the most brilliant lovely talented young woman I ever met. Heading to Medical School She told me she needed a "wife' someone who would make a home for her"so I said "but will I be sexually exploited" She said "Of…
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Hi and Happy Christmas to you all
Well it is almost a month since the passing of my husband. My grief is palpable but I am so happy he is free from this awful disease. My husband had to have his food puréed and he did enjoy eating a lot, however his dementia got so that he did not even recognize what he was given as food. I realized at that point he was…
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Holiday Pot Luck
How about a holiday pot luck for our forum members? We may not have a lot of time for fussy complicated recipes and we need things that are easy for our loved ones to eat. I don’t know about all of you, but I seem to be at a loss for different things to prepare day after day that don’t take too long to prepare. I could…
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Done
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Done
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Bad start to Christmas
My day started out with uncontrollable crying as I couldn't get it out of my mind that this may be his last Christmas. No matter what I did, my mind fixated on it. My family was coming over for our usual dinner and festivities. I feared I wouldn't be able to keep it together or get through the day. I texted my family…
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Done
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Happy Holidays - are you doing ok?
This is the first Christmas after my husband's diagnosis. Last year at this time we were in crisis mode. We've come a long way since then. He's getting good care and I feel like I have a clue about how to manage this. What has surprised me is how lonely I am this year. So I just wanted to say, if you're having a tough…
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Timeline for Caregivers
I wish I could give potential caregivers advice about when certain symptoms will appear. It would have been the most helpful for me to know when I started on this journey of heartache. But there is no roadmap or time schedule that can be relied upon. When my wife was first diagnosed, at her request after realizing…
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Emory preliminary results are out
The Emory preliminary data results for posted about a week ago on clinicaltrials.gov and there were some surprising results. The results on the NIH Toolbox Cognition Battery Tests showed that the montelukast treated participants declined after one year but the placebo treated participants showed significant improvement.…
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Grieving a father
My dad started showing signs of dementia when I was 14 & by the time I was 15 he was officially diagnosed. Both of his parents had it as well so I was fairly familiar with it. When he was diagnosed, I dedicated every single day to researching and learning as much as I could about the disease.i thought that if I prepared…
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What if you can not take it anymore !
Tonight my DH watched me cook dinner vacuum, wash and dry the slip covers on the couch and then asked when I plan on going home tonightThe he locked the patio door snd I could not get in. I am sitting on the patio taking a break before I have to clean him, change his depends, brush his teeth and make sure he removes his…
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Bible Verse to Lift You Up 12/16/23
CHRISTMAS REMINDS US WE ARE LOVED, BLESSED AND SAVED! Genesis 22:15-18 New Living Translation 15 Then the angel of the Lord called again to Abraham from heaven. 16 “This is what the Lord says: Because you have obeyed me and have not withheld even your son, your only son, I swear by my own name that 17 I will certainly…
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Bible Verse to Lift You Up 12/23/23
Great Verses About the Messiah Isaiah 9:6-7 New International Version 6 For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace. 7 Of the greatness of his government and peace there will be no…
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New Member
Thanks for letting me join this group. I belonged to an on line group and found out my sister was a member and sharing what I wrote with siblings. I felt so violated. I liked the group, most members were helpful and caring. I'm the sole caregiver for my DH. He is 88 I'm 70. It has been the hardest task I've ever…
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A Little Poetry
I had the remarkable good fortune to see and hear Billy Collins read and talk about his poems. He was once name America’s poet laureate. His poetry is deep and often humorous. When he read this poem, I remember my SO and I laughing at some of these points, as we were both getting older and a bit more forgetful. I drift…
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So Tired of the drudgery of Alz Life w/o a break
Today was just another day and I should have been able to just go with it. However, the chronic nerve pain in my back reached a new high, coupled with my DH's uncooperative behavior as I had to take him with me to the podiatrist for a follow up to a stress fracture in my foot, then to a specialty shoe store for prescribed…
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New set of symptoms
My wife just finished treatment for a UTI and I've had another urine sample sent to the lab to make sure it's all clear but haven't heard back yet. Anyway, The last couple of months my DW has really been talking in her sleep, having seemingly normal conversations with her mother sometimes, my name comes up, and just random…
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Always wrong.
This is my first post , but have been reading for a while. It seems no matter what I say there is always a negative response from my DW. It's like I can never win an argument. I just give in and be quite. Was wondering how you all deal with it. She has early dementia and depression. Thanks Lee
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Dementia and Type 1 Diabetes
Hi! Does anyone out there have a spouse with Type 1 diabetes along with Stage 4/5 demential. I am interested in your experiences. My husband uses an insulin pump. I am managing his diabetes at this point. He never remembers to bolus, put on his pump, etc. So far it is working ok but I live in dread of the day when he…
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Bridge Players
My wife is 83 and is in stage 3-4 Alzheimer's. She has all the symptoms but because she was an expert bridge player all of her life she can still play the game. She does not remember the bidding rules but can play the hands fairly well. She only plays with me as partner and we often don't get to the right contract but she…
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New Member
Hi, I’ve been reading the different posts here for at least a year and decided to join in. My husband has Alzheimer’s and was diagnosed about 18 months ago but has had symptoms for 6-7 years.
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Changes in PET Scan Eligibility - New Policy as of October 2023
My DH is in process of being approved for a PET scan to determine if he as FTD. Our neurologist said a change in the policy will now allow most people to be eligible for a PET scan. Here is a summary from the article and a link for more detailed information. This is new, so if you've looked into PET scans in the past, this…
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For those who are grieving
YOU DON’T JUST LOSE SOMEONE ONCE You lose them over and over, sometimes in the same day. When the loss, momentarily forgotten, creeps up, and attacks you from behind. Fresh waves of grief as the realisation hits home, they are gone. Again. You don’t just lose someone once, you lose them every time you open your eyes to a…
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What I miss the most
All the things this disease had taken from us, the dreams of our retirement, travel plans, vacations, ect... The thing I miss the most is the time with our granddaughters. The girls are 4 & 7. We use to get them once a week for sleepover with Memere & Pepere. We would go to the park and play for hours. Now DH would just…
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I'm New Here and Caring for my spouse (husband)
My husband was diagnosed with Alzheimers back in September 2022 and I resigned from my job soon after. I have no income and we are living off his SS. I miss working and I have to do basically everything. I have very little support from his children or family. This is draining. I get upset some days and am frustrated and…
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Blood pressure and Alzheimers
My DH has been on blood pressure meds for years. Same dose consistent. We noticed about 6 months ago his blood pressure was 90 something over 50 something. Several trips to the doctors office measured about the same low each time. Doctor took him down to half dose, which he’s been on over the last 6 months. Todays blood…
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from my computer
The version of you that will handle that tough thing - if or when it happens - will be born into existence in that moment. Trust your future self to handle future problems.
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Question severe difficulty walking.
My DH has started shuffling when walking. His ability to walk has severely declined rather rapidly in the last few months. His gate is unstable snd takes baby steps. If anyone can share their experience. I am not sure what to do and if there is any help or therapy. Is this part of the Disease? Thanks for sharing.