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Just an update
Well it's been awhile since I posted about my dw. She continues her decline, more falls thank God no major injuries , incontinence is setting in, she can hardly walk and now eating is something she doesn't seem too interested in and she is starting to sleep more, not wanting to get up. I can touch her with my cold hands…
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M1
Just wondering if things are getting a little better for you personally.
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Bad day...maybe this is the new normal?
Time to vent...over the last few days my DH is getting more and more difficult, getting upset more often than before. We've been playing pickleball which has been a good distraction, but today he got upset over something that he perceived wrong and, of course, I couldn't convince him that there was nothing different than…
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About Hiring PT In Home Assistance
We're nearing the point where I need to look for someone to come in part time (maybe 10-20 hrs/week) to help care for DW (hygiene, simple meals, companionship etc). For those of you who've hired part time help, what do you know now you wish you'd known at the start? Thanks.
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A lucid moment...anyone else experience this?
The most unbelievable thing just happened. DH had a moment of lucidity in which he seemed to realize that his behavior had been unpredictable and unusual. He seemed to recall that two or three days ago he had made little balls of wet toilet paper and placed them all around the bathroom. He wondered aloud if there were…
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National Emergency Alert System Test October 04
May be upsetting for our Loved Ones with dementia: ALERT: For those who are unaware, tomorrow, Wednesday, October 04, there will be a massive testing of the National Emergency Alert System on cell phones, radio stations and TV stations across the entire U.S. The cell phone sound should be rather loud or vibrating or both.…
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Feelings after stage 8, no my DW isn't there yet.
I was looking at my DW last night as she fell asleep on the couch while we were watching TV and thinking to myself how heartbreaking it is to see how she's changed as a person with this disease and how far removed she is now from who she used to be. I felt such empathy for her but at the same time glad she doesn't realize…
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The end of my story
My Husband Clarence passed last night. He went peacefully. He no longer knew any of us and he wouldn't have wanted to be that way. He was a proud retired Navy veteran who served in two wars. We had two sons and 2 grand daughters and 2 honorary grand children. He was so proud of the adults they had become. I will be OK…
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Looking for a bit of help
My husband is so confused. We have the same conversations every day-many about the pills he is taking. He will just randomly stop taking a drug (he's on 10 drugs to keep him alive for heart problems). I work with his doctors and try to find solutions. I think we have a good regimen now. It's just so soul sucking and time…
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No filter (for a laugh)
My husband lacks the ability to sugarcoat things now. Not mean, just overly honest. Tonight in response to my asking how his dinner was: "it wasn't horrendous." LOL. In all fairness it was just roast chicken and steamed vegetables. I'll take it as a win.
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DW gets Covid
Having avoided covid for three years DW was infected last week Using paxlovid and she seems to be ok
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Lonely
For some reason, today I feel/felt very lonely. My DH along with ALZ, has a traumatic brain injury and 24/7 care. Family is not at all supportive - my sister just looked at me this weekend and told me I have my hands full. They ask no questions, but sure can pass judgement in a flash! My older (bossy sister) who is an RN…
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privacy
I forgot to think about privacy when I started posting on this forum. Hopefully, I will be able to appear with a different name if my editing is working. Just wanted to let all of you wonderful people know.
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my husband hit me and now he is telling everyone that he did not do it- I am enraged.
partner keeps telling everyone that he was trying to grab my arm and he accidentally hit me. This is a blatant lie. He hit me with the palm of his hand on my back. I was willing to move on but this is unacceptable. He keeps telling the inaccurate story about grabbing my arm and people seem to be buying his story. They're…
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Help with daycare and personal therapist
Been looking to no avail for a memory cafe or daycare that my DH would actually be interested in going to. He’s not into chair balloon volleyball or painting classes or such! There doesn’t seem to be anything in my area for those with mid stage dementia to participate in! Something that would stimulate his mind. He loves…
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MCI and sleeping
Hi everyone, My spouse was diagnosed with MCI awhile back and things are not improving, but my concern at this point is his sleeping. As of a few months ago he was still diagnosed with MCI, not alzheimers. He will sleep all day until 7p.m., get up for a bit then go back to bed and sleep all night. I don't understand the…
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Just checking in
It will be a year on the 27th that she passed, next week if things go right we will be spreading her ashes on the places she loved. I miss her every day but I'm glad she passed. That was no way to live as Alzheimers' took over . Thanks again for all your help. I am slowly adjusting to it all. I've gave the information to…
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Any experience with Depakote?
Hello , Well, we are still trying to get DH on a regimen that has him sleeping through the night. He still takes seraquel, and his doseage has been doubled as of Sunday. This he seems to tolerate, and it does modify some of his erratic behaviors as of late. Last night i gave him melatonin, and it seemed to work, but not…
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Compensation
I had to quit my job to take care of my DH who was diagnosed. Is there compensation I can apply for. I am on SS. Also I am so glad to find this site! Sometimes I just need to vent!
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Drapper
In one of your posts you said "Thinking of it as a choice makes me less of a victim and a better caregiver." I know you took the course offered by Natalie Edmonds. I've been a strong believer that if you can change the way you think about caregiving situations (that's what you did), that can make a real difference in how…
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Separation Anxiety
I have a fairly new male care helper spending 4 hours 1x week with my DH. He takes him out on walks, driving range.etc ( has been here about 6 weeks ) Last week after 3 hours my DH wanted to go home to see me. I was not there, and he really freaked out. He was yelling and throwing things around. Needless to say, I had to…
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Sundowning question
My DH had sundowning months ago when first diagnosed with Alzheimer's. Seemed to last about a month. He's not sundowned for close to 4 months. And he's back at it again. Does sundowning appear thru all seven stages?
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Learning about myself
Almost 3 years since DH dementia diagnosis. I’m not only learning a lot about this awful disease but also about myself! Some I’m proud of some not so much. My recent “aha moment” really opened my eyes. I’ve been very short tempered and not understanding with my husband’s shadowing me. Why? I know the obvious answer, but…
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The Cavalry Isn't Coming
Venting alert. The Cavalry isn't coming....And boy howdy, is that ever the truth. I don't have the link anymore to that thread, but it was such a helpful smack of reality. I still didn't realize how much of a reality until recently. I guess I can read something and get it intellectually, but reality is more than the…
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ED1937, how are you?
Hi , With all of the most recent events at our house, ive been a bit caught up in my own dilemmas. I've not seen any recent posts from you and wanted to check in to see if all is well. Sending a hug, Maureen
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Dreams/Nightmares
Hi all, My dad has started having dreams/nightmares about his parents. They died in 1967 and 1971. He is dreaming that they committed suicide, they did not, and he wakes up crying. He has been talking about his mother a lot which is something new and he is not mentioning my mom (his wife) anymore. She died 11 years ago.…
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Covid vaccine question
Have any of you had the new Covid vaccine yet, the one that was just released a week or two ago? Did you have any reaction to it? I just want to plan ahead in case I am going to spend a day not feeling well. I would be getting the Pfizer vaccine.
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His autonomy vs My helping
Where is the line? DH wants to do so much but many things end up being a fiasco if he proceeds on his own. Yet he refuses my help. Do I let him fail at the attempt or step in to help him accomplish the task? Even if he asks for help, he quickly rejects it soon thereafter. It's takes every ounce of patience I have, and…
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My husband hit me today - he has never hit me in 41 years of marriage but now..
Today, I put some boxes on our deck to throw away in the dumpster up the street and my husband just hauled off and hit me square in the back right where I have an 11 inch incision from recent back surgery. He hit me where he knew he could hurt me the most- I am in shock and very upset. Can anyone help me with this one? I…
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Webinar from AFTD
Sharing in case it's useful to others. The Association for Frontotemporal Degeneration is holding a webinar with their helpline staff on October 2.…